Good news day

kayandok
kayandok Member Posts: 1,202 Member
edited March 2014 in Ovarian Cancer #1
I just returned from a long day at the hospital. First, I visited my onc/gyn who reported that the CA125 had taken another dive since last month, to 22.7. It was 76.7 last month and 167 the month before, and this last year it hovered around 150ish all year on doxil. He sent me down to the port doctor, to check out why the port isn't working (I had to use the IV last time.) It flushed right through, and he recommended using the pump on it to push the chemo through. I went in for chemo after that and WALA! the port worked like a charml. I have not had any problems for 3 years since using this port, but for some reason, in the chemo room, they don't use the pump (is that what it is called in Englsih?) for chemo.

I am having some pelvic discomfort lately, and the doctor suspects it is an adhesion, so recommended I eat a little less fiber.

All in all a very good news day, and even though my brain is saying, "Hallelujah!" it really hasn't registered to my emotions. Part of me thinkis it could be a mistake, and since my body is in pain, my heart refuses to believe it? Who knows. I analyze too much, for sure.

kathleen

PS I have been on dense dose taxol (taken weekly at 60mg/m2) and carboplatin every 28 days (AUC6). I am on 4th line chemo for a recurrence. Dx 6-07 (8 month NED after initial treatment and chemo ever since.)
«1

Comments

  • kikiz
    kikiz Member Posts: 94
    I am so happy that you got
    I am so happy that you got good news. I think that sometimes we hear so much bad about this disease that we are always waiting for the other shoe to drop. It is tough to make your heart believe something when you intellectually know the odds.

    Enjoy the good news and God Bless you

    Lori
  • So Happy About Your CA125
    Good Morning,
    I am so happy about your CA125 number. I to have an adhesion that hurts if I eat alot. It took a couple of scans for me to believe that it was not cancer. I got used to the pain and just live with it. So happy you are doing well. Love You, Paula
  • kayandok
    kayandok Member Posts: 1,202 Member

    So Happy About Your CA125
    Good Morning,
    I am so happy about your CA125 number. I to have an adhesion that hurts if I eat alot. It took a couple of scans for me to believe that it was not cancer. I got used to the pain and just live with it. So happy you are doing well. Love You, Paula

    Thank you!
    Do you eat a low fiber diet, Paula? Did the adhesion show up on the scan?
    k
  • kayandok
    kayandok Member Posts: 1,202 Member
    kikiz said:

    I am so happy that you got
    I am so happy that you got good news. I think that sometimes we hear so much bad about this disease that we are always waiting for the other shoe to drop. It is tough to make your heart believe something when you intellectually know the odds.

    Enjoy the good news and God Bless you

    Lori

    Thank you,
    Lori, I think you are right. It is sinking in a bit more now.
    k
  • kayandok said:

    Thank you!
    Do you eat a low fiber diet, Paula? Did the adhesion show up on the scan?
    k

    Adhesion
    Hello Again,
    when the adhesion grew, it wrapped around a nerve. You can see it on a scan, if that is what they are looking for. I eat anything I want. I love to eat. I decided when I got better, that I would eat and do whatever I wanted to, so if I died, I would leave this world happy. The adhesion is a sharp pain, on the right side, that hurts about 15 minutes after I eat a big meal. I have to bend over or sit down for about 2 minutes and it just goes away. I think it might be food passing through the intestines. I used to think that every pain I had in the abdominal or pelvic area was cancer, but it is just due to the nature of the surgery. Hope this helps you, Paula

    P.S. since I have had cancer 4 times, I figured I am on God's I love you borrowed time, so I live like there is no tomorrow. 4 primaries. I hike in Shenandoah National Park, I have booked a cruise in April for 7 days to Bermuda, and I have already booked a 2 bedroom apartment at the beach in July. Also, I should be finishing nursing school next year.
  • Cafewoman53
    Cafewoman53 Member Posts: 735 Member
    kayandok said:

    Thank you!
    Do you eat a low fiber diet, Paula? Did the adhesion show up on the scan?
    k

    Good News !
    I am happy for you, this disease even robs you of being able to enjoy the good !
  • clamryn
    clamryn Member Posts: 508
    Wonderful
    Kathleen, That is wonderful news. I am so glad to hear good news. You made my day.

    Linda
  • srwruns
    srwruns Member Posts: 343
    Excellent!

    Excellent!
  • Disneynutt
    Disneynutt Member Posts: 134 Member
    Wow, isn't good news
    Wow, isn't good news wonderful? I'm so happy for you. Three years... keep up the good work.

    -Kate
  • upsofloating
    upsofloating Member Posts: 466 Member
    Great news Kathleen! I also
    Great news Kathleen! I also question giod news afraid to get my hopes up. So Tues when found my ca125 had dropped from 111 to 40 I was excited and my doc somewhat dourly says "well if it' s true." If it's not me doubting it's him.
    So hard for us to believe - but, crikey, that's what we're fighting for!
    Annie
  • lenjam
    lenjam Member Posts: 51

    Great news Kathleen! I also
    Great news Kathleen! I also question giod news afraid to get my hopes up. So Tues when found my ca125 had dropped from 111 to 40 I was excited and my doc somewhat dourly says "well if it' s true." If it's not me doubting it's him.
    So hard for us to believe - but, crikey, that's what we're fighting for!
    Annie

    GREAT NEWS
    So nice to hear some good news! I wish this for everyone here.
  • debp26
    debp26 Member Posts: 11
    That is such WONDERFUL
    That is such WONDERFUL NEWS!!!

    Deb
  • Fantastic news , really
    Fantastic news , really happy for you xx
  • Tina Brown
    Tina Brown Member Posts: 1,036 Member
    Hello Kathleen.
    I am so pleased to read your good news. It is nice to know ladies are managing to beat this awful disease without too much discomfort. I am an analyse queen and I NEED to know exactly what is going on inside my body. If I can picture it in my mind I cope so much better.
    I think as humans we are too scared to think the good things incase it all goes wrong. But it sounds like you have a fantastic result as the numbers clearly show.
    Tina xx
  • kayandok
    kayandok Member Posts: 1,202 Member

    Hello Kathleen.
    I am so pleased to read your good news. It is nice to know ladies are managing to beat this awful disease without too much discomfort. I am an analyse queen and I NEED to know exactly what is going on inside my body. If I can picture it in my mind I cope so much better.
    I think as humans we are too scared to think the good things incase it all goes wrong. But it sounds like you have a fantastic result as the numbers clearly show.
    Tina xx

    Hi Tina
    thanks for your post. I am a 3 1/2 year survivor and have been through my share of awful stuff. I won't bore you with details, but the one thing that does stand out is my cisplatin/gemzar regime 2 years ago landed me in the hospital every 21 days for nausea and uncontrolable throwing up for 5 days straight every cycle. I wanted to roll over and die. I lost 30 pounds. Too bad it didn't stay off.....

    Right now, I have moderate nueropathy and wonder if I can finish the 3 cycles that my doctor would like me to do. i have always said that I would rather be in a wheel chair alive than dying of cancer, and that may be where I end up, at least temporarily. I plan on fighting hard.

    I understand what you mean about knowing what is going on. I have had some weird pain in my gut, and until yesterday, and thought it might be a tumor pushing on a nerve or something. It is completely gone today, and I can only suspect it is an adhesion that is coming and going. That is what my doctor suspects. If it persists, I guess a CT/PET or some scan is in order.


    How is your nausea, Tina? Hang in there!

    Kathleen❥
  • kikz
    kikz Member Posts: 1,345 Member
    kayandok said:

    Hi Tina
    thanks for your post. I am a 3 1/2 year survivor and have been through my share of awful stuff. I won't bore you with details, but the one thing that does stand out is my cisplatin/gemzar regime 2 years ago landed me in the hospital every 21 days for nausea and uncontrolable throwing up for 5 days straight every cycle. I wanted to roll over and die. I lost 30 pounds. Too bad it didn't stay off.....

    Right now, I have moderate nueropathy and wonder if I can finish the 3 cycles that my doctor would like me to do. i have always said that I would rather be in a wheel chair alive than dying of cancer, and that may be where I end up, at least temporarily. I plan on fighting hard.

    I understand what you mean about knowing what is going on. I have had some weird pain in my gut, and until yesterday, and thought it might be a tumor pushing on a nerve or something. It is completely gone today, and I can only suspect it is an adhesion that is coming and going. That is what my doctor suspects. If it persists, I guess a CT/PET or some scan is in order.


    How is your nausea, Tina? Hang in there!

    Kathleen❥

    Happy for you
    Great news, hope it continues.

    Karen
  • vj1
    vj1 Member Posts: 150
    kikz said:

    Happy for you
    Great news, hope it continues.

    Karen

    kathleen
    great news! I know sometimes you are even afraid to say good news. I am coping with dwelling on the positive and use my blessed time for good stuff. Since my "discovery" I have had no problems and have been feeling great. Must keep those thoughts, as my favorite quote goes---scared to death, but saddle up anyway. We have to, don't we?

    best to you
    V
  • Lisa13Q
    Lisa13Q Member Posts: 677
    YEAH!!!!!!
    AWESOME NEWS..SO TRULY HAPPY FOR YOU!!! YOU GO GIRL!! You give all of us hope on this board! Thanks for sharing...I'm also very glad your port is working, and you did not have to replace it...
  • Hissy_Fitz
    Hissy_Fitz Member Posts: 1,834
    Thank goodness! Something
    Thank goodness! Something positive, at last! I'm delighted you are doing well, Kathleen.

    Carlene
  • kayandok
    kayandok Member Posts: 1,202 Member

    Adhesion
    Hello Again,
    when the adhesion grew, it wrapped around a nerve. You can see it on a scan, if that is what they are looking for. I eat anything I want. I love to eat. I decided when I got better, that I would eat and do whatever I wanted to, so if I died, I would leave this world happy. The adhesion is a sharp pain, on the right side, that hurts about 15 minutes after I eat a big meal. I have to bend over or sit down for about 2 minutes and it just goes away. I think it might be food passing through the intestines. I used to think that every pain I had in the abdominal or pelvic area was cancer, but it is just due to the nature of the surgery. Hope this helps you, Paula

    P.S. since I have had cancer 4 times, I figured I am on God's I love you borrowed time, so I live like there is no tomorrow. 4 primaries. I hike in Shenandoah National Park, I have booked a cruise in April for 7 days to Bermuda, and I have already booked a 2 bedroom apartment at the beach in July. Also, I should be finishing nursing school next year.

    Good for you,
    Paula! I love your attitude!!!
    k❥