Newly diagnosed

tzujana33
tzujana33 Member Posts: 1
edited March 2014 in Uterine/Endometrial Cancer #1
Hi everyone! My name is Shelly and I am new to the boards. I was newly diagnosed with uterine cancer this past Tuesday. I had a partial hysterectomy on 12/2/10 and my pathology reports came back with a diagnosis of adenocarcinoma. As my gynecologist did not know I had uterine cancer, he didn't do any staging. I have now been referred to a gynecological oncologist and my appointment is this Thursday, Dec 16th. I imagine I will have to have further surgery in order for them to do staging and remove my ovaries and take samples of my lymph nodes. I am nervous and scared and feeling very emotional about all of this as I was totally shocked when my doctor told me. I feel great, recovering from my hysterectomy well and just expected a normal post op visit with my gynecologist when he told me. I appreciate any advice and support that I can get as I am trying to be strong and maintain a positive outlook. Thanks for reading and I look forward to getting to know all the special women on here as I tackle this new journey in my life. Blessings to you all...

Shelly

Comments

  • Sara Zipora
    Sara Zipora Member Posts: 231
    #2
    Newly Diagnosed
    Dear Shelly,
    So sorry to hear the news. I was diagnosed in July, seemingly healthy except for about two weeks of constipation.
    Your fighting and positive attitude will carry you far, and though it's sad that you got here, the Warriorettes on this list are treasure troves of information and positive energy.

    All the best , and God Speed on your road to recovery,
    Sara Zipora
  • Kaleena
    Kaleena Member Posts: 2,088 Member
    #3
    Shelly:
    So sorry we have to
    Shelly:

    So sorry we have to meet, but welcome to the board. I too had a hysterectomy (a total) and found out after the fact that I had endo adenocarcinoma. Therefore, I had to have another surgery for staging. I too felt great after my hysterectomy. I was nervous about meeting the gyn/onc and had to wait over three hours for my appointment! Nonetheless, my staging surgery went well and at that surgery everything was negative! May you have the same!

    Also, even though my staging surgery came back negative (testings and washings), I had preventative treatment so I had the protocol treatment. I had a port put in. (out patient surgery). That was back in 2005.

    The main thing is to stay positive. Also, don't look at too much on the internet. A lot of it is outdated.

    My best to you,

    Kathy
  • Ro10
    Ro10 Member Posts: 1,561 Member
    #4
    Shelly welcome to this site
    Sorry you have to join us. I am sorry you have to have surgery again for the staging. I am so glad that my gyecologist referred me to gyn/onocologist so I could have the staging done at the same time I had the hysterectomy. Glad you are feeling good right now. We all understand you feeling nervous, scared and emotional at this time. No one if ever prepared to hear that "cancer" word. Continue to try to be as strong as you can and maintain a positive outlook. That will get you a long way. There will be days though when you can't be as strong as you would like, and that is okay, too. I'll keep you in my prayers. In peace and caring.
  • kkstef
    kkstef Member Posts: 688 Member
    #5
    Hi Shelly
    I too am sorry that you had to join this discussion board, but there is not a better place to get info and support! I have found the women on this board are very generous in their sharing of info and incredibly supportive. This is a safe place to ask questions and also to vent on those days when you need such release.

    Let us know what you find out when you see the GYN-ONC. Once you have that meeting, you will have a much better idea about what is in store and what plan is best for YOU! I encourage you to do back and read some of the old posts here as there is a wealth of info and it will give you some ideas about the issues as well as questions to ask. The main thing right know is to know what Stage and Grade your cancer is....that will guide the treatment plan.

    I was diagnosed with endometrial adenocarcinoma, Grade 2/3, Stage 3A in May, 2008 and completed radiation and chemo in Dec. 2008... SO I have been NED (no evidence of disease) for 2 years and am finding that life is good. So please do not despair!

    Keep us posted....and hoping that you get helpful info from your GYN/Onc . Look forward to hearing more from you!

    Karen
  • susafina
    susafina Member Posts: 131
    #6
    kkstef said:

    Hi Shelly
    I too am sorry that you had to join this discussion board, but there is not a better place to get info and support! I have found the women on this board are very generous in their sharing of info and incredibly supportive. This is a safe place to ask questions and also to vent on those days when you need such release.

    Let us know what you find out when you see the GYN-ONC. Once you have that meeting, you will have a much better idea about what is in store and what plan is best for YOU! I encourage you to do back and read some of the old posts here as there is a wealth of info and it will give you some ideas about the issues as well as questions to ask. The main thing right know is to know what Stage and Grade your cancer is....that will guide the treatment plan.

    I was diagnosed with endometrial adenocarcinoma, Grade 2/3, Stage 3A in May, 2008 and completed radiation and chemo in Dec. 2008... SO I have been NED (no evidence of disease) for 2 years and am finding that life is good. So please do not despair!

    Keep us posted....and hoping that you get helpful info from your GYN/Onc . Look forward to hearing more from you!

    Karen

    Hi Shelly
    Hi Shelly,
    I am glad you found this site. The women here are so supportive and helpful. I am so sorry to hear that you joined our club but always know you will never be alone. We are all here for you every step of the way.I joined not too long ago and feel the knowledge gained is so important and usrful. Just know that you WILL get through this, and we are here for you every step of the way!!I was diagnosed in NOV of 2009. I was diagnosed with stage 3 adenocarcimona grade 1. On Dec. 9th I just celebrated my 6th months post treatment. and so far so good. You will be the same. Keep us posted.
    SUE
  • Always Hopeful
    Always Hopeful Member Posts: 234
    #7
    Sorry you had to join this board
    Dear Shelly,

    I am so sorry you had to join this board but keep in mind that there are many survivors out here. You will have your good days and your not so good days. Try to stay positive (although that is sometimes difficult)and remember to LIVE, LOVE and LAUGH!!!

    Good luck on Thursday when you visit your Gyn Onc.

    Peace and hope, JJ
  • hopeful girl 1
    hopeful girl 1 Member Posts: 454
    #8
    Always Hopeful said:

    Sorry you had to join this board
    Dear Shelly,

    I am so sorry you had to join this board but keep in mind that there are many survivors out here. You will have your good days and your not so good days. Try to stay positive (although that is sometimes difficult)and remember to LIVE, LOVE and LAUGH!!!

    Good luck on Thursday when you visit your Gyn Onc.

    Peace and hope, JJ

    You came to the right place
    Shelly,

    You came to the right place for support. These boards are a great source of support and information-and I know they helped me when I was scared and helped me feel like I could get thru' my treatments etc.

    I had a complete hysterectomy end of Feb 2010, and removal of fallopian tubes, ovaries, and some lymph nodes: uterine cancer stage 3C. Following surgery I had sandwich therapy of 3 chemos, followed by 25 radiations, followed by 3 more chemos. My last chemo was Nov 2nd. I am still waiting for my bloodcounts to return to normal from the chemos. My CA125 cancer marker test is a 5. 0-34 is considered normal for CA125 test.

    You can do this, and we are all here for you!

    Cindy
  • Countrygirl3
    Countrygirl3 Member Posts: 7
    #9
    hopeful girl 1 said:

    You came to the right place
    Shelly,

    You came to the right place for support. These boards are a great source of support and information-and I know they helped me when I was scared and helped me feel like I could get thru' my treatments etc.

    I had a complete hysterectomy end of Feb 2010, and removal of fallopian tubes, ovaries, and some lymph nodes: uterine cancer stage 3C. Following surgery I had sandwich therapy of 3 chemos, followed by 25 radiations, followed by 3 more chemos. My last chemo was Nov 2nd. I am still waiting for my bloodcounts to return to normal from the chemos. My CA125 cancer marker test is a 5. 0-34 is considered normal for CA125 test.

    You can do this, and we are all here for you!

    Cindy

    Howdy Shelly
    Happy to have you "on board" as we sail through this rough storm together. When I first found this web thing, I was amazed at how many women are going through this battle. It boggles my mind to hink about the many women who never have, or ever will even go online!

    Hopeful girl 1, was wondering if your diagnosis is anything like mine? was dig with uterine carcinosarcoma stage 3 - had hysterectomy in May of '10 then it came back, so I've been dealing with a bleeding tumor, which radiation helped stop the bleeding, but still have a fowl discharge.

    Started chemo last week, still trying to understand more about blood tests. It's my goal to be one of the longest living survivors, and I'm doing all I can.

    Yes, you "can do this"

    Blessings, Susan
  • Always Hopeful
    Always Hopeful Member Posts: 234
    #10
    Countrygirl3 said:

    Howdy Shelly
    Happy to have you "on board" as we sail through this rough storm together. When I first found this web thing, I was amazed at how many women are going through this battle. It boggles my mind to hink about the many women who never have, or ever will even go online!

    Hopeful girl 1, was wondering if your diagnosis is anything like mine? was dig with uterine carcinosarcoma stage 3 - had hysterectomy in May of '10 then it came back, so I've been dealing with a bleeding tumor, which radiation helped stop the bleeding, but still have a fowl discharge.

    Started chemo last week, still trying to understand more about blood tests. It's my goal to be one of the longest living survivors, and I'm doing all I can.

    Yes, you "can do this"

    Blessings, Susan

    Susan, Countrygirl3
    Hi Susan,

    I, too, had a bleeding tumor on my vaginal cuff. The bleeding stopped towards the end of the 10 radiation treatments (IMRT). The radiation stopped in mid-October and I still have a yellow yucky discharge which infrequently has an unpleasant odor. My gyn onc said it is a result of the tumor dying. Can't wait for it be totally DEAD!!! I am Stage 4 UPSC Grade 2 and have finished my second cycle of GEMZAR.

    What chemo are you being given? Good luck positive vibes and prayers are coming your way.

    Peace and hope,

    JJ

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