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Now I get to finish my chemo, but differently. Will replace Taxotere with Taxol and do three weekly doses, one week off, then three weekly again. After that, 6weeks of radiation combined with Herceptin every three weeks until September. Whew...it's a lot, but plowing through.
Can anyone tell me of the side effects of the weekly chemo treatments? Are they as bad as the every three week treatments?
Bonnie
Comments
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Thank you!mom62 said:Welcome
Bonnie,
I didn't have this kind of treatment but wanted to welcome you to the boards. I'm a two time survivor stage 4 bone mets. Your handling things very well and I wish you well as you continue your treatment, good news with the MRI!
Terry
Thanks for the welcome. Not looking forward to two more chemo rounds, but I am thinking of it as my "clean sweep." Any stray suckers will be swept away! Gotta have some fun with this, right? My treatments have become "chemotinis!"0 -
taxol
first welcome to the site. i did 12 weekly rounds of taxol, no breaks in between. i had crazy, annoying side effects. my eyes teared all the time (use drops if it happens), i had heartburn and metal taste in my mouth. i was tired all the time (i'd done four rounds of A/C right before). i have dark circles under my eyes naturally, and during treatment i looked like a raccoon (furless of course).
that being said, the treatment is doable. you've gotten great results from what's been done and that after all is what we want.
be good to yourself. don't over do things. also, i've read many posts here from women who had no problems at all from taxol. my onc predicted that i wouldn't and all things considered they were really minor.
let us know how you're doing.
marge0 -
Welcome BMSmwallace1325 said:taxol
first welcome to the site. i did 12 weekly rounds of taxol, no breaks in between. i had crazy, annoying side effects. my eyes teared all the time (use drops if it happens), i had heartburn and metal taste in my mouth. i was tired all the time (i'd done four rounds of A/C right before). i have dark circles under my eyes naturally, and during treatment i looked like a raccoon (furless of course).
that being said, the treatment is doable. you've gotten great results from what's been done and that after all is what we want.
be good to yourself. don't over do things. also, i've read many posts here from women who had no problems at all from taxol. my onc predicted that i wouldn't and all things considered they were really minor.
let us know how you're doing.
marge
I only had the
Welcome BMS
I only had the every 3 weeks chemo, so can't help, but I wanted to say that we are glad you found us.
Dee0 -
Welcome!!!!
I had weekly taxol treatments at the end of my chemo, I couldn't handle the larger dose every two weeks. I had no problems at all. I have heard of taxol causing joint pain, my late friend told me she had to take pain pills. I am so happy that your masses shrunk and no lymph nodes involved! Yippee!! Good luck, I am here for you!! I am doing well!!! Carlie0 -
We're all different.
I started with 4 A/C every 2 weeks - they weren't that bad at all. Hair left (most but not all), lost all sense of taste and appetite, eyes and nose ran like it was a spigot turned on, was tired 2 days out of the 2 weeks and it wasn't that bad of a tired, I could rest on those days and get relief. The Neulasta wasn't even bad for me - no pain, just went to sleep 2 hours (almost to the minute) for 2 hours after getting it. 2 weeks after last A/C I had a mod. rad. mast. and 3 weeks after that I started 12 weekly Taxol.
The 12 weekly Taxol were another story though - it was NASTY. The rest of hair left, still no taste or appetite and complete and utter exhastion. I lived on the couch or bed only going to the bathroom other than going for the next infusion. Could not sleep - sleeping pills helped. The good thing was that the effect started leaving a week after the last one. The week after the last Taxol I started 25 rads whcih went well - feeling better with each week until after the end - burned bad.
Didn't need Herceptin but have been on Femara for 11 1/2 months with no side effects I know of.
Remember that we are each unique in how we handle what we are going through AND how our body handles it.
Susan0 -
Bonnie...
First of all, welcome to the board. Very nice to meet you.
I didn't have Taxol, but a cousin to Taxol, called Abraxane. That was after 4 A/C chemo.
Then I had 33 rounds of rads. All of this was after mastectomy and lymph nodes.
I did a year of Herceptin, an infusion every three weeks. I can tell you that it was easy to do. No real side effects from that, so hopefully, you will not have any problems with it.
Best wishes,
CR0 -
Hi Bonnie,
I have
Hi Bonnie,
I have not had the treatment you are having but I did want to welcome you to the board. I have been through chemo taxotere, carboplatin,herceptin ended Oct 12Th Had surgery Nov 1, right side mastectomy and had six weeks of radiation w/bolas finished that last Saturday Whew.
I wish you all the best with the rest of your treatment. It sounds like you have a pretty good handle on things and are in good spirits. But if there is anything we can do to help or just to talk we are here for you. So come often talk lots you now have 4000 sisters LOL
Really it is nice to meet ya Take care Kay0 -
Bonnie,
Welcome and sorry
Bonnie,
Welcome and sorry you had to come here. Sounds promising that nodes were clean and the tumors shrunk. I didn't do chemo but others will chime in to let you know how they did. I will keep you in my prayers that you do well with the chemo, rads, and herceptin.
Stef0 -
Welcome Bonnie!! As stated,
Welcome Bonnie!! As stated, we are all different and this is just my experience with Taxol. After 4 rounds of A/C I was scheduled for 12 weekly rounds of taxol, we stopped at 11 because of the neuropathy (numb hands and feet, nerve pain). As for the other side effects, my eyes watered all the time, I was exhausted, I had the awful metal taste in my mouth, and I couldn't sleep. It's been a year now since I've had it and my neuropathy is still pretty bad, that's the biggest one for me. The metal taste, I recommend plastic silverware and of course lots of ice cream. Be good to yourself, and remember, we all react differently, don't want to scare you yet I know how nice it is to hear others experience. You sound like a true warrior!! Be kind to yourself.
Hugz,
~Kari0 -
Welcome Bonniepinkkari09 said:Welcome Bonnie!! As stated,
Welcome Bonnie!! As stated, we are all different and this is just my experience with Taxol. After 4 rounds of A/C I was scheduled for 12 weekly rounds of taxol, we stopped at 11 because of the neuropathy (numb hands and feet, nerve pain). As for the other side effects, my eyes watered all the time, I was exhausted, I had the awful metal taste in my mouth, and I couldn't sleep. It's been a year now since I've had it and my neuropathy is still pretty bad, that's the biggest one for me. The metal taste, I recommend plastic silverware and of course lots of ice cream. Be good to yourself, and remember, we all react differently, don't want to scare you yet I know how nice it is to hear others experience. You sound like a true warrior!! Be kind to yourself.
Hugz,
~Kari
Glad you found us. A lot of great guys and gals here. I had 4 rounds of Taxol. I did get a lot of bone pain and hands were numb, but it was doable. ANything to help rid our bodies of the beast.
Hugs,
Wanda0 -
Welcome Bonnie
So sorry to meet you here but glad you found us so you can get
some great advice and unparalleled support.
I had Taxotere and Carbo, main side effects for me were nausea,
vomiting and later on joint problems. But unfortunately everyone's
experience on chemo is very different. I certainly hope it won't be
too hard on you.
I am still on Herceptin, which is not so bad. I just have symptoms
like a slight flu.
Hope to see you post more!
Hugs,
Ayse0 -
Bonnie, I also wanted to
Bonnie, I also wanted to welcome you to this amazing group of even more amazing individuals. It sounds like you have made great progress in shrinking the masses and clear lymph nodes is awesome. I didn't have the same treatments but felt that whatever was necessary to get to the desired result (NED=No Evidence of Disease), I would do it. Wishing you strength to get through the remainder of treatments. Continue to post as someone is usually here 24/7. Good luck.0 -
Thanks to you all...MyTurnNow said:Bonnie, I also wanted to
Bonnie, I also wanted to welcome you to this amazing group of even more amazing individuals. It sounds like you have made great progress in shrinking the masses and clear lymph nodes is awesome. I didn't have the same treatments but felt that whatever was necessary to get to the desired result (NED=No Evidence of Disease), I would do it. Wishing you strength to get through the remainder of treatments. Continue to post as someone is usually here 24/7. Good luck.
Thanks for the warm welcome. Feels good to be among those who understand.
I am in good spirits and recovering from the lumpectomy and node removal. Next week I head back to the oncologist to talk about these last 2 chemos. He feels it needs to be done to make sure all the cells are gone. I agree. He also feels doing the smaller, weekly doses rather than the TCH/neulasta once every three weeks like I got before, will be easier on my system and less side effects. I certainly hope so.
Right now my hair has sprouted, but I am guessing it will fall out again when we do these chemos...then I get to do the 30 rads.
So much fun....
Anyone located in the Washington, DC area?0 -
Hi BMS, I'd like to welcomeBMS said:Thanks to you all...
Thanks for the warm welcome. Feels good to be among those who understand.
I am in good spirits and recovering from the lumpectomy and node removal. Next week I head back to the oncologist to talk about these last 2 chemos. He feels it needs to be done to make sure all the cells are gone. I agree. He also feels doing the smaller, weekly doses rather than the TCH/neulasta once every three weeks like I got before, will be easier on my system and less side effects. I certainly hope so.
Right now my hair has sprouted, but I am guessing it will fall out again when we do these chemos...then I get to do the 30 rads.
So much fun....
Anyone located in the Washington, DC area?
Hi BMS, I'd like to welcome you and send my best wishes to you. I do not live in the DC area anymore, but spent most of my life between NOVA and suburban MD. Where are you located? I miss the area very much.0
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