CA 125 continues to rise

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  • Ro10
    Ro10 Member Posts: 1,561 Member
    #42
    maggie_wilson said:

    ro and llinda
    ro,
    decisions are hard to make, i know, but i'm aiming for hormonal therapy, or even immunotherapy before i'd go back to chemo, if i have that choice. i'm glad you decided to go the hormone route. was there a reason why your chose arimedex rather than tamoxifen? i, too, am glad you can prolong your chemo break. it always seems to me if we have choices, that's the last one. as we know, it's always there.

    linda, i'm so hoping the chemo lowers your ca 125, so that you can have some peace knowing the chemo is working. thinking of you both, and wishing the best for each of you.

    i don't find out the results of my ct/pet until end of the month, which is ok with me. i had my ct/pet scan (first combination that i've had), and had a coughing fit in the middle of it. pressed the button for the tech who came and said not to worry, but then i coughed again, and of course my entire body shook, so he said some of the results during those couple of minutes could blurry...oh well, don't know why i coughed like that, probably nerves, though i wasn't conscious of being particularly anxious during the procedure. tech said it would take about ten minutes, but, please, it was at least 20 minutes if not 30. took half the day just to get it done, what with drinking 24 oz of water an hour before appointment, then having the glucose iv and having to sit quietly for another hour, then drink another 8 oz of water.
    geeze.

    in any case, hope everyone has happy holidays, and may next year be better than the last and not as good as the next.

    sisterhood,
    maggie

    The doctor chose Arimidex
    The doctor talked about Tamoxifen and Arimidex. When I told him I wanted to try the hormonal therapy, he said we would use Arimidex. Don't know why he chose that one. I know it is a lot more expensive than the Tamoxifen. More than $11 a pill (and this was the generic). But that is a lot cheaper than chemo.

    I just started the pill today, as the pharmacy I went to yesterday did not have it. They ordered it, but it did not come in today, so I went to a different pharmacy.

    Maggie, sorry you had that coughing spell. Hope it does not hamper the results. In peace and caring.
  • maggie_wilson
    maggie_wilson Member Posts: 596
    #43
    Ro10 said:

    The doctor chose Arimidex
    The doctor talked about Tamoxifen and Arimidex. When I told him I wanted to try the hormonal therapy, he said we would use Arimidex. Don't know why he chose that one. I know it is a lot more expensive than the Tamoxifen. More than $11 a pill (and this was the generic). But that is a lot cheaper than chemo.

    I just started the pill today, as the pharmacy I went to yesterday did not have it. They ordered it, but it did not come in today, so I went to a different pharmacy.

    Maggie, sorry you had that coughing spell. Hope it does not hamper the results. In peace and caring.

    ro
    just went back to some former posts and learned you're taking arimidex. that wasn't even offered to me. i'll google it. i'm glad you're doing well on it, that's very heartening. also learned they didn't test you for pr/er , but my doctor says most of us with upsc are negative, and i've read that elsewhere. hope you continue to do well, and that it does exactly what it's supposed to do. keep us posted on how you're doing along the way. i also am taking the hormones for two months, though one month one hormone and one month the other. funny how different all of our protocols are; and how different all of our doctors are. i guess, that too, is the luck of the draw.

    wishing the very best for you, ro.

    sisterhood,
    maggie
  • Songflower
    Songflower Member Posts: 608
    #44
    maggie_wilson said:

    ro
    just went back to some former posts and learned you're taking arimidex. that wasn't even offered to me. i'll google it. i'm glad you're doing well on it, that's very heartening. also learned they didn't test you for pr/er , but my doctor says most of us with upsc are negative, and i've read that elsewhere. hope you continue to do well, and that it does exactly what it's supposed to do. keep us posted on how you're doing along the way. i also am taking the hormones for two months, though one month one hormone and one month the other. funny how different all of our protocols are; and how different all of our doctors are. i guess, that too, is the luck of the draw.

    wishing the very best for you, ro.

    sisterhood,
    maggie

    To Linda
    I didn't have pelvic radiation. I did have brachytherapy and I guess it's near impossible to give without getting some of the bowel in. I've been on it for eight cycles now. It's easy to take. I know it's controversial but this cancer we have is just now being studied and most of the data is on ovarian.

    I read the above blogs and I can't believe what we all cope with. I know we've all had our share of laying on the sofa and feeling so yucky. But to me, you are all shining stars!

    Diane

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