I need some help,please (tectal glioma survivor)

OK, I have survived 43 brain surgeries, two comas, radiation therapy, having my whole skull taken off and made thinner because my brain was swelling and I was dying, and lots of other 'stuff'
Not fun, but I survived.
I have just been diagnosed with someting called an 'acoustic neuroma'. Esentially another brain tumor.
OK, the doc (an infection diseases GP) said 'Oh, it
s NOTHING, and anyway, if they did have to do something, they can't do radiation.
I need information on this.
It's been 5 months, and more problens with hearing and mentation since then, but doc doesn't do anything, and my mom has not made an appt with an oncologist.
Help.
It's up to me, I am 36, and will do what I know needs to be done, which starts with information.
thank you
PLEASE HELP