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Radiation Late Effect Plexopathy

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I was recently diagnosed with lumbar plexopathy, a late effect of radiation treatment I had eight years ago for endometrial cancer. I am having difficulty walking. Anyone else with this problem?

Auzzie123's picture
Auzzie123
Posts: 28
Joined: Dec 2013

If anyone finds this forum or returns ro this site I would like to let you know I have started a blog about my Journey with Radiation induced lumbar plexopathy https://lifeinawheelchairblog.wordpress.com i would love to hear from anyine who is living with this as we are so rare in the world and would be great if we could have some communication as it is a lonely disease... Since my previous posts I am now paralysed and use a wheelchair.. It came about gradually but febripuary 2015 I reached the stage of paralasis... I am under the care of my original radiation oncologist but there is no treatment... ... Please connect via my blog I would love to hear from you .. Helen 

Auzzie123's picture
Auzzie123
Posts: 28
Joined: Dec 2013

I have now started a facebook group for all those suffering from Radiation Induced lumbar plexopathy

https://lifeinawheelchairblog.wordpress.com/2016/02/01/facebook-group-for-rilp/ please find the link on this post in my blog... I hope that at some stage people may find this page again as I do wonder how everyone is doing .. 

Auzzie123's picture
Auzzie123
Posts: 28
Joined: Dec 2013

In case any one comes back to this thread the FB group for Radiation induced lumbar plexopathy Is going well Come and join us https://www.facebook.com/groups/RadiationInducedLumbarPlexopathy/ it is a closed group so only members can see what is written ... 

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