Lymphoma Non Hodgkin low grade Cancer

dave2
dave2 Member Posts: 8
edited March 2014 in Lymphoma (Hodgkin and Non-Hodgkin) #1
I'm new at this board, I felt a lump the size of a golf ball under my jaw at the beginning of October. Last week I was operated. They remove 2 lymph node, the first one had cancer but the other one was not. They took a biopsy under my nose but everything was ok. I don't feel no sweat, did not lost any weight or fatigue, or itchy. I'm meeting the specialiste next Wednesday, what do I expect. I'm 44 year old male. They told me I have a low grade cancer. What is my odd of living a few years. Thanks!

Comments

  • COBRA666
    COBRA666 Member Posts: 2,401 Member
    #2
    Lump and lymphoma
    Dave,
    I am not a dr. and even drs. have to do tests to determine exactly what is going on. There are many different types of lymphoma. Most people have good chances of living long lives due to the advances in this area in the recent years. Again you have to find out what you have along with type,grade,stage,etc. (FNHL-1-4A-5/10)
    one other thing, stay away from those websites. They do have information, but most is so outdated and can scare you to death.
  • dave2
    dave2 Member Posts: 8
    #3
    COBRA666 said:

    Lump and lymphoma
    Dave,
    I am not a dr. and even drs. have to do tests to determine exactly what is going on. There are many different types of lymphoma. Most people have good chances of living long lives due to the advances in this area in the recent years. Again you have to find out what you have along with type,grade,stage,etc. (FNHL-1-4A-5/10)
    one other thing, stay away from those websites. They do have information, but most is so outdated and can scare you to death.

    Thanks!, I see you have 3
    Thanks!, I see you have 3 beautiful children. I have 3 children also.
  • COBRA666
    COBRA666 Member Posts: 2,401 Member
    #4
    dave2 said:

    Thanks!, I see you have 3
    Thanks!, I see you have 3 beautiful children. I have 3 children also.

    Grandchildren
    Dave.
    they are my grandkids. John
  • COBRA666
    COBRA666 Member Posts: 2,401 Member
    #5
    dave2 said:

    Thanks!, I see you have 3
    Thanks!, I see you have 3 beautiful children. I have 3 children also.

    Lymphoma
    Dave,
    We were all exactly where you are now just a short time ago before we were diagnosed and before any treatment. Those websites will have your mind going in 100 different directions. John(FNHL-1-4A-5/10)
  • COBRA666
    COBRA666 Member Posts: 2,401 Member
    #6
    dave2 said:

    Thanks!, I see you have 3
    Thanks!, I see you have 3 beautiful children. I have 3 children also.

    Lymphoma
    Dave,
    We were all exactly where you are now just a short time ago. Those websites will have your mind going in 100 different directions. John(FNHL-1-4A-5/10)
  • dave2
    dave2 Member Posts: 8
    #7
    COBRA666 said:

    Lymphoma
    Dave,
    We were all exactly where you are now just a short time ago. Those websites will have your mind going in 100 different directions. John(FNHL-1-4A-5/10)

    Yes you said it, they are
    Yes you said it, they are your Grand children, you look young that is why I thought they were your children
  • Newfoundcancer
    Newfoundcancer Member Posts: 40
    #8
    dave2 said:

    Yes you said it, they are
    Yes you said it, they are your Grand children, you look young that is why I thought they were your children

    You are not alone.
    There is more info on this site than any other website.

    Keep a positive out look!
  • Newfoundcancer
    Newfoundcancer Member Posts: 40
    #9
    dave2 said:

    Yes you said it, they are
    Yes you said it, they are your Grand children, you look young that is why I thought they were your children

    You are not alone.
    There is more info on this site than any other website.

    Keep a positive out look!
  • dave2
    dave2 Member Posts: 8
    #10
    Newfoundcancer said:

    You are not alone.
    There is more info on this site than any other website.

    Keep a positive out look!

    Thanks! I will try!

    Thanks! I will try!
  • allmost60
    allmost60 Member Posts: 3,178 Member
    #11
    Hi Dave,
    I didn't have any
    Hi Dave,
    I didn't have any symptoms either except for a small lump in my neck and one on my groin. No night swets, fevers, loss of weight, etc. Once the CT scan and biopsy was done on the biggest lump in my groin the doctor was then able to diagnose the kind of cancer I have.... Follicular Non Hodgins Lymphoma grade 2 stage 3(no bone involvement)type A. The CT scan showed multiple tumors in my groin, abdomen and neck. Being in 3 areas...lower middle and upper body...puts my cancer stage at 3. If it had been in one more location I would have been diagnosed a stage 4. Mine is an indolent(slow growth) cancer and will probably come back down the road. There is no cure as of yet, but completely treatble time and time again if need be. Right now I am still in treatment...just finished 4th round of CVP-R. I go every 21 days for an infusion with a total of 6 treatments. My midway CT scan (after round 3) showed 50% or greater shrinkage in all tumors, so if all stays good I should be in remission by the end of my 6th round on Dec 14th..(knock on wood). You will find this group to be your best source of information and wonderful people to lend support through the coming months of tests, treatments or whatever is thrown at you. Someone is always here to answer your questions or just listen if you need to vent. I'll keep good positive thoughts for you and please post any up-coming news after you visit the specialist next Wednesday. I hope you can take someone with you for the meeting...two sets of ears is always best, and it doesn't hurt to take notes to re-read when you get home! Take care Dave and welcome to the group...Sue (FNHL-2-3A-6/10)>=(kind of cancer-grade-stage/type and date of diagnosis).
  • dave2
    dave2 Member Posts: 8
    #12
    allmost60 said:

    Hi Dave,
    I didn't have any
    Hi Dave,
    I didn't have any symptoms either except for a small lump in my neck and one on my groin. No night swets, fevers, loss of weight, etc. Once the CT scan and biopsy was done on the biggest lump in my groin the doctor was then able to diagnose the kind of cancer I have.... Follicular Non Hodgins Lymphoma grade 2 stage 3(no bone involvement)type A. The CT scan showed multiple tumors in my groin, abdomen and neck. Being in 3 areas...lower middle and upper body...puts my cancer stage at 3. If it had been in one more location I would have been diagnosed a stage 4. Mine is an indolent(slow growth) cancer and will probably come back down the road. There is no cure as of yet, but completely treatble time and time again if need be. Right now I am still in treatment...just finished 4th round of CVP-R. I go every 21 days for an infusion with a total of 6 treatments. My midway CT scan (after round 3) showed 50% or greater shrinkage in all tumors, so if all stays good I should be in remission by the end of my 6th round on Dec 14th..(knock on wood). You will find this group to be your best source of information and wonderful people to lend support through the coming months of tests, treatments or whatever is thrown at you. Someone is always here to answer your questions or just listen if you need to vent. I'll keep good positive thoughts for you and please post any up-coming news after you visit the specialist next Wednesday. I hope you can take someone with you for the meeting...two sets of ears is always best, and it doesn't hurt to take notes to re-read when you get home! Take care Dave and welcome to the group...Sue (FNHL-2-3A-6/10)>=(kind of cancer-grade-stage/type and date of diagnosis).

    Hi Almost60,
    thanks for
    Hi Almost60,

    thanks for taking the time to write the info, I will let the group know what is going on after next Wednesday. My wife will be with me.
  • dave2
    dave2 Member Posts: 8
    #13
    dave2 said:

    Hi Almost60,
    thanks for
    Hi Almost60,

    thanks for taking the time to write the info, I will let the group know what is going on after next Wednesday. My wife will be with me.

    Thanks Sue! My wife talked
    Thanks Sue! My wife talked to a doctor she went to school in the past when they were young, she said she have 3 patient right now with the low grade lymph node cancer and today those three patient are still alive with I think with one dose of whaterer they receive. I will find out. One of them had it when she was 12 and now today she is 40 and raising a family and doing well. Another one, happen approx 10 years ago with 1 treatment or maybe not. The third one was 15 years ago. If I find out I could let you know what they did.
  • allmost60
    allmost60 Member Posts: 3,178 Member
    #14
    dave2 said:

    Thanks Sue! My wife talked
    Thanks Sue! My wife talked to a doctor she went to school in the past when they were young, she said she have 3 patient right now with the low grade lymph node cancer and today those three patient are still alive with I think with one dose of whaterer they receive. I will find out. One of them had it when she was 12 and now today she is 40 and raising a family and doing well. Another one, happen approx 10 years ago with 1 treatment or maybe not. The third one was 15 years ago. If I find out I could let you know what they did.

    Great
    Hi Dave,
    Any information shared on long term NHL survival is always welcomed. As explained to me...Slow growth(indolent)type A (non-aggressive) Follicular NHL is very treatable even if it comes back multiple times. What has to be taken into consideration is age at the time of diagnosis and the health of the person. My primary care doctor and both of the oncologists I've delt with have said a recurrence WILL happen, but of course cannot say when. The statistics are out there for recurrence as this is the type of cancer that does come back. I like to think that while I'm in between the recurrence time the medical community will find a cure. If not, then I will keep treating and cross each bridge as I come to it. Not much more a person can do. It's scary to think that we go through treatment and make it to remission and then just have to wait for it to come back. Totally bums me out at times, but it is what it is. I just turned 60 and I'm in really good health, so I figure as long as I can stay healthy during the treatments, I should have quite a few more years to keep fighting the good fight. Gotta keep thinking positive...to do anything less would be self destructive and I just can't go there in my thinking. Got too many fishing trips planned ...ha!
    Take care...Sue (FNHL-2-3A-6/10)
  • dave2
    dave2 Member Posts: 8
    #15
    allmost60 said:

    Great
    Hi Dave,
    Any information shared on long term NHL survival is always welcomed. As explained to me...Slow growth(indolent)type A (non-aggressive) Follicular NHL is very treatable even if it comes back multiple times. What has to be taken into consideration is age at the time of diagnosis and the health of the person. My primary care doctor and both of the oncologists I've delt with have said a recurrence WILL happen, but of course cannot say when. The statistics are out there for recurrence as this is the type of cancer that does come back. I like to think that while I'm in between the recurrence time the medical community will find a cure. If not, then I will keep treating and cross each bridge as I come to it. Not much more a person can do. It's scary to think that we go through treatment and make it to remission and then just have to wait for it to come back. Totally bums me out at times, but it is what it is. I just turned 60 and I'm in really good health, so I figure as long as I can stay healthy during the treatments, I should have quite a few more years to keep fighting the good fight. Gotta keep thinking positive...to do anything less would be self destructive and I just can't go there in my thinking. Got too many fishing trips planned ...ha!
    Take care...Sue (FNHL-2-3A-6/10)

    Hi Sue,
    thanks for your
    Hi Sue,

    thanks for your info, you are right we must stay positive. I'm a hockey coach for a big team high school in my area, maybe I should not let that team go after treatment and just continue what I love doing. But I'm going to wait until what they are going to do with me in the next few weeks.
  • dave2
    dave2 Member Posts: 8
    #16
    allmost60 said:

    Great
    Hi Dave,
    Any information shared on long term NHL survival is always welcomed. As explained to me...Slow growth(indolent)type A (non-aggressive) Follicular NHL is very treatable even if it comes back multiple times. What has to be taken into consideration is age at the time of diagnosis and the health of the person. My primary care doctor and both of the oncologists I've delt with have said a recurrence WILL happen, but of course cannot say when. The statistics are out there for recurrence as this is the type of cancer that does come back. I like to think that while I'm in between the recurrence time the medical community will find a cure. If not, then I will keep treating and cross each bridge as I come to it. Not much more a person can do. It's scary to think that we go through treatment and make it to remission and then just have to wait for it to come back. Totally bums me out at times, but it is what it is. I just turned 60 and I'm in really good health, so I figure as long as I can stay healthy during the treatments, I should have quite a few more years to keep fighting the good fight. Gotta keep thinking positive...to do anything less would be self destructive and I just can't go there in my thinking. Got too many fishing trips planned ...ha!
    Take care...Sue (FNHL-2-3A-6/10)

    Hi Sue,
    thanks for your
    Hi Sue,

    thanks for your info, you are right we must stay positive. I'm a hockey coach for a big team high school in my area, maybe I should not let that team go after treatment and just continue what I love doing. But I'm going to wait until what they are going to do with me in the next few weeks.
  • allmost60
    allmost60 Member Posts: 3,178 Member
    #17
    dave2 said:

    Hi Sue,
    thanks for your
    Hi Sue,

    thanks for your info, you are right we must stay positive. I'm a hockey coach for a big team high school in my area, maybe I should not let that team go after treatment and just continue what I love doing. But I'm going to wait until what they are going to do with me in the next few weeks.

    One day at a time
    Hi Dave,
    Just take it one day at a time. If you find that you feel good enough to keep coaching after your diagnosis, tests and treatments are in progress, then do whats in your heart. Your body will let you know what your capable of handling. I still clean house, run errands,shop(very little with all the sick people and all), but do try to keep things as close to "normal" as was before cancer. Aint runnin no marathons, but never did...ha! Keep coming here and sharing...it will be good for your soul and ours! Sharing can be such a huge comfort during stressful times....especially with people that are traveling the same road as you.
    Best wishes...Sue (FNHL-2-3A-6/10)
  • onlytoday
    onlytoday Member Posts: 609 Member
    #18
    dave2 said:

    Hi Sue,
    thanks for your
    Hi Sue,

    thanks for your info, you are right we must stay positive. I'm a hockey coach for a big team high school in my area, maybe I should not let that team go after treatment and just continue what I love doing. But I'm going to wait until what they are going to do with me in the next few weeks.

    Welcome
    Hi Dave,

    Welcome to the site. Stay with it. You will find (probably already figured this out) that the folks here are a real lifesaver. We all support one another and the info you get here is straight from the horses mouth, as they say! It's like a great big lymphoma love fest here, everyone is wonderful. There is nothing like sharing with those who have walked in your shoes, it really, really has helped me through some tough spots. And John is absolutely correct in advising you to watch those websites. A lot of the stats are COMPLETELY outdated per my oncologist. Dont' let it freak you out.

    God Bless and good luck next week!
  • truckingalong
    truckingalong Member Posts: 445 Member
    #19
    allmost60 said:

    Great
    Hi Dave,
    Any information shared on long term NHL survival is always welcomed. As explained to me...Slow growth(indolent)type A (non-aggressive) Follicular NHL is very treatable even if it comes back multiple times. What has to be taken into consideration is age at the time of diagnosis and the health of the person. My primary care doctor and both of the oncologists I've delt with have said a recurrence WILL happen, but of course cannot say when. The statistics are out there for recurrence as this is the type of cancer that does come back. I like to think that while I'm in between the recurrence time the medical community will find a cure. If not, then I will keep treating and cross each bridge as I come to it. Not much more a person can do. It's scary to think that we go through treatment and make it to remission and then just have to wait for it to come back. Totally bums me out at times, but it is what it is. I just turned 60 and I'm in really good health, so I figure as long as I can stay healthy during the treatments, I should have quite a few more years to keep fighting the good fight. Gotta keep thinking positive...to do anything less would be self destructive and I just can't go there in my thinking. Got too many fishing trips planned ...ha!
    Take care...Sue (FNHL-2-3A-6/10)

    Thinking Positive is Right On!!
    Hi, Sue and also Dave,

    I am with you about positive thinking. I also panicked about having to back to the dark world of gloom but realize we gotta move on and keep busy and enjoy what we can. Make room to think positive. I am learning to do that more. I noticed that after the blood transfusion I had last Friday, I have more energy then it is easier for me to think more positive because I can be awake doing things!! More busy the better!!

    One thing I am really blessed is coming back to this network and feel reassured and feel supported. Thank you for sharing.

    With blessings,
    Liz
  • grnii225
    grnii225 Member Posts: 1
    #20
    NHL
    Well, Dave2, I am a 51 year-young active female. I am new to this site, too. But like you, I was recently diagnosed with low-grade, FCC non-Hodgkins lymhoma, stage I. It came out of the blue and stopped me in my tracks. I discovered a pea-size lump under my right jawline back in August. Went to the doc and she treated it as an inflamed salivary gland. It didn't go away so I went back and saw another doctor that referred me to an ENT. He was very aggressive, thank God! He immediately did a 3-needle biopsy and sent me for CTscan. Preliminary result was lymphoma. Within one week of meeting him, he surgically removed the node and sent it for further testing. Fortunately, the lymphoma was contained to just the node. Met my oncologist that ordered a PETscan for staging. That was negative! But then I still had to have a bone marrow biopsy. It really wasn't as painful as I thought it would be. But talk about nerves and the waiting! Again, that, too was negative! Next step was meeting with the radiologist to determine the coarse of treatment. I must've been very lucky and caught mine very early...all I needed so far was 12 radiation treatments. I completed those two weeks ago. The side effects are a little fatigue (which I no longer have), a sore mouth (gone), and loss of some tastes, especially salt.
    You're going to live a long life, Dave! Like you, I was thinking the worse, too. I am back to my normal schedule, traveling, working out, running and socializing. And I never lost a day of work. In retrospect, it was more of a pain in the **** to upset my life! Hang in there.

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