whipple procedure

barb616
barb616 Member Posts: 1
edited March 2014 in Rare and Other Cancers #1
I would like to have e-mail or phone contact
with someone that had cancer of the pancreas
and has had whipple surgery. It would be so
helpful to compare notes, problems and successes.

barb616
love.doxies@yahoo.com

Comments

  • MichelleB83845
    MichelleB83845 Member Posts: 13
    #2
    Whipple
    Hi-

    I had a partial whipple this last March. My cancer is duodenal. If you would like to write my e-mail is bremer.m.m@gmail.com.
  • simkor
    simkor Member Posts: 17
    #3
    Whipples
    Hi, My husband had adenocarcinoma of the Duodenum which had spread to his panceas & surrounding tissues. He had the whipple october last year.Please email me. Korina80@live.com.au
    Take care
  • michaelcollins
    michaelcollins Member Posts: 4
    #4
    simkor said:

    Whipples
    Hi, My husband had adenocarcinoma of the Duodenum which had spread to his panceas & surrounding tissues. He had the whipple october last year.Please email me. Korina80@live.com.au
    Take care

    whipple
    whipple in march 2008 for 2 pancreatic tumors email is JLWLAW777@gmail.com
  • RayLogu
    RayLogu Member Posts: 19
    #5
    whipple
    I had whipple surgery 5/25/10 for ampullary cancer, the head of my pancreas was removed as precaution, although no cancer was detected in the pancreas. 22 weeks post op and I FINALLY am feeling 100% recovered, but not without complications. I had 6 weeks of Xeloda (oral chemo) and radiation. Would be happy to share/compare procedures/complications and successes. my email is: topnotchplus@yahoo.com

    regards and my best to you!
    Ray Lagueux / North Carolina

    p.s. I'm 77 years old and was in otherwise good health prior to surgery.
  • Swanseatigersmom67
    Swanseatigersmom67 Member Posts: 2
    #6
    WHIPPLE
    HEY THERE I WANTEDTO ASK YOU IF YOU HURT STILL. I HD A WHIPPLE IN 2008 AND ALMOST BLEED TO DEATH LITERLY IN 27 MINTUES OF BEING DISCHARGED. I HAD A STENT PUT IN MY LIVER AND I AM IN PAIN DAILY. ANY TYPE OF INFORMATION IS GREATLY APPRICIATELY. ANGELIA
  • db9856
    db9856 Member Posts: 2
    #7
    Whipple
    I had the whipple procedure in late august. They removed a 2cm tumor in my small intestine and head of the pancreas. so far, I have been doing well and i started chemo 3 weeks ago. I am often tired and sick to my stomach. I have been told that 12 out of 33 lymph nodes were involved. I was recommended for chem, but not radiation. I was wondering if that is a standard recommendation.

    I hope you are doing well.
  • db9856
    db9856 Member Posts: 2
    #8
    simkor said:

    Whipples
    Hi, My husband had adenocarcinoma of the Duodenum which had spread to his panceas & surrounding tissues. He had the whipple october last year.Please email me. Korina80@live.com.au
    Take care

    same procedure
    My husband had the same procedure. Did your husband have chemo and radiation?
  • Oneshot
    Oneshot Member Posts: 153 Member
    #9
    db9856 said:

    Whipple
    I had the whipple procedure in late august. They removed a 2cm tumor in my small intestine and head of the pancreas. so far, I have been doing well and i started chemo 3 weeks ago. I am often tired and sick to my stomach. I have been told that 12 out of 33 lymph nodes were involved. I was recommended for chem, but not radiation. I was wondering if that is a standard recommendation.

    I hope you are doing well.

    Standard recommendation
    DB9856,
    In early 2008 I Was diagnosed with stage 3 pancreatic cancer. I was told I had a golf ball size tumor on my pancreas and the cancer had also encased an artery. I took chemo and radiation for several months before my Whipple which was done in Sept. 2008. They took out a 3'rd of my pancreas,about a foot of small intestine,my gallbladder and the cancer around the artery and 17 lymph nodes. ( all Negative). Just a positive foot note for others that might hear "An artery is encased by the cancer!" ( They found out during the surgery the cancer had encased the artery but, had not attached itself to it. They could not tell this with with all the modern technology. If, they had not done the Whipple. They would not have know this and I wouldn't be here typing now!) But after all this I was told to take chemo (Gemzar). To make sure any and all possible cancer cells that, might not have been seen in any other areas of the body. Would stand a better chance of being eliminated. I hope that answered your question about chemo after the Whipple. As far as no radiation after, if that was your question? I never asked and was glad not to have to do it again! So far, since that September day of my surgery. I have been in remission. Just today I had a scan and if all is good (which I think it will be!). Will find out next week. I'll only have to take a scan once a year.

    Sorry about rambling on there for a bit.

    May the LORD BLESS all of you who are fighting this horrible disease and those who take care of them also.
    Oneshot
  • RayLogu
    RayLogu Member Posts: 19
    #10
    Oneshot said:

    Standard recommendation
    DB9856,
    In early 2008 I Was diagnosed with stage 3 pancreatic cancer. I was told I had a golf ball size tumor on my pancreas and the cancer had also encased an artery. I took chemo and radiation for several months before my Whipple which was done in Sept. 2008. They took out a 3'rd of my pancreas,about a foot of small intestine,my gallbladder and the cancer around the artery and 17 lymph nodes. ( all Negative). Just a positive foot note for others that might hear "An artery is encased by the cancer!" ( They found out during the surgery the cancer had encased the artery but, had not attached itself to it. They could not tell this with with all the modern technology. If, they had not done the Whipple. They would not have know this and I wouldn't be here typing now!) But after all this I was told to take chemo (Gemzar). To make sure any and all possible cancer cells that, might not have been seen in any other areas of the body. Would stand a better chance of being eliminated. I hope that answered your question about chemo after the Whipple. As far as no radiation after, if that was your question? I never asked and was glad not to have to do it again! So far, since that September day of my surgery. I have been in remission. Just today I had a scan and if all is good (which I think it will be!). Will find out next week. I'll only have to take a scan once a year.

    Sorry about rambling on there for a bit.

    May the LORD BLESS all of you who are fighting this horrible disease and those who take care of them also.
    Oneshot

    Whipple
    Dear Oneshot, looks like you have a second shot at life! What an amazing story.
    Congratulations on your recovery and may best to you for continued good health and good reports.

    Regards, Ray
  • Oneshot
    Oneshot Member Posts: 153 Member
    #11
    Swanseatigersmom67 said:

    WHIPPLE
    HEY THERE I WANTEDTO ASK YOU IF YOU HURT STILL. I HD A WHIPPLE IN 2008 AND ALMOST BLEED TO DEATH LITERLY IN 27 MINTUES OF BEING DISCHARGED. I HAD A STENT PUT IN MY LIVER AND I AM IN PAIN DAILY. ANY TYPE OF INFORMATION IS GREATLY APPRICIATELY. ANGELIA

    Pain
    I had a Whipple in 2008 also. I have daily pain in my abdominal region which I take meds for. They make it tolerable for the most part. Some days are worse than others. Sometimes after eating the apex of the area along the scar and muscles gets rock hard and painful. My surgeon told me when I awoke from my surgery I would most likely be on pain meds as well as other meds for the rest of my life. Talk to your doctor about pain management.

    Take Care and GOD BLESS!
    Oneshot
  • MichelleB83845
    MichelleB83845 Member Posts: 13
    #12
    db9856 said:

    Whipple
    I had the whipple procedure in late august. They removed a 2cm tumor in my small intestine and head of the pancreas. so far, I have been doing well and i started chemo 3 weeks ago. I am often tired and sick to my stomach. I have been told that 12 out of 33 lymph nodes were involved. I was recommended for chem, but not radiation. I was wondering if that is a standard recommendation.

    I hope you are doing well.

    Hi
    Hi
    I had the whipple done in March of this year. They originally diagnosed me with pancreas cancer, but after testing and biopsy they diagnosed me as having periampullary duodenal adnocarcinoma. The whipple was done on March 15 and they removed a 4.5 cm tumor and my bile duct, gall bladder, part of my pancreas ect...About 10 weeks later I started radiation for 25 days with xeolda. Three weeks after I finished radiation I started chemo. My doc is treating me using the same chemo regime as colon cancer. I have had 6 treatments so far and my doc is hoping to stop at 8 treatments. Fingers crossed!!!
  • Ant041
    Ant041 Member Posts: 2
    #13
    Whipple Procudure
    I had my Whipple on January 11,2010. if you want you can contact me at ant_041@yahoo.com. I had my whipple for a Gist Tumor on my Duodenum.
  • Oneshot
    Oneshot Member Posts: 153 Member
    #14
    RayLogu said:

    Whipple
    Dear Oneshot, looks like you have a second shot at life! What an amazing story.
    Congratulations on your recovery and may best to you for continued good health and good reports.

    Regards, Ray

    Second Shot at life
    Ray,

    I wanted to say thanks for your congrats and best wishes. You are so right in your statement about "A second shot at life!" All I can say is the LORD put me in the hands of very capable doctors. I just last week received another good report. Like you have stated there have been some complications and I realize that, I have lost a step or two (so to speak!). Considering the alternative...I know I have been very blessed with each passing day.

    I've read some of your posts on here and see you have had your own battle with cancer and the recovery from a Whipple also. I will keep you and your family in my prayers!

    Take Care and GOD BLESS!

    Oneshot

    P.S. Also like the way you played off my moniker, Oneshot, With "a second shot on life!"
  • mhere4u65
    mhere4u65 Member Posts: 2 Member
    #15
    survived whipple
    I am 66 and was misdiagnosed When they finally discovered I had a seruious blockage they scheduled exploratory surgery During the surgery they found cancer of the duodenum and it had invaded the head and neck of the pancreas Because the liver at that time was invaded with cancer they opted to do a Whipple procedure I also have NF1 whichh makes things a lot worse I had many complications including a bile leak, an infection, several blood transfustions My most recent CT scan showed new growth on the liver and behind the pancreas. It has been a year since the Whipple
    I feel I am lucky to be alive but I have not be told about my prognosis except that the cancer could come back and it has The doctor thinks we sit and wait it out because the new growth is so small
  • jlbsoulpurpose
    jlbsoulpurpose Member Posts: 1
    #16
    Post Whipple
    Hi There, I realize this post is from 2009, let me know if you stillant to converse with a whipple survivor, female 55 now 2012, had my whipple MAY 2009. Thanks

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