Scan results - calling on the posse for some help

lesvanb
lesvanb Member Posts: 905
edited March 2014 in Colorectal Cancer #1
Hello all

Well the results of the PET/CT Thursday showed progression on all four lung nodules, two now 1.1 and 1.2 for which the good news was that now they can do a CT guided needle biopsy instead of VATS. This news is very deflating (no pun intended. I've been feeling great, keep getting stronger, honing my diet, exercising, TCM, plus IV C and Iscador, and really was hoping for stability since the Sept scan showed little progression on the lung mets. And every thing else is fine including "great blood work" says the doc, with a CEA of 1 (.9 in Sept). Sigh. Who knows I guess, could've been worse if I'd just been sitting around watching TV eating bon-bons. But geez, this sure is frustrating. Also sure am not jumping up and down happy about chemo in the near future. This past year and a half w/out it has been very nice.

So back to SLC Monday to meet with thoracic surgeon and discuss options. Needle biopsy scheduled Tuesday unless thoracic guy wants to do something else. Asked that they send a sample to Caris for genotyping (mixed reviews amongst Huntsman oncologists on Caris trial results because of the number and type of tumors tested, and the docs in the trial with a money interest in Caris). Also nice to know my oncologist knows Dr. Lenz and has spoken with him.

So I welcome any info, strategies, support, cyber flowers and agave nectar etc etc. Thanks for being there you all.

all the best, Leslie
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Comments

  • KathiM
    KathiM Member Posts: 8,028 Member
    #2
    Cyber flowers and hugs here...
    Can't really give any advice, I leave that for the experts here....

    Please keep us posted, dearheart!!!

    Hugs, Kathi
  • Lori-S
    Lori-S Member Posts: 1,277 Member
    #3
    Les
    Well geez! I can feel your frustration. Seems like your feeling well and doing everything right.

    You have all the cyber hugs, flowers and agave nectar (I know you don't mean tequila - but if I felt better, I'd do a shot in your honor if it meant it would help) from me that you could ever need. I will be praying that your team comes up with a great strategy and that the biospy goes well for you. To better days! HUGS
  • Kerry S
    Kerry S Member Posts: 606 Member
    #4
    You will get no flowers from me darlin
    Leslie,

    You will get no flowers from me darlin. You and I are just mentally going out into cyber space and brush hog one big **** field. The field, in my mind, is just full of small scrub oaks and cedar trees. We both be driving L4240 HST Kubotas, pulling 8 foot brush hogs.
    The others here will not understand this post, but I know you do.

    Kerry
  • Sonia32
    Sonia32 Member Posts: 1,071 Member
    #5
    Leslie
    I can't give you advice, but like Kathi sending you cyber flowers and hugs.
  • KathiM
    KathiM Member Posts: 8,028 Member
    #6
    Kerry S said:

    You will get no flowers from me darlin
    Leslie,

    You will get no flowers from me darlin. You and I are just mentally going out into cyber space and brush hog one big **** field. The field, in my mind, is just full of small scrub oaks and cedar trees. We both be driving L4240 HST Kubotas, pulling 8 foot brush hogs.
    The others here will not understand this post, but I know you do.

    Kerry

    This shy flower knows...
    ...of what you speak...

    One question, can I come, too????

    Hugs, Kathi
  • lesvanb
    lesvanb Member Posts: 905
    #7
    Kerry S said:

    You will get no flowers from me darlin
    Leslie,

    You will get no flowers from me darlin. You and I are just mentally going out into cyber space and brush hog one big **** field. The field, in my mind, is just full of small scrub oaks and cedar trees. We both be driving L4240 HST Kubotas, pulling 8 foot brush hogs.
    The others here will not understand this post, but I know you do.

    Kerry

    Massey ferguson 1260
    with a 6' ft brush hog will be my steed of choice my dear. Onward!

    thank you Kerry,

    and thanks to you all for your well wishes. I like the cyber hugs and flowers too, my dear ones.

    Leslie
  • AnneCan
    AnneCan Member Posts: 3,673 Member
    #8
    Leslie
    I am sorry you have had progression in your lungs. I am sending you cyber flowers (can't believe how inexpesive they are) + cyber hugs. I think that because you have strengthened yourself so much you will do well in this next leg. Also, I know it must be hard to think of chemo after a 1 1/2 year break, but that break is going to help you deal with the chemo that much better. Take good care, my friend.
  • pepebcn
    pepebcn Member Posts: 6,331 Member
    #9
    AnneCan said:

    Leslie
    I am sorry you have had progression in your lungs. I am sending you cyber flowers (can't believe how inexpesive they are) + cyber hugs. I think that because you have strengthened yourself so much you will do well in this next leg. Also, I know it must be hard to think of chemo after a 1 1/2 year break, but that break is going to help you deal with the chemo that much better. Take good care, my friend.

    Hugs, kisses, flowers, candies , good vibes and
    anything you need! from here leslie!
  • scouty
    scouty Member Posts: 1,965 Member
    #10
    KathiM said:

    This shy flower knows...
    ...of what you speak...

    One question, can I come, too????

    Hugs, Kathi

    Shy Flower???
    Not an ounce of shy in your body girlfriend, stop blowing smoke.

    Happy Holidays!!!

    Lisa P.
  • scouty
    scouty Member Posts: 1,965 Member
    #11
    lesvanb said:

    Massey ferguson 1260
    with a 6' ft brush hog will be my steed of choice my dear. Onward!

    thank you Kerry,

    and thanks to you all for your well wishes. I like the cyber hugs and flowers too, my dear ones.

    Leslie

    Nice tractor!
    You know I there with you Leslie. Give em hell buddy.

    Lisa P.
  • Paula G.
    Paula G. Member Posts: 596
    #12
    Damn Leslie. I was hoping
    Damn Leslie. I was hoping for better news. After speaking to Dave I was in a bummer for you both.
    Did they who was doing the trial at Huntsman ?

    I have a friend on the board here in Salt Lake that has been to see Dr. Lenz. She seems to like him. I hope you will continue with feeling good and keeping the hope going. We think of you every day. Sorry we couldn't come see you guys... John is wanting it over. He is ready. I am not!~ Love to you and Dave, Paula
  • KathiM
    KathiM Member Posts: 8,028 Member
    #13
    scouty said:

    Shy Flower???
    Not an ounce of shy in your body girlfriend, stop blowing smoke.

    Happy Holidays!!!

    Lisa P.

    shhhhhh.....there are some that don't know the real me....
    ROFL!!!!

    Happy Holidays to you, too, dear Lisa!!! (It's to be 80 degrees here in So Cal this weekend...warm and toasty, and decidedly time for naked happy dancing...lol!)

    Hugs, Kathi
  • lisa42
    lisa42 Member Posts: 3,625 Member
    #14
    agave nectar
    Sending you some cyber agave nectar, Leslie! I love that stuff and the cyber version has no calories at all :)
    I'm sorry to hear the news of the progression in your lung nodules- truly- but, sounds like a plan of action is happening & I know you're a fighter.
    No one ever looks forward to chemo & I know all too well the dreaded and disappointed feeling of having to start it up again.

    You take care- cyber hugs to you too- hope you can feel it & know it's heartfelt :)

    Lisa
  • Kerry S
    Kerry S Member Posts: 606 Member
    #15
    KathiM said:

    This shy flower knows...
    ...of what you speak...

    One question, can I come, too????

    Hugs, Kathi

    Hell yes
    Kathi darlin,

    Hell yes you can come with us. I got a damned extra Kubota now parked there for ya.

    Hope you know how to handle it as I don’t want any rocks hitting my head.

    Kerry
  • TMac52
    TMac52 Member Posts: 352
    #16
    Hi Leslie,
    I dont have any
    Hi Leslie,
    I dont have any wisdom but sure can send you a sincere prayer.
    On it's way !!!!
    Tom
  • Kathleen808
    Kathleen808 Member Posts: 2,342 Member
    #17
    Leslie
    Leslie,
    I am so sorry that things have grown. I'm glad to hear that your CEA is good though. I think you are in a much better place to deal with this since you have been taking such good care of yourself. There is so much mentally, physically and spiritually that is good when we take care of ourselves. I'm thinking of you as you prepare for the next steps. I'm sending you cyber sunsets and beautiful waves. :)

    Aloha,
    Kathleen
  • KathiM
    KathiM Member Posts: 8,028 Member
    #18
    Kerry S said:

    Hell yes
    Kathi darlin,

    Hell yes you can come with us. I got a damned extra Kubota now parked there for ya.

    Hope you know how to handle it as I don’t want any rocks hitting my head.

    Kerry

    No worries...I'll practice!!!
    I am a gal of many talents...I can also drive a fruit truck...learned when I worked for Sunkist Growers...first time in my life I had to double-clutch!!!

    I'll be real careful with that precious head of yours, my dear....I promise!!!

    Hugs, Kathi
  • taraHK
    taraHK Member Posts: 1,952 Member
    #19
    so sorry
    Hi Leslie,

    I'm so sorry about the disappointing scan results. Good that they feel they can do CT guided needle biopsy now (I've had that previously for lung met). And it does sound like you are getting a plan in place, and have a good team.

    I've had lung met on three separate occasions -- now dealing with bone mets. But, it's been almost 8 years since I was diagnosed. I'm still working full-time (well, kind of!), active social life. My current chemo regime is "do-able" with minimal side effects....I'm glad to be alive.

    Sending all best wishes your way, as you get back up on THAT horse again....

    Tara
  • Crow71
    Crow71 Member Posts: 679 Member
    #20
    Well, ****!!!
    Leslie - This is really upsetting to me. I've always enjoyed reading your story and posts. Don't get frustrated about whether or not you would have had the same outcome if you had been eating bon-bons. It seems like you have been living the way you want to live, and that is what is important. You are healthy and strong - and smart. You'll get through this phase.
  • herdizziness
    herdizziness Member Posts: 3,624 Member
    #21
    Leslie
    My support is there for you hun.
    Sending cyber flowers, hearts and hugs your way!!!
    Winter Marie

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