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NED and I have a trial separation!

kerry's picture
kerry
Posts: 1317
Joined: Jan 2003

Just got back from MD Anderson and the news is not AWFUL, but not good. Three months ago, NED and I began a beautiful love affair and now we are on the outs. We have decided that a temporary separation is in the works for us.

My lymph nodes are showing signs of activity. I have englarged nodes in the abdomen (mesentary), the aorta, near the kidney and near the thyroid. BUMMER!

Good news is that the liver remains clear, lungs are clear and all other organs are clear.

Bad news is that I have developed 2 more blod clots in the abdomen and will have to go on Lovunox shots (a blood thinner) twice daily which I will administer.

Well, once again, the doctor assured me we have caught this early - the nodes are very small (less than 1cm). The biggest concern is the clots.

So tomorrow morning I began a regimen of Xeloda and Lovunox shots and head back to MDA in two months.

We will survive!!

Kerry

spongebob's picture
spongebob
Posts: 2598
Joined: Apr 2003

Damn, Kerry... I go away for a month and you and NED start fighting... I'm so sorry, sweetie, but like the doc says, they caught anything nasty early. See you soon!

love ya!

- SpongeBob

kerry's picture
kerry
Posts: 1317
Joined: Jan 2003

Bob,

Seems I have this "hard headed personality" and apparently so does NED. We'll work things out! You know what I mean...wink, wink!

See you in Nashville.

Kerry

fedester
Posts: 758
Joined: Jul 2004

Hi Kerry,
Sorry to hear you and Ned aren't getting along. take care of yourself, and get ned back soon.
Be well
Never,ever give up!!!!
Bruce

kerry's picture
kerry
Posts: 1317
Joined: Jan 2003

Bruce,

Thanks for the kind words and thoughts. "Give Up" is not in my vocabulary!! At our Palooza in Austin we did a group sing to "I Will Survive". That says it all.

NED and I will be back as a couple before long!

Thanks,

Kerry

robinvan's picture
robinvan
Posts: 1014
Joined: May 2007

Hi Kerry,
Sorry to hear about your separation with NED. Xeloda and Lovunox sound like a poor consolation prize. Even if the names are more exotic! I hope this just turns out to be a small set-back and that you're back with NED soon. I'm currently spending time with Xeloda, as well as Avastin and Irenotecan.
I really loved your website and pictures. I have 3 daughters around the same age as yours. They are such a blessing. No grandkids yet though...
Have a good weekend anyhow!!
Rob

kerry's picture
kerry
Posts: 1317
Joined: Jan 2003

Rob,

My girls are my saving grace. They are spectacular. I have too much to live for, so I am in this race to win!! The doctor says the cancer I have is very "small" and we will just have to manage it. We treat it as a chronic disease, like diabetes! So, we continue on.....until we find the CURE.

Thanks for your kind words.

Hugs,

Kerry

catherine58's picture
catherine58
Posts: 92
Joined: Feb 2007

Oh Kerry, I am so sorry. What a bummer indeed. I don't know anything about Lovunox but, from what I've read, Xeloda is not so bad. Do hope this doesn't mean you will have to change your travel plans as I'm so much looking forward to meeting you in the autumn!

Courage!

Catherine

kerry's picture
kerry
Posts: 1317
Joined: Jan 2003

Catherine,

I have my flight and hotels and I will be in England and we will have a great time!! I've already told my doctor of my plans and asked to do whatever he has to, to work around them!!, and still keep me healthy.

Can't wait to see you.

jerseysue's picture
jerseysue
Posts: 626
Joined: Oct 2005

You are such a trooper I hope you and Ned can get back together real soon.

kerry's picture
kerry
Posts: 1317
Joined: Jan 2003

Sue,

You my dear are a trooper as well!! NED and I will visit frequently, I'm sure...and then perhaps have a heavenly permanent relationship. I am so looking forward to seeing you soon.

Hugs,

Kerry

P.S. Is you sister still in SA?

Kanort's picture
Kanort
Posts: 1275
Joined: Jan 2004

Kerry,

You know how sorry I am. I am so glad that everything has been discovered early. We will get together soon. My thoughts and prayers remain with you.

Hugs,

Kay

kerry's picture
kerry
Posts: 1317
Joined: Jan 2003

Kay,

Let's do lunch SOON! I can't remember the name of the doctor.....

Talk to you this week.

Kerry

alta29's picture
alta29
Posts: 435
Joined: Mar 2005

well, the thing is that NED and I are planning to have an affair in the next 2 weeks...(right after surgery)...but you know what ? I dont mind sharing...I will share him with you all...( I hope is a he)....You WILL get together soon...you bet !
God bless

kerry's picture
kerry
Posts: 1317
Joined: Jan 2003

Alta,

I knew NED was after someone else!!! Hey, enjoy! As fickle as he is, he is still nice to have around!! I know he'll come visiting soon....the Gigilo he is!!

Be well..

betina61's picture
betina61
Posts: 644
Joined: Aug 2006

Hey Kerry,for what I have seen you are a fighter,this is just another little bump in the road, to make you even stronger,you are in great hands at M.D. Anderson and you Dr. told you that it was caught in time,you are an inspiration on this board,and I hope to meet you at Nashville.God bless you

kerry's picture
kerry
Posts: 1317
Joined: Jan 2003

Hi Betina,

I truly believe I am in good hands at MDA. They literally save my life 2 1/2 yrs. ago and we are right now at "very little cancer" in the body. Great cancer center and I can't say enough good things about them.

We can never give up. We must do what we have to do to stay alive and wait for the CURE!

Can't wait to see you in Nashville!!

Kerry

shallBfree
Posts: 1
Joined: Jun 2007

Kerry - Sorry about you and NED, but I know your great attitude will once again get you through. NED will be back, this I'm sure. Lifting HUGE and loving thoughts and prayers for you to God and the Universe.

Hugs,
Katie

kerry's picture
kerry
Posts: 1317
Joined: Jan 2003

Katie,

Thanks for your kind words and thoughts. We all fight this disease together and that is what makes this site such a special place. We help make each other stronger.

Kerry

Betsydoglover's picture
Betsydoglover
Posts: 1256
Joined: Jul 2005

Hi Kerry -

A strong-willed woman can usually get her man back! I'll be thinking of you and letting NED know that it is ok wit me if he dances with you too! (Afterall, he is so cute that we really need to share!)

Take care,
Betsy

kerry's picture
kerry
Posts: 1317
Joined: Jan 2003

Betsy,

Strong-willed has been my vice occasionally!! But I usually get my man back! I will always share NED with my CSN friends. You dance, I dance, you dance, etc.... He is really, really nice to have around.

Thanks, Betsy...my best to you.

Kerry

hopefulone
Posts: 1048
Joined: Jan 2007

Kerry, sorry the news wasn't better . Keep the faith. From all the posts I've read about MD Anderson, sounds like they'll keep right on top of it and I wish you much success. God Bless.

Diane

kerry's picture
kerry
Posts: 1317
Joined: Jan 2003

Thank you so much Diane. Yes, MD Anderson has been great for me. You have to go where you have the faith in the job they will do for you. I've not found an oncologist outside of MDA that has really cared or kept up with me.

Next scan is in 8 weeks - we'll see..

Kerry

scouty's picture
scouty
Posts: 1976
Joined: Apr 2004

Kerry honey,

I'm sorry but as so many of the others have said, those******** cancer cells have no idea who they have chosen to tangle with. They will be packing their bags in no time so NED can move back in!!!!

Can't wait to hug your neck in Nastyville!

Lisa P.

kerry's picture
kerry
Posts: 1317
Joined: Jan 2003

Lisa,

Well shucks!! This news was a bummer, but it could have been worse. Just a minor set back. My biggest concern is for the 2 new blood clots - I must get rid of those or it will impede my treatment if I have to go back on IV chemo - so taking the shots each day is easy when you are on a mission!!!

I am in NEED of Nashville.

Can't wait.

Love ya,

Kerry

Lisa Rose's picture
Lisa Rose
Posts: 597
Joined: Mar 2003

Hi Kerry,

I hope you and NED will be back together real soon.

Looking forward to our time together in Nashville.

Always,

Baby Lisa

kerry's picture
kerry
Posts: 1317
Joined: Jan 2003

Baby Lisa,

I can't wait. I need a Palooza recharge!

I am so very happy to hear your good news. Wonderful.

See you in Nashville.

Kerry

ahamilton2
Posts: 32
Joined: Dec 2006

Darn it! So sorry to hear about the new developments. But I'm glad you're dealing with minimally enlarged nodes & your organs are CLEAR!! That's great news.

I agree with you & I can't say enough about MDA. Keep us posted!
Blessings,
Aileen

2bhealed's picture
2bhealed
Posts: 2085
Joined: Dec 2001

Kerry,

Oh that NED. I swear, just when you think you have him cinched he takes off. Dang it!

Get out that juicer girl!

peace, emily

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