Update On Keith Rodney (Boston67

Greetings,

Tomorrow begins the next phase of Dana Farber and my fight against EC, phase IV.

I am at home following a sucessful J Tube implant into my Duendum. It was a must more significant procedure then I was expecting. The operation was on Thursday and I was discharged to home on Tuesday. I believe the procedure went well and it added information for my surgeon, Dr Joon at Dada Farber/Brigham and woman's hospital.

For now, I get 100% of my nutrition needs from the tube, per my surgeon, Dr Joon. He tells me that they may adjust this over time and that antyhing I take by mouth is a bonus.

The feeding consists of 7 cans a day of Jevity 1.2. It is begin fed to me at the rate of 70 ml per hour. My goal is about 2150 calories and 93 grams of protein. The feeding regime is just slightly higher then then.

I keep a log of all feeding tube activity and record the date and time of all canc added, when a new bag and tube is added (must every 24 hours, and the date and time of all flushing (every 6 hours. I am being careful to follow their instructions precisely and regularly.

My Surgeon has instructed me not to add medications through the tube to prvent blockabe.

This surgeon is now only the second person to actually see the cancer since he opened up my belly. He said to me that he saw and touched some ares uncobered and took at least one new biopsy, which he said was positive for cancer. Since my belly cavity and stomach are near the surgical sites, his primary worry is to assure that he has good healing before they start Chemotherapy. My Oncology doctor, Dr Ng, has said that there is a natural diffanece in their views since the surgeon fears infection before Chemotherapy and the Oncologist was to start Chemo as soon as possible. I believe that they will deciede together on the state date for Chemo.

In addition a second CT scan was performed which can and has been compared to the first one. The comparison shows some growth of the tumor but was told it was not dramatic.

My visiting nurse saw me and reviewed my feeding the night I came home (Tusday), stopped again on Wednesday and Friday and will return again nest Wednesday. This is a great help to me and helps calm my fears and my busy mind.

At the meeting Monday I will focus of the treatment, side effects and steps to minimize, nitrition and mental health. My family, as always, will; be with me with my sister and daughter as my advisers, my girlfriend for love and support and my other sister who takes detailed notes and reports to the entire family. We will all meet after we meet with the doctors to assure that we all have the same perspective on the meeting

I meet with my Oncologist on Monday and I think that is when I hear the specific datails of the treatment include dosages and timing. I have a preliminary estimate of the week of January 31.

I am in good spirits and my "hope" scale is very high, which my "worst" thinkingas prepared for as I know how.

My pain management plan has been adjusted somewhat after the procedure and consists of 15 to 20 MG of Ocycodone every four hours, 30 mg of Tylenol every 6 hours, and a Fentaryl 72 hour patch from which I get 25 mcg over the 72 hours. I expect this to be adjusted following Monday's meeting, but my pain can only be described as managed presently.

My digestive system was not working properly before the procedure and might best be described as constipated and a little blocked with infrequent bowl movement. Since being home and on the Jervity 1.2 it has become loose and generally regular. I have suspended the stool softeners (It's plenty soft) and Senna since a laxative is not needed. I have plenty of gas and movement. I know it is icky, but the digestive system seems pretty important to what I am going through.

Keith Rodney
Boston 67 Age 67 Boston
Stage IV (probably at least IVa)
Preparing for treatment