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I'm back, on a new study

Posts: 708
Joined: May 2004

Hi everyone, with a special hello to all you new people. Sorry I was gone for so long.. needed soem space. But, I am back and will try to check in more often!

I started a new study about 5 wks ago. It is a phase 1 study because the drugs have never been used together before. I get: oxali, 5FU (and leucovorin), erbitux, and desatanib. The latter has been used for CML (leukemia) for a while, but it was recently found to have sarc inhibitors which should work for colorectal CA. They are also studing it with breast ca too.

It is OK.. I just HATE the damn 5FU pump. It makes me anorexic - just don't want to eat anything for about 2-3 days. Combine that with the throat neuropathy of oxali.. I am miserable every other week. I have to fly to Houston every week to get my treatment, but I think it is working... so I go!

Other than that all goes well. My hubbie and I are planning a trip July 12th.. I can't wait. The study allows a 2 week break.. we are Running!!:)

Wish all of you the best. For those of you who don't know me.. I am now a stage 4, originally stage 3 gal.. diagnosed late 2002.. and going strong. :) I have mets to lungs, bone, and now liver.. but feel fine. :)

Best to everyone! jana

kerry's picture
Posts: 1317
Joined: Jan 2003


It is good to have you back at the CSN site. I think of you often and hope this new combo of drugs kicks cancer in the wazoo.

Have a great trip....can't wait to see the photos.

Take care and give my best to Pete.



jerseysue's picture
Posts: 626
Joined: Oct 2005

You are truly a great inspiration and I also think of you often! Have a WONDERFUL trip.

scouty's picture
Posts: 1976
Joined: Apr 2004

It is always great to hear from you Jana!!!

You inspire me so much and I could never tell you how much I admire you. My best to Pete and the babes and have a great trip!!!! Can't wait to hear about the trip.

Hugs to you all and again thanks for checking in!!!!

Lisa P.

Posts: 544
Joined: Jun 2004

Hi Jana,
I'm glad you're back and feeling good. I hope that the new study works.
I fully understand how you feel about the 5FU pump. I hate it myself and am hoping that my onc will come up with something else for the next round of chemo, however I wish it would make me anorexic. Unfortunately nothing seems to stop me from having an appetite.
Have a great trip and take care,

Posts: 1961
Joined: Aug 2003

Jana -- great to hear from you. I think of you often. I was really interested to hear about the new regime -- hope and pray it works well for you. Sympathies on the 5FU etc. I've just finished 12 cycles of FOLFOX + Avastin. I also had the anorexia and sore throat. I just ate what I could during the 2-3 days (not much at all). Would loose a few pounds each time, then try to put them on again over the next 10 days or so.
Thinking of you. All best wishes. Enjoy that holiday with hubbie!!

Lisa Rose's picture
Lisa Rose
Posts: 597
Joined: Mar 2003

Hi Jana,

Wishing you and Peter a great vacation ~ enjoy your time away and each other.

Lisa Rose

Kanort's picture
Posts: 1275
Joined: Jan 2004

Hi Jana,

It's so good to hear from you. I'm so glad you and Pete can get away for a couple of weeks. You so deserve it!

You are truly amazing! I know these drugs will be the winning combination!



Betsydoglover's picture
Posts: 1256
Joined: Jul 2005

Hi Jana -
It's good to see you back. Wishing you the best with the new treatment and have a good vacation - you REALLY deserve it.

Take care,

jsabol's picture
Posts: 1156
Joined: Dec 2003

Hi Jana, It's so good to hear from you, and to hear that you feel fine on the off weeks. One of my chemo buddies and I used to compare our trips to Whole Foods, cruising the aisles to find something that appealed to us.
The trip sounds great; enjoy your break and come back fighting. Your attitude is awesome; the need for a break from CSN is understandable, but try to keep us posted and know we are all thinking of you. Judy

impactzone's picture
Posts: 542
Joined: Aug 2006

Hello and I hope you are doing well. I so appreciated your replies to me and my situation. I so hope this works. I assume that your are going to MD Anderson in Houston. That is the best I hear. I am at Stanford and doing OL. I just finished 6 months of chemo after liver resection and hope that my scan comes out OK. All my best and prayers to you.

Posts: 1048
Joined: Jan 2007

welcome back Jana and I wish you the best with the new treatment plan. Keep us posted. God Bless

ps enjoy your "vacation"

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