I'm back, on a new study

jana11
jana11 Member Posts: 705
edited March 2014 in Colorectal Cancer #1
Hi everyone, with a special hello to all you new people. Sorry I was gone for so long.. needed soem space. But, I am back and will try to check in more often!

I started a new study about 5 wks ago. It is a phase 1 study because the drugs have never been used together before. I get: oxali, 5FU (and leucovorin), erbitux, and desatanib. The latter has been used for CML (leukemia) for a while, but it was recently found to have sarc inhibitors which should work for colorectal CA. They are also studing it with breast ca too.

It is OK.. I just HATE the damn 5FU pump. It makes me anorexic - just don't want to eat anything for about 2-3 days. Combine that with the throat neuropathy of oxali.. I am miserable every other week. I have to fly to Houston every week to get my treatment, but I think it is working... so I go!

Other than that all goes well. My hubbie and I are planning a trip July 12th.. I can't wait. The study allows a 2 week break.. we are Running!!:)

Wish all of you the best. For those of you who don't know me.. I am now a stage 4, originally stage 3 gal.. diagnosed late 2002.. and going strong. :) I have mets to lungs, bone, and now liver.. but feel fine. :)

Best to everyone! jana

Comments

  • kerry
    kerry Member Posts: 1,313 Member
    #2
    Jana,

    It is good to have you back at the CSN site. I think of you often and hope this new combo of drugs kicks cancer in the wazoo.

    Have a great trip....can't wait to see the photos.

    Take care and give my best to Pete.

    Hugs,

    Kerry
  • jerseysue
    jerseysue Member Posts: 624 Member
    #3
    You are truly a great inspiration and I also think of you often! Have a WONDERFUL trip.
  • scouty
    scouty Member Posts: 1,965 Member
    #4
    It is always great to hear from you Jana!!!

    You inspire me so much and I could never tell you how much I admire you. My best to Pete and the babes and have a great trip!!!! Can't wait to hear about the trip.

    Hugs to you all and again thanks for checking in!!!!

    Lisa P.
  • crazylady
    crazylady Member Posts: 543 Member
    #5
    Hi Jana,
    I'm glad you're back and feeling good. I hope that the new study works.
    I fully understand how you feel about the 5FU pump. I hate it myself and am hoping that my onc will come up with something else for the next round of chemo, however I wish it would make me anorexic. Unfortunately nothing seems to stop me from having an appetite.
    Have a great trip and take care,
    Jamie
  • taraHK
    taraHK Member Posts: 1,952 Member
    #6
    Jana -- great to hear from you. I think of you often. I was really interested to hear about the new regime -- hope and pray it works well for you. Sympathies on the 5FU etc. I've just finished 12 cycles of FOLFOX + Avastin. I also had the anorexia and sore throat. I just ate what I could during the 2-3 days (not much at all). Would loose a few pounds each time, then try to put them on again over the next 10 days or so.
    Thinking of you. All best wishes. Enjoy that holiday with hubbie!!
    Tara
  • Lisa Rose
    Lisa Rose Member Posts: 598 Member
    #7
    Hi Jana,

    Wishing you and Peter a great vacation ~ enjoy your time away and each other.

    Lisa Rose
  • Kanort
    Kanort Member Posts: 1,272 Member
    #8
    Hi Jana,

    It's so good to hear from you. I'm so glad you and Pete can get away for a couple of weeks. You so deserve it!

    You are truly amazing! I know these drugs will be the winning combination!

    Hugs,

    Kay
  • Betsydoglover
    Betsydoglover Member Posts: 1,248 Member
    #9
    Hi Jana -
    It's good to see you back. Wishing you the best with the new treatment and have a good vacation - you REALLY deserve it.

    Take care,
    Betsy
  • jsabol
    jsabol Member Posts: 1,145 Member
    #10
    Hi Jana, It's so good to hear from you, and to hear that you feel fine on the off weeks. One of my chemo buddies and I used to compare our trips to Whole Foods, cruising the aisles to find something that appealed to us.
    The trip sounds great; enjoy your break and come back fighting. Your attitude is awesome; the need for a break from CSN is understandable, but try to keep us posted and know we are all thinking of you. Judy
  • impactzone
    impactzone Member Posts: 555 Member
    #11
    Hello and I hope you are doing well. I so appreciated your replies to me and my situation. I so hope this works. I assume that your are going to MD Anderson in Houston. That is the best I hear. I am at Stanford and doing OL. I just finished 6 months of chemo after liver resection and hope that my scan comes out OK. All my best and prayers to you.
    Impactzone
  • hopefulone
    hopefulone Member Posts: 1,043 Member
    #12
    welcome back Jana and I wish you the best with the new treatment plan. Keep us posted. God Bless
    Diane

    ps enjoy your "vacation"

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