any stage iv survivors

domino216
domino216 Member Posts: 13
edited March 2014 in Lung Cancer #1
MY HUSBAND WAS DIOGNOSED WITH NSCL ANDENCARCINOMA IN FEB '04. HE HAS HAD 33 RADIATION TREATMENTS AND 3 DIFFERENT TYPES OF CHEMO SINCE THEN. HE STARTED WITH TAXOL/CARBOPLATIN THEN GEMZAR/NAVELBINE AND WAS THEN PUT ON ALIMTA JAN 05,WHICH HE RESPONDED AND WAS STABLE WELL UNTIL NOW. HE HAS METASIS TO LIVER AND MASS ON LUNG WHICH IS ENLARGING AGAIN. HAS ANYONE BEEN THRU THIS LIKE THIS? DR IS NOW GOING TO PUT HIM ON CITSPLASIM/TAXOTERE. CAN ANYONE TELL ME THE SURVIVAL CHANCE AND TOLERANCE CAN BE. WHAT AM I LOOKING AT. THE DR JUST WAS A LITTLE MORE CONCERNED THIS TIME BECAUSE OF THE GROWTH. CAN THERE STILL BE TIME LEFT AND HAS ANYONE LIVED STAGE IV FOR A LONG TIME. i AM JUST SO SCARED OF WHAT MAY BE. ANY HELP WOULD SURELY BE APPRECIATED.

Comments

  • finner
    finner Member Posts: 230
    Hello
    Have you looked at the replies to crot1998 a little bit further down on htis page? Hope they will help you.
  • jonie4
    jonie4 Member Posts: 7
    just want to wish you and your husband well. i'm a stage IV since May, 2005. Just got to fight!!!!
  • stage4survivor
    stage4survivor Member Posts: 6
    11/30/1999: NSCLC to brain;
    12/15/1999 Stereotactic radial surg removing 3X4cm tumor posterior to optic chiasma;
    2 1cm posterior occipital masses untreated;
    12/30/1999 R pulmonary embolus(hypercoagulable state post-operatively), no treatment;
    1/2000 2 doses taxil/carbo;
    1/2000 VAS on R lung for new suspicious lesion confirms previously mentioned PE;
    4/15/2000 LUL wedge resection for 1cm primary confirms adeno-ca;
    10/2000 1 dose taxotere/carbo;
    11/2000 regrowth optic chiasma tumor: Gamma knife including 2 previously untreated post occipital masses...
    NO RECURRENCE...NO TREATMENT of ANY kind since 11/2000
  • crot1998
    crot1998 Member Posts: 67

    11/30/1999: NSCLC to brain;
    12/15/1999 Stereotactic radial surg removing 3X4cm tumor posterior to optic chiasma;
    2 1cm posterior occipital masses untreated;
    12/30/1999 R pulmonary embolus(hypercoagulable state post-operatively), no treatment;
    1/2000 2 doses taxil/carbo;
    1/2000 VAS on R lung for new suspicious lesion confirms previously mentioned PE;
    4/15/2000 LUL wedge resection for 1cm primary confirms adeno-ca;
    10/2000 1 dose taxotere/carbo;
    11/2000 regrowth optic chiasma tumor: Gamma knife including 2 previously untreated post occipital masses...
    NO RECURRENCE...NO TREATMENT of ANY kind since 11/2000

    Hi there. Wow what a story. What was the size of your primary lung tumor before it went to the brain? Was that resected or is it still in the lung?
  • stage4survivor
    stage4survivor Member Posts: 6
    crot1998 said:

    Hi there. Wow what a story. What was the size of your primary lung tumor before it went to the brain? Was that resected or is it still in the lung?

    The 1cm LUL primary was found on work-up after discovery of brain mass. Had a focal seizure on 10/30/1999 and went for MRI later that day. Was stage4 from day one, lung to brain.
    Neurosurgeon, Thoracic surgeon and Onco said: We'll classify you as stage4b, resect the tumors, little chemo and cure you!
    My reply? Do you think this brain tumor made me STOOPID, too? I'm a dead man!
    Bottomline: God doesn't want me, yet
  • ace0203
    ace0203 Member Posts: 2

    11/30/1999: NSCLC to brain;
    12/15/1999 Stereotactic radial surg removing 3X4cm tumor posterior to optic chiasma;
    2 1cm posterior occipital masses untreated;
    12/30/1999 R pulmonary embolus(hypercoagulable state post-operatively), no treatment;
    1/2000 2 doses taxil/carbo;
    1/2000 VAS on R lung for new suspicious lesion confirms previously mentioned PE;
    4/15/2000 LUL wedge resection for 1cm primary confirms adeno-ca;
    10/2000 1 dose taxotere/carbo;
    11/2000 regrowth optic chiasma tumor: Gamma knife including 2 previously untreated post occipital masses...
    NO RECURRENCE...NO TREATMENT of ANY kind since 11/2000

    Hello

    Glad to hear your doing good. I'm hoping maybe you can help me. My dad was just diagnosed with state 4 cancer (lung cancer that mestasized to the femur bone). He has a weak heart and we held off on the operation because the anesthestia put my father at a great risk of losing him during the surgery. Any suggestions or info. that you have?
  • stage4survivor
    stage4survivor Member Posts: 6
    ace0203 said:

    Hello

    Glad to hear your doing good. I'm hoping maybe you can help me. My dad was just diagnosed with state 4 cancer (lung cancer that mestasized to the femur bone). He has a weak heart and we held off on the operation because the anesthestia put my father at a great risk of losing him during the surgery. Any suggestions or info. that you have?

    Ace et al,
    I'll be happy to, if possible but, need more details. Your location, under care of cancer center, which one, etc?
    Lot of bad info out there, ESPECIALLY, high profile centers but, I won't mention them here.
  • jonie4
    jonie4 Member Posts: 7

    Ace et al,
    I'll be happy to, if possible but, need more details. Your location, under care of cancer center, which one, etc?
    Lot of bad info out there, ESPECIALLY, high profile centers but, I won't mention them here.

    very interested in what you said re "high profile centers". you can e-mail me at [email protected] i happen to be going to one and did have some concerns.
  • bugsy127
    bugsy127 Member Posts: 12

    Ace et al,
    I'll be happy to, if possible but, need more details. Your location, under care of cancer center, which one, etc?
    Lot of bad info out there, ESPECIALLY, high profile centers but, I won't mention them here.

    hi
    just read your message. i was diagnosed with stage3 nsclc in april05. i had chemo and rad., surgery and more chemo. found out today that there is evidence of disease in both lungs now. i see my Dr. next week for more info. i am currently at a high profile treatment center also and was wondering what info you had. thanks!