ROLL CALL, JANUARY 2011
HAWVET
Member Posts: 318
Roll call was established a couple of years ago so individuals can briefly view the status of all who were treated for head and neck cancer. Only names of those who enrolled will be listed.
An update will be provided in January and July of each year. In the past, I included the status of the individual. This takes a lot of time to update.
Effective with this January 2011 roll call, the format will be as follows:
Screen name, location, type of cancer, date diagnosed, enrollment date, last check in date
The enrollment date is not when you first had the cancer, but when you joined our roll call group. When you check in, provide a brief summary so others can read on your case and status. The date of enrollment and date checked in need not be provided. I can extract the information from the date of your posting.
If enrolling for the first time, please provide information on where you are from, type of cancer and date diagnosed (if known), your treatment and status. If you prefer to only list your state or country, that will be fine. The date the information was posted for the first time will be the enrollment date.
A special thank you to SKIFFIN16 for creating the map locations. Although you have indicated your state of residence in roll call, it can also be seen on the below map.
http://maps.google.com/maps/ms?hl=en&ie=UTF8&hq=&hnear=Tampa,+Hillsborough,+Florida&oe=UTF8&msa=0&msid=108290908437938654290.0004899d469e1599afb49
If there are sufficient responses, a roll call update will be provided in July 2011.
Aloha and Mahalo
HAWVET
(NAME, LOCATION, TYPE OF CANCER, ENROLLMENT DATE AND LAST CHECK IN.
Agatha, Toronto, Canada, DX stage IV left side of tongue in 2010. Enrolled on January 4, 2011.
Adventurebob, California, diagnosed Nasopharyngeal stage IV in May 2010, enrolled August 21, 2010
Areomech, Cincinnati, Ohio, DX I1N0M0 on September 24, 2010, enrolled January 5, 2011.
Backachedp, Minnesota, DX ? on September 29, 2009, enrolled on July 24, 2010.
Ballonk, Lousiana, DX SCC left tongue in 2001, enrolled on 02-04-2010.
Bigfuzzydoug, Mooresville-North Carolina, DX SCC above vocal cord July 2010, enrolled on July 30, 2010. Checked back in on December 29, 2010
BrianKrashpad, Florida, DX SCC left tonsil in November 2010. Enrolled on January 5, 2011.
Buzz99, New Mexico, DX with BOT in August 2010, enrolled January 5, 2011.
CajunEagle, Lousiana, 2009, checked in 02-03-2010, DX Stage 4, left tonsilar cancer in 2009. Enrolled on February 3, 2010.
Caspercamp, McKinney, Texas, Diagnosed SCC right tonsil, stage IV on May 26, 2010. Enrolled January 3, 2011.
Christmas, California, diagnosed Nasopharyngeal in 2004, enrolled July 8, 2008, had been absent and reported back on August 22, 2010.
Clearblue, state unk, for wife, DX SCC base of tongue in 2001, Esophagectomy in 2008, partial larpharingal + lobotomy lung on October 2009, enrolled July 13, 2010.
CLRRN, Maryland, reporting for partner Mike, DX SCC left tonsillar basloid, enrolled on 07-13-2010,
Cwcad, state unknown, checked in 01-31-2010, DX ge IV tongue cancer, in 2007, Enrolled January 31, 2010.
D Lewis, Sierra foothills, California, DX SCC base on tongue, January, 2010, enrolled February 5, 2010, checked in checked in July 23, 2010.
Davidgskinner, state unk, DX stage 4, SCC right tonsil, enrolled July 13, 2010.
Dazey, New York, diagnosed SCC unknown primary in 2009, DX SCC, enrolled on 01-31-2010, checked back in December 29, 2010
Debbiejeanne, Cincinnati, Ohio, DX larynx cancer in August 2009, enrolled on 07-11-2010.
Dennis318, Spring Hill, Tennessee, DX stage IV, throat cancer in November 2009. Enrolled on March 17, 2010, Checked in 07-12-2010 with update. Botched surgery when reported back on January 3, 2011 and will try hard to make positive strides in 2011. Good luck Dennis and with my prayers.
Delnative, Delaware, Diagnosed Stage III SCC Right tonsil in 2008. Enrolled February 2, 2010.
DJG1, Louisville, Kentucky, DX lymp node on right neck in April 2010, enrolled July 24, 2010.
Dogsrule, state unknown, DX SCC unknown primary in October 2009, enrolled July 11, 2010. Checked back in on July 11, 2010.
Doitforj, Georgia, Checked in 02-01-2010, DX SCC base of tongue and neck in 2009, enrolled on February 1, 2010.
Donna340, Walkerton, Indiana, DX SCC right side of tongue in 2003 and returned in 2010. Enrolled January 2, 2011.
Douglas08, state unknown, diagnosed stage 4 SCC sinus, enrolled August 21, 2010
Dragons7-7-2010, Texas, diagnosed SCC right tonsil in July 2010, enrolled August 21, 2010
Fbcuthguy, Tennessee, 2009, diagnosed SCC unknown primary Stage IV in 2009. Enrolled on March 16, 2010.
Finz2lift, North Carolina, DX SCC base of tongue, enrolled on 07-11-2010,
Fire34, Illinois, DX unknown primary June 2009, enrolled March 17, 2010, checked back in July 23, 2010.
Fisrpotpe, state unknown, diagnosed SCC 5 golf sized node around carotid on January 19, 1996, radionercrosis of pharynx in July 11, 2008, SCC back of tongue on February 5, 2009, broked neck March 5, 2006 in accident, enrolled on December 29, 2010. Glad you are with us John.
Frank10G, Virginia, Checked in 02-03-2010, Diagnosed Stage 3 NPC 2009, Enrolled February 3, 2010.
Glenna M, New Hampshire, diagnosed SCC laryngeal and NSCLC Aden carcinoma in left lung, enrolled on 1-31-2010. Checked back in on January 1, 2011.
GraceLibby, Renton, Washington, diagnosed Stage 3 SCC, right tonsil primary, enrolled in 07-14-2010.
Greg53, Missouri, DX SCC right tonsil, enrolled 07-20-2010.
HAWVET, Hawaii, DX Nasopharyngeal January 1998, Enrolled in January 2008, Last check in 01/01/2010
Hal61, California, diagnosed stage 3 SCC base of tongue in November 2009, enrolled 03-29-2010, checked in August 21, 2010
Hondo, Lafayette, Louisiana, diagnosed Nasopharyngeal, enrolled on 01-31-2010, checked back in July 25, 2010. Reported back in on January 4, 2011. Will be five years from treatment in March 2011.
Irishgypsie, Rochester, New York, DX SCC right tonsil, enrolled on 07-11-2010.
J3rey, Florida, SCC left lymph node April 2010, enrolled July 26, 2010.
Jagged, Washington, Diagnosed Breast 2005-Esophagus 2007 and lungs 2008. Enrolled on October 29, 2010. Checked in on March 29, 2010.
Joe14, Rochester, New ork, SCC unknown primary in April 2010, enrolled July 22, 2010
Jimbo55, from Chicago working in Bangkok Thailand, SCC BOT in May 2010, enrolled July 22-2010.
Jkinobay, Arizona & Mexico, HPV16 positive lymph nodes in 2007, Enrolled April 21, 2009, checked in July 27, 2010.
Kent Cass, Quad cities, Midwest, NPC unknown primary in 2009, enrolled July 22, 2010
Kimba1505, Pennsylvania, partner with SCC left tonsil April 13, 2010, enrolled July 20, 2010, Checked back in July 20, 2010.
Kingcole42005, California, DX Mucoepidermoid Carcinoma in 2010. Enrolled January 3, 2011
Lady4darknight, Mtn Grove, DX mass base of tongue, B lymphoma BOT and both tonsils in August 2008, enrolled July 11, 2010, checked back in July 23, 2010.
Landranger25, state unk 2009, enrolled on 01-31-2010
Lena Rose, state unk, Husband DX w/ BOT SCC HPV+ in March 2010, Enrolled July 14, 2010.
Ljoy, Sauk Rapids, MN, right tonsil cancer in 2005, enrolled August 20, 2008, checked in 01-31-2010, doing fine and no signs
Luv2cut1, Myka Landry, Colorado, husband DX SCC supraglottis in May 2008, recurrence in neck-March 2009. Enrolled January 6, 2011.
Luv4lacrosse, St Louis-Missouri, SCC right tonsil in June 2010, enrolled December 28, 2010
MarkN_Ct, Connecticut, DX SCC recurrent Tongue. Enrolled January 3, 2011.
Meinken, Georgia, DX nasopharyngeal in January 2007, enrolled July 12, 2010.
Miccmill, state unknown, reporting for spouse Glenn, DX with SCC on April 7, 2010, enrolled July 23, 2010.
Michelle H, state unknown, diagnosed cancer on base of tongue, enrolled August 21, 2010
Micktissue, Sonoma County, California, DX unk suspect Nasopharnyx December 2009, enrolled March 20, 2010, reported in July 23, 2010., 2008,
Mikki332, South Dakota, husband Gary w/SCC base of tongue in October 2010, enrolled December 28, 2010
Morris, Michael "Mick", California, diagnosed Stage IV unknown origin in 2009. Enrolled January 31, 2010.
Naturenaw, North Carolina, diagnosed SCC in tonsil in 2005. Enrolled on April 14, 2010.
PAM M, Kentucky, DX SCC BOT pm October 24, 2009, 2009, enrolled on 01-31-2010. Checked in on July 13, 2010. Update on January 4, 2010.
Pattyanny, New York, Undiagnosed primary head and neck in July 2009. Enrolled November 27, 2010. Checked back in January 1, 2011. Welcome back.
Pascotty, Bunbury, Western Australia, diagnosed SCC right tonsil in November 2009. Enrolled January 7, 2011.
Pumakitty, Virginia, father diagnosed cancer base of tongue in March 2010, enrolled July 22, 2010.
Rmdgy, Georgia, SCC right tonsil in 2009, enrolled December 28, 2010
Ron49, San Diego, California, DX SCC Mestasized to left lymph node, path reported Epitheleal Neoplasm in December 2009. Enrolled on January 4, 2011.
Rozaroo, Ontario, Canada, DX stage 4b cancer of the tonsil on December 18, 2009, enrolled January 6, 2011.
Rush1958, Kansas City, Kansas, SCC base of tongue January 12, 2010, enrolled July 20,2010. Checked in July 23, 2010.
RushFan, Cypress, Texas, diagnosed HPV=T) N2b MO unk primary in January 2010, Enrolled August 3, 2010
Sash, Florida, DX SCC base of tongue September 2009, enrolled August 24, 2008. Checked in okay, Jan 20 2009.
Checked in okay, 11-30-2009, Okay in July 23, 2010.
Scambuster, Hong Kong/China, SCC left tongue in August 2009, enrolled July 22, 2010
Scottied, state unknown, SCC base of tongue ending treatment in December 2009, enrolled, December 28, 2010
Silver_Foxette, Indiana, DX vocal cord cancer in January 2009, also 30 year cerval cancer survivor, enrolled July 31, 2010.
Skilffin16, Lakeland, Florida, DX right tonsil, January 2009, enrolled January 31, 2010, checked in July 23, 2010, rechecked on January 5, 2011.
Staceya, state unk, DX stage 1 NPC in 2009, Enrolled February 2, 2010. Checked back in July 28, 2010.
Stevenl, Fort Worth, Texas, DX SCC right tonsil, enrolled January 31, 2010, checked in July 23, 2010. Checked back in January 7, 2011.
Sweetblood22, Pennsylvania, SCC HNC unknown primary stage 4 DX December 2009. Enrolled 03-18-2010. Checked back in July 23, 2010. Checked back in on January 5, 2011.
Tanager75, state unknown, diagnosed SCC left tonsil in July 2009, enrolled July 26, 2010.
Terryscarlet, state unknown, DX SCC left tonsil in July 2010, enrolled January 1, 2011.
Tonyanddenise, Central Ohio, DX primary in left tonsil, enrolled July 12, 2010. Checked back in on January 2, 2011.
Up2myneck, state unknown, DX July 2008, recur March 2010, enrolled July 23, 2010.
Vermont Liz, Vermont, husband DX with SCC, stage IV base of tongue in December 2009, enrolled January 5, 2011.
Victor53, Rhode Island, Tonsil into base of tongue, Lives in Costa Rica, enrolled August 5, 2008. Had been actively checking in. Last check in on March 3, 2010 and hanging tough.
Wife for Life, Missouri, husband diagnosed with stage IV SCC base of tongue. Enrolled April 15, 2010.
PASSED AWAY
Hunpot, Massachusetts, Mom passed away, August 18, 2008 (Squamous cell carcinoma top voice box). Checked in Jan 2009 Name Tracy
MOM674, Passed away in December 2008. Was a brief member, fought hard…reported by knobby
Bany, Canada, 2008, Dad (TR2), SCC of the maxillary sinus (located near Canada). Enrolled on July 30, 2009.. Dad completed treatment 03-2009, Dad lost 70 pounds. Bany later reported that dad passed away on 11-02-2009.
There are several more noted as having passed away, but they were not on our roll call listings. Our condolences to the family.
An update will be provided in January and July of each year. In the past, I included the status of the individual. This takes a lot of time to update.
Effective with this January 2011 roll call, the format will be as follows:
Screen name, location, type of cancer, date diagnosed, enrollment date, last check in date
The enrollment date is not when you first had the cancer, but when you joined our roll call group. When you check in, provide a brief summary so others can read on your case and status. The date of enrollment and date checked in need not be provided. I can extract the information from the date of your posting.
If enrolling for the first time, please provide information on where you are from, type of cancer and date diagnosed (if known), your treatment and status. If you prefer to only list your state or country, that will be fine. The date the information was posted for the first time will be the enrollment date.
A special thank you to SKIFFIN16 for creating the map locations. Although you have indicated your state of residence in roll call, it can also be seen on the below map.
http://maps.google.com/maps/ms?hl=en&ie=UTF8&hq=&hnear=Tampa,+Hillsborough,+Florida&oe=UTF8&msa=0&msid=108290908437938654290.0004899d469e1599afb49
If there are sufficient responses, a roll call update will be provided in July 2011.
Aloha and Mahalo
HAWVET
(NAME, LOCATION, TYPE OF CANCER, ENROLLMENT DATE AND LAST CHECK IN.
Agatha, Toronto, Canada, DX stage IV left side of tongue in 2010. Enrolled on January 4, 2011.
Adventurebob, California, diagnosed Nasopharyngeal stage IV in May 2010, enrolled August 21, 2010
Areomech, Cincinnati, Ohio, DX I1N0M0 on September 24, 2010, enrolled January 5, 2011.
Backachedp, Minnesota, DX ? on September 29, 2009, enrolled on July 24, 2010.
Ballonk, Lousiana, DX SCC left tongue in 2001, enrolled on 02-04-2010.
Bigfuzzydoug, Mooresville-North Carolina, DX SCC above vocal cord July 2010, enrolled on July 30, 2010. Checked back in on December 29, 2010
BrianKrashpad, Florida, DX SCC left tonsil in November 2010. Enrolled on January 5, 2011.
Buzz99, New Mexico, DX with BOT in August 2010, enrolled January 5, 2011.
CajunEagle, Lousiana, 2009, checked in 02-03-2010, DX Stage 4, left tonsilar cancer in 2009. Enrolled on February 3, 2010.
Caspercamp, McKinney, Texas, Diagnosed SCC right tonsil, stage IV on May 26, 2010. Enrolled January 3, 2011.
Christmas, California, diagnosed Nasopharyngeal in 2004, enrolled July 8, 2008, had been absent and reported back on August 22, 2010.
Clearblue, state unk, for wife, DX SCC base of tongue in 2001, Esophagectomy in 2008, partial larpharingal + lobotomy lung on October 2009, enrolled July 13, 2010.
CLRRN, Maryland, reporting for partner Mike, DX SCC left tonsillar basloid, enrolled on 07-13-2010,
Cwcad, state unknown, checked in 01-31-2010, DX ge IV tongue cancer, in 2007, Enrolled January 31, 2010.
D Lewis, Sierra foothills, California, DX SCC base on tongue, January, 2010, enrolled February 5, 2010, checked in checked in July 23, 2010.
Davidgskinner, state unk, DX stage 4, SCC right tonsil, enrolled July 13, 2010.
Dazey, New York, diagnosed SCC unknown primary in 2009, DX SCC, enrolled on 01-31-2010, checked back in December 29, 2010
Debbiejeanne, Cincinnati, Ohio, DX larynx cancer in August 2009, enrolled on 07-11-2010.
Dennis318, Spring Hill, Tennessee, DX stage IV, throat cancer in November 2009. Enrolled on March 17, 2010, Checked in 07-12-2010 with update. Botched surgery when reported back on January 3, 2011 and will try hard to make positive strides in 2011. Good luck Dennis and with my prayers.
Delnative, Delaware, Diagnosed Stage III SCC Right tonsil in 2008. Enrolled February 2, 2010.
DJG1, Louisville, Kentucky, DX lymp node on right neck in April 2010, enrolled July 24, 2010.
Dogsrule, state unknown, DX SCC unknown primary in October 2009, enrolled July 11, 2010. Checked back in on July 11, 2010.
Doitforj, Georgia, Checked in 02-01-2010, DX SCC base of tongue and neck in 2009, enrolled on February 1, 2010.
Donna340, Walkerton, Indiana, DX SCC right side of tongue in 2003 and returned in 2010. Enrolled January 2, 2011.
Douglas08, state unknown, diagnosed stage 4 SCC sinus, enrolled August 21, 2010
Dragons7-7-2010, Texas, diagnosed SCC right tonsil in July 2010, enrolled August 21, 2010
Fbcuthguy, Tennessee, 2009, diagnosed SCC unknown primary Stage IV in 2009. Enrolled on March 16, 2010.
Finz2lift, North Carolina, DX SCC base of tongue, enrolled on 07-11-2010,
Fire34, Illinois, DX unknown primary June 2009, enrolled March 17, 2010, checked back in July 23, 2010.
Fisrpotpe, state unknown, diagnosed SCC 5 golf sized node around carotid on January 19, 1996, radionercrosis of pharynx in July 11, 2008, SCC back of tongue on February 5, 2009, broked neck March 5, 2006 in accident, enrolled on December 29, 2010. Glad you are with us John.
Frank10G, Virginia, Checked in 02-03-2010, Diagnosed Stage 3 NPC 2009, Enrolled February 3, 2010.
Glenna M, New Hampshire, diagnosed SCC laryngeal and NSCLC Aden carcinoma in left lung, enrolled on 1-31-2010. Checked back in on January 1, 2011.
GraceLibby, Renton, Washington, diagnosed Stage 3 SCC, right tonsil primary, enrolled in 07-14-2010.
Greg53, Missouri, DX SCC right tonsil, enrolled 07-20-2010.
HAWVET, Hawaii, DX Nasopharyngeal January 1998, Enrolled in January 2008, Last check in 01/01/2010
Hal61, California, diagnosed stage 3 SCC base of tongue in November 2009, enrolled 03-29-2010, checked in August 21, 2010
Hondo, Lafayette, Louisiana, diagnosed Nasopharyngeal, enrolled on 01-31-2010, checked back in July 25, 2010. Reported back in on January 4, 2011. Will be five years from treatment in March 2011.
Irishgypsie, Rochester, New York, DX SCC right tonsil, enrolled on 07-11-2010.
J3rey, Florida, SCC left lymph node April 2010, enrolled July 26, 2010.
Jagged, Washington, Diagnosed Breast 2005-Esophagus 2007 and lungs 2008. Enrolled on October 29, 2010. Checked in on March 29, 2010.
Joe14, Rochester, New ork, SCC unknown primary in April 2010, enrolled July 22, 2010
Jimbo55, from Chicago working in Bangkok Thailand, SCC BOT in May 2010, enrolled July 22-2010.
Jkinobay, Arizona & Mexico, HPV16 positive lymph nodes in 2007, Enrolled April 21, 2009, checked in July 27, 2010.
Kent Cass, Quad cities, Midwest, NPC unknown primary in 2009, enrolled July 22, 2010
Kimba1505, Pennsylvania, partner with SCC left tonsil April 13, 2010, enrolled July 20, 2010, Checked back in July 20, 2010.
Kingcole42005, California, DX Mucoepidermoid Carcinoma in 2010. Enrolled January 3, 2011
Lady4darknight, Mtn Grove, DX mass base of tongue, B lymphoma BOT and both tonsils in August 2008, enrolled July 11, 2010, checked back in July 23, 2010.
Landranger25, state unk 2009, enrolled on 01-31-2010
Lena Rose, state unk, Husband DX w/ BOT SCC HPV+ in March 2010, Enrolled July 14, 2010.
Ljoy, Sauk Rapids, MN, right tonsil cancer in 2005, enrolled August 20, 2008, checked in 01-31-2010, doing fine and no signs
Luv2cut1, Myka Landry, Colorado, husband DX SCC supraglottis in May 2008, recurrence in neck-March 2009. Enrolled January 6, 2011.
Luv4lacrosse, St Louis-Missouri, SCC right tonsil in June 2010, enrolled December 28, 2010
MarkN_Ct, Connecticut, DX SCC recurrent Tongue. Enrolled January 3, 2011.
Meinken, Georgia, DX nasopharyngeal in January 2007, enrolled July 12, 2010.
Miccmill, state unknown, reporting for spouse Glenn, DX with SCC on April 7, 2010, enrolled July 23, 2010.
Michelle H, state unknown, diagnosed cancer on base of tongue, enrolled August 21, 2010
Micktissue, Sonoma County, California, DX unk suspect Nasopharnyx December 2009, enrolled March 20, 2010, reported in July 23, 2010., 2008,
Mikki332, South Dakota, husband Gary w/SCC base of tongue in October 2010, enrolled December 28, 2010
Morris, Michael "Mick", California, diagnosed Stage IV unknown origin in 2009. Enrolled January 31, 2010.
Naturenaw, North Carolina, diagnosed SCC in tonsil in 2005. Enrolled on April 14, 2010.
PAM M, Kentucky, DX SCC BOT pm October 24, 2009, 2009, enrolled on 01-31-2010. Checked in on July 13, 2010. Update on January 4, 2010.
Pattyanny, New York, Undiagnosed primary head and neck in July 2009. Enrolled November 27, 2010. Checked back in January 1, 2011. Welcome back.
Pascotty, Bunbury, Western Australia, diagnosed SCC right tonsil in November 2009. Enrolled January 7, 2011.
Pumakitty, Virginia, father diagnosed cancer base of tongue in March 2010, enrolled July 22, 2010.
Rmdgy, Georgia, SCC right tonsil in 2009, enrolled December 28, 2010
Ron49, San Diego, California, DX SCC Mestasized to left lymph node, path reported Epitheleal Neoplasm in December 2009. Enrolled on January 4, 2011.
Rozaroo, Ontario, Canada, DX stage 4b cancer of the tonsil on December 18, 2009, enrolled January 6, 2011.
Rush1958, Kansas City, Kansas, SCC base of tongue January 12, 2010, enrolled July 20,2010. Checked in July 23, 2010.
RushFan, Cypress, Texas, diagnosed HPV=T) N2b MO unk primary in January 2010, Enrolled August 3, 2010
Sash, Florida, DX SCC base of tongue September 2009, enrolled August 24, 2008. Checked in okay, Jan 20 2009.
Checked in okay, 11-30-2009, Okay in July 23, 2010.
Scambuster, Hong Kong/China, SCC left tongue in August 2009, enrolled July 22, 2010
Scottied, state unknown, SCC base of tongue ending treatment in December 2009, enrolled, December 28, 2010
Silver_Foxette, Indiana, DX vocal cord cancer in January 2009, also 30 year cerval cancer survivor, enrolled July 31, 2010.
Skilffin16, Lakeland, Florida, DX right tonsil, January 2009, enrolled January 31, 2010, checked in July 23, 2010, rechecked on January 5, 2011.
Staceya, state unk, DX stage 1 NPC in 2009, Enrolled February 2, 2010. Checked back in July 28, 2010.
Stevenl, Fort Worth, Texas, DX SCC right tonsil, enrolled January 31, 2010, checked in July 23, 2010. Checked back in January 7, 2011.
Sweetblood22, Pennsylvania, SCC HNC unknown primary stage 4 DX December 2009. Enrolled 03-18-2010. Checked back in July 23, 2010. Checked back in on January 5, 2011.
Tanager75, state unknown, diagnosed SCC left tonsil in July 2009, enrolled July 26, 2010.
Terryscarlet, state unknown, DX SCC left tonsil in July 2010, enrolled January 1, 2011.
Tonyanddenise, Central Ohio, DX primary in left tonsil, enrolled July 12, 2010. Checked back in on January 2, 2011.
Up2myneck, state unknown, DX July 2008, recur March 2010, enrolled July 23, 2010.
Vermont Liz, Vermont, husband DX with SCC, stage IV base of tongue in December 2009, enrolled January 5, 2011.
Victor53, Rhode Island, Tonsil into base of tongue, Lives in Costa Rica, enrolled August 5, 2008. Had been actively checking in. Last check in on March 3, 2010 and hanging tough.
Wife for Life, Missouri, husband diagnosed with stage IV SCC base of tongue. Enrolled April 15, 2010.
PASSED AWAY
Hunpot, Massachusetts, Mom passed away, August 18, 2008 (Squamous cell carcinoma top voice box). Checked in Jan 2009 Name Tracy
MOM674, Passed away in December 2008. Was a brief member, fought hard…reported by knobby
Bany, Canada, 2008, Dad (TR2), SCC of the maxillary sinus (located near Canada). Enrolled on July 30, 2009.. Dad completed treatment 03-2009, Dad lost 70 pounds. Bany later reported that dad passed away on 11-02-2009.
There are several more noted as having passed away, but they were not on our roll call listings. Our condolences to the family.
0
Comments
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Checking in
From Lihue, Hawaii. NPC diagnosed in January 1998. Completed regular radiation treatment in April 1998. Was too sick and suspended, then cancelled chemo. Asked to return in two months for direct radiation implant for lymph node.
Think NET was in 2000. At present, dry mouth has worsened. Only about 50-60 percent of taste returned. Happy to be around 13 years after cancer was discovered.0 -
Thanks for updating
From NJ, my husband completed treatment on June 10, 2010 for BOT SCC Stage 3 HPV+. Clean scan 9/2010.
)) Still has PEG. Going for swallowing therapy-can't emphasize enough how important it is to try to keep swallowing to keep your tongue muscle strong. He's hoping to have the PEG out by March 1. Taste and saliva back about 80%. On thyroid meds-I think that is helping to speed up his recovery. 0 -
Checking In!
D Lewis, AKA Deb, Sierra foothills, California, DX SCC base of tongue, plus bilateral neck nodes, January, 2010, enrolled February 5, 2010. Completed eight weeks of cisplatin chemo and rads on May 12, 2010. Three month PET-CT showed NED. Now eight months out and scopings show nothing abnormal. Will have a second PET-CT in late 2011, which would be roughly 18 months out from end of treatment, unless the Doc feels something suspicious. Life is good.
Deb0 -
Checking InD Lewis said:Checking In!
D Lewis, AKA Deb, Sierra foothills, California, DX SCC base of tongue, plus bilateral neck nodes, January, 2010, enrolled February 5, 2010. Completed eight weeks of cisplatin chemo and rads on May 12, 2010. Three month PET-CT showed NED. Now eight months out and scopings show nothing abnormal. Will have a second PET-CT in late 2011, which would be roughly 18 months out from end of treatment, unless the Doc feels something suspicious. Life is good.
Deb
timreichhart aka as tim from coldwater,ohio found out I had Nasopharyngeal carcinoma on march 2010 it went to right side lymph node had surgery to remove it in march 2010 then started chemo in april 2010 then started radiation July 2010 finished with all treatments in August 2010. Cancer Free as in Nov 2010.0 -
Checking Intimreichhart said:Checking In
timreichhart aka as tim from coldwater,ohio found out I had Nasopharyngeal carcinoma on march 2010 it went to right side lymph node had surgery to remove it in march 2010 then started chemo in april 2010 then started radiation July 2010 finished with all treatments in August 2010. Cancer Free as in Nov 2010.
Staceya, Whitefish MT (orig from Brooklyn NY), DX stage 1 NPC in 2009, Enrolled February 2, 2010. Checked back in July 28, 2010.
Presenting Info
Tumor:1
Node:0
Rads:35
Chemo:NO
Amifostine:Yes
HPV:Positive 16
Smoker:Never
Alcohol:Rare
Current Status
MRI:Head and Neck NED 12/10
PET:6/10 NED, MD said we will only do MRIs from now on.
Scope:EEEExtremely unpleasant, but hey it checked out OK
Salivary function:Pretty good.
Weight:Back at Baseline
Teeth:Still in play, keep fingers crossed.
Hair:Returned, remains problematic, oh wait, it was always problematic.
Thankful For:You All0 -
Checking In
Location: Renton WA
Diag: 7/1/10 - with partial right neck dissection.
Stage IV SCC, primary right tonsil with mets to two lymph nodes.
Treatment: 2 rounds cisplatin, 35 rads - ended on 11/3/10
Current status: 1st post-treatment scan will be on 2/2/11. Eating well, saliva is returning slowly and definitely need water or milk with each meal. Very dry at night. PEG removed on 12/22/10. Still having minor issues with mucus. Back to work part-time. Otherwise feeling pretty good. It would be nice to have my hair grow back a little quicker. 0 -
Checking in
Dragons 7-7-2010, Houston (Clear Lake area), Texas, DX SCC right tonsil Stage 3 with metastisis to lymph nodes right neck, enrolled on ??-??-2010,
Status finished chemo and radiation on 12/3/1969 my birthday, now dealing with continued side effects of treatment and working on recovery and healing from treatment.
As the Tom Petty song says the "Waiting is the hardest part," I have my 1st Post treatment CT Scan on January 26 and find out the results on January 27th.0 -
Roll Call
Got it....
HPV+ squamous cell tumor right side, base of tongue. Diagnosed April 30, 2010; left-side salivary gland relocated to under chin May 2010; PEG installed May 2010; chemo port installed June 2010. Treatment started June 28, 2010: radiation 2x daily and Cisplatin once per week. Completed treatment August 12, 2010. PEG removed September 28, 2010. Lost lots of weight (75 lbs) but stabilized now and at proper weight. November 2010 PET scan shows me cancer-free; keeping finger crossed. Registered on this site in October 2010. Doing well...feeling good and working on 3rd career.
Live in Maryland; wife from Kailua (Oahu), HI and we spend holidays there. Retired from U.S. Army in 1988 after 25 years of active duty (oooraah!).0 -
Roll Call
Got it....
HPV+ squamous cell tumor right side, base of tongue. Diagnosed April 30, 2010; left-side salivary gland relocated to under chin May 2010; PEG installed May 2010; chemo port installed June 2010. Treatment started June 28, 2010: radiation 2x daily and Cisplatin once per week. Completed treatment August 12, 2010. PEG removed September 28, 2010. Lost lots of weight (75 lbs) but stabilized now and at proper weight. November 2010 PET scan shows me cancer-free; keeping finger crossed. Registered on this site in October 2010. Doing well...feeling good and working on 3rd career.
Live in Maryland; wife from Kailua (Oahu), HI and we spend holidays there. Retired from U.S. Army in 1988 after 25 years of active duty (oooraah!).0 -
Checking in
Husband Patrick diagnosed Sept 10 laryngeal stage 4 laryngectomy and radical neck dissection Oct 10. We're from Staten Island NY. He is in hospice now, were told end of Dec no other treatment options were viable.0 -
Patrickmswijiknyc said:Checking in
Husband Patrick diagnosed Sept 10 laryngeal stage 4 laryngectomy and radical neck dissection Oct 10. We're from Staten Island NY. He is in hospice now, were told end of Dec no other treatment options were viable.
I've been watching to see if you would post so I could find out how Patrick is doing. This must be gut wrenching for the both of you. I am a former hospice nurse and so I hope you have kind and caring nurses to help you. God bless and keep in touch. We are here for you.0 -
Roll Call Sign-up
Diagnosed Stage IV SCC of vallecula December 2009. Radiation treatment for 6 weeks along with a weekly dose of Erbitux which ended in March of 2010. Last PET done in October of 2010 was NED. Throat stricture due to radiation scarring has led to continual eating problems. All's well otherwise.0 -
Checking in...GraceLibby said:Checking In
Location: Renton WA
Diag: 7/1/10 - with partial right neck dissection.
Stage IV SCC, primary right tonsil with mets to two lymph nodes.
Treatment: 2 rounds cisplatin, 35 rads - ended on 11/3/10
Current status: 1st post-treatment scan will be on 2/2/11. Eating well, saliva is returning slowly and definitely need water or milk with each meal. Very dry at night. PEG removed on 12/22/10. Still having minor issues with mucus. Back to work part-time. Otherwise feeling pretty good. It would be nice to have my hair grow back a little quicker.
Location: Cypress Texas
Symptoms: Swollen lymph-node unresponsive to antibiotics. Node removed for analysis.
Diag: Jan. 14, 2010 Stage VI SCC unknown primary (T0 N2b). Lymph-node had extracapsicular ext.
Treatment: 35 rads all sides of neck. Seven once weekly rounds of Cisplatin ended 4/29/2010. No peg tube, lost 35 lbs.
Status: I have had three post treatment CT scans, all are clean & clear...NED. Back to work full time in mid-June. Salvia is my main issue, with about 10% returned. Currently taking Evoxac for dry mouth. Starting to work out again. Overall doing very well.0 -
enrolling
ekdennie, Oklahoma, Mucoepidermoid Carcinoma (MEC) of hard palate with growth into maxillary sinus, diagnosed June 30, 2010. golfball sized tumor Intermediate grade Clear cell variety removed surgically in August 2010. stage 4a clinically, stage 2 pathologically T2N0M0. caused decalcification of my septum and my upper right jaw (was pressing on both), well encapsulated, no spread, clean margins. 30 IMRT rads finished Nov 19, 2010. must use a prosthetic (obturator) for life. Enrolled Jan 17, 2011.0 -
checking in.
debbiejeanne,
checking in.
debbiejeanne, Ohio, SCC-Larnex, stage 1. Completed trmnt Oct. 22, 2009 (radiation only). Doing good even tho I have some long time side effects from radiation. Still unable to eat most foods due to horrible tastes but doc says what I have is all I will get. That's ok, I'm cancer free and don't have to worry to much about gaining back any of the 90 lbs I lost.
God Bless You All,
debbiejeanne0 -
army, I wish I were inArmy_Guy said:Roll Call
Haven't checked this board in a while...just returned from annual holiday visit with family in Hawaii. How do I sign up for roll call?
army, I wish I were in Hawaii. What island(s) did u go too? I hope you had an absolute ball.
God Bless You,
deb0
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