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The Cure

nanuk's picture
nanuk
Posts: 1363
Joined: Dec 2003

Now that I have your attention: In this year of electing a president, all cancer survivors need to find the person who supports Cancer research-a-ie; stem cells, which could very well bring the cure to all cancer. Vote with your colon.

The politics of cancer can kill you..of over 10,000 grants from the National Cancer Institute, only 500 even mention metastisis..

nanuk's picture
nanuk
Posts: 1363
Joined: Dec 2003

as Lance says: "Make Cancer a National Priority"

jams67's picture
jams67
Posts: 927
Joined: May 2006

Let's leave politics off the site. We get enough of it everywhere else. Just shake hands and go back to your corners, please. jams

Betsydoglover's picture
Betsydoglover
Posts: 1254
Joined: Jul 2005

I actually did not think this was all that political. The topic interests me - I think cancer research is more important than putting a man on Mars (and I used to work for NASA), but that said, there is room for many opinions and I think advocating cancer research funding is not exactly overly political.

Betsy (who sure hopes they keep on researching colon cancer!)

nanuk's picture
nanuk
Posts: 1363
Joined: Dec 2003

I guess politics are not an appropriate topic; how about economics?
When one dose of monoclonal anti bodies costs $30,000.00, something is very wrong; I question whether or not some oncologists can remain altruistic when they obviously share in the booty
one way or another. Follow the bucks-whoops, looks like I fell back into the abyss of politics..

CAMaura
Posts: 719
Joined: Feb 2005

I had eight doses of monoclonal antibodies -- in the form of my anti-nausea drug EMEND. I paid nothing (my onc secured samples for his patients), but if I had been charged, Merck would have worked to reimbursed the charges (about $150.00 per pill or per dose...I really cannot remember). I had a good outcome; it kept me out of the ER (when NOTHING else would work)!!
Things are not always so incredibly black and white - us against them. This is a group or very strongly-opinionated people. I do not always like or agree with some of the opinions (or even enjoy some posts), but we are here kicking...and we are human first, cancer patients or survivors second; so I'm thrilled that we can still disagree!
All the best - Maura

CAMaura
Posts: 719
Joined: Feb 2005

Oh Lord. The grammar/edit/typo police will get me. Insert: reimburse.

nanuk's picture
nanuk
Posts: 1363
Joined: Dec 2003

thanks Maura, but the drugs I was referring to were Avastin and Panitumumab..Emend is an anti-nausea, anti-depressant drug. I don't believe it is a monoclonal anti-body.
I agree; we are so fortunate first to live in a free society-(meaning that politics are a given..)
and to have this forum to express our sometmes differing views..

CAMaura
Posts: 719
Joined: Feb 2005

You don't have to believe that EMEND is a monoclonal antibody, but it is; had it not been, I would not have mentioned it. The facts about it and how it helps nausea are written in the package insert...

No biggie, though...chemo is an expensive expedition, monoclonal antibody or not...

rthornton's picture
rthornton
Posts: 346
Joined: May 2005

I agree with you Bud. It doesn't sound to me like you are bringing up many different political issues to be debated, but merely suggesting that we think about which elected representatives have an interest in promoting research that might lead to a cure. If we don't take steps to elect research-friendly politicians, then we shouldn't be too surprised when would-be research dollars are wasted on pointless construction projects or whatever. I don't see it as a Republican vs. Democrat or Conservative vs. Liberal issue. It's just a matter of supporting candidates who represent your interests. I think this is a good place to spread the word about which candidates support research and which propose cutting NCI funds.

Rodney

vinny3's picture
vinny3
Posts: 933
Joined: Jun 2006

I think we all agree that more funding for cancer research, all phases of prevention and cure, is needed. In the meantime we need to keep supporting each other with advice, when we have it, and with hugs.

Dick

nanuk's picture
nanuk
Posts: 1363
Joined: Dec 2003

((((((((((Dick)))))))))))

spongebob's picture
spongebob
Posts: 2599
Joined: Apr 2003

Bud -

I agree with Rodney (and Dick, of course, too!)

I think that here in America cancer has been made into a political issue - I believe it was then-President Nixon who declared a "war against cancer". As long as taxpayers fund NCI grants and the Congress passes legislation that would seem to either facilitate or impede the ability of researchers to conduct cancer-cure research it IS a political issue; certainly for those of us living here in the US and most probably for those living in other countries as well.

Your message - which I didn't perceive as "political" but more "socially responsible" - was in the very same vein as our mantra about being an educated patient when dealing with one's medical team. You didn't pick a side, you didn't call out names, you didn't really even tell us how or what you personally think - politically speaking. You merely urged each of us to think the impact our vote may have on the future of cancer research in this country. I believe that's as important as considering what impact your vote may have on your ability to marry, your accessibility to various social programs, how much you pay in taxes, etc. It's all part of the bigger picture we need to consider.

I hope your posting made people think. That's what this DISCUSSION board is about - people discussing sometimes differing viewpoints in a respectful, educated manner. Thank God (uh-oh, am I mixing politics and religion?) we live in a country where we have the freedom to urge people to be better informed consumers of not only their medical care, but also their Government.

Thanks for your stimulating post, Bud!

- SpongeBob

This message paid for by the SpongeBob for Student Council President Campaign Fund; USAKAT Treasurer.

StacyGleaso's picture
StacyGleaso
Posts: 1250
Joined: Mar 2003

When I saw the title of this post, I thought it was going to be about the 80s alternative band. Bummer....

Tee hee,

Stacy

2bhealed's picture
2bhealed
Posts: 2085
Joined: Dec 2001

Stacy!

Did you say Alternative? Hey, that may all fine and dandy for you but don't try to shove your alternative music down my throat. You may like alternative music and it may work for you but I prefer to not listen to that stuff. It's not been confirmed through Billboard Magazine to be conducive to feelings of eurphoria nor has it been proven that it actually creates a dance environment.

Thanks, but no thanks. I'm sticking to my Folk music.

teehee

WARNING: please advert your eyes.....

(((((((((((((nanuk)))))))))))))))) kiss kiss smooch smooch !!! Thanks for the good laughs. You and Sponger made my day with this post. (and you too stacy! haha)(I actually thought it might be about the movie that was filmed in my old town in MN about the little boy with AIDS done in the '90s)(and knowing nanuk and his movies.....).

anyway, for the record bud, I support your idea. (Sponger, not sure if you get my vote for Student Council since you have been known to fondle the Treasury).

peace, emily who is apolitical but maybe can get passionate about this issue

StacyGleaso's picture
StacyGleaso
Posts: 1250
Joined: Mar 2003

Emily you are TOO funny!

Hugs,

Stacy

kerry's picture
kerry
Posts: 1317
Joined: Jan 2003

OK Stacy,

Now who are you for: Chicago or Indy??? I've got to hang with Peyton!! lol

Kerry (who expected a call back when the Bears won)

StacyGleaso's picture
StacyGleaso
Posts: 1250
Joined: Mar 2003

Still choosing the Bears over the Colts. Closer to Chicago than Indy! lol

I enjoyed hearing from you and Merriman very much. You two are too cool! Now....about those tuxedos and thongs...LMAO

Stacy

spongebob's picture
spongebob
Posts: 2599
Joined: Apr 2003

OMG! The same thing ran through my mind when I saw the subject line! You and Em are too funny.

The Cure and Depeche Mode RULE!
Emily!!??? Doing WHAT with the treasury? Are you accusing me of comingling funds!

rthornton's picture
rthornton
Posts: 346
Joined: May 2005

Yeah, when I saw the subject line I wondered if Robert Smith himself had been diagnosed with colon cancer.

2bhealed's picture
2bhealed
Posts: 2085
Joined: Dec 2001

I meant fondling the Treasurer!

Dude, okay, I have to admit I went through my punk/New Wave phase complete with spiked hair (a la mullet) very tight zipper jeans and ripped t-shirts before I went back to my hippie folkie Birkie wear. Oh well.

peace, emily whose wear today consists of mukluks and anoraks.....

nanuk's picture
nanuk
Posts: 1363
Joined: Dec 2003

whew...sure glad you went back to the hippie mode;not sure what I would have done if I saw a punker w/spiked hair dancing in the road..

scouty's picture
scouty
Posts: 1976
Joined: Apr 2004

Hi Bud,

I think the "mistake" you made was that you mentioned stem cell research. THAT is very politically charged...remember the accusations that Micheal J Fox was faking his Parkinson's disease effects. Now I am not trying to open a can of worms just stating what I think came across as political and you should not feel like everytime you post you get into trouble. You make us think!!!!! I thank you for it.

AND you can dance great and I look forward to dancing with you in Nastyville, oops Nashville in September.

(((((Bud))))))

Lisa P.

jams67's picture
jams67
Posts: 927
Joined: May 2006

I agree that we have to think every time there is an election about who will best help us with cancer research and all of our other pet agendas. There is so much science that is religiously and politically charged. I know you didn't intend to begin a debate. We have a large audience and I for one want everyone to feel welcome. It doesn't matter if you can dance or even know who The Cure is. This site is for all of those with colon cancer and/or care givers. We are one and all of us need a hug today. (((((Those touched by this disease.)))))) Thank you nanuk for making us think.

shmurciakova's picture
shmurciakova
Posts: 910
Joined: Dec 2002

Thank you Bud for being one of the people with "balls"! How refreshing! Lately it seems that we are walking on eggshells here and that is not how it should be. Barring anything deliberately hurtfull to other members we should be able to post what we think and not worry about "getting in trouble".
-Susan

donaldo's picture
donaldo
Posts: 36
Joined: Nov 2006

Since you posted this political message on all of the boards, I thought a little rebuttal was in order.
This message sounds good as long as you only look at the broad picture and ignore the details. If you’ve actually been paying attention to the issue, none of the politicians have supported a complete ban on stem cell research. In fact, I just donated a bunch for research a few months ago. Only a few politicians even support a total ban on stem cell research on cells from aborted fetuses. The actual aim of the politicians that are in favor of any ban at all is only on banning research on stem cells collected using methods that politicians on both sides of the debate consider immoral. The problem is that the judges appointed by the political party that supports the use of these methods of collecting stem cells for research the most, won’t allow the lawmakers to ban just certain methods of collecting the cells. As a result, this forces an almost total ban on the use of aborted fetus stem cells, in order to prevent the methods that both sides consider immoral. In effect the people supposedly support the stem cell research, are also the ones most responsible for it’s being banned.

The primary method under fire is a method that was developed because the best stem cells for research come from the brains of fetuses 10 months after conception. Since the human gestation period is slightly under 9 months, and sucking brains out of one-month-old babies is illegal, they use the definition of life given by the previously mentioned judges to skirt the law. That definition is that a baby isn’t alive until it is completely out of the mother. They use drugs to delay the labor until the end of the tenth month. At this time they turn the baby so it is delivered feet first, and face down. As you can probably guess, babies don’t fit through the cervix very good at ten months. The baby’s shoulders may need to be crunched a bit, but all they need is access to the base of the scull. They aren’t too concerned about the baby’s pain since they don’t intend to allow it to live. They then shove a tube through the base of the skull and suction out the brain to collect the stem cells. This kills the baby and deflates the head so the baby can be removed the rest of the way, and thrown away. Many of us consider this murder. This procedure is commonly referred to as a partial birth abortion. You’ve probably heard the term used numerous times.

Although I would love it if a cure were found for my cancer, I would rather die from it then have children murdered to find the cure. Since the white house, the congress, and the senate passed the current ban, it appears a majority of the politicians agree.

nanuk's picture
nanuk
Posts: 1363
Joined: Dec 2003

I don't believe that I indicated what kind of stem cell research I supported; therefore you can't assume that I have a position, or that I am not paying attention to the issue.
I guess people read what they want. My motivation for the post was the fact that out of 10,000 Grants from NCI, only 500 even mentioned metasistis. (that's Grants, not dollars, so multiply by tens of millions) If you are stage IV, this gets personal.

libris
Posts: 23
Joined: Mar 2006

This is simply wrong. The controversy surrounding the stem cell research is based on the belief that life begins at conception and that all life is worth preserving. The truth is that these cells are obtained from blastocysts - the stage reached 4 or 5 days after conception consisting of about 100 cells. These blastocysts are generally the unwanted product of invitro fertilization and are slated for destruction. No one is killing ten month fetuses to harvest stem cells. These would not even qualify as embryonic cells.
Your opposition to late term abortion is another topic entirely.

vinny3's picture
vinny3
Posts: 933
Joined: Jun 2006

This posting gives false and misleading information. The original posting mentioned stem cell research without defining how he (Bud) felt the stem cells were to be obtained. This posting does not contribute to the support function of this site.

Dick

kerry's picture
kerry
Posts: 1317
Joined: Jan 2003

donaldo's issues do not belong here at this site. It is totally inappropriate and unfortunate, especially since he himself has received stem cells for his lymphoma. Even though they were his own stem cells, he has benefitted from the research. Shame, shame!!

Bud's email was NOT political per se and espouted no political party. Donaldo's email was a stinger and very political and hypocritical.

Kerry

2bhealed's picture
2bhealed
Posts: 2085
Joined: Dec 2001

HOLY TOLEDO!

Who lobbed this bomb into our midst? My little carrot juicing and coffee enema controversies pale in comparison!

ho boy.

peace, emily who is ducking for cover

shmurciakova's picture
shmurciakova
Posts: 910
Joined: Dec 2002

Yeah really! Why would anyone want to post something so disgusting and inflammatory on this board? I am shocked as this does not even take place and never would in a civilized society. I guess Donaldo just pulled this one out of his butt.

vinny3's picture
vinny3
Posts: 933
Joined: Jun 2006

Jose-any comment?

Betsydoglover's picture
Betsydoglover
Posts: 1254
Joined: Jul 2005

What the H#$% !!!!

This has gotten a little off track, to say the least. Like Bud, I'll vote with my colon and there should be more research on metastatic disease. But let's not start talking about 10 month fetuses whose brains are being sucked out!

This seems totally inappropriate for this message board. We are here to support each other and share personal experiences. I'll be the first to admit that I have messed that up once or twice, BUT not by talking about brains being sucked out of 10 month fetuses! Gosh - this needs to stop!

Betsy

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vinny3's picture
vinny3
Posts: 933
Joined: Jun 2006

Thank you.

usakat's picture
usakat
Posts: 625
Joined: Jul 2006

Ahhhhhh...the voice of reason, alas. Thank you for encouraging us to pursue CREDIBLE information, Jose. The ACS is a blessing.

Oh, and thanks for turning the virtual garden hose on us...

Katie

usakat's picture
usakat
Posts: 625
Joined: Jul 2006

Would this be a good time to campaign for SpongeBob for Student Council President?

jams67's picture
jams67
Posts: 927
Joined: May 2006

If my comment got this started, I'm sorry. I knew it could be explosive and really was trying to stop it before it got started. Oh no! Now not only am I worried about cancer, but also about foot in mouth disease. jams

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