cancer is back/ Please respond

alta29
alta29 Member Posts: 435
edited March 2014 in Colorectal Cancer #1
after crying, screaming, feeling sorry for my family.....I am better now.....Is back....3 in the stomach area 3 in the right lung....I am having a small surgery tomorrow cause 2 of them are afecting my kidney...they are going to insert a splint ? or something like that...what's next ? More chemo...My onco said that 1st he will try Cetuximab & Irinotecan..second choice will be Avastin & Folfox....After reading Mrsgrandlake post I feel much better !!!! What combination did you use? What is Folfox plus ? Can I pleaseeeeee have all the combinations that you have used, that have worked ? Thanks and God bless

Comments

  • spongebob
    spongebob Member Posts: 2,565
    alta -

    One word... mierda... I'm so sorry you are going to have to saddle-up again. I thin what you referred to as a "splint" is actually a "stent" - it's a little metal cage that they are able to insert - possibly in your ureter? - to allow your kidney to drain into your bladder? My mom had one when she had a recurrence in her ureter/kidney (which she BEAT, by the way).

    Know that I am keeping you and your family at the top of my prayer list, mi amiga.

    Good thoughts and positive vibes.

    - SpongeBob
  • hopefulone
    hopefulone Member Posts: 1,043
    Keeping you in my prayers. Avastin helped my husband a great deal. I don't have any info on the other regimen , but I'm sure someone will know. God Bless,
    Diane
  • KathiM
    KathiM Member Posts: 8,028
    Aw, my dear...as I said, you beat it before, you will again...I am putting my arms around you for a big hug!
    (my luck held with the first round...5FU and carboplatin).

    Hugs, Kathi
  • impactzone
    impactzone Member Posts: 539 Member
    Sorry to hear. I'm there with you. I've followed your posts.. Hope things work.. I used Avastin, Oxylaplatin and Xeloda for 9 months.
    Impactzone
  • Monicaemilia
    Monicaemilia Member Posts: 455
    I had Oxaliplatin/Xeloda, then 5FU/Leucovorin/Irinotican/Avastin. These two kept things stable but otherwise did not eliminate any tumours. Cetuximab and Irinotecan worked very well with me. I am sorry you have to do this, but you have options, and that is good news. Monica
  • 83popsong
    83popsong Member Posts: 28
    Alta - Sorry to hear your news, you are in my thoughts & prayers. I had FOLFOX + Erbitux (Cetuximab) for about 10 months. Knocked out around 7 small lesions in my liver and got me to the OR. I was NED for a year and than had a recurrence in the colon (looks like the margins were too thin the first time around). If you do go with Erbitux, search this forum for ways to deal with the side effects. Try searching for Erbitux Rash and Erbirash.

    --Eben
  • Limey
    Limey Member Posts: 446
    My dear, I am sorry for your news. I hate very little in this world these days. but i do hate cancer and it's random attacks it has on us and our families.

    I used folfox and Avasting - it worked great but the side effects were tough. I then went to Avastin and Xeloda. This worked for a year up until last scan - its did not shrink but no new tumors they think.

    Never forget we are only one day away from victory and a cure from this **** of a disease. Hang on because tomorrow may be our day. I am currently going into a new clinical trial. NR1011 I think. so far 150 people in the U.S. have tried it. I will keep you posted. Please for us who struggle with trying to reach NED. Fight, Fight, Fight. and remember, I will with others walk this journey with you. you are not alone.
    Mark.
  • vinny3
    vinny3 Member Posts: 928
    I've been thinking of you all day and hoping for good news. I am sorry to hear that it is back. But you have fought it off before and will again. Sometimes they use a higher dose for less cycles. I believe the Folfox Plus is Folfox plus Avastin. It is such a shock to get that news, you may want to talk to your oncologist again.
    Keep fighting.

    ****
  • spongebob
    spongebob Member Posts: 2,565
    Limey said:

    My dear, I am sorry for your news. I hate very little in this world these days. but i do hate cancer and it's random attacks it has on us and our families.

    I used folfox and Avasting - it worked great but the side effects were tough. I then went to Avastin and Xeloda. This worked for a year up until last scan - its did not shrink but no new tumors they think.

    Never forget we are only one day away from victory and a cure from this **** of a disease. Hang on because tomorrow may be our day. I am currently going into a new clinical trial. NR1011 I think. so far 150 people in the U.S. have tried it. I will keep you posted. Please for us who struggle with trying to reach NED. Fight, Fight, Fight. and remember, I will with others walk this journey with you. you are not alone.
    Mark.

    Mark -

    That's great news that you have found a clinical trial! I wonder what snappy name they will come up with for the stuff when they see how well it works and start to market it!

    - SB
  • betina61
    betina61 Member Posts: 642
    Alta, I'm very sorry to know what you are going through, but as others said you need to continue fighting and the day will come when we read a post from you celebrating NED.Keep the faith God is with you.
  • sladich
    sladich Member Posts: 429
    Alta,

    I'm sorry you have to go through this. First round I was on Folfox, second round, Camptosar. Best of luck. Positive thoughts!!!

    Debbie
  • Kanort
    Kanort Member Posts: 1,272
    Ileana,

    Please know that I'm thinking of you and your family. You have been such a warrior. I pray for you to be given extra strength for this new regimen.

    Hugs,

    Kay
  • changing
    changing Member Posts: 134
    Speechless. Really thought one of us would get a good report! Had Folfox before of 5FU, Oxaliplatin and Leucovorin. This time it's going to be 5FU, Camptosar, and Avastin..don't know what that's called though. Will continue to pray for you and your family.
  • mwomack
    mwomack Member Posts: 78
    My husband got really good results (better than expected) from CPT11, Xeloda, and Avastin. He started out getting a regimen called IFL which is not used much anymore because the side affects are more severe than the Folfiri regimen (same drugs given different ways). After the IFL w/Avastin regimen (2 cycles) kicked his butt, the onc. put him on CPT11, Xeloda, and Avastin every two weeks.

    He had FOLFOX without Avastin the 1st round of chemo. The onc. plans on putting him back on the same regimen (CPT11, Xeloda, Avastin) after his chemo break.

    MA
  • Betsydoglover
    Betsydoglover Member Posts: 1,248
    Hi Alta -

    Sorry for your news. I am wishing you the best.

    My guess is that "Folfox Plus" is Folfox plus Avastin.

    Good luck with the surgery. One step at a time. I can imagine how discouraging this is, but I just know you can beat this.

    Take care,
    Betsy
  • mrsgrandlake
    mrsgrandlake Member Posts: 23
    Sent you an email on the Folfox-plus. You are going to be fine and you ARE going to beat the beast. Put on your fighting armor and seriously kick some cancer butt! You go girl!! Yeehaw!!!! By HIS stripes we WERE healed!!!Thank you Jesus!!