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Astrocytoma Grade III-Survivor

Quilmes
Quilmes Member Posts: 7
edited March 2014 in Brain Cancer #1
If any one needs help please let me know, I went through brain cancer and have lived. My calling is to help others survive also.

Jose
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Comments

  • needingmore
    needingmore Member Posts: 5
    Hello I'm glad you are doing well. I'm okay but I sometimes will need to talk with those who know what it has been like. I'm pretty used to it now because it's been since 2001. Just wanted to say Hello and maybe we can discuss situations concerning tumor sometimes. I have my annual MRI tomorrow.
  • needingmore
    needingmore Member Posts: 5
    Thanks Jose, it is my job as well, to help others who have gone through the same thing as you & I.
  • gvillek
    gvillek Member Posts: 1
    Hello, first of all thank you for telling others about your story. My sister who is 26 years old and is fighting for her life. She also has Anoplastic Astroyctoma – Level 3. She has two small children and I live 90 miles away. I can't express the hope it give me that there are individuals that have survived this cancer! I have been searching for ways to encourage my sister not to give up.
  • kmd1019
    kmd1019 Member Posts: 1
    Astrocytoma
    Jose,

    This friday it will be 4 weeks since my 90% resection of my Astrocytoma Tumor. Yesterday I met with the Oncologist to get the next step. I found out that the next step will be 6 weeks of radiation and chemotherapy. I am trying to be strong and not doubt. Everyday I wake up and say that I am going to beat this thing.
    I am 28 years old and my husband and I just celebrated our 6th wedding anniversary on the 19th.
    What lead you to your tumor discovery? How did you cope with the times of doubt? My surgeon has been amazingly positive so I try to cling to that, but still get discouraged.
    I pray that all is still well with you, and if you could please fill me in on your journey.

    Thank You,
    Kara
  • munroe
    munroe Member Posts: 4
    heyrabbit said:

    hi good luck i had a grade 3/4 astrocytoma left frontal lobe 10 years ago wow if you have any questions about it and the last 10 years please get in touch and i will help you out

    grade III AA
    I got graded a III after they said my AA was originally a II so craniotomy and complete resection was done. I have 3 year old twins and a 16 month old. I'm wondering about the stats you read, are they as bad? how is your story panning out?
  • ronefx
    ronefx Member Posts: 11
    I posted in another thread,
    I posted in another thread, but I had a grade 3 astrocytoma tumor on the right frontal lobe. It was completely removed and have been cancer free as far as I know for 15 + years. I am looking to find other's stories of long term problems and issues they have had.
  • ronefx
    ronefx Member Posts: 11
    .

    .
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  • ajd1234
    ajd1234 Member Posts: 3
    please help
    Hi, my niece has AA, the doctors are not giving us a lot of time.
    She was diagnosed 4 months ago , had radiation done, chemo. Please help if anyone has a child with non-operatable AA grade 3.
    May G-d help all who are suffering with any illness. thank you, angela

    ‹ Childhood Medullablastoma Is No Treatment an option? ›
  • kempenl
    kempenl Member Posts: 13
    Effects of chemo and radiation
    Can you and all survivors please tell us what long-term effects you've had from chemo and radiation?
    thank you so much.
  • kempenl
    kempenl Member Posts: 13
    gvillek said:

    Hello, first of all thank you for telling others about your story. My sister who is 26 years old and is fighting for her life. She also has Anoplastic Astroyctoma – Level 3. She has two small children and I live 90 miles away. I can't express the hope it give me that there are individuals that have survived this cancer! I have been searching for ways to encourage my sister not to give up.

    your sister
    Can you tell us when your sister was diagnosed?
  • This comment has been removed by the Moderator
  • momfor2
    momfor2 Member Posts: 8
    ronefx said:

    I posted in another thread,
    I posted in another thread, but I had a grade 3 astrocytoma tumor on the right frontal lobe. It was completely removed and have been cancer free as far as I know for 15 + years. I am looking to find other's stories of long term problems and issues they have had.

    astrocytoma grade II
    Did you have any further treatment? My daughter has grade II astrocytoma left frontal lobe. The Dr. said he completely removed tumor and she needs no further treatment for now. She is having short term memory problems but not so bad that she cannot work.
  • momfor2
    momfor2 Member Posts: 8
    Quilmes said:

    Yep it was in the frontal lobe, now it's dead. It's considered a small cyst, that will not reoccur. In addition yes I have short term memory lost, and sometimes date and time problems. What is your story please share it with me.

    quilmes
    My daughter had a grade II astrocytoma removed in March. Dr. said he removed it all and she needs no further treatment other than repeat mri's. He said if it did come back it probably would be a more aggressive tumor. He gave her a 50-50 chance of it coming back. Did your dr. tell you that
  • kishi
    kishi Member Posts: 3
    Grade 3 Astrocytoma
    Hi
    I have Grade 3 Astrocytoma and can take any help I can. Diagnosed in Dec.2005. Chemo and Radiation and now I am trembling. Hope all with cancer will someday be saved and be cancer free. I believe we cancer patients are suffering but never as much as those who love us and are looking at us everyday helpless wishing they could do anything to make us feel better.
  • momfor2
    momfor2 Member Posts: 8
    jose,
    how are you doing now.

    jose,

    how are you doing now. Do you have yearly mri's. Did you have radiation or chemo
  • janmiz
    janmiz Member Posts: 2
    kempenl said:

    Effects of chemo and radiation
    Can you and all survivors please tell us what long-term effects you've had from chemo and radiation?
    thank you so much.

    effects of chemo & radiation
    I am the mother of a 47 yr old daughter who had AA grade 3.She is 7 yrs.clean.she is going to have her MRI in may and every time I cross my fingers.I have tried to ask docs about the long term effects with no answers.I finally realized that they just don't know, as most people don't last long enough to do studies on them.I saw that my daughter didn't lose hair from the temedar but she lost hair from the radiation.large strip that didn't come back. she has gone to a doctors for tests and has short term memory loss ,fatigue,cognitive problems ,impulsivness, loss of common sense ,anxiety and some times depression.each year that she takes the tests it gets a little worse.I blame the radiation to her brain.I am sure that it has killed good cells as well as bad cells.she certainly is very frustrated.I feel it is getting worse little by little.
  • kishi
    kishi Member Posts: 3
    momfor2 said:

    jose,
    how are you doing now.

    jose,

    how are you doing now. Do you have yearly mri's. Did you have radiation or chemo

    Hello My friend
    I had

    Hello My friend

    I had radiation, chemo and regular MRI's on agenda. I am scared but trying to act or look tough for familly. Hope you are ok and cool.

    Regards.
  • ChristyM
    ChristyM Member Posts: 38
    kishi said:

    Hello My friend
    I had

    Hello My friend

    I had radiation, chemo and regular MRI's on agenda. I am scared but trying to act or look tough for familly. Hope you are ok and cool.

    Regards.

    Hello
    I had my surgery one year ago, May 11 2008--on Mothers day. I have since completed radiation and 6 months of chemo (beyond the daily I was taking during the radiation) I am going to be starting another 6 months here soon-My husband and I were working with a fertility doctor before we started again.
    I have had some short term memory loss, but I find reading and relaxing (I think this is the most important thing) have helped me a lot. I also lost some hair from the radiation but none from the chemo.
    My one year MRI is scheduled for next Monday, the 11th. I am looking forward to celebrating one year clear soon. (In other words, keep the positive attitude and statistics dont matter!)
  • momfor2
    momfor2 Member Posts: 8
    ronefx said:

    I posted in another thread,
    I posted in another thread, but I had a grade 3 astrocytoma tumor on the right frontal lobe. It was completely removed and have been cancer free as far as I know for 15 + years. I am looking to find other's stories of long term problems and issues they have had.

    HELLO
    How are you doing today ronefx. Did you had any chemo or radiation. Glad to know you have remained cancer free for so many years.
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  • This comment has been removed by the Moderator
  • PBJ Austin
    PBJ Austin Member Posts: 347
    Heyrabbit and others
    Thank you for your stories. I rejoice every time I hear of a survivor of any cancer, especially AA. My sister has tumors in her left frontal lobe. One of her tumors was removed and the remaining 2 tumors are small. The tumor they removed was sent to a lab and AA was just diagnosed in March. At first we all imagined the worst but stories like yours do so much to lift my spirits.

    She has just finished 6 weeks of radiation at MD Anderson. They will wait 3 weeks to do an MRI, then 2 years of chemo will begin. We had a big celebration for her radiation graduation. We are taking it all one day at a time and enjoying every day.

    Thanks to all on this board, I love hearing from AA survivors.
  • PBJ Austin
    PBJ Austin Member Posts: 347
    ChristyM said:

    Hello
    I had my surgery one year ago, May 11 2008--on Mothers day. I have since completed radiation and 6 months of chemo (beyond the daily I was taking during the radiation) I am going to be starting another 6 months here soon-My husband and I were working with a fertility doctor before we started again.
    I have had some short term memory loss, but I find reading and relaxing (I think this is the most important thing) have helped me a lot. I also lost some hair from the radiation but none from the chemo.
    My one year MRI is scheduled for next Monday, the 11th. I am looking forward to celebrating one year clear soon. (In other words, keep the positive attitude and statistics dont matter!)

    ChristyM
    I will be thinking of you on Monday and wishing you the best on your MRI.
  • Priash
    Priash Member Posts: 22
    How are you doing
    New member. Same illness as yours.

    God Bless
    Priash
  • Priash
    Priash Member Posts: 22
    ChristyM said:

    Hello
    I had my surgery one year ago, May 11 2008--on Mothers day. I have since completed radiation and 6 months of chemo (beyond the daily I was taking during the radiation) I am going to be starting another 6 months here soon-My husband and I were working with a fertility doctor before we started again.
    I have had some short term memory loss, but I find reading and relaxing (I think this is the most important thing) have helped me a lot. I also lost some hair from the radiation but none from the chemo.
    My one year MRI is scheduled for next Monday, the 11th. I am looking forward to celebrating one year clear soon. (In other words, keep the positive attitude and statistics dont matter!)

    How are you doing
    Hello Christy:


    How are you doing? Please keep us posted.

    God Bless
    Priash
  • tmiles
    tmiles Member Posts: 1
    Astrocytoma survivor
    I had a Grade 1 Astrocytoma removed from my front right hemisphere in 01/2004. I have had no reoccurrance per the last 5 MRI's. Thank God!
    I am now 5 years clear, with guilt for having survived with nothing debilitating and I am starting to have emotional problems. Anger, depression, memory recall and I don't know how to cope with it much less how to correct the problem. I live in the Riverside, Ca. and I am looking for help with the psychological side of this. Does anyone out there have some information or contacts that can point me into the right direction?

    Tony
    [email protected]
  • ronefx
    ronefx Member Posts: 11
    momfor2 said:

    HELLO
    How are you doing today ronefx. Did you had any chemo or radiation. Glad to know you have remained cancer free for so many years.

    sorry, it took me so long to
    sorry, it took me so long to respond, I don't check here that often. I had 6 weeks of Radiation & 6 courses of chemo. I am still doing good, just get tired here & there, so I take a nap(which I enjoy anyways) but, that could be from everyday stress, I normally don't think about the fact I had cancer, cause it has been so long.
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  • ChristyM
    ChristyM Member Posts: 38
    Priash said:

    How are you doing
    Hello Christy:


    How are you doing? Please keep us posted.

    God Bless
    Priash

    MRI today
    I had my MRI and follow up with my surgeon today. There is no reoccurence! We will be moving my MRIs to every 6 months now.