Joint Pain After Treatment?
Are any of the Semi Colons experiencing severe joint pain?
I stopped treatment in June and right around September, I could no longer pop out of bed.
It takes a loong time to un curl myself from sleeping position, and get out of bed.
Getting out of a chair ir car is madness. So stiff and sore. The people at work must think I am way older than I am and that I have a stick up my butt.
Glucosimine isn't touching it or aspirin...
Peggy
Comments
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joint pain
I know treatment exasperated my existing osteoarthritis. During treatment, I was on steroids for the nausea, so no pain. Once treatment ended, the osteoarthritis really flared. I'm on Celebrex and it manages it very well, plus I think I read about some additional benefit for colon cancer from Celebrex.
mary0 -
me too hip painplh4gail said:Me too
Yes, I have hip pain and stiffness. Like you it seems worse when getting up from sitting. And there is no way I can sit cross legged or even with one leg tucked under me. I started my treatments in July with the radiation/chemo 5 week thing.
Gail
Thought I was crazy but my hips hurt I can't cross my legs and or sit on the floor. I have a hard time putting on my shoes. Laura0 -
old author
yep got that too especially in my hands.for me tylenol arthritis works.i take 2 before i go to bed and in the morning i dont feel so stiff and can even make a fist.Godbless...johnnybegood0 -
hi Peggy
I have been a survivor of st3c cancer for 13 yrs. each year since dx my auto-immune problems have become worse. I won't bore you with the details, lets just say if the doctors were giving you directions to australia they would probably tell you to go to the north pole and do a u turn. I am currently in a major flare of psoriatic arthritis. It is an auto immune arthritis. It is effecting most of the joints in my body. In the past ten years I have suffered the worst of the arthritis medicines. If you think chemo is bad,,,,,there are no nice arth meds. Prednisone was one of the worst ,I was on 75mg daily for nearly 18 mos, I t nearly killed me and I nearly killed me whilst on it. When I went off it I had one of the worst flares ever . I had a nuclear bone scan and every joint was black with inflammation.I tried sulfasallazine,not wise with ibs,I nearly died on the loo.
Then it was methotrexate,an immuno-suppressant chemo drug,It helped with the arthritis but had horrible side effects and finally after 18 mos I had to go off it. It was triggering acute vertigo attacks. After three mos i was in hell again. Inflamed joints ,kidneys ,lungs and the neuropathy in feet and legs was unbearable. This week I have been started on arava . it is classified as an orphan drug as it bears no heritage to any other group of drugs. It is a designer drug for rheumatoid and psoriatic arth as well as psoriosis. So far none of the predicted side effects have occured. It has always been an irony that drugs always work on me but unfortunately I get all of the effects ,good and bad. I guess that what happens to me is not the path every long term survivors will follow,just the worst case scenario..Best of luck,Ron.0 -
Hi Peggyron50 said:hi Peggy
I have been a survivor of st3c cancer for 13 yrs. each year since dx my auto-immune problems have become worse. I won't bore you with the details, lets just say if the doctors were giving you directions to australia they would probably tell you to go to the north pole and do a u turn. I am currently in a major flare of psoriatic arthritis. It is an auto immune arthritis. It is effecting most of the joints in my body. In the past ten years I have suffered the worst of the arthritis medicines. If you think chemo is bad,,,,,there are no nice arth meds. Prednisone was one of the worst ,I was on 75mg daily for nearly 18 mos, I t nearly killed me and I nearly killed me whilst on it. When I went off it I had one of the worst flares ever . I had a nuclear bone scan and every joint was black with inflammation.I tried sulfasallazine,not wise with ibs,I nearly died on the loo.
Then it was methotrexate,an immuno-suppressant chemo drug,It helped with the arthritis but had horrible side effects and finally after 18 mos I had to go off it. It was triggering acute vertigo attacks. After three mos i was in hell again. Inflamed joints ,kidneys ,lungs and the neuropathy in feet and legs was unbearable. This week I have been started on arava . it is classified as an orphan drug as it bears no heritage to any other group of drugs. It is a designer drug for rheumatoid and psoriatic arth as well as psoriosis. So far none of the predicted side effects have occured. It has always been an irony that drugs always work on me but unfortunately I get all of the effects ,good and bad. I guess that what happens to me is not the path every long term survivors will follow,just the worst case scenario..Best of luck,Ron.
So sorry and I hope that you feel better soon. My doc always said that dogs and cats have the right idea. All animals for that matter. They never get up without stretching first. I was told I should never just jump up out of bed but, should do strecthes before getting up. Make sure you stay warm at night too. I got an electric mattress pad. It's great for aches because you can lay right on it and make sure that you get whatever joint you need some heat on. I'm sure you can probably roll around in an electric blanket and get the same result.
Ron, I can so relate. I've been on methalterxate too. Bad stuff. I had a very tough time with rheumatoid arthritis quite a few years back. About 25 years ago. I was on basically a chemo for that for 9 months once which included the prednisone and a gold compound IV. I don't remember the exact name. I also got all kinds of anti-malaria drugs too at the time. The treatments were so bad that I ended them as I said that I'd rather die than be on them any longer. I've been lucky to have been in remission until about 5 months before my colon cancer dx when my knees started swelling so bad that I was back to wearing a brace on one of them and couldn't get up the stairs at home at all. I moved to the downstairs bedroom. After I got out of the hospital for my resection, my knees had gone down and weren't bothering me at all ... probably from the 2 weeks rest and staying off of them. I'm terrible about resting enough no matter how I feel. My onc said that I shouldn't have to worry about another flare up while on chemo as the drugs (especially the dex) will be good for me. So far so good.0 -
G'day LoriLori-S said:Hi Peggy
So sorry and I hope that you feel better soon. My doc always said that dogs and cats have the right idea. All animals for that matter. They never get up without stretching first. I was told I should never just jump up out of bed but, should do strecthes before getting up. Make sure you stay warm at night too. I got an electric mattress pad. It's great for aches because you can lay right on it and make sure that you get whatever joint you need some heat on. I'm sure you can probably roll around in an electric blanket and get the same result.
Ron, I can so relate. I've been on methalterxate too. Bad stuff. I had a very tough time with rheumatoid arthritis quite a few years back. About 25 years ago. I was on basically a chemo for that for 9 months once which included the prednisone and a gold compound IV. I don't remember the exact name. I also got all kinds of anti-malaria drugs too at the time. The treatments were so bad that I ended them as I said that I'd rather die than be on them any longer. I've been lucky to have been in remission until about 5 months before my colon cancer dx when my knees started swelling so bad that I was back to wearing a brace on one of them and couldn't get up the stairs at home at all. I moved to the downstairs bedroom. After I got out of the hospital for my resection, my knees had gone down and weren't bothering me at all ... probably from the 2 weeks rest and staying off of them. I'm terrible about resting enough no matter how I feel. My onc said that I shouldn't have to worry about another flare up while on chemo as the drugs (especially the dex) will be good for me. So far so good.
That is so true about chemo ,whilst you are on it it is rare to get arthritic pain,,,that comes after. I was so proud of myself juring chemo. We have a different scale for measuring cholesterol in Australia. 3.5 is the desired low level and over 5.5 you are usually on statins. On meds I rarely get below 7.5 I have a liver that mass produces the stuff. When I was on chemo my count dropped to 2 . I was stoked then my doc shattered my joy. Your liver is barely functioning ,I'm not surprised that it isn't producing cholesterol. SSiigghh ,now it is back to 7.3 and none of my docs care. they all reckon something else will kill me long before the cholesterol:) Ron.0 -
Pain
I too as so many suvivors experienced pain in my hips and tailbon area, some times its terrible pain so my dr recenly placed me on Tramodol with the suggestion from my Oncologist, it seems the radiationbeam damages the joints from your tail bone thru the hipjoint, i dont have pain while walking or standing, mostly sitting and lying flat on my back0
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