The Cancer Survivors Network (CSN) is a peer support community for cancer patients, survivors, caregivers, families, and friends! CSN is a safe place to connect with others who share your interests and experiences.

Thank you for being a part of the Cancer Survivor Network community. Survivors and caregivers like you have played a unique role in fostering an online environment that encourages connection among those needing support, community, and education. On May 28, the Network will be discontinued. More details are available here . If you have any questions, contact CSNSupportTeam@cancer.org. Thanks again for the support you’ve provided each other over the years. We remain committed to supporting you in other ways throughout your cancer journey.

Fear after transplant

AmyLundy
AmyLundy CSN Member Posts: 1
edited March 2014 in Leukemia #1
Hi. When I was 30 I was diagnosed with lymphoblastic lymphoma. I did 2 1/2 years of chemo and then relapsed almost immediately after finishing, with ALL. My only option was a stem cell transplant. I'm now almost 9 months post transplant. With every day that passes that I'm cancer free, I feel a little more comfortable. I still get scared and worry about not being around to see my daughter grow up. Does the fear every go away?
Like Care

Comments

  • mc2001
    mc2001 CSN Member Posts: 343
    #2
    Hi amy,
    My name is Michael and I am a leukemia survivor. i was diagnosed when I was 21 and I am now 30. The fear never goes away, but it definitely decreased with time. I now have concerns when I get sick, however, they are minimal and not consuming. I believe the same will happen in your case. Take care.
    -Michael
    Like Care
  • RonnieLacey
    RonnieLacey CSN Member Posts: 1
    #3
    Not really a reply amy More of some question I have. I have a little girl with ALL. My e-mail is cambriesbc@global.net
    Thanks,
    Candice
    Like Care
  • Leecia18
    Leecia18 CSN Member Posts: 1
    #4
    Hi Amy, I was diagnosed with AML when I was seventeen. I am now 18 and I just celebrated the one year anniversery of my BMT. The fear that I will have to go though all of that again is always in the very back of my mind, I think about it every now and then but these moments of doubt are few and far between. I guess it will never really ever go away. But this doesn't keep me from living my life. I'm always making plans for my future, without giving it a second thought.
    Like Care
  • Cheap
    Cheap CSN Member Posts: 1
    #5
    Im 33 and had my BMT in March 04. Ive thought about it alot to the point of depression because I kept getting sick and have been back to the hospital 4 times since my BMT. I finally got GVHD and after being treated I feel a lot better. I am no longer depressed and can do more than stare at the 4 walls. I just had a baby in March and I sometimes do wonder If he will ever really get to know me. But it makes no sense worrying about it all of the time. I just try to be the best father to my kids (I also have a girl) as possible and let the Lord handle the rest.
    Like Care
  • Unknown
    Unknown
    #6
    This comment has been removed by the Moderator
    Like Care
  • Spen1976
    Spen1976 CSN Member Posts: 2
    #7
    Fear After Transplant

    Amy,

    I had a transplant in Oct of 94'. To this day there is always that little drop of fear you have when you get a disease like leukemia. I was taught by my Great uncle at the time to keep a positive attitude and it will be alright. I say enjoy every moment with daughter and before you know it, your only fear will be choosing a college for her. I wish you all the success in the world and I know you will be great.

    Spencer
    BenMW99@aol.com
    Like Care

Discussion Boards