Seekin care for advance Esophageal Cancer in Boston

Boston67
Boston67 Member Posts: 61
edited March 2014 in Esophageal Cancer #1
I was diagnosed with Esophageal Cancer, probably in it's advanced stages and need the best facility and contacts in the Boston area. I have been informally advised that it is not operable not treatable agressively.

Comments

  • SarahD
    SarahD Member Posts: 139
    #2
    Dana Farber or Mass General
    Dana Farber or Mass General would be my advice
  • JimsBrother
    JimsBrother Member Posts: 94
    #3
    SarahD said:

    Dana Farber or Mass General
    Dana Farber or Mass General would be my advice

    Mass General Hospital
    My brother tried to get in to see someone at Dana Farber. By the time he would have been able to see them for the initial appointment, he had already began treatment ar Mass General. I don't know when he will be home and back to his computer, but when he does, he can give you a first hand account regarding his treatment and surgery there.

    He had surgery 12-14, a Dr. Moorse was his surgeon and he is doing very well. His name here is Gatoraid, I am sure if you sent him a messege he will get back to you as soon as he gets home.

    Good Luck.

    Rob
  • Unknown
    Unknown
    #4
    This comment has been removed by the Moderator
  • Boston67
    Boston67 Member Posts: 61
    #5
    unknown said:

    This comment has been removed by the Moderator

    I am in the fight
    Hello William,

    I am very much in the fight, and not at all giving up. My diagnosis is NOT complete to my satisfaction, nor is my treatment plan or treatment center.

    Could you tell me where Doctor's Fernando and Luketick practice please?

    Thanks and Merry Christmas,

    Keith Rodney, Boston age 67
  • Boston67
    Boston67 Member Posts: 61
    #6
    JimsBrother said:

    Mass General Hospital
    My brother tried to get in to see someone at Dana Farber. By the time he would have been able to see them for the initial appointment, he had already began treatment ar Mass General. I don't know when he will be home and back to his computer, but when he does, he can give you a first hand account regarding his treatment and surgery there.

    He had surgery 12-14, a Dr. Moorse was his surgeon and he is doing very well. His name here is Gatoraid, I am sure if you sent him a messege he will get back to you as soon as he gets home.

    Good Luck.

    Rob

    Thank you
    Thank so so much.
  • llamp0922
    llamp0922 Member Posts: 40
    #7
    Welcome
    Welcome to this board, and I am sorry that you have to be here! :-( There are many people that will share a wealth of information with you.

    I am a 3 year, 5 month survivor of inoperable stage 3B Esophageal cancer. I celebrated my 42nd birthday yesterday. My tumor blocked my esophagus, broke through and invaded 50% of my trachea and lit up some lymph nodes. I was diagnosed at a local Massachusetts hospital after choking and diminished swallowing. I sought an immediate second opinion at Mass General, where Rob's brother is being treated. The time between diagnosis and my all-in-one consult with a thoracic oncologist, thoracic radiology oncologist and a thoracic surgeon was under 10 days. Within days and prior to that meeting, I had an endoscopic ultrasound at MGH. Full staging with a PET/CT and MRI was complete within 13 days of the original diagnosis. Thoracic Oncology at MGH Cancer center gets a ringing endorsement from me! Thoracic Oncology puts together a team for each patient. I highly recommend not only all of the oncology doctors, but also the nursing staff, affiliated medical professionals, residents, fellows, and support staff (even the valets are kind and compasionate!). They are a special group of people who also have success with treating very difficult cancers. Feel free to ask any questions that come to mind.

    Think positive thoughts!
    Lisa
  • Unknown
    Unknown
    #8
    Boston67 said:

    I am in the fight
    Hello William,

    I am very much in the fight, and not at all giving up. My diagnosis is NOT complete to my satisfaction, nor is my treatment plan or treatment center.

    Could you tell me where Doctor's Fernando and Luketick practice please?

    Thanks and Merry Christmas,

    Keith Rodney, Boston age 67

    This comment has been removed by the Moderator
  • danno2961
    danno2961 Member Posts: 5
    #9
    Don't run out of Boston so
    Don't run out of Boston so quickly! As a few have stated before, you have 2 great options nearby in Mass General and especially the Dana Farber Institute. I got my mother an appointment within 2 weeks of her diagnosis to see Dr Enzinger (medical oncology/gastrointestinal), and Dr Wee (one of 4 top local surgeons there in one hospital). Be persistent when scheduling, I know that it is always more difficult with the holidays. Getting the right treatment the first time around is most important!!

    We would have gone to Memorial Sloan kettering in NYC, yet the 3 top surgeons left there in 2010.
  • Boston67
    Boston67 Member Posts: 61
    #10
    llamp0922 said:

    Welcome
    Welcome to this board, and I am sorry that you have to be here! :-( There are many people that will share a wealth of information with you.

    I am a 3 year, 5 month survivor of inoperable stage 3B Esophageal cancer. I celebrated my 42nd birthday yesterday. My tumor blocked my esophagus, broke through and invaded 50% of my trachea and lit up some lymph nodes. I was diagnosed at a local Massachusetts hospital after choking and diminished swallowing. I sought an immediate second opinion at Mass General, where Rob's brother is being treated. The time between diagnosis and my all-in-one consult with a thoracic oncologist, thoracic radiology oncologist and a thoracic surgeon was under 10 days. Within days and prior to that meeting, I had an endoscopic ultrasound at MGH. Full staging with a PET/CT and MRI was complete within 13 days of the original diagnosis. Thoracic Oncology at MGH Cancer center gets a ringing endorsement from me! Thoracic Oncology puts together a team for each patient. I highly recommend not only all of the oncology doctors, but also the nursing staff, affiliated medical professionals, residents, fellows, and support staff (even the valets are kind and compasionate!). They are a special group of people who also have success with treating very difficult cancers. Feel free to ask any questions that come to mind.

    Think positive thoughts!
    Lisa

    Thank so so much
    Thank you

    Keith
  • Boston67
    Boston67 Member Posts: 61
    #11
    danno2961 said:

    Don't run out of Boston so
    Don't run out of Boston so quickly! As a few have stated before, you have 2 great options nearby in Mass General and especially the Dana Farber Institute. I got my mother an appointment within 2 weeks of her diagnosis to see Dr Enzinger (medical oncology/gastrointestinal), and Dr Wee (one of 4 top local surgeons there in one hospital). Be persistent when scheduling, I know that it is always more difficult with the holidays. Getting the right treatment the first time around is most important!!

    We would have gone to Memorial Sloan kettering in NYC, yet the 3 top surgeons left there in 2010.

    You bet
    Yes, the buracuray can kill you. But I don't no for an answer and it works. I have gotten into Dana Farber just as all my tests, CT scan, Pet scan and a biopsie of my elbow are ready. Merry Christmas
  • danno2961
    danno2961 Member Posts: 5
    #12
    Boston67 said:

    You bet
    Yes, the buracuray can kill you. But I don't no for an answer and it works. I have gotten into Dana Farber just as all my tests, CT scan, Pet scan and a biopsie of my elbow are ready. Merry Christmas

    Great!
    Glad to hear that you perseveered and got in at Dana Farber! You are now in the best hands around, as they are one of the few "Centers of Excellence" designated By the NCI-National Cancer Institute. NCI designation is awarded via a grant using a peer-review process. Thus other top doctors and hospitals feel strongly about them, and in many cases contact them for advice. My mother's oncologist in Florida contacted them twice looking for answers on the best treatment regimen for her diagnosis of T3, with an extremely difficult surgery to follow as she has had prior gastric bypass surgery 8 years ago.

    I wish you all the best in your fight to be one of the success stories with this awful disease. Keep your spirits up, and keep fighting this with all you have. I have heard many people come back from poor prognosis, so it is something you too can achieve. Merry Xmas!
  • Boston67
    Boston67 Member Posts: 61
    #13
    danno2961 said:

    Great!
    Glad to hear that you perseveered and got in at Dana Farber! You are now in the best hands around, as they are one of the few "Centers of Excellence" designated By the NCI-National Cancer Institute. NCI designation is awarded via a grant using a peer-review process. Thus other top doctors and hospitals feel strongly about them, and in many cases contact them for advice. My mother's oncologist in Florida contacted them twice looking for answers on the best treatment regimen for her diagnosis of T3, with an extremely difficult surgery to follow as she has had prior gastric bypass surgery 8 years ago.

    I wish you all the best in your fight to be one of the success stories with this awful disease. Keep your spirits up, and keep fighting this with all you have. I have heard many people come back from poor prognosis, so it is something you too can achieve. Merry Xmas!

    Thank you and Merry Christmas
    Thank you for your thoughtful comments. I am reading every report in my record and now find that with google as my dictionary the language is easily translatable to things I can understand.

    Merry Christmas

    Keith Rodney
    Age 67 Boston

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