ganglioneurblastoma

tlopez
tlopez Member Posts: 2
edited March 2014 in Childhood Cancers #1
Anybody out there have any expirence with this in adults? I have learned it is found in children. I am old enough to be rasing my own children so I really need to hear from someone over the age of 20. Any info will be helpful.

Comments

  • Unknown
    Unknown
    #2
    This comment has been removed by the Moderator
  • dancer21
    dancer21 Member Posts: 18
    #3
    Hi yes, I was diagnosed with
    Hi yes, I was diagnosed with ganglioneuroblastoma at the age of 21, I'm now 27. If you still would like some info please let me know.
  • Unknown
    Unknown
    #4
    This comment has been removed by the Moderator
  • EB
    EB Member Posts: 1
    #5
    Ganglioneuroblastoma
    I was 25 when I was diagnosed. I know how hard it is. If you need any support or additional information, please let me know.
  • dazzlemn
    dazzlemn Member Posts: 4
    #6
    EB said:

    Ganglioneuroblastoma
    I was 25 when I was diagnosed. I know how hard it is. If you need any support or additional information, please let me know.

    My daughter
    My 16 year old daughter was just diagnosed. She is just completing staging tests, and we have a meeting with the oncology team from the University of Minnesota Children's Hospital on this Friday. Any info/ recommendations you can give us would be greatly appreciated.

    My wife and I are in Limbo right now, and looking for the best possible treatment team, etc.

    Thanks much,

    Dave

    dazzlemn@gmail.com
  • dazzlemn
    dazzlemn Member Posts: 4
    #7
    dancer21 said:

    Hi yes, I was diagnosed with
    Hi yes, I was diagnosed with ganglioneuroblastoma at the age of 21, I'm now 27. If you still would like some info please let me know.

    My daughter
    My 16 year old daughter was just diagnosed. She is just completing staging tests, and we have a meeting with the oncology team from the University of Minnesota Children's Hospital on this Friday. Any info/ recommendations you can give us would be greatly appreciated.

    My wife and I are in Limbo right now, and looking for the best possible treatment team, etc.

    Thanks much,

    Dave

    dazzlemn@gmail.com
  • Lukemcglennon
    Lukemcglennon Member Posts: 4
    #8
    dazzlemn said:

    My daughter
    My 16 year old daughter was just diagnosed. She is just completing staging tests, and we have a meeting with the oncology team from the University of Minnesota Children's Hospital on this Friday. Any info/ recommendations you can give us would be greatly appreciated.

    My wife and I are in Limbo right now, and looking for the best possible treatment team, etc.

    Thanks much,

    Dave

    dazzlemn@gmail.com

    Gnb
    Iv been diagnosed at 21 and finding it very hard, if there anyone one who will give me support i will be very happy thank you

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