Has anyone had any reoccurence - I'm scared!

allmost60 said:

Pretty good...
Hi Andrea,
This is the week I have to take the 60mg of prednisone each morning, so it's not my "best" week. Me and the pred are not friends, so I'll just leave it at that. The less I talk about it the better, and I'm sure others in the group are fed up with my carrying ons about it...(did it for the last 3 treatments). You asked how to post a picture here...well...I'm going to pass that off to someone else in the group that isn't on the pred this week. By the time I got done explaining it to you, you would be all messed up for sure...no kidding! You have a good day at work. I'll be really good by Sunday morning...just knowing I won't be swallowing the nasty pred pills when I get up!..ha!
Love...Sue (FNHL-2-3A-6/10)
Follicular Non-Hodgkins Lymphoma- grade 2- stage 3- type A- DX in June 2010.
P.S. Some of us post our type of cancer at the end to help others remember. Chemo brain and so many different types can get confusing. It's totally voluntary, so don't feel pressured. I was just letting you know what all of this ment. :0)

Pred YUK
GM Sue,

I remember those nasty pills, they made me so sick that they finally took me off of them and I went with a different cocktail IV... I did so much better. They made me horribly sick, couldn't sleep, couldn't eat, I was a mess. So I'm sending lots of prayers and healthy thoughts your way that you will feel better soon. No worries about the picture thing you just get better! I've decided instead of waiting for all my doctor appts to call my ENT and have him take a look - he diagnosed me the first time around and I'm very comfortable with him. He will have an answer for me before any of my other appts come around. Guess I should of went to him in the first place, but I'm a big chicken and guess don't want to hear any bad news...but I know if it has returned I must get it under control early on. So with that I wish you a great weekend and thanks for coming by, your wonderful for doing so even when you don't feel well... Hugs Andrea

britta said:

Hi Britta
Thanks for coming by I hope you come back and repost. Looking forward to hearing from you Andrea

COBRA666 said:

Dr. Appt.
Andrea,
Thats the way to do it. Don't wait for them to make time for you. You are the one waiting to find out what is going on,not them. Its awful to say but we are just numbers to them. First thing you hear when you walk in the office is "Who's your insurance carrier." They sometimes do not even ask why you are there. You are asked to give them your insurance cards and have a seat. While you are sitting there worrying they are busy checking those insurance carrier policies and what they cover. It is probably not appropriate to be talking like that, but none the less its the truth. Since we have to go thru all that crap we may as well get the earliest appointment as possible. I could go on all day about stuff like that, but its getting off the subject. Just get that appointment as soon as you can and hopefully you can stop worrying. Its hard to do I know. I been thru the same thing just like most on here. You get all hyped up and lo and behold you get a phone call cancelling your appt. or postponing a much needed test. After awhile you start to feel like a ping pong ball. I am sure people on here can relate to what I am saying. Just hang in there and stick to your guns and get an appt. as soon as possible. John(FNHL-1-4A-5/10)

Dr. Appt
Its horrible that we are just considered a number, everyone deserves more then that. Not just us, but anyone that feels bad or is sick. It is frustrating. I also hate when they say no news is good news, well no news still makes us worry regardless LOL! I thought I'd be able to get in earlier to the ENT, but he is out this week and next Friday is the earliest (he works in Colorado & here in Wyoming) so I know he is pretty busy, but I will have already have seen the Thyroid Doc. But I will see him anyway just to double check any test results. Like I had said in my other email I trust him and I'm thinking its because he is old school, hippie from the 60's and always wears his bandana and Hawian shirt, he is too funny, the best bed side manners and he is always cracking jokes! He doesn't fit the "typical" doctor style. He cuses like a sailor and doesn't care what anyone thinks, but he has a heart of gold! He is definitely one of a kind. He removed my lump the first go round and kept in touch with me until I started my chemo...he was my life saver! I wish all doctors could be like him. Also, his staff is just as nice - I'm sure its one of his requirements when hiring. No grouchy, I need your insurance type people. They are always very pleasant and caring. Kinda like all the people on here! Thanks John for coming by and don't ever think you are getting off subject. I appreciate all comments. I like football too.... My favorite team the Raiders! Guess it is because I was born in Oakland, Cali....but I have a soft spot for the MN Viks! Have a great day John and I hope all is well. Andrea(Hodgkins Stage4 diagnosed 2001~remission I hope)

COBRA666 said:

LEVEL HEADED DOCS
Yes it is great when we can find a Doc on our level. I mean they are all on our level but some think they are 5 steps above us. They are usually the ones with the bed side manner of a goat. I have discussed this before on the site. I am glad you have one that you can really trust and not have to feel like a number. I have one sorta like in between, He's a nice guy and all,but I still feel like a number. Never gotten a call from him. I have gotten calls from the staff to reschedule an appt. though. All in all he's ok because I could have done a lot worse. Like I was saying I went into that before about some real "Better than Thou" Drs. when my father was sick quite a few years ago. I really learn more just being here and talking to the people. They are all full of knowledge with their experiences. Be surprised at what you learn with what they share about their experiences with their treatments. Even though we are all different we get to know what to expect from treatments. Keeps us on our toes. Feel free to say what is on your mind, thats what its all about here. I went over a month before I found this site and I was a mess until then. The people here seem to have a way to make you feel relaxed. A lot of them have gone on to returning to the working life and others things that they put on hold before diagnoses. Some have stuck around to help others. Some do both. Either way is ok.Try not to worry too much and keep in mind this is no death sentence by any means. Maybe a few years ago when it was known as Hodgkins Disease it was because they did not really know what it was or how to treat it. Now they know and have made some great strides in treatment. Hopefully a cure in the near future. John(FNHL-1-4A-5/10)

Thanks John
Ya my Thyroid Doctor is a bit strange....he actually raised a red flag when I saw him for my thyroid. I mentioned that I was having anxiety attacks and he right away said have you sought psyciatric counseling? Huh? I had been on other health boards for Thyroid disorders and a lot of people told me if that comes out of your doctors mouth, to run and run fast. I was pretty disappointed and he made me feel crazy. Then said you have a nodule on your thyroid and swollen glands and need a neck u/s....I said should I be concerned and he said "I don't know"...he just felt cold and unconcerned about my feelings. Needless to say once I see him next week for my results and if he doesn't have a better attitude he is FIRED! LOL... I guess that is one power some of us have over our very educated medical professionals. I'm fortunate that I have the ability (pretty good insurance) that I can doctor shop. I feel for those who are limited and have to put up with some of these so called medical experts! I have to say though I've been feeling better coming here and reading everyone's posts. I feel "normal" here. I sometimes feel alone and strange around family and friends. I know they love and care about me, but I still think they just really don't get it. I don't blame them how could they know. Its nice to be able to come here and vent or talk or just hang out..... Thank you for the reassurance that this is not a death sentence ~ I'm sure you know how the anxiety mind works, it tends to wonder to places it does not need to be. This place pulls me back to reality. I suffer from GAD and need positive caring people around me! The reassurance and to know I'm not going crazy. Thanks again and if I don't come back tonight... have a blessed weekend! Andrea

vinny59 said:

hi
Good luck on your Onc. visit, it is good that you notice things, the worst thing you can do is ignore your symptoms. This is my second bout with cancer, first with head and neck, second with NHL, I joke with my wife that I feel like I belong to the Cancer of the Month Club. Keep positive!!!!!! Vinny

Hi Vinny
Thanks for stopping in....and thanks for the laugh. I'm sorry to hear that you had double bouts but in the same note you seem like you are doing well. I love the pic too....I'm too much of a chicken to ignore any symptoms. I too am a member of a club. Its called health anxiety of the month club Keep in touch friend ~ Andrea

dixiegirl said:

Forgetful
I can't even tell you how much I forget to attach a file or link......happens ALL the time lol

Hi Dixiegirl
Thanks for coming by....Glad I didn't leave this comment blank! LOL

COBRA666 said:

The Greatest bunch of people
Andrea,
I told you that these are the greatest bunch of people you'd ever want to meet. We have all been thru or are going thru exactly what you are going thru. You will never be alone as long as you stick with us. Believe me, we all know that scared and lonely feeling all to well. You will learn more on here than any of those outdated websites.I know I did. I can't speak for the others as far as that goes when it comes to those websites,just for myself. Some have really had it rough with treatments and some not as bad, but it all sucks. Oh, this is the only club I belong too. Just wanted to tell you how I got this cobra666 name. It sounds sorta morbid doesn't it? Well I have a Shelby Cobra sportscar that my oldest son and I built. Its a 1966 model. So I used the cobra 66 to start with. One day it would not let me on the site unless I changed my name. I just added another 6 and it let me on and when I looked at it I thought HMMMM!!!, I don't care for that, but it would not let me change it. John (FNHL-1-4A-5/10)

Hmmm
That is strange that it accepted the other 6...LOL oh well I've seen worse screen names. LOL... I decided on mine before I got Hodgkins I drank a lot of koolaid and it was sweet...swtkoolaid. I now only drink sweet organic fruit juice but I think that name would be way too long...LOL I already love all the people on here and I feel safe and happy here. I'm glad I found all of you! Its helped to get through these days of waiting. BTW I or we own a 1970 Ford Mustang Fastback...super sweet car. I love car shows and we try to take it out every now and then to show it off I hope you had a great weekend and hey I understand the whole fuzzy head thing and sitting back waitng for the growth - At least us women have wigs we can play with while we wait