Plain and Simple : I need you folk.

Hello to my old friends and new warriors on this site.

As you might have read from previous posts, my wife who is Fancini Aneamic and after 4 surgeries the last year and another 3 in previous years , has finally had to succumb to the "no choice" of radiation, which is considered life threatening. This is because Fanconi patients who are prone to malignancies and bone marrow failure, have problems in cell repair. So kill off enough good cells and you kill off the person simplistically put!
I know this is blunt, but we just don’t know what kind of reaction she will have.
She will have erbitux too, as chemo is a complete NO, owing to toxicity.I believe my wife is one of the eldest FA anaemic adult patients surviving. (SweetB- youre still a young chicklet).

I am fearful, as her physical starting point is compromised too by multiple throat surgeries, including Lung surgery for squam a year ago.

Our last PET SHOWED Squamus cc of hypopharynx+ a spot at the place of previous opp where her asoph was removed except for a small join now to the stomach. Stomach has been lifted up into the -chest area.(after gastric pull up). Also spot on Lung (cosidered a recurrence of scc from previouse opp)

We will now have Radiation of throat and down to aesoph area-planned for FEB 14.I know this is going to be difficult, i pray shell be strong. Shes walking, talking , and working as much as she can.
She is my light;i cant think of anyone happier in a relationship than me.I am rich by this.I move between wanting to dance at home to celebrate life on the one hand and am rendered
momentarily passified on the other.

I have been with her for every breath of her 14 year battle. Every meeting, checkup, surgery and heartfelt moment. Now its obvious to me that this time the scenario is different.Both for her and for me. I got to maintain my job , run the home, be at her side adn logistically seems impossible.

In a previous post i asked about rad effects and remedies you use/d.Thank you for your responses. Now i want to take on a different angle.

I want practical advice of how i am to organize myself for the comming "inquisition":
1.What do i need to have at home on the assumtion that shell be at home , and not hospitalized at least initially?
2. What do I need to find out/organize/take into account when I look for a small group to help me?
3.How am i to function as the husband at the hospital on the assumption that shell be hospitalized?
4.Any thing else you recommend or comment.

Having said all of this, i kow too that all the scenarios i plan for might be nothing near to reality and perhaps i should be more humble.

I know there have been many posts re prep for Rads and i apologize if i have encroached on someone elses post.

Yours
Clear B.(who should probably be on the caregivers board, but nevertheless)