Need some hugs today

JoyceSteele
JoyceSteele Member Posts: 145
edited March 2014 in Colorectal Cancer #1
Hi everyone, just got the news my CEA level is now up to 22. It waw slowly rising, and I have been off chemo for 6 mos, feeling great. Am on Avastin every three weeks. My Dr. says he expected it to rise, he will wait for my CAT scan results (scan is in 2 weeks) and when it is appropriate he will put me back on a different chemo. I was on Folfox w/Avastin for 6 mos. Am inoperable due to size and number of tumors in liver although they shrunk considerably.

Can anyone cheer me up today? I just need a hug! Thank you so much.

Joyce Steele
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Comments

  • tina dasilva
    tina dasilva Member Posts: 641
    #2
    hugs hugs hugs hugs hugs hugs
    i'm so sorry ti hear about your CEA count Tina
  • Kerry S
    Kerry S Member Posts: 606 Member
    #3
    You just got a dirty old man hug. "I grope"
    Joyce,
    I have been there and it is not a fun place to be. When you hit these holes in our road, don’t let them get to you. Have you talked with them about liver chemo/embolization??? They could not operate on my liver and the embolization did the trick.

    My liver will be clear for 2 years next month.

    Kerry
  • OGammy01
    OGammy01 Member Posts: 67
    #4
    A Hug for you
    Hi Joyce, I'm sorry for your problems. I'm rather new here but I know there are a lot of caring and knowledgable people here. I am supposed to start my chemo this Mon. but I just found out I have a parastomal hernia. I don't know if that will interfere. Anyway, I will be praying for you and here's a big hug for you.

    Diane
  • AnneCan
    AnneCan Member Posts: 3,673 Member
    #5
    Hugs to you!
    Joyce,

    I am sorry to hear of your CEA rising. I am also inoperable at this time. I am on folfiri + avastin + it is doing a good job so far. You may just need more than avastin to keep things under control. Big ((((((HUGS))))) are coming your way!
  • pepebcn
    pepebcn Member Posts: 6,331 Member
    #6
    AnneCan said:

    Hugs to you!
    Joyce,

    I am sorry to hear of your CEA rising. I am also inoperable at this time. I am on folfiri + avastin + it is doing a good job so far. You may just need more than avastin to keep things under control. Big ((((((HUGS))))) are coming your way!

    Have lots of HUGS
    from the other side of the ocean!
    Hugs again!
  • jararno
    jararno Member Posts: 186
    #7
    HUGS!
    …..____(“`\…………….-´ ********`-………….. ./“`)___
    ..(____……….\_____ /….(0..0)….\_____ /………____)
    (____……………………...........()……………........…...____)
    ..(____………_______\…. \____/…../_______….____)
    …….(______/……….. ..´-._____.-´……………\______)
  • msccolon
    msccolon Member Posts: 1,917 Member
    #8
    hugs!
    So sorry you are feeling down today, things will improve! Definitely look into alternative options to surgery such as chemo embolization, RFA, etc. I had a tumor in my liver ablated using microwaves, a little newer than radio frequency.
    mary
  • Jaylo969
    Jaylo969 Member Posts: 824 Member
    #9
    jararno said:

    HUGS!
    …..____(“`\…………….-´ ********`-………….. ./“`)___
    ..(____……….\_____ /….(0..0)….\_____ /………____)
    (____……………………...........()……………........…...____)
    ..(____………_______\…. \____/…../_______….____)
    …….(______/……….. ..´-._____.-´……………\______)

    Super hugs for Joyce
    Super cyber hugs coming your way. {{{{{{{{{{{{ Huge HUGGGGS }}}}}}}}}}}}

    -Pat
  • JoyceSteele
    JoyceSteele Member Posts: 145
    #10
    tina dasilva said:

    hugs hugs hugs hugs hugs hugs
    i'm so sorry ti hear about your CEA count Tina

    Thank you
    For the hugs. :)
  • JoyceSteele
    JoyceSteele Member Posts: 145
    #11
    tina dasilva said:

    hugs hugs hugs hugs hugs hugs
    i'm so sorry ti hear about your CEA count Tina

    Thank you
    For the hugs. :)
  • JoyceSteele
    JoyceSteele Member Posts: 145
    #12
    tina dasilva said:

    hugs hugs hugs hugs hugs hugs
    i'm so sorry ti hear about your CEA count Tina

    Thank you
    For the hugs. :)
  • Lovekitties
    Lovekitties Member Posts: 3,364 Member
    #13
    Sorry to hear
    Dear Joyce,

    So sorry to hear that your CEA is up and you are left for weeks now before scan.

    Of course you can have hugs...all you want...HUGS HUGS HUGS HUGS HUGS HUGS HUGS HUGS HUGS HUGS HUGS HUGS HUGS HUGS HUGS HUGS HUGS HUGS HUGS HUGS HUGS HUGS HUGS HUGS HUGS HUGS HUGS .

    Hopefully your doctor will use the time to come up with a game plan which will be the one to take care of the tumors.

    Marie who loves kitties
  • JoyceSteele
    JoyceSteele Member Posts: 145
    #14
    Kerry S said:

    You just got a dirty old man hug. "I grope"
    Joyce,
    I have been there and it is not a fun place to be. When you hit these holes in our road, don’t let them get to you. Have you talked with them about liver chemo/embolization??? They could not operate on my liver and the embolization did the trick.

    My liver will be clear for 2 years next month.

    Kerry

    Thank you
    Kerry I have not but will - thank you for your hugs and the info and encouragement.
    So happy for you.

    Joyce
  • JoyceSteele
    JoyceSteele Member Posts: 145
    #15
    OGammy01 said:

    A Hug for you
    Hi Joyce, I'm sorry for your problems. I'm rather new here but I know there are a lot of caring and knowledgable people here. I am supposed to start my chemo this Mon. but I just found out I have a parastomal hernia. I don't know if that will interfere. Anyway, I will be praying for you and here's a big hug for you.

    Diane

    Thank you Diane
    I will keep you in my prayers. Thank you for your kind note and the big hug!

    Joyce
  • JoyceSteele
    JoyceSteele Member Posts: 145
    #16
    AnneCan said:

    Hugs to you!
    Joyce,

    I am sorry to hear of your CEA rising. I am also inoperable at this time. I am on folfiri + avastin + it is doing a good job so far. You may just need more than avastin to keep things under control. Big ((((((HUGS))))) are coming your way!

    Thank you
    Anne, thank you. Assume that will be my next round, Folfiri. Glad it is working for you. And yes, I obviously need more than Avastin. But I have had 6 great mos on it, no side effects. I appreciate you taking the time to write. And everyone else. Sorry I posted the same thing 3 times! Hugs back. Joyce
  • JoyceSteele
    JoyceSteele Member Posts: 145
    #17
    jararno said:

    HUGS!
    …..____(“`\…………….-´ ********`-………….. ./“`)___
    ..(____……….\_____ /….(0..0)….\_____ /………____)
    (____……………………...........()……………........…...____)
    ..(____………_______\…. \____/…../_______….____)
    …….(______/……….. ..´-._____.-´……………\______)

    Thank you for the hugs!
    This made me smile... thank you!
  • JoyceSteele
    JoyceSteele Member Posts: 145
    #18
    msccolon said:

    hugs!
    So sorry you are feeling down today, things will improve! Definitely look into alternative options to surgery such as chemo embolization, RFA, etc. I had a tumor in my liver ablated using microwaves, a little newer than radio frequency.
    mary

    Will look into other options
    Mary, thank you for your note. I need to do some more homework and will do that right away. Have read just a little about embolization. And nothing about microwaves. How fascinating. Best wishes for you. Joyce
  • JoyceSteele
    JoyceSteele Member Posts: 145
    #19
    Lovekitties said:

    Sorry to hear
    Dear Joyce,

    So sorry to hear that your CEA is up and you are left for weeks now before scan.

    Of course you can have hugs...all you want...HUGS HUGS HUGS HUGS HUGS HUGS HUGS HUGS HUGS HUGS HUGS HUGS HUGS HUGS HUGS HUGS HUGS HUGS HUGS HUGS HUGS HUGS HUGS HUGS HUGS HUGS HUGS .

    Hopefully your doctor will use the time to come up with a game plan which will be the one to take care of the tumors.

    Marie who loves kitties

    Thank you for the hugs
    Marie, thank you for cheering me up. I love kitties and puppies, too. My Oncologist is incredible, I love him. He will take good care of me. I am feeling better after all these wonderful people and notes. I thank God for each of you. Hugs back, Joyce
  • JoyceSteele
    JoyceSteele Member Posts: 145
    #20
    pepebcn said:

    Have lots of HUGS
    from the other side of the ocean!
    Hugs again!

    To the other side of the ocean
    Thank you so very much. And hugs back to you. Joyce
  • JoyceSteele
    JoyceSteele Member Posts: 145
    #21
    Jaylo969 said:

    Super hugs for Joyce
    Super cyber hugs coming your way. {{{{{{{{{{{{ Huge HUGGGGS }}}}}}}}}}}}

    -Pat

    Super hugs
    Thank you Pat.. loved the hugs... already feel better. You are all amazing! Thank you everyone.

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