Spindle Cell Tumor

AuthorUnknown said:

Hi - I have this type of tumor - it started in the uteris and is now in the abdomen and also very big like a football. What type of treatment did you receive - this is the second time it has come back and I am pretty upset as you can imagine.Very hard not to know of anyone who has this type of cancer. Anyone else out there?
Hope to hear from you,
Chris

twinsmom said:

Hi, My name's Bev. I hope you are doing fine now. This is my first time doing anything like this. I was first diagnosed with a spindle cell sarcoma of the breast in March of 2004. I had just the surgery and the doctors said I didn't need any other treatment and it wouldn't come back. Guess what it's back. I found a lump under my arm in March of 2007. (I don't think I like the month of March.) The doctor's in my hometown have sent me to the University Of Chicago Hospital because they have sarcoma specialists there. I'm the only person in my area in the last 7 years to get this kind of cancer. I will be having radiation and chemo after. Is there any one out there that has gone through this cancer in the breast and what were your treatments?

highland said:

Male with spindle cell
Well Wishes to all. Was diagnosed with sarcoma Nov. 07 by a DDS. Had 3 chemos and a tumor 4" in thigh removed in April. Received another chemo, was told I have tumors in my lungs and adrenal gland. I'm refusing chemo. now. Started building up my immune system, exercising, oxygenation and strengthening the white and red blood cells within the body, raw food minus anything processed etc. I'm feeling great both physically and mentally. Death has become something I'm training to fear not, not that I look forward to it. Are Chemo, radiation and surgery our only savior? Surgery, yes. Anyone who has taken on this cancer the old fashion way?

twinsmom said:

Hi, My name's Bev. I hope you are doing fine now. This is my first time doing anything like this. I was first diagnosed with a spindle cell sarcoma of the breast in March of 2004. I had just the surgery and the doctors said I didn't need any other treatment and it wouldn't come back. Guess what it's back. I found a lump under my arm in March of 2007. (I don't think I like the month of March.) The doctor's in my hometown have sent me to the University Of Chicago Hospital because they have sarcoma specialists there. I'm the only person in my area in the last 7 years to get this kind of cancer. I will be having radiation and chemo after. Is there any one out there that has gone through this cancer in the breast and what were your treatments?

AuthorUnknown said:

Hi - I have this type of tumor - it started in the uteris and is now in the abdomen and also very big like a football. What type of treatment did you receive - this is the second time it has come back and I am pretty upset as you can imagine.Very hard not to know of anyone who has this type of cancer. Anyone else out there?
Hope to hear from you,
Chris

Carltish said:

Learning more about this form of Cancer
Dear Dfrank,

My wife and I have studied natural alternatives and one of our dear friends
I believe has this rare cancer. For the last few years she had problems with
with air pockets developing under her right lung do to the lung separating
from the tissue as well as formation of tumor growth. Her physician would
perform a surgery for the collapsed lung and reattach the lung in its former
position. Time would elapse and our friend would start to feel tired and
lose weight and the lung would suffer the same symptom.
The doctor never mentioned Spindle cell although his medical diagnosis
after research on my own indicated that this was a spindle cell issue.
I think that there is much more research needed regarding this rare cancer
and the research will need to be accomplished on the part of the medical
centers and the patient. Please share what you can.
We are going to attempt to use many herbal formulas and light therapy
which there are some science for the light.

This is a new path for all. You are in our prayers.

Carl

WilsonC1 said:

Newly diagnosed
My name is Wilson, I am a 48 year old male. I wish I was here to speak about my cancer. But for me, its far worse. My 23 year old daughter was very recently diagnosed with Spindle Cell Carcinoma of the breast. Seems that this is a very rare form and even more rare considering her age. Needless to say, I am devastated. I hope your loved ones are doing well after their episode with SpCC.
Please continue to post you expereinces as it helps greatly to the newly diagnosed and those that love them.
Thank you and be well.

Wilson

ronniem said:

Spindle Cell in the Right foot
I was diagnosed with spindle cell sarcoma in my right foot in 1998. There was very little knowledge of this type of sarcoma back then and after having the very small lesion removed I was monitored with CT's and MRI's. a year later I had moved to a different Province in Canada with the very same symptoms... They performed surgery and told me that the cancer had returned but they had taken it out and I should be fine. I made a phone call and went back to my previous clinic and was told once again that they would recommend amputation. I was sent back to a surgeon in my new location and he agreed that amputation of the affected area was probably best. I chose to go aggressive and had my right leg removed below the knee in September 2000. I had no other treatment... I'm guessing because I chose drastic surgery. When we moved yet again to another Province in Canada I was referred to the Cancer clinic where they followed me with CT Scan's every 6 mths then 10 mths.

In December 2008 we moved back to the Province where I had my amputation. Now I have had an MRI on my right elbow as there is a small pea sized lump there. I got the results of that scan yesterday and have been told that I have 4 lesions that are measurable and at least another 4 foci that could be the same. One of the lesions is 0.5 cm from the radial nerve, another is 0.4 cm from the brachial artery. the report states at one point: "Particularly given the patient's history of previous spindle cell sarcome, as well as the dense enhancement some of these lesions demonstrate, certainly metastatic disease would have to be considered, and histologic sampling with a view to complete excision of all or as many of these lesions as is technically feasible or possible is suggested, particularly as they may or may not all represent the same process."

As you can imagine I'm pretty upset... the lesions are all under 1 cm in size but to have so many in one area makes me wonder do I have others in my body that we do not know about. Is it a re-occurrence of spindle cell sarcoma? I've beat this thing for ten years and now here I am again... I guess the positive side of all this is they know more about spindle cell sarcomas than they did back in 1998.
Thanks for listening.
ronniem

Jude39 said:

Spindlecell Cancer
HI - I hope you are still here in good health and spirit - even though it might be without a leg or legs- there is still so much you can do and enjoy.
I've been struggling with Spindlecell cancer for five years now. I had a small lump removed from the back of my leg five years ago - They opened up my leg and there was a huge scar which took a long time to heal. They told me it was OUT and unlikely to come back. Twelve months ago I had two nodes taken out from the same place amongst the scar tissue. This time only 20 stitches and it healed quite easily. Last may I had a lump taken out which was benign , and currently I'm sitting in a chair with ten stitches in my leg from a lump I had removed on Thursday. The biopsy results will be out next week. They say the cancer is not age related, but I'm wondering if it is related to HRT somehow. I can't find out anything much on this cancer- except that chemo doesn't work well on it and when it spreads it tends to spread to the lungs - hence requiring annual chest Xrays. Any more information is much appreciated.