PET--results not what I wanted

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WendyMarie
WendyMarie Member Posts: 48
edited March 2014 in Colorectal Cancer #1
Got the results from my first PET today. There is some "activity" in the rectal area. Could be scar tissue or polyps. I have familial polyposis so polyps can always a problem in the tiny amount of large bowel I have left. Oncologist called GI while I was there and I will see him Monday to schedule flex-sig. I have one scheduled for July at another facility but Dr. says we cannot wait that long. I am really pleased to see how quickly he is taking care of this. He says we don't want to play dumb in this situation. Had hoped it would be nothing, but since that's not the case, I am preparing to do whatever it takes.I am afraid, but I fought it once and I will do it again.

Wendy

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  • spongebob
    spongebob Member Posts: 2,565 Member
    #2
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    Hey, wendy -

    FAP is one of those nasty little genetic buggers hat you just never seem to get rid of, eh? I've got his brother HNPCC. A good buddy of mine has FAP. They did a therapeutic colectemy on his amd built a colon/rectum out of his small intestine. It seems to work OK fine for him - he's back at sea and doing well.

    Hopefully your only issue is scarring or "pre-cancerous" polyps that they can excise and be done with.

    Keeping you in my prayers.

    - SpongeBob
  • pink05
    pink05 Member Posts: 550
    #3
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    Wendy,

    I know it's scary to not know what exactly is going on, but hopefully it is just polyps or scar tissue. You are in my prayers.

    -Lee-
  • Betsydoglover
    Betsydoglover Member Posts: 1,248 Member
    #4
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    Hi Wendy -

    Sorry to hear about the "activity". One of my many PET's showed a similar thing in the large intestine, but concluded it was consistent with colorectal surgery. Nothing has showed up since. SO, while you do need to check it out, hopefully it really means nothing.

    Take care,
    Betsy
  • terril
    terril Member Posts: 296
    #5
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    Hi Wendy!!!
    My prayers and thoughts are with you! Terri
  • JADot
    JADot Member Posts: 709 Member
    #6
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    Hi Wendy:

    Sound like you're in the hands of a really great doctor who understands the essense of time. I am so sorry you're having to go through this right now. I am hoping hard that it's just scar tissues. You're in my thoughts and I'll keep my tingly fingers crossed for you!

    JADot
  • KathiM
    KathiM Member Posts: 8,028 Member
    #7
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    Wendy,
    You go, girl! You know, since you BEAT the beast before, even if you have to fight again, you have the advantage....because????
    If you won, the beast is a big LOSER!!!!!!
    I'm sending vibes that its only scar tissue...
    Hugs, Kathi
  • CAMaura
    CAMaura Member Posts: 719 Member
    #8
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    Hi Wendy - Ya know...my docs - and yes, that means plural - don't feel that PET scans are all that great; too many false positives and false negatives. They show "activity" but nothing difinitive. Hang in there and wait for more news. Pray a lot!! Hope for the best. Take care - Maura
  • goldfinch
    goldfinch Member Posts: 735
    #9
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    Keeping you in my thoughts and prayers!
    Mary
  • jenalynet
    jenalynet Member Posts: 361 Member
    #10
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    Hi, I'm glad your doctor is on the ball with not waiting..I will keep you in my thoughts and prayers...Audrey
  • jerseysue
    jerseysue Member Posts: 624 Member
    #11
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    Thinking of you. My prayers are with you.
  • fedester
    fedester Member Posts: 753 Member
    #12
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    hi wendy,
    stay strong and positive. great doc. hopefully only scaring.
    all the best
    bruce

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