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Just found out we have colon cancer

captainhop's picture
captainhop
Posts: 156
Joined: Dec 2008

We just found out Tuesday, Dec. 16 that captainhop has colon cancer...Dr. recommends immediate surgery. Going through all the first emotions of shock, anger, disbelief,anxiety,etc. Appointment w/ surgeon Monday. What can we expect. Dr. said this called for immediate surgery to remove the entire colon

hopefulone
Posts: 1048
Joined: Jan 2007

I'm sorry to hear this news. I remember all too well when my husband was dx. I know what a shock this is. We all do. It's two years now almost to the day and we've been through quite a journey. Colon Surgery, Liver Resection Chemo and RFA a month ago, but through it all we did it one day and one thing at a time and we still do. Remember that because it will help you get through what lays ahead. Be sure you ask a lot of questions and in this situation you need to be your own advocate. If your not satisified with answers from the doctors, get second opinions and a third if necessary. As for the surgery and treatment plan , I think everyones experience is different depending on where and how extensive. You'll get a lot of support here . My husbands colon resection went very well and he was in the hospital about 5 days, as did his liver surgery. He also tolerated his chemo regimen well. It's a scarey time but you'll get throught it. As difficult as it is dealing with the news, try to keep positive thoughts, stay away from statistics and ask lots of questions and remember prayer is powerful. God Bless and keep us posted. Will keep you in my prayers.
Diane

captainhop's picture
captainhop
Posts: 156
Joined: Dec 2008

Diane:

Thank you so much for responding. We do appreciate it. I believe we've gotten over the first shock, anger, disbelief, etc. now and we're facing reality. I've encouraged my husband to talk about this ugly thing that has come into our lives. He's being pretty open with me. ""This is OUR cancer and WE will handle whatever is thrown at us together, hand in hand". I'm a very strong person emotionally and have been a cAregiver to others. We pray for guidance wisdom and knowledge.
Dr. said this required immediate surgery, as it is "quite distinctive". We meet w/ the surgeon Monday next week to set up surgery. Praying it hasn't metastasized. We're dealing w/ 2 tumors in the colon.

We do believe there is power in prayer and want to thank you for remembering us in yours. That means so much.

We have 4 sons, 39 - 49 and my hubby is telling them today. May God be with him.

Thank you again. Sorry to have written a "book", but it's so good to have someone to talk to.

Mary

dorookie
Posts: 1736
Joined: Jul 2007

Mary,
You will find someone here at all times to help you through whatever you need. There are so many great stories here, alot of hope and alot of prayers! You will find people in similiar situations as yours so you can relate. You will find so many people willing to be there for you even if its just to listen to you vent. We are here for your husband as well, please tell him to feel free to jump in at anytime with his questions, we would love to meet him too.

I am one of the younger ones that have been DX with CC, but unfortunately we are finding more and more young people here too. I was 38 at first DX, went through surgery, chemo, radiation, cmemo and was actually clear of cancer for a few months. It has recently come back in my lung, so I underwent surgery and I am cancer free again, but now I have to do chemo again, which I will be starting tomorrow (friday). Not a good Christmas present for any of us huh? But we all have family or friends and we have this place to come to too!

Welcome Mary, sorry you have to be here but you have found a great place of peace, information, love, and support!

You and your family will be in my prayers as well!
God Bless
Beth

captainhop's picture
captainhop
Posts: 156
Joined: Dec 2008

Thank you Beth. I'm so sorry you had to go through all this at such a young age, and then it returning. Sounds like you're facing it with lots of strength. Proud of you. We're taking things one day at a time even tho we only found out 2 days ago. Hop and I are talking openly about this and I thank GOD for that.

I so appreciate your response. It's good to have someplace to go if I need to talk and I'm going to try to get Hop to get on here also. I'm sure he has questions and talking to people who have "been there, done that" will help.

May God bless you on any and every journey you take and

Have a Very, Very Merry Christmas.
Mary

dorookie
Posts: 1736
Joined: Jul 2007

Merry Christmas to you and Hop as well. I believe you will find this board to be so helpful and supportive, I sure have. Mostly its very inspirational, dont read or believe satistics they will scare the heck out of you, they did me! Cancer no longer means a death sentence, we are all proof of that! Make sure Hop knows that too! I look forward to hearing from Hop, with that name he has got to be a great guy! I bet he is funny too!

God Bless you all
Beth

jillpls's picture
jillpls
Posts: 241
Joined: Mar 2008

I'm so sorry to hear your cancer has returned. When mine did it was harder to accept. It too returned to the lung and gut area. I've been on folfiri since April plus Avastin. Then in the past month my dr said I may be able to have surgery. So went to drs for opinion of surgery and both said no, that the tumors were so small and so little activity that it would do more harm than good to do any surgery. They couldn't even see the turmors. So there is always hope. I had prayed for surgery but instead God did even more than I asked for. Faith and prayers are so important. God bless you on your next treatment. Stay strong and know that it's going to get rid of everthing once and for all. Do have a Merry Christmas.
God be with you always
Jill

impactzone's picture
impactzone
Posts: 534
Joined: Aug 2006

Stage 4 here and a couple of pieces of advice from a guy who has had liver, lung, 10 months of chemo and colon surgery... If possible, go to a major cancer center, make sure you have a great surgeon and team in place, accept all the help and support others offer (I tried to be tough and do everything anyway), ask questions, take notes in a notebook with all your records, get copies of everything right at the time and not going back afterwards, don't be afraid to get a second opinion on anything (even if the first is good). There are great people here who will help. All my best

Chip

msccolon's picture
msccolon
Posts: 1956
Joined: Oct 2004

From another mary, I am sorry to see you having to find this board, but I am SO glad you did find us! You will find so much information and hope here. I was diagnosed in August of 2004 at age 43. I can STILL remember the shock! My surgeon wanted to go ahead and get me into the operating room, since I was already cleaned out (but I think he was just testing my spirit; I can still see his face at that time). Of course, I said WHOAH! I took a few days to get things in order, get my head around the news a bit (it takes quite a while to TOTALLY get your head around it, but I needed some time to get a grip!). Not quite 2 weeks later I went in. The surgery went well. Did follow up chemo. It's been an up and down ride, but here I am on my 5th year! I can remember that first year fully expecting to just drop dead at some point without warning; after all, we all know cancer kills, right?!! Well, once I discovered that wasn't going to happen, the fight got just a bit easier! I have had a wonderful support system, between family, friends, and online friends! Take the advice of not paying attention to the statistics, they will scare you! I am one who loves information; the more the merrier! But even I have discovered that there's a point at which the information becomes too much and doesn't always apply anyhow! You will see there are a large number of people here living with this beast and living well! You have a bunch of stuff ahead of you and I hope you and your husband come here often for support, to vent, whatever! I will be praying for you.
mary

KathiM's picture
KathiM
Posts: 8077
Joined: Aug 2005

This is one of the best CRC tumor boards around.

Take a notebook. Start writing down questions.

One that comes to mind immediately is the possibility of a J-Pouch proceedure. This is where, after colon removal, a 'new' rectum or pouch is fashioned with small intestine. All is internal. My beau's cousin had this done, not for cancer, but for acute ulcerative colitis. He goes EVERYWERE now, even to the outlying areas of China.

I have an internal J-pouch also, but it's fashioned from descending colon. It functions just like a 'normal' rectum...

Hugs, Kathi

ldot123's picture
ldot123
Posts: 276
Joined: Apr 2008

Hi there,

I am sorry to hear about your husbands diagnosis. You have come to a great message centre. I have found it to be by far the most positive message board in the cancer community. We are like family here. We know better than anyone what you are going through. Ask as many questions as you want, even if you think it is silly. There is no such thing as a dumb question. You will have lots as you go through the journey but the people here are always ready to provide information or support. Good luck to you both and stay positive!

Cheers, Lance

captainhop's picture
captainhop
Posts: 156
Joined: Dec 2008

Thank you Lance. I'm sure I'll be on here quite a bit. BTW, my PC died this morning when it got unplugged by the carpet cleaners.......Reason for not answering some of these posts sooner.

I'll be back w/probably more questions that ya'll care to hear.

Thank you so much ....ALL OF YOU....for letting us be part of your family, even tho the circumsances are less than desirable.

God Bless
Marygale

captainhop's picture
captainhop
Posts: 156
Joined: Dec 2008

Thanks Kathi. That is one question I'm going to ask for sure. Is something I hadn't read about yet. Appreciate your bringing it to my attention.

Marygale

captainhop's picture
captainhop
Posts: 156
Joined: Dec 2008

thank you Mary for your suggestions and insite. I'm going to try and make sure we do most everything ya'll are suggesting. Sounds like very sound advise.

I'm so sorry you had to go thru this also, but you made it the 5 years and I'm proud of you for that.

I'm researching all I can and taking notes. I'll try to post something Monday night after we hear what the surgeon has to say.

God Bless

Marygale

Mike49's picture
Mike49
Posts: 269
Joined: Nov 2008

I can tell you that the support of a spouse or significant partner is invaluable. I am so sad for your news but know that your husband has an engaged partner in this fight and you are important. I can't begin to tell you how much my wife being my partner makes my fight stronger. We each have our days where we are strong and not so strong. She is there for me and I keep positive because and through her love.

I had surgery in October and I am on Folfox and Avastin now. You will see posts here of people who have fought this disease and won. Some fight on and this is like a chronic disease for them. I don't know where my fight leads except we are all looking for the NED (no evidence of disease) state.

Good luck, the members of this discussion board are incredible and I assure you, they are sincere in there concern for each other. Welcome although I am sorry about the circumstances that brought us all together, there are some of the most incredible true stories of caring and courage. I motivates us all.

Mike

captainhop's picture
captainhop
Posts: 156
Joined: Dec 2008

Mike, I wAnt to thank you for your wonderful words of encouragement....So many in this group have given me words that will stay with me and help to carry me through -- which I'm also passing on to Hop. Yep, Hop and I plan on doing this together, as I said, it is OUR CANCER, not just his. It will be a hand in hand thing, although I'm sure we both will have our "down" days....and I believe he understands that.
He told our 4 grown sons today and I'm sure that was very hard for him. We have 8 g.childfren and one of the grandsons (very close to his g.pa) wants Hop to be his Best Man at his wedding............don't know when that'll be, but now that he knows the news, I do believe it will be sooner rather than later.
I am gaining strength from reading all the posts - and trying to get Hop to join in -- he's just not ready yet. Believe still in one of those "first emotional" states.
Thank you again and my best to you and your better half. May God Bless and Keep You both.

Marygale

kmygil
Posts: 881
Joined: Feb 2007

Dear Mary,
I'm so sorry to hear the news. It is a journey of major physical, emotional and spiritual proportions, but you will both come out of it stronger. I believe in survival. Be your own advocates--ask questions, educate yourselves and stay strong! This board helped me so much on my own journey, so don't be a stranger. You can ask anything, vent and give your own input. You are in my prayers.

Hugs,
Kirsten

captainhop's picture
captainhop
Posts: 156
Joined: Dec 2008

Thanks so much, Kristen. I so appreciate everyone's responses. They're already giving us strength.
And, I do have so many questions, but don't know where to start. We've been told this is a really tough surgery, and that scares me somewhat. I pray for wisdom, knowledge, understanding, the ability to handle the "down" times with Hop...........the whole 9 yards. But mostly, I pray his pain won't be to awfully severe, as he doesn't handle pain well. Gotta tell ya, my heart is just breaking for my love of 50 years. He's 71, but a very young 71 with a sense of humor.........I hope that also will see us thru
He's hurting this morning, near where the 2nd tumor is, and just doesn't feel good. Having been a care giver myself, I'm watching him closely, as well as giving what support I can, and above all, giving him my love.
I can handle most anything, but I would gladly take his pain for him if I could.
YES, I'M SCARED and I know he is too.........Again....I feel we must cross these unknown bridges when we get to them and not try to do so before hand
Going in to take a shower and try to renew my thoughts for the day.
THANKS AGAIN, KRISTEN.

Marygale

msccolon's picture
msccolon
Posts: 1956
Joined: Oct 2004

Marygale, i believe your husband will find out he has a stronger tolerance for pain than he thought. This beast has a way of bringing out our strengths and showing us just how much God has blessed us with. He WILL do well in surgery, you WILL be strong for him and you both will be on the other side looking back and being glad it is over and you are moving on to newer things!
mary

captainhop's picture
captainhop
Posts: 156
Joined: Dec 2008

THANKS, MARY

You are probably right -- bringing out the strength in both of us, and it's already brought us closer together.

And, true, we HAVE been blessed, Soooo blessed. 4 healthy sons, 8 g.children....our love and the 50 years we've been married and on and on. During these initial shock and awe emotions, I guess I'd put our blessings on the back burner. Thanks for bringing them forth for me.

We both admit this beast is on our minds 24 / 7, It's like...we're going to wake up and realize it's all been a bad dream.........But that won't happen. Reality check every so often.

Thanks again. It's so good to have someone else to talk to and know I can vent if I have to. I'm still trying to get Hop on the computer w/ this forum, but I really think it's all to fresh in his mind right now......and he's not feeling real well today.

May God bless you and yours with a
Very Blessed CHRISTMAS AND A WONDERFUL
NEW YEAR,

Mary

CherylHutch's picture
CherylHutch
Posts: 1399
Joined: Apr 2007

Marygale... I wasn't sure where to jump in here since everyone is doing a fine job of giving you great information. But, in this post you mentioned you mostly pray his pain won't be too awfully severe.

Let me be the first to tell you that you and Hop should put all worries about pain into the background. Nowadays, no matter what options of treatment you/Hop will be given, pain management is always a given that it will be there. NO ONE should ever have to suffer pain, be it from a surgery, a side affect of a medication or just the way some of the meds may aggravate pre-existing conditions (in my case, arthritis in the knees). There are pain management teams that deal specifically with making sure the patient is not in pain. Pain is so detrimental to healing that you'll find the doctors put Pain Management as a top priority.

The only people who will actually suffer in silence in pain are those that are not honest with their doctors and let them know, "Hey, I'm in pain!! The such and such med that is suppose to help with the pain is NOT working!" Not all meds work the same on all people, so it's up to the patient (or caregiver) to let the doctors know when something is not working or a new pain arises.

So, rather than worry about future pain, instead make sure you know who/which doctor you can turn to to monitor pain management. Hop will end up with so many various doctors who do different specialties, so in your notebook of questions, question the oncologist, then the surgeon with "What are our options for pain management?"

Hop will do fine. You will also do fine :) The worst part of a DX is the wait time between DX and when you have the discussion with the oncologist about what the plan is for treatment. Once treatment begins, be it surgery or chemo or ?? it will be a huge relief to get out of that waiting period :)

Hugggggggs,

Cheryl

captainhop's picture
captainhop
Posts: 156
Joined: Dec 2008

Thanks so much Cheryl....I've added some questions in my notebook because of your wise email. You've put my mind at ease some regarding Hop's pain management.

And, Yes, this waiting is HELL....to put it bluntly....He feels like a prisoner in his own body, waiting to be sentenced -- HIS WORDS...and I can understand that..

Thanks again
Marygale

VickiCO's picture
VickiCO
Posts: 934
Joined: Oct 2008

I am a recent joiner as well, DX'd 10/22 currently doing chemo 5FU & radiation in prep for surgery. I cannot tell you how much this list means to me. I, too, have a wonderful, supportive spouse and I couldn't get through this without him. Hugs to you, because as I watch him and I know how hard it is to be on the other side.

Vicki

captainhop's picture
captainhop
Posts: 156
Joined: Dec 2008

I'm so sorry you're also having to go thru this and my best to your spouse for the support he's giving you. I'm sure he has his moments alone when he cries for you (I do that for Hop--but try to be in another room)...Then sometimes, we cry together. Tears are cleansing and are a good source of relief and stress. I wish you the best of luck w/ surgery and Pray God will see you both through it w/ flying colors. Every one is telling me "ONE DAY AT A TIME", and that's what we must do......In fact, we're taking one hour at a time, trying to prepare ourselves for the surgery.

I know your spouse, as well as myself, would gladly go through all this for you and Hop if we could.

I pray for a rapid recovery and good outcome for you, my friend. Just HANG IN THERE. I'll remember you in my prayers, Vicki.

If you haven't already.....just a suggestion .....we have a tremendous Prayer Chain going right now, from people we don't even know.....Churches in other states...2 forums I belong to as well as friends and family. There is so much power in Prayer...Now, we've found this group and everyone is wonderful.

May God bless you thru this and be with your spouse as well.

Thank you for the response.

Marygale

Buzzard's picture
Buzzard
Posts: 3073
Joined: Aug 2008

There is no reason for a cancer patient to have any aches or pains at all... My rad/chemo dr says if you hurt tell me , I have a medicine that will make it go away no matter what it is I can find something to make it go away. We go through enough without having constant,chronic pains........Morphine after surgery for 2 days and then Lortabs were my friend then nothing now.....but if you need them get them...... thats what they are there for........God Bless ya

Pat in Texas
Posts: 2
Joined: Jan 2009

Hello,

I am not sure what you have been going through but I just wanted to ask you about a few things. I have a port installed for the treatment and am due for my first one on Jan 26th. My main concern and (probably needless) worry is about how they will open up the port to put the medicine in. I have had a tough time with the discomfort from this port and all around the area is very sensitive to the touch. Can you shed some light on this for me?

Thanks.

VickiCO's picture
VickiCO
Posts: 934
Joined: Oct 2008

They do not open the port to give you the chemo...the needle is inserted right into the port, through the skin. The chemo line (plastic tubing) is attached. It is secured to your chest, usually with a large adhesive 'window'. All you feel is a needle prick, and the good oncology nurses help you through the insertion so that you barely feel it.

The sensitivity around the port will go away with time. If not, TELL YOUR DOCTOR and they can decide how to fix it for you.

Hope this relieves your fears.

Vicki

KathiM's picture
KathiM
Posts: 8077
Joined: Aug 2005

about telling your doctor if the pain doesn't stop....

My infusion nurse sprayed the area with a topical numbing spray before insertion, and as she was inserting the needle, I held my breath. It worked for both cancers' worth of infusions, and a TPN (feeding) in the hospital later on. 2 years after insertion, it was removed, and the insertion line is almost invisible.

Hugs, Kathi

captainhop's picture
captainhop
Posts: 156
Joined: Dec 2008

Hey Buzz: What is your email address. Hop has something to send to you.

Marygale

captainhop's picture
captainhop
Posts: 156
Joined: Dec 2008

Just sent a msg. to you.

Hop and Marygale

VickiCO's picture
VickiCO
Posts: 934
Joined: Oct 2008

Marygale,

I do have a strong prayer chain. Our neighbors and good friends are ministers and they have been a great comfort. They help and pray for Dick as well. Our Faith is strong and we will get through this.

Vicki

captainhop's picture
captainhop
Posts: 156
Joined: Dec 2008

I'm so glad you have a prayer chain going. That is the route we're taking. With God, anything is possible, so I know HE will help us thru this. HE's already helping by sending you guys to us.

MG

maglets's picture
maglets
Posts: 2592
Joined: Jun 2006

Mary I am brand new to this forum and I feel that I have found friends within 24 hours. I have been fighting this tipsy/topsy cancer for four years now and I know one thing. People used to say this to me when I first started and it sortof bugged me but now after these years I know it's true......Don't Give Up////even when the docs get down or the odds are looking so bad just keep going....
I have the most amazing spouse in the world and I don't know how he does it....hard job.

So blessings to you and your spouse Mary....the first days are so fraught with thoughts and difficulties.

All the very very best love, mags

captainhop's picture
captainhop
Posts: 156
Joined: Dec 2008

Mary, can you help me out here. I noticed you signed the Caringbride I set up for Hop...Thanks so much.

The site shows we have 44 visits from family and friends, but I can't get to them to read them. Wanted to print them out for Hop. HOW THE HECK DO I GET TO THEM?????

Marygale

msccolon's picture
msccolon
Posts: 1956
Joined: Oct 2004

Sorry, I was out of town and haven't been online! I saw in another post polarprincess gave you the information you needed regarding visits vs. comments. You see at the top of your page you have links such as photos, journal, guestbook, etc. If you click on the guestbook link you can read the entries. Journal will take you to the journal entries, photos will take you to the photos, etc. At the bottom of your page you can see the number of times your guestbook has been signed for that day, so you can see if there is a new post or not. The count of visitors is just that, the number of people who have viewed your page. It is fun to see those numbers go up, and posting a new journal entry or putting up a new photo will ensure visitors keep coming! Most visitors elect to be notified when something new is posted on your site, so when you put something new you will see new visits! And if you want more comments in your guestbook, say so in your next journal entry! Your visitors will be happy to oblige! Some people just come to read though and don't post; that's ok too!
mary

captainhop's picture
captainhop
Posts: 156
Joined: Dec 2008

Thanks Mary. I finally figured it out. Now, I must get a good pic. of my Hop, so you all can see my comedian hubby. A real John Wayne fan and our sons say his build reminds them of JW.

The Caringbridge is really nice and will be so helpful when we're out of town...appointments, surgery, etc.

I so enjoy reading visitor's entries....NOW......IF I CAN JUST GET HOP COMITTED TO READING MORE ON THE PC......

Marygale

VickiCO's picture
VickiCO
Posts: 934
Joined: Oct 2008

Marygale,

I LOVE my caringbridge site. It is how I keep in touch with my huge and scattered family, as well as my many, many friends worldwide. They all hear the same thing at the same time, reducing those dreaded family rumors! LOL! I post nearly every day, and I did ask for return posts. My talkative group obliges! It keeps me going at 3am when I can't sleep.

Tell Hop he will love it too... Vicki

captainhop's picture
captainhop
Posts: 156
Joined: Dec 2008

I already told him.....I guess it's going to have to be IN HIS OWN TIME...In the meantime, it's helping me to cope.

Marygale

captainhop's picture
captainhop
Posts: 156
Joined: Dec 2008

Lord, Have Mercy..........We were gone 7 hours today. Pre-op appointment.......Not much to report, as they just went over everything they're going to do during surgery that they know of...........Nurse "marked" Hop's tummy just in case..........We saw the anesthesiologist, did an EKG, cross matched and typed blood, and they took more blood....all that good stuff. We go back Monday for a stress test, then surgery Wed. Jan. 21.
Very tiring day. Hop is getting more anxious all the time and dreading it more w/ each passing day. I'm having a hard time getting him to keep a positive attitude, so today I told him if he didn't get his attitude changed, I was going to kick him square in the butt and THEN, we'd have a talk. He just grinned.............That's my luv ! !

I'm keeping our Caring Bridge journal updated if any of you want to read the updates in it.

Thank you all for being here.
Marygale

amcp
Posts: 251
Joined: Jan 2009

Mary
We are with you in prayer. My husband was dx in Aug 2006 and had surgery 9/06 and was given a permanent colostomy. His had metastized to the liver and has been on chemo for two years.
We just got back from Vanderbilt where they told us they are going to do lung resection to remove a spot in his right lung which might be cancer and after 6 weeks of healing they can do the liver resection. After being told nothing but terrible prognosis ..we now have hope.
The bag is not a problem for Frank or I. Joking when I tell him I am going to kick his ***..he ask which one! ha ha In Vandy they told him he had to quit smoking if he wanted any surgery, after 45 years of smoking he layed them down the night of the 14th and has not smoke one yet. Tell Hop to keep up his spirits, he can fight and win this battle. Prayers are going up from him and you from us and a lot of others. We know howing tired we were after multiple test this week. You are such a lovely couple and remember "all things are possible through Christ our Savior" We will keep you in our every prayer and keep is updated. We have two sons and they have been amazing.

God be with you
Anna

captainhop's picture
captainhop
Posts: 156
Joined: Dec 2008

Just wanted to wish you good luck with surgery. As we're going in Jan. 21, I'll try to give updates as I get them. I'll be staying at a Hotel during the 5-7 days Hop is in the hospital, but will only go there of a night after he's holding his own. I feel I must rest, take showers and revamp so I can take care of him when we come home.

I'll be thiking of you, especially the week of your surgery. As I said, right now, we're in the "Anxiety Mode" and I'm having problems keeping Hop's attitude positive.

Blessings,
Marygale

VickiCO's picture
VickiCO
Posts: 934
Joined: Oct 2008

I go in Feb 4. Luckily we live in an urban area and the hospital is only 45 minutes from our town...so DH can sleep at home. My bestest friend ever is coming in from Illinois to take care of me when I get out. We plan on lots of laughter. She even threatened me that if I don't behave and do all things I should, she will 'get perky' on me. Oh no....not a perky 57 year old! I can't take it! LOL!

Good luck to you and Hop. We will be praying for him on the 21st.

Vicki

MoonDragon's picture
MoonDragon
Posts: 194
Joined: Jun 2005

Marygale, if you're in California in my area and would like to stay with us, you're more than welcome!

Wishing Hop the absolute best and tell him to stick an "e" on the end of his name! Hop = Hope!!!

Hugs!

Jorie

KathiM's picture
KathiM
Posts: 8077
Joined: Aug 2005

I live in Southern Calif...in Redlands...where are you?

Hugs, Kathi

captainhop's picture
captainhop
Posts: 156
Joined: Dec 2008

Thanks for the offer, but we live in E Central Illinois. That is ever so kind of you. Things like that from this group really touches our hearts.

I'll tell Hop to add that "E" on the end of his name.

Thanks again. You're very special.

Marygale

taipei
Posts: 33
Joined: Aug 2008

Hi captainhop: sorry to hear you have colon cancer, but have faith, and pray that God give you strengh to travel through this road, I was dx T4 cc mat to liver and lungs on July-2003, after few surgeries, and chem. I am still NED. God bless you.

Kanort's picture
Kanort
Posts: 1275
Joined: Jan 2004

Please forgive the delay in responding and wishing Hop my very best healing wishes. Remember to take care of yourself as you take care of your husband. Please keep us posted on Hop's surgery and recovery.

Hugs,

Kay

captainhop's picture
captainhop
Posts: 156
Joined: Dec 2008

No problem. Don't worry about it. Thank you for the warm wishes and the thought. Means so much.
Surgery is day after tomorrow and need less to say, we're both feeling very anxious. Our 4 sons will be there with us.........We're drawing strength and support from them also...Had to laugh...it's so hard to get all 4 of them together at the same time in the same place, but Hop didn't have to go to extremes to do it. LOL

Thanks again. I'll have my lap top with me and will post updates several times a day probably on www.caringbridge.org/visit/galehopkins

Praying so hard that they do not have to do the Colostomy.

Hop and Marygale

amcp
Posts: 251
Joined: Jan 2009

Hop and Marygale...you are in our thoughts and prayers. We will be with you in thought and spirit the day after tomorrow. Having gone through this and having two sons ...we know how you are feeling. I hope and pray that he does not have a colostomy but Frank had to have one and it really is not a big deal to deal with. The important thing is to get the cancer and beat the beast. Life with a colostomy is okay ..it does not keep Frank from doing anything. It only changed his way of dress. He always use to tuck his shirts in and now I buy him shirts that go out. It helps to camoflague the colostomy bag. I help him put on the seal and bandage everytime. Again you both are in our prayers. We will look to your caringbridge site. My husband's site is www.caringbridge.org/visit/frankproctor
God be with you both.
Anna

captainhop's picture
captainhop
Posts: 156
Joined: Dec 2008

Dear Anna:
Thank you so much for your kind words of encouragement and uplifting message. We both appreciate it. I've gone over and over how Hop can do things he did before IF he has to have a colostomy, but it just doesn't sink in. So....I have enough material and research laying around here, I think when he's ready to read it, he will. It's just that it seems the closer it gets to Wed. Jan. 21, the quieter we both become...........and I've kept a positive attitude going around here since Dec. 16.......But, to both of us, it just feels like we're on the "BIG COUNTDOWN" and we're not ready.
I pray they don't find anything more and there will be no need for a colostomy, but if there is, we'll make it.........With God's help and people like yourself......we WILL make it. I'm going to visit Frank's caringbridge.
Thanks again,
Big hugggggs,
Marygale and Hop

Buzzard's picture
Buzzard
Posts: 3073
Joined: Aug 2008

God has carried you this far and He will continue to do so.....Please don't build your hopes up just to not have a colostomy because it happened to me and it was a great fall for me , a real letdown. because I had counted on not having an ostomy, but it happened and I am fine with it. The cancer is the concern, not how we look. Im still a sexy devil with a sack on my pack, and thats just the way it is....But seriously, don't dwell on the fact that the ostomy is the end, its a new beginning. I have one and seriously would rather have it than a reversal done. At least now I know when I got it all.........hehe.....My God and my prayers will be with all of you and especially Hop before during and after surgery ..Keep us posted...God Bless you both.........

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