chemo delayed again

Lisa13Q said:

Dear Victoria
So sorry to hear about your issues with the chemo post surgery. I am not sure what/if any dangers there are associated with waiting longer. What does your doctor say? I know they do like to get to it. I have commented to bump this to the top of discussions in hope that some other lady has had your experience and will comment....HizyFitz had issues with her port and knows a lot about this, hopefully you'll hear from her and some others.....Prayers to you. Lisa

Please express your concern to your doctor
Victoria,
I have an IP port and have had many IP treatments over the past couple of years. I too have had several delays because of waiting for additional surgery, platelet issues and so on. I always expressed my delay concerns to my gyn/onc and he always communicated back to me and put my mind at ease. If there was any urgency, he would have changed the schedule and rushed things along. That is not to say there are times that they would have to wait because of my medical condition to change/improve for some reason. However, if it is merely a scheduling issue, I would hope that they would step in rush a scan or another test along for you. My port is also on/close to my rib cage and I have not any problems with it. They will also make sure that before the treatment it functioning properly by putting in the saline first and monitoring that closely before the chemo is put in. They will also monitor that all during the treatment until it'd finished. My biggest problem was with the first treatment. I could not handle the amount of saline so he adjusted it way back after that first one and I had no real problems after that other that some of the side effects of the chemo. Please contact the doctor to discuss the delay if you have not already done so and see if they can bump up the scan or can tell you that it's not a real problem.

Joni

VictoriaSF said:

talked to the doctor
thank you Ladies
i spoke with doctor last night
she said it is ok and no harm will be done by waiting, but she wants to have everything checked before starting chemo,
she wants to start asap and will try to prioritize ct scan next week.
as for the port - i should hear from her on monday how it looks on scans from the surgery, when they actually put it in. and later next week i have to go and check if it is accessible and workable.
i hope it is and i will not be without ip chemo, or it will need to be replaced
she comforted me a bit,
debulking was 95% during surgery,but still it is difficult just to wait knowing that there cancer left inside and who knows what is going on with it.
i will keep you posted.
hugs
Victoria

She sounds like she's on top of it
I too have tumor/nodules and alsways am wondering what is going on but my doctor is treating it with chemo and would remove them if it was necessary so I've learned to live with what he says. I have kept several of my other doctors in the loop and they speak with each other and that is very comforting for me to have more sets of eyes and ears that are in the medical field. I still have moments of panic and I'm sure I always will. It's good to reach out to people that have similar experience with this and also good to keep your doctors close. Keep us posted as to how it's going.

Joni