I am officially a lab rat

Hissy_Fitz
Hissy_Fitz Member Posts: 1,834
in Ovarian Cancer #1
My 10:45 appointment got underway right on schedule but by the time they did EKG, blood draw (
LOTS of blood), vitals, etc it was 2:00. It took a long time (over an hour) to get the vaccine compounded. I posted on Face Book that it had to be done by elves specially trained in alchemy. LOL
My next injection is Feb 11, then the 18th and after that I get a break and we are going back to the Wed schedule .

I wore my shirt from last year's NOCC 5K. Dr S was very impressed, especially when I told him I had done the race while I was in treatment.

Carlene

Comments

  • 123missy
    123missy Member Posts: 26
    #2
    Do you have to go to NY
    Do you have to go to NY everytime?
  • nancy591
    nancy591 Member Posts: 1,027 Member
    #3
    EKG
    EKG given by the blonde with the long curly hair? My trial required an EKG every 4 wks. What side effects can you expect if any?
  • Hissy_Fitz
    Hissy_Fitz Member Posts: 1,834
    #4
    123missy said:

    Do you have to go to NY
    Do you have to go to NY everytime?

    Yes...NY every week for 3
    Yes...NY every week for 3 weeks then I get 3 wk break then a 6 wk break . After that it's every 3 months .
  • Hissy_Fitz
    Hissy_Fitz Member Posts: 1,834
    #5
    nancy591 said:

    EKG
    EKG given by the blonde with the long curly hair? My trial required an EKG every 4 wks. What side effects can you expect if any?

    Same girl/lady. Dr S said he
    Same girl/lady. Dr S said he does not expect any side effects except maybe some redness/soreness at the injection site. I am the 4th person to be injected and one reported a fever , 2 had some redness and one had nothing
  • clamryn
    clamryn Member Posts: 508
    #6
    Vampires
    I think you went to the den of the "vampires"...lol They just needed your blood. Hang in there, we are all keeping tabs on you.

    Linda
  • Hissy_Fitz
    Hissy_Fitz Member Posts: 1,834
    #7
    clamryn said:

    Vampires
    I think you went to the den of the "vampires"...lol They just needed your blood. Hang in there, we are all keeping tabs on you.

    Linda

    No kidding! They took 8 of
    No kidding! They took 8 of those big vials of blood!
  • MK_4Dani
    MK_4Dani Member Posts: 314
    #8
    You are amazing.
    Thank you, thank you, thank you Carlene. What you are doing is amazing.
    Mary
  • 123missy
    123missy Member Posts: 26
    #9
    Hissy_Fitz said:

    No kidding! They took 8 of
    No kidding! They took 8 of those big vials of blood!

    Hello
    Hope you staying over until your next visit and can go to plays etc. Think DFW is a mess right now with Super Bpwl fever. You are an inspiration.
  • Hissy_Fitz
    Hissy_Fitz Member Posts: 1,834
    #10
    123missy said:

    Hello
    Hope you staying over until your next visit and can go to plays etc. Think DFW is a mess right now with Super Bpwl fever. You are an inspiration.

    Going home tomorrow, unless
    Going home tomorrow, unless we get snow bound here in NY.

    We walked down to St Patrick's cathedral, lit a candle and said a prayer. I wanted to stay for mass but my husband wanted to get back to the hotel before it got dark and the temp dropped even more.

    I also wanted to ride the subway but Bob is afraid we will end up in Harlem or something and get mugged, a la The Out of Towners.
  • jloe
    jloe Member Posts: 174
    #11
    Hissy_Fitz said:

    Going home tomorrow, unless
    Going home tomorrow, unless we get snow bound here in NY.

    We walked down to St Patrick's cathedral, lit a candle and said a prayer. I wanted to stay for mass but my husband wanted to get back to the hotel before it got dark and the temp dropped even more.

    I also wanted to ride the subway but Bob is afraid we will end up in Harlem or something and get mugged, a la The Out of Towners.

    Subway
    We can do that next week! I really enjoyed the visit and I hope you get home so you can rest a little before the next visit.
  • Cafewoman53
    Cafewoman53 Member Posts: 735 Member
    #12
    Cutest lab rat !
    You are too cute to be called a lab rat ! Thank-you for what you are doing, wow they really made it difficult for you with the scans but you hung in there ! I'm glad you got to enjoy NYC a little . I will be hoping for clear weather for your travels !
    Colleen
  • Hissy_Fitz
    Hissy_Fitz Member Posts: 1,834
    #13
    jloe said:

    Subway
    We can do that next week! I really enjoyed the visit and I hope you get home so you can rest a little before the next visit.

    Back home!
    It really is "always something". I drug myself out of bed at 3 AM to check us in for a 7 o'clock flight, only to find out that the employee website we have to use was down for maintenance. My husband called the non-rev not-so-helpful line and was told it was not expected to be back up until after 8 AM, so off we went to the airport. (If you fly as an employee/retiree of the airline, your place on the priority list depends, among other things, on the order of check in, with the goal being to check in as close to the 4 hour max as possible.)

    Since everyone else was having the same issue, we still made numbers 1 and 2 on the list, though, and were even able to catch the 6:10 flight - full of way too perky people on their way to DFW to see the Super Bowl.

    Joni....we are definitely going to ride the subway next time. We will leave Bob at the hotel, if he is too timid to go with us. Maybe we can ride it down to Times Square.

    Carlene
  • jloe
    jloe Member Posts: 174
    #14
    Hissy_Fitz said:

    Back home!
    It really is "always something". I drug myself out of bed at 3 AM to check us in for a 7 o'clock flight, only to find out that the employee website we have to use was down for maintenance. My husband called the non-rev not-so-helpful line and was told it was not expected to be back up until after 8 AM, so off we went to the airport. (If you fly as an employee/retiree of the airline, your place on the priority list depends, among other things, on the order of check in, with the goal being to check in as close to the 4 hour max as possible.)

    Since everyone else was having the same issue, we still made numbers 1 and 2 on the list, though, and were even able to catch the 6:10 flight - full of way too perky people on their way to DFW to see the Super Bowl.

    Joni....we are definitely going to ride the subway next time. We will leave Bob at the hotel, if he is too timid to go with us. Maybe we can ride it down to Times Square.

    Carlene

    You got it
    we'll go uptown, downtown or midtown! Glad you made it home.
  • Mwee
    Mwee Member Posts: 1,338
    #15
    I second that... you are amazing!
    Thank you for what you are doing... for all of us, our mothers, sisters, daughters and grand daughters.
    (((HUGS))) Maria
  • Hissy_Fitz
    Hissy_Fitz Member Posts: 1,834
    #16
    Mwee said:

    I second that... you are amazing!
    Thank you for what you are doing... for all of us, our mothers, sisters, daughters and grand daughters.
    (((HUGS))) Maria

    Maria (and all)....I have a
    Maria (and all)....I have a daughter, too, and 4 granddaughters. I am delighted and honored to have the chance to participate in this study. It would give me such satisfaction to know that I was part of saving the lives of generations of women to come. Even though it's a Phase I trial and odds are will not pan out, and even though there have been many other vaccine trials that went nowhere, there is always a chance that this will be the one that works. Every single treatment available today began as a Phase I trial. And I have absolutely no doubt that any and all of you would do the same.

    Carlene
  • annecris
    annecris Member Posts: 44
    #17
    Hissy_Fitz said:

    Maria (and all)....I have a
    Maria (and all)....I have a daughter, too, and 4 granddaughters. I am delighted and honored to have the chance to participate in this study. It would give me such satisfaction to know that I was part of saving the lives of generations of women to come. Even though it's a Phase I trial and odds are will not pan out, and even though there have been many other vaccine trials that went nowhere, there is always a chance that this will be the one that works. Every single treatment available today began as a Phase I trial. And I have absolutely no doubt that any and all of you would do the same.

    Carlene

    Maybe we can meet up on the 11th!
    Carlene - I am coming in to meet Dr. S. on the 11th and scheduled for my first shot on the 18th - maybe we can meet up on those days! My appt. on the 11th is at 11:45am I think and on the 18th I think it is at 10- hope to see you there - think only the BEST will come of this - YOU GO GIRL!!!

    ANNIE
  • Disneynutt
    Disneynutt Member Posts: 134 Member
    #18
    Hissy_Fitz said:

    Maria (and all)....I have a
    Maria (and all)....I have a daughter, too, and 4 granddaughters. I am delighted and honored to have the chance to participate in this study. It would give me such satisfaction to know that I was part of saving the lives of generations of women to come. Even though it's a Phase I trial and odds are will not pan out, and even though there have been many other vaccine trials that went nowhere, there is always a chance that this will be the one that works. Every single treatment available today began as a Phase I trial. And I have absolutely no doubt that any and all of you would do the same.

    Carlene

    You are correct
    I would do exactly the same thing given the opportunity. Good luck!!

    -Kate
  • Hissy_Fitz
    Hissy_Fitz Member Posts: 1,834
    #19
    annecris said:

    Maybe we can meet up on the 11th!
    Carlene - I am coming in to meet Dr. S. on the 11th and scheduled for my first shot on the 18th - maybe we can meet up on those days! My appt. on the 11th is at 11:45am I think and on the 18th I think it is at 10- hope to see you there - think only the BEST will come of this - YOU GO GIRL!!!

    ANNIE

    Cool! My appointment on the
    Cool! My appointment on the 11th is for noon and on the 18th it is 9 AM. We will be in Dr S's office at the same time on the 11th.

    Have you already sent your records and CT scan to them? That first appointment they will draw blood, take your vitals, and go over the protocol with you. There are tons of forms you have to fill out and sign. I warn you, they told me he is booked solid for the 11th, so you could have a long wait.

    I will send you my contact info. We are staying in the Marriott that is in the same building as MSKCC. We will be arrivingon Thursday, but you just come in for the day, right? No overnight stays?

    Carlene
  • annecris
    annecris Member Posts: 44
    #20
    Hissy_Fitz said:

    Cool! My appointment on the
    Cool! My appointment on the 11th is for noon and on the 18th it is 9 AM. We will be in Dr S's office at the same time on the 11th.

    Have you already sent your records and CT scan to them? That first appointment they will draw blood, take your vitals, and go over the protocol with you. There are tons of forms you have to fill out and sign. I warn you, they told me he is booked solid for the 11th, so you could have a long wait.

    I will send you my contact info. We are staying in the Marriott that is in the same building as MSKCC. We will be arrivingon Thursday, but you just come in for the day, right? No overnight stays?

    Carlene

    Feb 11th
    I had all the blood work done at my visit to my oncologist last week at Sloan in NJ so hopefully that will cut some time down - we just go in for the day and I am hoping that on Friday we will be able to get to see my Mom in Brooklyn on the way back to NJ when we are done- on the other visits (starting on the 18th) when I begin the shots we will kill time in NYC after the appointments in order to miss rush hour back to NJ - sometimes it could take longer driving the 50 miles back than flying back to Fla. (!) - can't wait to see you on Frdiay Hon - will be in touch via cell -

    Annie

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