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Jaw pain

Firefighter35's picture
Firefighter35
Posts: 10
Joined: Jul 2005

Has anyone experienced jaw pain with the first few bites of food when on folfox 6, 5fu oxaliplatin and leuc. ? goes away after a few bites. thanks all

Tim

Kanort's picture
Kanort
Posts: 1275
Joined: Jan 2004

Hi Tim,

Yes, I was on Folfox 4, and my jaws would almost lock at times. It would go away after a few seconds, but it was scary at first. I took the entire 12 treatments and am happy to say that I have no lasting side effects. I just celebrated my one year mark post chemo!

Kay

rthornton's picture
rthornton
Posts: 346
Joined: May 2005

Oh yeah Tim,

I've totally had that. It's from the oxaliplatin, and it's very unpredictable. Sometimes when I start to eat something or drink something quickly, my jaw gets really crampy, near the back of the jaw, and then it goes away after a few seconds. It's a weird side effect, but I have had it before so don't think you are alone!

Rodney

taraHK
Posts: 1961
Joined: Aug 2003

Yes. Exactly as you describe. I call it a jaw spasm. Last just a few seconds. It's a side effect of the oxaliplatin. For me, it starts on day 1 of oxalitplatin, and lasts for a few days after the infusion (as least, so far -- I'm only on tx #4). I get it every time I first take a bite or sip -- doesn't seem to matter what food/drink. But, if I am having a whole meal, it is only that first bite. It suprises me every time (I'm a slow learner!). Oddly, my oncologist never mentioned this to me -- I had to mention it to him.
Good luck with it.
Tara

Firefighter35's picture
Firefighter35
Posts: 10
Joined: Jul 2005

Thanks for your responses all, thought it was a little weird. Also, did you all have the sensation to cold ? if so when did it set in ? I haven't noticed it yet, maybe i will get lucky on that one. Take care all.

Tim

Betsydoglover's picture
Betsydoglover
Posts: 1254
Joined: Jul 2005

Hi Tim -

As everyone else has said, the oxaliplatin does cause the sensation you describe. Very wierd.

I experienced virtually no cold sensitivity after my first treatment. However, just had my second treatment this past Monday and the cold sensitivity is MUCH more pronounced.

One of the nurses told me of a patient who went home after treatment and ate a Klondike bar - his face froze up so much he almost couldn't talk!

Betsy

taraHK
Posts: 1961
Joined: Aug 2003

I'm finishing up round 4 and haven't had the sensation to cold yet (well, hardly -- an occasional twinge but nothing to speak ot). I'm avoiding cold food/drinks during and after the chemo just in case.
Tara

BusterBrown's picture
BusterBrown
Posts: 221
Joined: Mar 2005

Tim:
That happened to me too. I noticed it occurred to me right after my infusion. It seems to me that it only lasted a day or two and things returned to normal, until my dose...
Buster

livin
Posts: 319
Joined: Jan 2003

Hi Tim, that oxaliplatin was the pain in the butt for me caused jaw pain teeth pain sores in month tingling and numbness(sp) in hands and feet neuralgia(sp) of the face high blood pressure, burning eyes and inside of my nose. If I cried the pain was terrible to make a tear. Boy I tell you every other week I had a different side effect from this drug, They subsided in a few days still have tingling and numbness of hands and feet. Reason I know oxi caused the problems is because I had all the other drugs before and didn't have any side effects. But remeber everyone is different.

lando
Posts: 2
Joined: Apr 2011

Yes, my husband is taking the fu5 for colon cancer & this round he developed jaw pain when he 1st takes a bite.

lando
Posts: 2
Joined: Apr 2011

Yes, my husband is taking the fu5 for colon cancer & this round he developed jaw pain when he 1st takes a bite.

herdizziness's picture
herdizziness
Posts: 3642
Joined: Apr 2010

On the jaw pain when I was on Oxi for the first few bites, and yes on the cold sensation, some people are lucky on the cold thing, apparently you're one of the lucky ones!! ;)

Folfox1
Posts: 1
Joined: May 2019

i know there haven’t been any recent post on this topic but I was glad to see the post still here about jaw pain. I have had 2 FolFox sessions and I am having the same pains with the first few bites of food. Knowing it is going to happen helps to work through it. 

Annabelle41415's picture
Annabelle41415
Posts: 6124
Joined: Feb 2009

It's common and very annoying at times.  It gets better after stopping treatment but after 10 years once in awhile I'll still get it and have to pucker up to stop the chills from going down me.  It would be nice if you could start a new thread and introduce yourself.  Welcome to the board.

Kim

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