An answer found to my mother's post chemo vision disturbance. Not good
Wendy
Comments
-
health care proxy
Oh, Wendy, this is a mess. Do you have health care proxy? If so, I would ask hard questions before voting to keep going with chemo. It just doesn't seem right to keep heaping things on your poor mama.
I don't think there's a significant risk of stroke type events with chemo. But as with many types of advanced diseases, strokes are part of the package.
In terms of where to go, I think that stroke patients routinely go to a rehab center to see how much ground they can regain, which is often a lot.
Hold on. Things will get better.0 -
Health care proxyBarbara53 said:health care proxy
Oh, Wendy, this is a mess. Do you have health care proxy? If so, I would ask hard questions before voting to keep going with chemo. It just doesn't seem right to keep heaping things on your poor mama.
I don't think there's a significant risk of stroke type events with chemo. But as with many types of advanced diseases, strokes are part of the package.
In terms of where to go, I think that stroke patients routinely go to a rehab center to see how much ground they can regain, which is often a lot.
Hold on. Things will get better.
I do not have health care proxy. My dad does and he would keep Terri Shiavo alive. I spoke with my mom tonight. She wants to return home this weekend with as many services as we can line up. I think she is finally rebounding from the chemo tx and us ready to get the heck out of the hospital tomorrow. We will see what the oncologist says tomorrow when she rounds. Ugh.0 -
Sorrywendybill said:Health care proxy
I do not have health care proxy. My dad does and he would keep Terri Shiavo alive. I spoke with my mom tonight. She wants to return home this weekend with as many services as we can line up. I think she is finally rebounding from the chemo tx and us ready to get the heck out of the hospital tomorrow. We will see what the oncologist says tomorrow when she rounds. Ugh.
Your mom can't catch a break. Sorry you have another issue to deal with. It just
doesn't seem fair. Keep us posted.0 -
me neitherwendybill said:Health care proxy
I do not have health care proxy. My dad does and he would keep Terri Shiavo alive. I spoke with my mom tonight. She wants to return home this weekend with as many services as we can line up. I think she is finally rebounding from the chemo tx and us ready to get the heck out of the hospital tomorrow. We will see what the oncologist says tomorrow when she rounds. Ugh.
Oddly enough, I don't have health care proxy either. My older brother is number one, middle brother is number two. In a way I'm happy to be removed, and I'm confident that they would listen to me should a situation develop where Mom could not call her own shots.
And there we are at the crux of the matter. Our strong mothers are still able to make their own decisions. I have dissented before, but mostly I've learned that we just have to trust this process and go with the flow. Besides, the first law of the land should you become a surrogate decision-maker is: If Mom could decide for herself, what would she choose? Bet you know the answer, so lighten up on yourself.
One question. Can your parents afford to fly in your brother again for comic relief? My brothers vary with what they're good at, but once you find what he's good at, maybe he can be of some help after all. For ex., the greatest thing about my middle brother is that he will take Mom out on a damn fine date. Not fair that he gets the fun stuff while I'm helping collect urine, but it's what Mom needs more than anything sometimes.0 -
Oh Wendy,
This is just awful
Oh Wendy,
This is just awful that your mother has to deal with all of this.
Has she started to even speak about all of this with you are anyone?
I hope and pray that things turn around.
Sharon0 -
thanks for asking Sharonmsfanciful said:Oh Wendy,
This is just awful
Oh Wendy,
This is just awful that your mother has to deal with all of this.
Has she started to even speak about all of this with you are anyone?
I hope and pray that things turn around.
Sharon
She is pretty "shut down" at this point about the entire thing. She is not getting out of her hospital bed except to go to the bathroom. She seems very depressed and pushed past her limits of coping. I just called her room a few minutes ago and she told me to call her back later because she had asked for a pain pill and it was kicking in. She is reportedly going to be discharged home tomorrow. I am trying to let the cards fall as they may instead of rushing up there to rescue again. On top of everything, she missed her wig appt because of going into the hospital and now her hair is starting to fall out. So---I'm here in NC feeling pretty darn depressed, too.0 -
sleep capswendybill said:thanks for asking Sharon
She is pretty "shut down" at this point about the entire thing. She is not getting out of her hospital bed except to go to the bathroom. She seems very depressed and pushed past her limits of coping. I just called her room a few minutes ago and she told me to call her back later because she had asked for a pain pill and it was kicking in. She is reportedly going to be discharged home tomorrow. I am trying to let the cards fall as they may instead of rushing up there to rescue again. On top of everything, she missed her wig appt because of going into the hospital and now her hair is starting to fall out. So---I'm here in NC feeling pretty darn depressed, too.
My mother loved the little lace-trimmed sleep caps they have at Headcovers.com. She never wore her wig around the house, mostly those little caps because they were so comfortable. I think we ended up buying them in several colors.0 -
Wendy, I hope your mom
Wendy, I hope your mom improves enough to continue the chemo. It really is her best shot, and at her age, it would be a shame to throw in the towel.
I know all this is overwhelming but remember - it's not over til it's over.
Is there a rehab facility where your mom could recuperate? Or maybe she can manage with home health aids? Insurance will generally pay for either of those.
If your mom is really, really upset about the hair thing, then that's a good sign. Just get her some of the little stretchy "sleep caps". They are much more practical for people who are bedridden anyway, and much more comfy. If she has neuro issues, she may not be able to wear a wig yet. After several hours, they can really begin to feel like you have a tight stocking on your head.
Carlene0
Discussion Boards
- All Discussion Boards
- 6 CSN Information
- 6 Welcome to CSN
- 121.7K Cancer specific
- 2.8K Anal Cancer
- 446 Bladder Cancer
- 309 Bone Cancers
- 1.6K Brain Cancer
- 28.5K Breast Cancer
- 395 Childhood Cancers
- 27.9K Colorectal Cancer
- 4.6K Esophageal Cancer
- 1.2K Gynecological Cancers (other than ovarian and uterine)
- 13K Head and Neck Cancer
- 6.3K Kidney Cancer
- 670 Leukemia
- 792 Liver Cancer
- 4.1K Lung Cancer
- 5.1K Lymphoma (Hodgkin and Non-Hodgkin)
- 236 Multiple Myeloma
- 7.1K Ovarian Cancer
- 58 Pancreatic Cancer
- 486 Peritoneal Cancer
- 5.4K Prostate Cancer
- 1.2K Rare and Other Cancers
- 537 Sarcoma
- 727 Skin Cancer
- 652 Stomach Cancer
- 191 Testicular Cancer
- 1.5K Thyroid Cancer
- 5.8K Uterine/Endometrial Cancer
- 6.3K Lifestyle Discussion Boards