People operated and currently NED.....
Interested on that matter!
Thank you in advance!
Comments
-
NED
I was stage 3+,and did chemo,and radiation at the same time.I had surgery in july 2008,and have been NED since.during surgery they took the tumor from my tailbone,the part of the colon it had grown out of,11 lymph nodes,my appendix,and my rectum.I was supposed to do follow up chemo,but I was to weak.Now I see the chemo doctor every 6 months,and get a cat scan every year.This year I did 2.I have a permanent colostomy,but I'm not complaining.My brother died of pancreatic cancer 2 months before my dx.I hope this helps.0 -
Thank you for the infokarguy said:NED
I was stage 3+,and did chemo,and radiation at the same time.I had surgery in july 2008,and have been NED since.during surgery they took the tumor from my tailbone,the part of the colon it had grown out of,11 lymph nodes,my appendix,and my rectum.I was supposed to do follow up chemo,but I was to weak.Now I see the chemo doctor every 6 months,and get a cat scan every year.This year I did 2.I have a permanent colostomy,but I'm not complaining.My brother died of pancreatic cancer 2 months before my dx.I hope this helps.
Karguy!
Hugs!0 -
Hi Pepe, My husband was
Hi Pepe, My husband was diagnosed November 2009 stage IV. He needed a heart stent placed first because he had a 100% blockage on one side of his heart, and 70% on the left side. They opened the left side. Second was radiation and chemo to shrink the colorectal tumor which was very close to the rectum. It was shrunk enough that they did not have to do a colostomy when they did the surgery in March 2010. He had two months to recover from colon surgery and then had a liver resection. The entire right lobe was removed and several spots on the left lobe were located and removed with microwave ablation. At that time there were no visible signs of cancer left. Follow up or mop up chemo was started late because of set backs with infection and a return to the hospital, but when he was strong enough he started the 5-FU with avastin. He had to stop the avastin because he was having serious nosebleeds and even had to have emergency surgery to stop one. He is on three blood thinners because of a clot and because of his heart and leg stents. I don't know if the delay in chemo and dropping the avastin is the reason, but the lesions on his liver are back and growing. Tomorrow we see the oncologist to make a plan for what to try next because obviously the 5-FU with avastin is not affective. He feels fine, we go out to eat, go to the show, spend time with friends and family, have gone on more great short trips in the past year than we have in the past 10 years. We are disappointed about the cancer showing up again and growing, but we have become much more settled into the fight. As long as there are options, there is hope for more time. So we keep trucking along. So that's our story thus far.
(HUGS)
April0 -
my storypepebcn said:Thank you for the info
Karguy!
Hugs!
i was stage 3.dx in sept.2008 i had 5 weeks of radiation and xeloda pills.surgery to remove tumor in dec 2008. colostomy for 5 weeks then had reversal in feb.2009.5 out of 10 nodes where effected so i did 10 rounds of oxi and 5fu witch was given every 2 weeks thru a port.when finished had port removed.i have scans and colonoscopys once a year and currently NED....Godbless....johnnybegood0 -
Thank you johnnybegood!johnnybegood said:my story
i was stage 3.dx in sept.2008 i had 5 weeks of radiation and xeloda pills.surgery to remove tumor in dec 2008. colostomy for 5 weeks then had reversal in feb.2009.5 out of 10 nodes where effected so i did 10 rounds of oxi and 5fu witch was given every 2 weeks thru a port.when finished had port removed.i have scans and colonoscopys once a year and currently NED....Godbless....johnnybegood
Congrats for your NED!0 -
Hope you get a very successful app.Nana2 said:Hi Pepe, My husband was
Hi Pepe, My husband was diagnosed November 2009 stage IV. He needed a heart stent placed first because he had a 100% blockage on one side of his heart, and 70% on the left side. They opened the left side. Second was radiation and chemo to shrink the colorectal tumor which was very close to the rectum. It was shrunk enough that they did not have to do a colostomy when they did the surgery in March 2010. He had two months to recover from colon surgery and then had a liver resection. The entire right lobe was removed and several spots on the left lobe were located and removed with microwave ablation. At that time there were no visible signs of cancer left. Follow up or mop up chemo was started late because of set backs with infection and a return to the hospital, but when he was strong enough he started the 5-FU with avastin. He had to stop the avastin because he was having serious nosebleeds and even had to have emergency surgery to stop one. He is on three blood thinners because of a clot and because of his heart and leg stents. I don't know if the delay in chemo and dropping the avastin is the reason, but the lesions on his liver are back and growing. Tomorrow we see the oncologist to make a plan for what to try next because obviously the 5-FU with avastin is not affective. He feels fine, we go out to eat, go to the show, spend time with friends and family, have gone on more great short trips in the past year than we have in the past 10 years. We are disappointed about the cancer showing up again and growing, but we have become much more settled into the fight. As long as there are options, there is hope for more time. So we keep trucking along. So that's our story thus far.
(HUGS)
April
Thank you for posting April.0 -
Yes
I was Stage IIIB Colon Cancer and had surgery on Jan. 7th 2009 plus 6 months of FOLFOX. I completed all my treatments and have had good reports ever since. That's 2 years cancer free as of this Friday.0 -
The 'old lady's' turn...lol!!!
Stage III rectal, pre-operative chemo/rads to reduce the 2 inch tumor on my rectum to try to save the spinchter...
I can't say I didn't have post-operative chemo...I started treatment for my primary stage II breast cancer exactly 6 months after the surgery for my bowel cancer...and that involved Adriamycin/Cytoxin/Taxol...so, it's hard to say I didn't have post-op chemo...it was just for another cancer...and some chemicals are cancer specific...who knows?
July 2011 (this year) will mark 5 years post treatment on both cancers. I have not, to this date, had a reoccurance on either...even tho both were in the lymphatic system...
Hugs to you, my firey Spaniard!
Kathi0 -
NEDKathiM said:The 'old lady's' turn...lol!!!
Stage III rectal, pre-operative chemo/rads to reduce the 2 inch tumor on my rectum to try to save the spinchter...
I can't say I didn't have post-operative chemo...I started treatment for my primary stage II breast cancer exactly 6 months after the surgery for my bowel cancer...and that involved Adriamycin/Cytoxin/Taxol...so, it's hard to say I didn't have post-op chemo...it was just for another cancer...and some chemicals are cancer specific...who knows?
July 2011 (this year) will mark 5 years post treatment on both cancers. I have not, to this date, had a reoccurance on either...even tho both were in the lymphatic system...
Hugs to you, my firey Spaniard!
Kathi
Hi,
I was stage 3 Colon Cancer with 2 lymph nodes involved. Folfox for 6 months.
Cancer free since 2005.
Janet0 -
I was Stage IIIC ColonJTL52 said:NED
Hi,
I was stage 3 Colon Cancer with 2 lymph nodes involved. Folfox for 6 months.
Cancer free since 2005.
Janet
I was Stage IIIC Colon Cancer and had surgery on April 5th 2009 plus 6 months of FOLFOX. I completed all my treatments have had 4 clear scans since.
Mike0 -
Pepe'
Re:
"Have you done any further post op chemo? for how long ?
what stage where you? Interested on that matter!"
And now... the odd-ball:
Stage 3c/4; 7 out of 28 nodes involved; fist-sized tumor grown
through one section of colon and into the other section, with a
complete obstruction. Told that cancer was (likely) throughout
my body, noting lung "spots". Prognosis of 3 to 5 years provided
I do chemo, and -0- if I did not.
Had the operation to remove tumor (twice due to surgical error),
and had infections. Surgical wounds took 6 months to fully heal.
No chemo, no radiation; I used imported medicinal strength
Chinese Herbs instead. No special diet, no side effects, no
chance of second cancers due to treatments, no neurological
problems, no nausea, no discernable added expense.
My initial operation was in October of 2006; I have had clean scans
and blood tests after taking the herbal treatments during 2007.0 -
Oh my gosh, your post was soJohn23 said:Pepe'
Re:
"Have you done any further post op chemo? for how long ?
what stage where you? Interested on that matter!"
And now... the odd-ball:
Stage 3c/4; 7 out of 28 nodes involved; fist-sized tumor grown
through one section of colon and into the other section, with a
complete obstruction. Told that cancer was (likely) throughout
my body, noting lung "spots". Prognosis of 3 to 5 years provided
I do chemo, and -0- if I did not.
Had the operation to remove tumor (twice due to surgical error),
and had infections. Surgical wounds took 6 months to fully heal.
No chemo, no radiation; I used imported medicinal strength
Chinese Herbs instead. No special diet, no side effects, no
chance of second cancers due to treatments, no neurological
problems, no nausea, no discernable added expense.
My initial operation was in October of 2006; I have had clean scans
and blood tests after taking the herbal treatments during 2007.
Oh my gosh, your post was so interesting!......as I am up and getting ready to go to chemo
The was for me, I'm going to come home from ctc and read your profile!
Gail0 -
Stage 4-erplh4gail said:Oh my gosh, your post was so
Oh my gosh, your post was so interesting!......as I am up and getting ready to go to chemo
The was for me, I'm going to come home from ctc and read your profile!
Gail
Diagnosed 10/2007 (age 42) Stage 4....5/24 lymph nodes positive and mets to my left ovary (right ovary not removed at original surgery as they did not expect the left ovary to have metastasis)
I wanted the other ovary taken out but the medical onc and gyne onc felt it was more important to start chemo.
I did 6 months of FOLFOX and Avastin. I was to continue the Avastin alone for 6 more months but ended up with a pulmonary embolis and had to stop.
November 2008...slight uptake on PET on left ovary....enough to convince my onco to let me have it removed. Looked normal at surgery but pathology confirmed metastasis. No chemo post surgery since my pelvic washings were negative and I think they wanted to save chemo options for the future(I sure hope I never need them) The thought is that the left ovary met was present at original surgery ...not a reoccurence and that the chemo kept it a bay.
All scans since then have been NED! Though my CEA (which is not a good indicator for me -normal at diagnosis) has been doing some quirky things.
I have made dietary changes that I know have helped but thank God every day that HE has given me the opportunity to watch my children grow older.
Smiles,
Dawn0 -
Was 3a, 5 weeks rad & xelodadmdwins said:Stage 4-er
Diagnosed 10/2007 (age 42) Stage 4....5/24 lymph nodes positive and mets to my left ovary (right ovary not removed at original surgery as they did not expect the left ovary to have metastasis)
I wanted the other ovary taken out but the medical onc and gyne onc felt it was more important to start chemo.
I did 6 months of FOLFOX and Avastin. I was to continue the Avastin alone for 6 more months but ended up with a pulmonary embolis and had to stop.
November 2008...slight uptake on PET on left ovary....enough to convince my onco to let me have it removed. Looked normal at surgery but pathology confirmed metastasis. No chemo post surgery since my pelvic washings were negative and I think they wanted to save chemo options for the future(I sure hope I never need them) The thought is that the left ovary met was present at original surgery ...not a reoccurence and that the chemo kept it a bay.
All scans since then have been NED! Though my CEA (which is not a good indicator for me -normal at diagnosis) has been doing some quirky things.
I have made dietary changes that I know have helped but thank God every day that HE has given me the opportunity to watch my children grow older.
Smiles,
Dawn
Was 3a, 5 weeks rad & xeloda tabs. Tumor shrank but was right on spichter muscle so had to have rectum removed. Surgery 9/15 for perm colostomy (glad compared to before miseries) 6/37 nodes positive so started 12 rounds of Folfox in Nov of 2010. 5 down so far and all blood work looks good, had a 2.0 CEA last test. Not sure totally NED yet.0 -
I was orriginally told stage 3Kenny H. said:Was 3a, 5 weeks rad & xeloda
Was 3a, 5 weeks rad & xeloda tabs. Tumor shrank but was right on spichter muscle so had to have rectum removed. Surgery 9/15 for perm colostomy (glad compared to before miseries) 6/37 nodes positive so started 12 rounds of Folfox in Nov of 2010. 5 down so far and all blood work looks good, had a 2.0 CEA last test. Not sure totally NED yet.
When dx in june 2010 i was told stage 3, had 6 weeks chemo 5fu and radiation. Shrunk the tumor by 50% then surgery APR 5-6 weeks after surgery I was told pathology repoted no lympnode involvment at all and the tumor had not penetrated the wall.???? I was confused and i think all my doctors were a bit confused as well. They said it could have been the early treatments or it could have been stage 1 all along No way of knowing now but I was NED after the surgery and remain NED today. Doing 4 months of 5fu and oxsaliplatin to be sure we kill any cell that may be lurking in the blood. I'm now living with a perm colosomy but i'm living.
Tom0 -
Stage 4, Colorectal surgeryTMac52 said:I was orriginally told stage 3
When dx in june 2010 i was told stage 3, had 6 weeks chemo 5fu and radiation. Shrunk the tumor by 50% then surgery APR 5-6 weeks after surgery I was told pathology repoted no lympnode involvment at all and the tumor had not penetrated the wall.???? I was confused and i think all my doctors were a bit confused as well. They said it could have been the early treatments or it could have been stage 1 all along No way of knowing now but I was NED after the surgery and remain NED today. Doing 4 months of 5fu and oxsaliplatin to be sure we kill any cell that may be lurking in the blood. I'm now living with a perm colosomy but i'm living.
Tom
Stage 4, Colorectal surgery Nov 2004, 7 lymph nodes affected. 3 months of folfox and avastin, liver resection April 2009, 3 months of folfox and avastin. NED since August 2009, but officially June 2010, since I was NED since liver resection. Hernia Repair February 201200
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