33 MISSING FROM ROLL CALL.

HAWVET
HAWVET Member Posts: 318
edited March 2014 in Head and Neck Cancer #1
The list below shows those who had enrolled and had not checked back in. We do pray that they are still with us and wish them the best as we all continue with our lives. We hope that they will check back in this year, 2011.

Bughunter, Tennessee, Stage IV tonsilar, last treated 03/28/2007, Home St: Michigan, enrolled August 5, 2008.

Byzas, New York. 2007, Checked in 05-12-2009, Left tonsil, stage III

Craig_Griffin, Indiana, 2008, Mass Squamus Carninoma (tongue base), checked in Feb 4, 2009

Cwctcher, Virginia. Tonsillar in 1997, enrolled November 6, 2008

Devildawg, Michigan, 2004, Nasopharyngeal. Enrolled August 29, 2008

Fishinggirl, State Unk, 2009, Checked in 11-27-09. Last radiation Oct 09, diagnosed w/ squamous cell carcinoma (Cindy)

Garyr, New Mexico. 1999, Throat & Lymph glands Jestawoman, Oregon, 2006, Checked in 12-01-2009. Reported brother Troy with NPC in 2006. In treatment for past six months. Recurrent NPC, stage IV.

Geezer, Florida, Tonsilar in 2006, enrolled August 5, 2008

JGE, state unk, checked in 03-17-2010. 2008, BOT w/2 nodes. Had chemo and rads. All scans cleared, return to work 01 2009.

Jodyman, Texas, 2008, Current, squamous cell carcinoma at base of tongue. Lung Cancer in 2005. Enrolled August 30, 2008

Lolojldunn, Montana, 2007, Stage 4 Tonsilar (last treated 8/16/2007)

Lorileona, Wisconsin, 2005/2008 Wife of Ron w/Tongue and lymph nodes (Spouse)

Luckyfl, 2009, Checked in 05-13-2009, Just started, left tonsil and lymph. Nodes removed pass Monday, Name: Roxie

Marymoo, Alabama, 2008, SCC of tongue and lymphnodes current at time of posting, enrolled August 28, 2008

Moondreamer, Phoenix, cancer unk, Originally from Indiana, checked in 02-06-2009. Caregiver, daughter in law brain/bone

Marywiz15, Colorado, 2007, epithelial myo-epithelial carcinoma

MLC53, State Unk. 2007?, Checked in 11-27-09. Had been 2 1/2 years since post treatment.

Nidociv, Ohio, 2008, Checked in 12-11-2009. Diagnosed w/SCC left BOT. Completed treatment in October 2008. All scans have been clean. Only starting to eat now. Still w/PEG tube.

Oldejack, State and cancer unk. Reported 05-26-2009 only saying “I’m alive”
Paula002, Montreal, 2007, Nasopharyngeal , enrolled November 7, 2008

PBAILEY, Virginia, 2008, Checked in 03-25-2009, named Patti. Operation in November 2008. Esthesioneuroblastoma. Followup radiation should be in June. Checked in 07-25-2009, last MRI good

Pie123, State unk, 2007, Squamuous cell cancer behind the left tonsil, enrolled August 25, 2008

Pmfennell, NE/Florida 6 mos, Checked in 07-24-2009 after 6.5 years clear, Name: Pete

Ratface, state unk, 2009, checked in 02-03-2010, T1N2BMO, Stage IV-BOT-2 nodes right side, selective disection 11-30-09 9 nodes removed

Sassyque-Betsy, Pennsylvania, 2003, Cancer of the tongue, Checked in 01-22, Steeler fan, Checked in 07-29-2009 good and steeler fan

SIRENAF42, Texas, 2008, Checked in 02-06-2009, Esthesionueroblastoma of the Ethmoid Sinus and Naspharnyx,,
Name Sienna Finch. Checked in 03-25-2009, doing okay completed June 2009. Followup. PET and CT were clean. (John)

Slickwilly, Michigan, Large B-cell lymphoma, cancer from sinus to jaw bone in 2003, enrolled, August 7, 2008
Checked in 01-20-2009

Smithmama2, Georgia, 2009, Checked in 12-06-2009. Husband Kevin diagnosed Stage 4 SCC in base of tongue. Early December 2009, had clean PET/CT scan. Completed treatment in October 2009. (Karen)

Souplady, Washington, 2009, Tonsil Stage 4 removed last Monday, checked in May 13, 2009

TereB, Houston, Texas, Milignant Paraganglioma (started as glomus jugulare tumor) in 1987, enrolled August 6, 2008.

TIM_WWJD, Oregon, 2009, Checked in 01-31-2010. SCC Stage 4, left tonsil, last ENT clear, chest X-Ray clear. Was removing port in early February.

Tom55, Michigan. 2006, Medullary thyroidTootsie47, Oregon, 2009, enrolled November 7, 2008. Checked in 01-31-2010, husband Dx June 2009, occult primary, clean scan 12-2009Train-nut, Oklahoma. 2007? Checked in on 01-31-2010, SCC of the hypopharnx. Thanks for keeping tab. It's great to see such a long list. Still doing well. Keeping on eye on my teeth. Otherwise, I'm putting on too much weight. I may have to increase dosage of thyroid medication.

Trainnut, Tulsa, Oklahoma, hypo pharyngeal cancer in 2007, enrolled August 5, 2008

Wboaz, Oregon, 2006 Squamous cell cancer of left tonsil. Checked in 05-12-2009. Spot showed in right lung at followup. Another scan In two months. Name Wayne

Comments

  • Pam M
    Pam M Member Posts: 2,196
    #2
    Some I've seen
    HawVet,
    I've seen Sirena and Oldejacke post recently - hopefully they'll see the "nudge" and update. thanks again for taking care of the roll call.
  • HAWVET
    HAWVET Member Posts: 318
    #3
    Pam M said:

    Some I've seen
    HawVet,
    I've seen Sirena and Oldejacke post recently - hopefully they'll see the "nudge" and update. thanks again for taking care of the roll call.

    Thank you
    Pam, thanks. I hope they check back in. I will bump it out once in a while. Hawvet
  • sweetblood22
    sweetblood22 Member Posts: 3,228
    #4
    HAWVET said:

    Thank you
    Pam, thanks. I hope they check back in. I will bump it out once in a while. Hawvet

    Ratface is ok. He is
    Ratface is ok. He is posting. Saw a post by sirena last week I think and train nut maybe I saw something by him a month ago or so somewhere....
  • Fire34
    Fire34 Member Posts: 365
    #5
    sweetblood22 said:

    Ratface is ok. He is
    Ratface is ok. He is posting. Saw a post by sirena last week I think and train nut maybe I saw something by him a month ago or so somewhere....

    Fire34 Here
    I am still in Illinois unfortunately, curently 14 months post and doing well.
    Had SCC of the right lymp nodes with unknown primary HPV+. For those that are new. I underwent a Clinical trial at U of Chicago with Erbitux. 8 weeks of induction chemo(Erbitux, Carboplatin & Taxol) then 5 alternating weeks of twice daily radiation with concurrent chemo(5FU 120 hrs,twice daily Hydroxyurea,&Erbitux)
    I am doing well and pray for those that are having a difficult time recovering from their treatments. wishes & Prayers for everyone
    Dave
  • train-nut
    train-nut Member Posts: 101
    #6
    Train-nut
    Still in Tulsa, enjoying life. Helping pay for my dentist's annual ski trip. Wishing all good health, Rich (SCC of hypopharynx, dx 12-18-06, finished treatments 06-07, have declined any additional scans...I'm cured.)
  • SIRENAF42
    SIRENAF42 Member Posts: 202
    #7
    Fire34 said:

    Fire34 Here
    I am still in Illinois unfortunately, curently 14 months post and doing well.
    Had SCC of the right lymp nodes with unknown primary HPV+. For those that are new. I underwent a Clinical trial at U of Chicago with Erbitux. 8 weeks of induction chemo(Erbitux, Carboplatin & Taxol) then 5 alternating weeks of twice daily radiation with concurrent chemo(5FU 120 hrs,twice daily Hydroxyurea,&Erbitux)
    I am doing well and pray for those that are having a difficult time recovering from their treatments. wishes & Prayers for everyone
    Dave

    Sirena Here
    Im doing good, last MD Anderson checkup in November 09 Dr said "Sirena you're cancer free". Still going every 6 months for check ups and feeling great (well other than my Pituitary Gland and Thyroid acting up)......
  • Skiffin16
    Skiffin16 Member Posts: 8,305 Member
    #8
    Missing That I Know
    Hi Johnny,

    There's a few not on the list that I communicate with occasionally, I'll see if I can get them to sign in;

    j3rey - Mark and Jen are in Florida. I saw Mark a few months ago, and he was doing very well and going strong.

    ILLOOZIONS ~ Roger & Lynette are in Florida also, Roger is doing well the last we spoke a month or so ago.

    Finz2lft - Lloyd is in North Carolina and doing great also...I chat with Lloyd occasioanlly also.

    Best,
    John
  • Hondo
    Hondo Member Posts: 6,636 Member
    #9
    Slickwilly

    Slickwilly doing OK, I PM’s him a few months ago, he don’t post much on Head & Neck, last I heard he was playing in the snow and doing well.
  • Hondo
    Hondo Member Posts: 6,636 Member
    #10
    Hi HAWVET

    I would just like to say thanks you very much for keeping up with the Row Call each year.

    All the best to you my friend and glad to know you are still doing well also.
    Hondo
  • rmdgy
    rmdgy Member Posts: 22
    #11
    Roll Call
    RMDGY is doing well down in the great state of Georgia and NED. Joined in Feb 2010. Finished treatment for SCC right tonsil 19 months ago.
  • HAWVET
    HAWVET Member Posts: 318
    #12
    rmdgy said:

    Roll Call
    RMDGY is doing well down in the great state of Georgia and NED. Joined in Feb 2010. Finished treatment for SCC right tonsil 19 months ago.

    Thank you
    Thank you for the information and reporting that some of the missing are still around.

    Sweetblood, Skiffin and Hondo: I believe many are glad you are on this board. You do contribute a lot and makes us feel at ease. If those missing have not checked in by July, I will make some type of notation that they have been spotted. For now, they are AWOL :)
  • Dazey
    Dazey Member Posts: 91
    #13
    Fishingirl
    PM with her last week - she is doing great. Dazey
  • Skiffin16
    Skiffin16 Member Posts: 8,305 Member
    #14
    HAWVET said:

    Thank you
    Thank you for the information and reporting that some of the missing are still around.

    Sweetblood, Skiffin and Hondo: I believe many are glad you are on this board. You do contribute a lot and makes us feel at ease. If those missing have not checked in by July, I will make some type of notation that they have been spotted. For now, they are AWOL :)

    Thanks
    Thanks Johnny, and to you also....

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