CSN Login
Members Online: 5

You are here

BAD NEWS, METS TO THE SKULL

FRANTIC
Posts: 106
Joined: Nov 2004

HI everyone. Sorry I have not posted. I had my MRI'S done and received bad news. The bump on my head is in deed a mass. The mass is in the skull grew out of the top bone of skull and also the bottom part of the skull towards the brain. They also found 2 more lesions in the skull. My spine L2-L4 they also state there are metastic lesions as well. After all I have been thru with all these tests, petscans, even the biopsy of L1 last year were all negative. I had surgery in March 2007 to remove the rest of the colon as it was to dangerous to re-connect. The surgeon found no cancer at all. Pathology reprort was clean. He told my husband and I there is no cancer and that I should not go for any more tests for another year. Well suprise, suprise. The bump on my head which should up in April and I was told to wait to see if it got bigger as colon cancer usually does not go to the skull turned out to be a mets from the original colon cancer. I had a biopsy done of the bump and the cells had a slimy appearance which was indeed cancer and represented
mucinous adenocarcinoma. MY husband and I cry every night. I will be starting radiation to the skull. MY back is in constant pain 24/7. I did go back to work 5 hrs a day with pain and all. I had to get out of this house. I am beside myself. I thought typically colon cancer goes to the liver and lungs. Boy was I fooled and so was the DRs.
I will also be starting chemo again in a few weeks after the radiation. I was told I will be receiving erbitux and avastin along with an antibody what ever that means. I just had a bone scan yesterday. The radiation oncoligist ordered one. I told him what is the sense in ordering a bone scan all these spots are going to light up and on the spine and the report will sing the same song compression fractures vs. mets to the bone. I was told last year that the compression fractures in the spine was due to osteoporosis and osteomalacia, also from having a hysterectomy in 199 as well as chemo and radiation. They biopsied the fracture at L1 at that time and it was negative for cancer. Totally shocked. I will keep you posted on this ugly disease. I do not have the strength to fight this time. Your friend
FRan from Long Island.

hopefulone
Posts: 1048
Joined: Jan 2007

Fran , I'm so sorry it wasn't better news. I know you've been through so much. I will continue to keep you in my thoughts and prayers. God Bless , Diane

goldfinch's picture
goldfinch
Posts: 737
Joined: Oct 2003

Fran,
I am so sorry for the news. Get the crying over with and on to the fight! It's hard to always be socked with bad news, but hang in there! You are in my prayers.
Mary
Mary

juliababy
Posts: 130
Joined: Sep 2004

Fran, I honestly don't know what to say, but know that I will keep you in my prayers. Yes this is a horrible horrible horrible disease, but please try to gather up your strengh and fight!! I know it's easier said than done, but just look at Lance Armstrong, he had cancer all over and he fought it and won. You can do the same Fran. they are coming up with new medicines every day for cancer, so never lose hope. I'll pray for you,
susana

StacyGleaso's picture
StacyGleaso
Posts: 1250
Joined: Mar 2003

Fran,

You DO have the strength to get through this. It just hasn't risen up to meet the challenge yet. Digest your news, roll up your sleeves, and put those boxing gloves back on. I am so sorry you have to face this again.

My prayers, thoughts, and good wishes are with you now and throughout your fight.

Big hugs,

Stacy

Glv49
Posts: 206
Joined: May 2005

Fran,
I am so sorry to hear of this.. I don't know what to say.. I am sure you are devastated. BUT.... you will fight this.. you HAVE to. You have to find that inner strength, that you have, and KNOW you can beat this.. someone told me when I was sick... you either have to get busy living.. or dying. I chose living.. and you will too.. I will keep you in my thoughts and prayers..if you need to talk feel free to email me anytime.

Your friend in PA
Gail

jams67's picture
jams67
Posts: 927
Joined: May 2006

Gail, I like the idea of getting busy with living or .. dying. However, I found I needed time to just cry and ride the tide for a while. Maybe it was shock and was just a little of that "why me?"
Fran, I'm so sorry that you have to get ready for such a fight. If you are working 5 days a week, you are a fighter, and this shows that you are going to do all that you can to beat this. Step 1: Put on your boxing gloves. Step 2: Get in the ring. Step 3: Beat the @x@* out of this thing. Step 4: Thank you God!
I just wanted to be a sort of cheerleader, because I want to cheer you on. Remember, we will all be in the ring with you
Jo Ann

jerseysue's picture
jerseysue
Posts: 626
Joined: Oct 2005

Please find the strength somewhere look around I know you will find something to give you strength. My prayers are certainly with you.

sladich's picture
sladich
Posts: 430
Joined: May 2007

I'm so sorry. My thoughts and prayers are with you. Hang in there!
Debbie

Moesimo's picture
Moesimo
Posts: 1080
Joined: Aug 2003

Fran,

i am sending hugs and prayers your way.

Maureen

shmurciakova's picture
shmurciakova
Posts: 910
Joined: Dec 2002

Aww Fran,
I am so sorry to hear this. I can't believe all this time, that little inner voice that kept telling you something was wrong, was right! I am going to e-mail you and put you in touch with my friend Suzanne who has spinal mets. You may have seen a few posts back the article that she had sent to me. It is all about a new treatment for spinal mets! When I read about people with spinal mets and compression fractures occuring I got this sinking feeling about your back problems. I am so sorry for your bad news! Suzanne though, is an 8 year survivor of this disease and she has the most wonderfully positive outlook. Please e-mail me your phone # and I will put you in touch with her. I know she can help you! You will find that you are not alone and will dig deep and find the strengh! I am so very sorry the doctors missed all of these signs! That is so scary since your CEA was normal. Has CEA been a good indicator for you in the past?
Please do not dispair. They may be able to beat back this disease yet and solve your back pain. I guess this is a lesson that we all need to listen hard to our inner voice!
Love,
Susan

Sam725
Posts: 87
Joined: Nov 2006

Fran,
So sorry to hear your news. I haven't been on the site for very long but I do know you have had your share of challanges. But stay strong, have faith and continue to fight. You will be in my thoughts and prayers.

Sandy

jsabol's picture
jsabol
Posts: 1156
Joined: Dec 2003

Fran, My heart goes out to you and your husband. You have one tough road ahead, but know that we are all pulling for you. You have shown such amazing strength through this whole ordeal; I will continue to keep you in my prayers. Judy

scouty's picture
scouty
Posts: 1976
Joined: Apr 2004

Oh Girlfriend!!!!!!

Geez oh Pete, you have come thru some amazing battles and it looks like you have another one in front of you. I will be with you and your family every step of the way and please let us know what we can do and please keep us posted.

My sincere heartfelt vibes are with you.

Lisa P.

KathiM's picture
KathiM
Posts: 8077
Joined: Aug 2005

Oh, Fran, my prayers go up for you. I HATE this beast!!!

I cried after my second diagnosis, then got REALLY REALLY MAD!!!! I hated this invader!!!!

Please keep us posted...

Big, warm, fuzzy hugs,
Kathi

dash4
Posts: 304
Joined: Dec 2005

Fran,
A friend we met at my husband's chemo--also a stage IV colon cancer patient for 3-4 years recently found a brain and spinal tumor. He has had surgery and radiation and now chemo. The doctors were also surprised it spread to his brain. Please keep up the fight...You are in my thoughts and prayers!!
Dash

kmygil
Posts: 881
Joined: Feb 2007

Oh, Fran. I am so sorry. Take a while to cry; it's necessary. Then get mad and fight this #^%&$@ disease! You are all about surviving! Hugs and prayers,
Kirsten

jenalynet's picture
jenalynet
Posts: 363
Joined: Nov 2005

I just don't know what to write in this post except please keep fighting, I know we all have strength it just hides from us at times..I am keeping you in my thoughts and prayers. Audrey

Subscribe to Comments for "BAD NEWS, METS TO THE SKULL"