FYI

After still struggling with health issues for 3 years post treatment for my stage 3 breast cancer I started to really force the issue because one truly gets tired of being sick and tired. I was left to my GP except for yearly check up where I complained of the same things and little done.
Finally it was a matter of having to return to work because I was that ill I didn't work from surgery through 21 months. I was trying to return to modified duties since working heavy labor in paper mill. I lasted less than a year and off again struggling with all these painful issues. Finally demanded to go back to pain specialist and get at the heart of the problem since no anti depressant would work and that was all GP could think to give me since we are assumed to be anxious.
Well it took another 3 years to get at the layers of pain from all the diseases I was left to cope with but no one wanted to go there it seemed unless they had to. I guess they hoped I would just quit and go away. I was on amitriptoline, the nortryptoline alone with celbrex then something for headaches because migrains set in and I had never had one though my mother suffered terribly as did my sister. I actually went on METHADONE because I had all the side effects from the drugs and struggling it seemed more with them. I stayed on methadone for about 4 years but always felt like **** because it too was one of the side affects. I just couldn't get away from them since I was that sensative to everything going into me no wonder chemo was such a problem.
I had found out I had all these nerve and arthritic conditions that were causing me pain I had irritable bowel I had sleep disorders along with night sweats and much tingling and numbness in my hands along with much joint pain arthritic conditions to boot. Doctors then believed stress was a big problem and I might never work again and if I could probably part time would be good. I actually just heard recently that night sweats are a sign something is wrong. They are not the same as having a hot flash in bed. Then on the other hand I have melted in the heat as well starting with cancer too.
I worked shift work my whole life and worked in heavy lifting industries. I moved into the paper industry 6 months before my diagnosis moving away from family and friends to start a new life with my LOVER. WOW was something I said allot way back when.
Now 14 years after by BC struggle and probably had 5 years of relatively normal health for me that is. I had bouts of illness where I couldn't work riddled with pain in joints and all over everything was affected and headaches along with weakness and dizziness with lots of nausea and the leg dragging getting worse. No one has ever figured out what happens to me. I had another bout last winter through spring and this time lumps were an added variety to what I normally suffer. Still no closer to answers yet more pain added with the lump thing and I also found out I need surgery for bad shoulder that could be the root of problems the cancer ortho surgeon finally thought.
I don't believe that for a moment when the pain still radiates from the lumps and to say they couldn't hurt me is rediculous since nerves are everywhere. My mother is a nurse and has watched me all these years shuffle through the system that has little help it seems. She also had another friend an old classmate that was suffering in another province almost sounding like the same thing and she too has suffered more than 14 years. Fibro Myalgia is a disease that is very loosely used and almost for people that they can't give a true diagnosis.
Well her friend was recently diagnoses with disease that was founded in the late 1800's and obviously the doctors have forgotten about because after readying the information the only thing extra I have are dragging legs. I don't care if my doctor gets mad for bringing in this information because thank God for the internet and now maybe this too will be taken more seriously. I just don't want to wake up in another 20 years to hear had I gotten myself on some medication I could have stopped the progress or slowed it of some of my diseases. There are things out there that slow progression of many diseases down and maybe I should care more about that so I can continue to work and be productive.
Quality of my LIFE is the most important to me not so much the length.
The diseases name is DERCUMS Disease and all the symtoms I have but like I say add a few more including 2 dragging legs.
Hope this information will help someone out there because I feel hopeful for the first time in this past year dealing with these painful lumps and painful issues.
Tara
Mostely affects women over 40 and post meno which was triggered chemically or surgically which chemo did me in at 36. I could be looking at hot flashes till I'm 80 mother still having them.
Just look up the disease it totally amazed me.