The Cancer Survivors Network (CSN) is a peer support community for cancer patients, survivors, caregivers, families, and friends! CSN is a safe place to connect with others who share your interests and experiences.

Thank you for being a part of the Cancer Survivor Network community. Survivors and caregivers like you have played a unique role in fostering an online environment that encourages connection among those needing support, community, and education. On May 28, the Network will be discontinued. More details are available here . If you have any questions, contact CSNSupportTeam@cancer.org. Thanks again for the support you’ve provided each other over the years. We remain committed to supporting you in other ways throughout your cancer journey.

Anyone had intrathecal chemo done?

susietrue
susietrue CSN Member Posts: 2
edited March 2014 in Lung Cancer #1
My 50 year old non-smoker husband was diagnosed with Stage IV NSCLC (Adeno) in August, 2004. He went through 8 months of combined chemo--then responded great to Tarceva. He was back to work full time for over a year. In September, he starting having a little nausea/vomiting. Now he has a neuropathy-type syndrome and terrible nausea. The MD's think the cancer is in his spinal fluid (even though no malignant cells have been found). They want to do intrathecal chemo. Has anyone had this and had good results? Everything I know about it sounds terrible and will prolong life without a good quality of life for about 3 extra months. Anyone's experience with this would be helpful. Thanks.
Like Care

Comments

  • reinstones1
    reinstones1 CSN Member Posts: 92
    #2
    Hi-- I just read about it, because I didn't know what it was. My Mom also has Stage IV adenocarcinoma (diagnosed in 12/05), but has received her chemo via a chest port.

    Although I don't have any advice, I wanted to post to say hello and offer support. I hope you will find friends and help on this board.
    Like Care

Discussion Boards