My onc visit today

Friendinpenn said:

Hang in there kid!!
I've had a bad reaction as well to the Oxiplilatin on Novemeber 10th, and it was so bad for me that I can no longer take it, (this would have been my 14th treatment on it) so I'm back on the irrectecan as of Wednesday this week...

That very morning of the reaction, I kidded my Onclolgist on the 10th after she told me my lab work numbers looked good by saing to her: "So you're gonna send me to the chair today" !!! She cracked up like I had never seen her do!!!

And then of course I had the severe alergic reaction to the oxiplilatin that afternoon...

So Wednesday this week, I had my wife resereve that very chair with my jacket on it because even though I was going back to "the chair"... I've learned in life that instead of running from your fears to run towards them...and I did...

And yesterday with my 5-fu pump I went to my cabin in the woods built a cozy crackling fire inside and listened to the cold rain outside in the Northern Pennsylvania Mountains...and I was glad to have the experience...hope all of you are doing well...

Your "FriendinPenn"

Hi Friend
It's good to see you posting. Sorry your reaction was so bad. That part of my post that I put Blah, blah, blah??? that's when the doc was talking about risk of death and all that fun stuff ... blah, blah, blah.

Bout your chair? I have been allowed to have my own designated chair too. I always take the one closest to the emergency exit, which fortunately is also the one right in front of the nurses station. One thing I do, but don't remember doing, during a reaction is stand up. Part of it is because it feels like my body is on fire but of course the nurses joke that I'm going to make a break for the exit and the next time they are going to strap me into my seat.

You should post some pix of your cabin on your expression page. It sounds wonderful. I was raised a southern, midwestern, native American, Italian girl (don't they call that a heinz 57 for short?) and I do miss the homey things like nature, woods, lakes, cabins and farms since I left for the big city experience of L.A. as a teen. Nothing better than nature, peace and a fire on a cold rainy day. I really miss my childhood on my granddaddy's farm. I actually remember the day they put a bathroom inside and the outhouse just became a part of the lanscape and not the place that you had to get dressed in coats and boots to weather the snow when you had to go so bad in the mornings. I think it is probably one of my earliest childhood memories as I must of been about 3 years old.

I'm just curious since your not doing the oxy anymore. How much different is it with just the 5FU? Since I may have to drop the oxy myself, I'm thinking it might be a lot easier. I have a lot of side effects but, I can't be sure which is the oxy and which is the 5FU.

maglets said:

ahhh lori
eggs were my go to on oxy....so sorry they taste like dead chickens.....have you found anything that appeals?

maggie

Maggie
I'm even getting sick of my favorite teas. waaaaah But, after a few days I can go with sweet or spicy foods. It's like sugar or chili peppers kill the dead animal taste. It's funny but, I was vegan for 3 years and everything (not just meats)tastes the same way meats smelled when I wasn't eating them. Very gamy and dead. Weirdest thing to have that come back only in a taste instead of just the smell. It's just not very appetizing.

AnneCan said:

Lori
I guess it would be worse if the eggs tasted like live chickens!

Yuck
Could you imagine, tasting the feathers? That's one thing when eggs cook when I'm doing chemo, it smells like chicken feathers burning. What's up with that?
But, Ann, if it were live chickens you could always use the feet as toothpicks!

chicoturner said:

Ah Lori, might as well keep
Ah Lori, might as well keep laughing! or at least try to get them to laugh! I have a lot of feet issues since my Oxy days and see a pediatrist (spelling...?<&%$@!) He won't smile either, but next time I will put smiley face stickers on the bottom of my feet!!! Hang in there! Jean</p>

Hey that's a great
idea ... I think I'll put a smiley face sticker on my liver so next time he goes to palpitate it, he'll be caught by surprise!