Temodar

Try Prilosec
My husband had surgery for his tumor in Aug 2010. When he was on steroids they also had him on steriods. Followed by Temodar. He was on prolonged steroids but when he stopped the prilosec he felt worse. So he has been on Prilosec ever since and it seems to help with the Temodar treatments. Ask your doc to try it. Or Nexium. I have seen a huge difference from when he wasn't taking prilosce and when he is. Good Luck.

Temodar
Yes I am on Temodar and have been for 4 years Jan. 13,2008.
I have had little to no side effects.Really I have not had any of these problems you mention. I think fatigue is my biggest problem.

Ninamom said:

Temodar 430mg

Is there anyone who is taking 430mg of Temodar?  What are your side effects?  My daughter 30yr.old is on her round 2 of this dosage and is vomiting,,chills and tired.  She also has short-term memory loss, shaking of hands and legs.  We have been told she doesn't carry the gene for the great results with Chemo.  She has also had radiation, 45 days of straight Temodar, 1 round of 300mg and now the 2nd round with 430mg and Gamma Knife.  Anyone could help with some answers I would appreciate it.  She also has low platlets and lupus. 

I was on temodar for a year

I was on temodar for a year but a much lower dosage. What type of brain cancer and what stage is it? 

Annette

Temodar

Hello,

    I was on Temodar , first time was while I was taking radiation, but at a lower dose.  When I completed my radiation, temodar was

increased for 6 months.   I did not suffer any symptoms from taking Temodar, my oncologist, had me take Ondansetron for nausea

one hour before taking the Temodar. This was done 1 hour, prior to taking Temodar tablets, and at night, so if there were

any symptoms, I would sleep through them.  Worked wonderful!  My doctor's believe in treating sypmtoms before they

become a problem.  Was also given a handbook all about cancer, in there certain foods were listed to avoid while on chemo

and taking temodar.  Any acid juices, sugars, tomato products etc.  My treating facility is Roger Maris Cancer Center, John Hopkins

and Mayo.  I was dx with Oli Grade III, have the 1p19q deletions, and presently cancer free.  No physical problems suffered

from 99% removal of left frontal lobe tumor.  Good as new )

 

Ben

Temodar & dietary restrictions ?

I just started on Temodar 250mg this week, for five consecutive days each month to treat a pilocytic astrocytoma in the pons of the brainstem. I know not to eat an hour or two before taking Temodar.  Are there any other dietary guidelines or restrictions while I am on Temodar? I’ve been reviewing the information, both from my doctor’s office and from other sources, and I don’t see any mention of any restrictions.  Nor do I recall the doctor verbally saying anything about dietary restrictions.  Consuming more water and fruit may help prevent the side effect of constipation, but is there anything I should not eat?  I just want to be sure.

I had a co-worker tell me that when her son was on chemotherapy (not Temodar, but a different type) he could not consume any coffee, tea, sweets, caffeine or sugar or any kind.  To the contrary, I’ve also read that moderate amounts of coffee may increase the “therapeutic effects” of some chemotherapy drugs.

Other than constipation, I have not yet experienced any other side effects from Temodar. Tonight will be my 5^th dose of five for this first round.