ganglioneurblastoma
Comments
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My daughterEB said:Ganglioneuroblastoma
I was 25 when I was diagnosed. I know how hard it is. If you need any support or additional information, please let me know.
My 16 year old daughter was just diagnosed. She is just completing staging tests, and we have a meeting with the oncology team from the University of Minnesota Children's Hospital on this Friday. Any info/ recommendations you can give us would be greatly appreciated.
My wife and I are in Limbo right now, and looking for the best possible treatment team, etc.
Thanks much,
Dave
[email protected]0 -
My daughterdancer21 said:Hi yes, I was diagnosed with
Hi yes, I was diagnosed with ganglioneuroblastoma at the age of 21, I'm now 27. If you still would like some info please let me know.
My 16 year old daughter was just diagnosed. She is just completing staging tests, and we have a meeting with the oncology team from the University of Minnesota Children's Hospital on this Friday. Any info/ recommendations you can give us would be greatly appreciated.
My wife and I are in Limbo right now, and looking for the best possible treatment team, etc.
Thanks much,
Dave
[email protected]0 -
Gnbdazzlemn said:My daughter
My 16 year old daughter was just diagnosed. She is just completing staging tests, and we have a meeting with the oncology team from the University of Minnesota Children's Hospital on this Friday. Any info/ recommendations you can give us would be greatly appreciated.
My wife and I are in Limbo right now, and looking for the best possible treatment team, etc.
Thanks much,
Dave
[email protected]
Iv been diagnosed at 21 and finding it very hard, if there anyone one who will give me support i will be very happy thank you0
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