Newly diagnosed 33yr old

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lumpling
lumpling Member Posts: 10
edited March 2014 in Stomach Cancer #1
Hello, My husband was diagnosed with andenocarcinoma stomach cancer the day before his 33rd birthday. The doctor that performed his endoscopic ultrasound thinks that it is a stage 2 and doesn't see any spread.

We have an appointment at M.D. Anderson in Houston next week and are curious if anyone has gone there and what their experience with that hospital was?
I've been searching the web looking for stories to inspire me... I'm just terrified. We have a 5 year old and a 2 year old.

Last year, my husband's only sister lost her battle with breast cancer at the age of 34, so this is like jumping on a roller coaster again...and really, I've always hated roller coasters.

Thank you in advance,
Amy

Comments

  • AuthorUnknown
    AuthorUnknown CSN Member Posts: 1,537 Member
    #2
    Hello,

    I encourage you to contact others on this discussion board that may not be checking it regularly. You can do this through the CSN email system by clicking on the envelope icon below their name. You can also browse the personal web pages. You can do this by clicking on "Personal Web Pages" on the left hand side of the page. Enter the search criteria you are looking for. If you find someone you would like to contact, you can do so through the CSN email system.

    I wish your husband well on his treatment.

    Take care and be well,

    Dana
    CSN Dana
  • charles7472
    charles7472 Member Posts: 9
    #3
    Hello lumpling....I had the same cnacer as your husband...mine was stage four...I had my surgery at Sloan Kettering 19 months ago...I know what you are going through.....I am glad to discuss with you or your husband and shed some light on what you may except...by the way there are only two hosipital on the planet equipped to handle any type of cancer Sloan and MD Anderson....They are the best because of the number of patients they see, number of operations they perform, and the number of clinical trials....again I can be reached at ccassar@parkell.com or 1-800-243-7446 ext 153...I too desperately wanted someone to talk to in the beginning so I am glad to help...

    CAC
  • bke
    bke Member Posts: 42
    #4
    Two helpful websites you might check out are

    http://www.tigerminx.com/scare/index.html
    (Bev's Scare (stomach cancer care) page

    and also the ACOR stomach cancer list group at www.acor.org. You register and sign up to participate in a list group. Once you sign up you have access to the list archives on which there is a lot of helpful information.

    There are a bunch of survivors out there. It is beatable. My best to you both

    b
  • lumpling
    lumpling Member Posts: 10
    #5
    bke said:

    Two helpful websites you might check out are

    http://www.tigerminx.com/scare/index.html
    (Bev's Scare (stomach cancer care) page

    and also the ACOR stomach cancer list group at www.acor.org. You register and sign up to participate in a list group. Once you sign up you have access to the list archives on which there is a lot of helpful information.

    There are a bunch of survivors out there. It is beatable. My best to you both

    b

    thank you so much for the information and the positive words!

    amy
  • lumpling
    lumpling Member Posts: 10
    #6
    charles7472 said:

    Hello lumpling....I had the same cnacer as your husband...mine was stage four...I had my surgery at Sloan Kettering 19 months ago...I know what you are going through.....I am glad to discuss with you or your husband and shed some light on what you may except...by the way there are only two hosipital on the planet equipped to handle any type of cancer Sloan and MD Anderson....They are the best because of the number of patients they see, number of operations they perform, and the number of clinical trials....again I can be reached at ccassar@parkell.com or 1-800-243-7446 ext 153...I too desperately wanted someone to talk to in the beginning so I am glad to help...

    CAC

    Dear Charles,
    Thank you for all of your help and sharing your story with us!
  • ZELLARS
    ZELLARS CSN Member Posts: 34
    #7
    AMY I AM SO EXTREMELY SORRY. I AM 31 AND LOST MY DAD THIS PAST APRIL TO THIS CRUEL DISEASE.I HAVE A 5 YR OLD DAUGHTER AND 3 YR OLD SON. MY DAD WAS VERY ACTIVE, NON SMOKER ETC. TRUST ME I KNOW ABOUT THE LACK OF INSPIRING NEWS AND INFORMATION ON THIS DISEASE. MY DAD WENT FOR A SECOND OPINION TO SLOAN-KETTERING. ALOT ABOUT THE STAGING AND SO FORTH YOU DESCRIBED I FEEL FAMILAR WITH. PLEASE CONTACT ME --TRUST ME IF YOU ARE LIKE ME THAT JUST ALWAYS SEEMED WAY TO WEIRD! BUT HERE I AM AND IT SOUNDS LIKE OUR HOUSEHOLDS ARE MUCH THE SAME WITH THE LITTLE ONES. YOU ARE IN MY THOUGHTS AND PRAYERS. NEVER GIVE UP HOPE! BETSY
  • ZELLARS
    ZELLARS CSN Member Posts: 34
    #8
    AMY I AM SO EXTREMELY SORRY. I AM 31 AND LOST MY DAD THIS PAST APRIL TO THIS CRUEL DISEASE.I HAVE A 5 YR OLD DAUGHTER AND 3 YR OLD SON. MY DAD WAS VERY ACTIVE, NON SMOKER ETC. TRUST ME I KNOW ABOUT THE LACK OF INSPIRING NEWS AND INFORMATION ON THIS DISEASE. MY DAD WENT FOR A SECOND OPINION TO SLOAN-KETTERING. ALOT ABOUT THE STAGING AND SO FORTH YOU DESCRIBED I FEEL FAMILAR WITH. PLEASE CONTACT ME --TRUST ME IF YOU ARE LIKE ME THAT JUST ALWAYS SEEMED WAY TO WEIRD! BUT HERE I AM AND IT SOUNDS LIKE OUR HOUSEHOLDS ARE MUCH THE SAME WITH THE LITTLE ONES. YOU ARE IN MY THOUGHTS AND PRAYERS. NEVER GIVE UP HOPE! BETSY
  • myboys
    myboys CSN Member Posts: 7
    #9
    Hello Amy,

    My name is Maria and I'm 35yrs old diagnosed with stage 3 stomach cancer. In January I had half of my stomach removed and I'm currently completing my chemo and radiation treatment. I also have a 2.5 and 4 year old. It's been tuff trying to survive and take care of children. How are you doing and your husband?. It's such a scary situation when you have young children. However, it's scary regardless of what it is. Life is so changing when you come across this path. Thinking of you

    Myboys
  • lumpling
    lumpling Member Posts: 10
    #10
    myboys said:

    Hello Amy,

    My name is Maria and I'm 35yrs old diagnosed with stage 3 stomach cancer. In January I had half of my stomach removed and I'm currently completing my chemo and radiation treatment. I also have a 2.5 and 4 year old. It's been tuff trying to survive and take care of children. How are you doing and your husband?. It's such a scary situation when you have young children. However, it's scary regardless of what it is. Life is so changing when you come across this path. Thinking of you

    Myboys

    Dear Maria,
    I'm so sorry that I didn't reply earlier. I didn't know that your message was here!
    It has now been almost a year since my husband had his surgery and he is just now starting to get some strength back. He's lost about 65 pounds. Unfortunately, last week he came down with Shingles and we found out that he has osteo arthritis in his hip...we can only assume that these are from the chemo and radiation.
    We remain full of hope and take life day by day. In a few weeks we go for his one year checkup with pet scans and biopsies...we travel to Md anderson hospital in Texas for his checkups.
    I hope that you are feeling good and that the chemo/radiation haven't gotten you too down.
    It is so hard with little ones...our three year old doesn't really understand, but our six year old understands too well.
    What part of the world are you in?
    My best wishes and prayers,
    Amy

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