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Stage IV 8 year anniversary

madu
Posts: 53
Joined: Mar 2005

8 years ago today at this time I was just going into surgery to remove a "growth" discovered the day before in a routine colonoscopy. Much to the surprise of everyone (mostly because I was only 31) when they opened me up they found the cancer had spread to my liver. A foot of colon and a lobe of liver later, I started my new life a "terminal" stage IV rectal-sigmoid cancer patient. 8 months of 5FU and luecovorin and 28 days of radiation later I started my life as a cancer survivor. It's hard to believe 8 years have passed! I was telling my boyfriend last night that it all seems so unreal now. I've been blessed to be NED all these years and I can remember mentally making plans on who should inherit my stuff! Good thing I didn't follow through! It's just amazing to me how my life has changed since that point. Anyhow, people in my life know that it's my anniversary but they don't really understand how huge that is so I wanted to share it with a group a people who know just what it means. Keep the faith folks - it is possible to survive a "terminal" diagnosis. I'm not around as much as I used to be but I try to check in every once in awhile and am always happy to answer any questions.

Heidi

Patrusha
Posts: 488
Joined: Jun 2006

Thanks, Heidi, for your news. It is always so good to hear from the "terminal" cases who started their journey in Stage IV. It brings so much hope to anyone dealing with this disease. Congratulations.

lfondots63's picture
lfondots63
Posts: 822
Joined: Jan 2006

HI HEIDI!!

Congrats on such a huge landmark!! I hope you are celebrating big time. You are an inspiration to all the newer people (myself included) just like so many others on this board. Happy Dance going on here!

Lisa F.

livin
Posts: 319
Joined: Jan 2003

I hope my message don't appear double, but when I went to post it it didnot show up as the last reply?

shubunkin
Posts: 60
Joined: Aug 2003

Awesome story! I love hearing outcomes like that! Beautiful name! My moms name was Heidi ;)

vinny3's picture
vinny3
Posts: 933
Joined: Jun 2006

That's wonderful news and inspiration for those of us who are early in our survival period. Keep us posted.
Dick

Betsydoglover's picture
Betsydoglover
Posts: 1256
Joined: Jul 2005

Heidi -

Thanks for your inspiring story. It really helps us other relatively short-term Stage IV survivors to hear a positive story like this.

Congratulations (and thanks for sharing).
Betsy

scouty's picture
scouty
Posts: 1976
Joined: Apr 2004

You Go Girl!!!!!!!!!

Thanks so much for the inspiration!!!!!! YAHOOOOO

Celebrate!!!!!!

Lisa P.

pink05
Posts: 553
Joined: Mar 2006

Hi Heidi,

Congratulations on your big anniversary!!! You are truly an inspiration to all of us!!!

God bless you,

-Lee-

HowardJ
Posts: 484
Joined: Jan 2005

Very inspiring!! Thank you for sharing!

Howard

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ron50's picture
ron50
Posts: 1729
Joined: Nov 2001

(((((((((((heidi)))))))))))Enjoy it as much as you can, I know what you mean about the passing of time,it seems like years ago or only yesterday. This site sure needs long term survivors ,specially stage four like yourself Stacey,Scouty and the unstoppable Kiwi,Foxy(I think she must be coming up for her 14 th anniversary)Add to that some stage 3 ers like Runnerz and myself and there are a lot of years to prove that cancer can be tamed. Congratulations not only on winning the battle against cancer but against the fear. It is a huge burden to carry as well as living your life and dealing with all the NORMAL problems. I'm sure I can speak for all the survivors on this site and tell you how proud we are of you,Cheers Ron.

betina61's picture
betina61
Posts: 644
Joined: Aug 2006

Hi Heidi have a very very happy anniversary,you made my day already, I will go to bed tonight with much more hope, I was recently dx in late June, and I definitely want to be in your team years from now, I have too much to live for, thanks again for sharing with us.
Betina

betina61's picture
betina61
Posts: 644
Joined: Aug 2006

Hi Heidi have a very very happy anniversary,you made my day already, I will go to bed tonight with much more hope, I was recently dx in late June, and I definitely want to be in your team years from now, I have too much to live for, thanks again for sharing with us.
Betina

JADot's picture
JADot
Posts: 720
Joined: Jan 2006

Oh my gosh Heidi, what a message of hope for all of us! My most sincere congrats to you for your extraordinary survivorship!

You go girl!

Cheers,
Ying

jams67's picture
jams67
Posts: 927
Joined: May 2006

Thank you so much for sharing! God has kept you here for a reason. Maybe just to give inspiration to the rest of us. jams

CAMaura
Posts: 719
Joined: Feb 2005

Heidi! Thank you very much!!!! After hearing a very sobering: "You aren't in the clear at all until five years out." from my surgeon, yesterday, I love reading your post. Take care and many, many more years to you!!! - Maura

KathiM's picture
KathiM
Posts: 8077
Joined: Aug 2005

YEA YEA YEA YEA YEA YEA YEA!

NAKED happy dance!!!!!!

Hugs, Kathi

jerseysue's picture
jerseysue
Posts: 626
Joined: Oct 2005

Thanks for sharing love those stories! Congrats!

AuthorUnknown
Posts: 1560
Joined: May 2006

Congratulations!!

Thank you for being willing to come back to this board and give others hope that can only come from one who has been there. My husband is stage 4 as well. I have already told him of your success. Wishing you many, many more years cancer free!! Not only have you helped those facing this monster but their caregivers as well.

Again, thank you and God bless.

Betty

AuthorUnknown
Posts: 1560
Joined: May 2006

Congratulations, Heidi! I am happy for you.

Best wishes, Eleonora

terril
Posts: 297
Joined: Apr 2004

All I can say is "WOW!"

foxy
Posts: 190
Joined: Oct 2005

Hello Heidi, and yes you have a beautiful name! Congratulations on your achievement. As Ron said I am a stage 4 surviver from 20 Dec 1993. Back in those good old days???? we had to take levamisole as well as 5Fu and it was the most disgusting drug ever, but it certainly did the trick for me.

I also had a large liver met removed at the same time as my hemicolectomy. Since then I have said good bye to half my right breast, my right ovary nodules on the right side of my voice box and a thingy on the right side of my cervix. They were all pre- cancerous and only found by continued scans etc. Funny that everything is right sided. Anyway here down under, we do not have the same treatment that you get elsewhere, but with a great Specialist I was able to give the beast a boot. I continue monthly CEA's and Liver function tests, but at this stage I am a definite NED.
All the very best to you.

Virginia.

madu
Posts: 53
Joined: Mar 2005

Thank you all for your kind words. Sometimes people ask me whether I did anything special to overcome cancer and I'm always a little embarrassed to admit I didn't do anything tangible. I didn't take supplements, juice things, cut out foods or anything else. I did whatever the doctors said. The one thing I will say is that I never ever gave up hope. I felt every day was a gift. If I only had so much time to live then I chose to live each day with hope and joy rather than despair and depression. I only really asked "why me?" once and that was years after the diagnosis when I asked my onc. "why did I survive? What is it about me or my genetics or whatever that did the trick?" He just said sometimes there are just miracles. I wish there was some genetic test they could do on the long term survivors to find the magic bullet that would turn the tide for all! I would gladly sign myself up for study!

So anyhow on my anniversary, we went out to dinner and then even though I was full and really should be watching the calories - we went out for ice cream! Yummy! It was a pretty good day!

Hope all is well with everyone!
Heidi

suzannchili's picture
suzannchili
Posts: 135
Joined: Mar 2003

Happy Anniversary! I LOVE hearing all the survivor stories! Thank you for sharing!

livin
Posts: 319
Joined: Jan 2003

Congratulations on 8 years stage IV. You are very lucky. God is with you. I hope to be in that number being a stage IV-er also. I know I am lucky already being haven't had Cancer 3 times and still here. All I can ever say is God Is Good.

taunya's picture
taunya
Posts: 392
Joined: Jul 2002

Dear Heidi,
I can't tell you how happy I am for you. I wish I could grab you and hug you tight! (good thing this is cyber space huh?!) Congratulations. I will be thinking of you and your son.
God Bless and Keep You,
Taunya

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