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update

goldfinch's picture
goldfinch
Posts: 737
Joined: Oct 2003

So, I've been told that I can't have my stereotactic radiosurgery unless I can walk around on my own and unfortunately I can no longer get around on my own anymore. So, palliative care has been called in to help my hubby and daughter deal with all the things that need doing. I've filled out advanced directives, had 2 sponge baths, which are surprisingly pleasant, my appetite is improving. So, that's where I am. If I can't treat the brain tumor I can't fight the lung mets. I've used all current treatments for the lung mets.
Mary

KathiM's picture
KathiM
Posts: 8077
Joined: Aug 2005

Mary,
Every victory, no matter how small, is still a victory! Your appetite improving means that your body is responding!
I filled out all my 'paperwork' at the first sign of the beast, even tho it seems wierd, it sure is better than others having to guess, like I have had to with the sudden passing of my ex-hubby...no will, no nothing....
I LOVE sponge baths! It's sort of a mini-massage with the feeling of cleaning! Together! "Tastes great/less filling!", as it were!
I still am sending big hugs, hope you are getting them!

Hugs, Kathi

MoonDragon's picture
MoonDragon
Posts: 194
Joined: Jun 2005

Mary, I can't tell you how much I admire you. I can sense a certain inner strength coming from your message and although it seems from the words that things look bleak, you're appetite is improving, you made it to the computer to post and you've enjoyed your sponge baths. You're not giving up and you're definately still fighting. You have a lot of inner strength from which to draw on!
Man, I didn't even get sponge baths. The nurses would bring in a tub of water full of cloths and set it down next to me. If I was too weak to wash, they came in and took it away. It never occurred to me to squack about it and now I wish I had. I felt absolutely filthy when I went home. I'm so glad your nurses are good to you and you're enjoying the little things!
I wish you much strength, healing and blessings!

Jorie

Faith4Cure
Posts: 405
Joined: Mar 2007

Mary, I am sending warm thoughts and prayers your way. I wish I could do more. Enjoy all of the little things and keep your positive attitude. Keep on believing!

Faith

pink05
Posts: 553
Joined: Mar 2006

Mary,

I agree with everyone else. The fact that your appetite is improving and that you were able to make it to the computer to update us shows your inner strength. I will keep praying for you. Don't give up!!!

God bless,

-Lee-

jenalynet's picture
jenalynet
Posts: 363
Joined: Nov 2005

Hi Mary,
I'm happy to read that your appetite is improving. I admire your strength..I will keep you close in my thoughts, Audrey.

Moesimo's picture
Moesimo
Posts: 1080
Joined: Aug 2003

Mary,

I am still sending hugs and prayers. My heart goes out to you. You are my hero and have been so brave through all of your illness.

When you can, plese come back and keep us posted. We care.

Mauren

jerseysue's picture
jerseysue
Posts: 626
Joined: Oct 2005

Mary you have an amazing attitude and my thoughts and prayers are with you. I believe in faith and hope.

hopefulone
Posts: 1048
Joined: Jan 2007

Mary, your appetite improving is a good sign and I hope one that will lead to other good things. Keeping you in my thoughts and prayers. God Bless
Diane

Betsydoglover's picture
Betsydoglover
Posts: 1256
Joined: Jul 2005

Dear Mary -

You are so brave and have such a great attitude. I am glad that you are letting the palliative care people help you. It sounds like good news that your appetite is improving. That could be the first step toward more improvements.

Take care and know that all of us are rooting for you,
Betsy

KierstenRx's picture
KierstenRx
Posts: 249
Joined: Nov 2006

Mary,
I am keeping you in my thoughts and prayers. I wish there is something more I could do. You are a strong women and I always admire your strength.

Kiersten

jams67's picture
jams67
Posts: 927
Joined: May 2006

This site is so slow that I use the time I wait praying for the person I'm posting to. Know that I pray for your courage to continue fighting this disease. Enjoy the small things in life like the sponge bath and the improved appetite. Pretend that you are royalty, a princess, with all of the extra care.
Hugs,
Jo Ann

jsabol's picture
jsabol
Posts: 1156
Joined: Dec 2003

Mary, It's good to hear from you and know that you and hubby are getting help in. You have such amazing strength; keep us posted. I keep you and your family in my prayers. Judy

oneagleswings
Posts: 425
Joined: Jan 2005

Mary...hugs and positive energy are coming to you..glad your appetite is improving..have all your favorite foods and keep positive!!!
Bev

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