HPV + WITH AGGRESSIVE TUMORS

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Comments

  • adventurebob
    adventurebob Member Posts: 691
    Hey Mike,
    Every doc except the one who's treating me says it's coming back and will take me with it in 1-3 years because of the metastases to the bones. The guy who's treating me says we're gonna get it all. That's why he's the guy treating me. He's not the only one though. I'm treating myself. I constantly read everything I can get my hands on regarding cancer, nutrition, cancer and nutrition and alternative therapies. I work on my body and my mind and my spirit from the time I wake up until the time I go to sleep every single day like my life depended on it. Oh yea, it does. And fighting is fun. Especially with the stakes so high. I will die someday. I've known that for a long time. Until recently I haven't known what the most likely way I'll go is. I always figured to fall off a rock or drown in a river as I've been an outdoor guide most of my life. That sure sounds nice.So, I keep climbing and hiking and rafting and taking care of myself so hopefully I'll get to die doing something fun. Try to die doing something fun. That's not much advice and might not be helpful to you. You've been through alot recently. Go easy on yourself. It's ok to be a little freaked out by the future. You're a strong dude. You'll do just fine when you get there. Go Giants!!

    Bob
  • luv4lacrosse
    luv4lacrosse Member Posts: 1,410 Member
    Greg53 said:

    Hey Mike
    Mike,

    Glad to hear you're through with treatments. You'll probably have a couple more weeks of the rough stuff, but it'll get better from here on out Bud! Just a personal note on reoccurrance. I had 2 close family members that beat c and survived for a lot longer than the docs ever predicted (by 5 and 15 years, respectively). They both had reoccurances which they both lost to eventually. So reoccurrance is definitely in the back of my mind. I try not to dwell on it or think about it much. I'm six months out now and I'm enjoying life more than ever before (and I've always enjoyed my life!).

    I was stage 4 and had extra capsular spread. I had mets to 10 nodes on right side and mets to 1 node on left side. Doc said mine was very, very aggressive also. What I decided was that it may or may not return but I'm gonna have fun in the meantime. Also I'm going to do everything in my power to help my chances. That's a personal choice but I think it will help me. My research has shown going vegetarian and adding the right supplements to my diet will help. I haven't been able to go 100% vegan yet which is due to still having to get in 3500 calories/day to keep my weight up, but that's my goal. Also I'm working out pretty intensive again and adding some meditative exercises along with that. I found giving back has a huge positive mental aspect as well (volunteering at 2 places now). And as Pam and Glenna pointed out, and I couldn't agree more - Positive Mental Attitude and Sense of Humor are huge. My biggest decision remains if I will drink or not. I'm postponing that decision til I'm a year out. Whatever you decide keep your positive attitude (PA), it's one of the best I've seen here and there are lots of PAs here. As always, I'm pulling for you Bro'!

    Positive thoughts!!
    Greg

    ROUGH STRETCH
    Hey Greg, sounds like you are doing great.

    Yeah,I am having a rough go still. The worst thing is the mucous. it triggers coughing spells that sometimes trigger a quick vomit or two. I am so tired of feeling like crap, but know I am on the downhill side. I spend M-F mostly by myself as I have ordered my wife back to work and to spend some time with her friends. The time alone is when I dwell on what my Doc's said about it coming back. When my mind is busy, I rarely give it a thought.

    I am interested where you have gotten the information on diet and lifestyle as I know I need to make some changes. Like you, I have not yet decided on weather or not I will ever drink again. Right now, just the smell of booze will make me puke. I know at the very least, I do not need to drink like I used to. I read on this post about allot of people going vegan. Man I just do not know if I want to do that. I am all for lean high protien meats, and not to eat the 28 oz. porterhouse every week. Allot of decisions to make!!!

    My Doc's main concern is not drinking, but exposing myself to second hand smoke in a closed area. He says "absolutely no exposure." I am fine with that as I never smoked. I am doing the PEG and after 3 weeks I am actually gaining a little weight. I need to watch this carefully as I do not need to go back to my original weight of 240 as I do not compete in Powerlifting anymore. I am at about 182 and have not had to take my HBP Meds for almost 2 months now. That has to be a good thing. As soon as I can abandon my suction machine, I plan to return to work.

    BEST

    Mike
  • luv4lacrosse
    luv4lacrosse Member Posts: 1,410 Member

    Hey Mike,
    Every doc except the one who's treating me says it's coming back and will take me with it in 1-3 years because of the metastases to the bones. The guy who's treating me says we're gonna get it all. That's why he's the guy treating me. He's not the only one though. I'm treating myself. I constantly read everything I can get my hands on regarding cancer, nutrition, cancer and nutrition and alternative therapies. I work on my body and my mind and my spirit from the time I wake up until the time I go to sleep every single day like my life depended on it. Oh yea, it does. And fighting is fun. Especially with the stakes so high. I will die someday. I've known that for a long time. Until recently I haven't known what the most likely way I'll go is. I always figured to fall off a rock or drown in a river as I've been an outdoor guide most of my life. That sure sounds nice.So, I keep climbing and hiking and rafting and taking care of myself so hopefully I'll get to die doing something fun. Try to die doing something fun. That's not much advice and might not be helpful to you. You've been through alot recently. Go easy on yourself. It's ok to be a little freaked out by the future. You're a strong dude. You'll do just fine when you get there. Go Giants!!

    Bob

    POWERFULL ADVICE
    Bob, what a powerfull message you sent to me. This one will be printed and placed in my scrap book. You have a wonderfull zest for life. I am pretty freaked out right now, but I seem to do better when I am busy VS sitting around doing nothing, which right now I do allot of. Once I get the first scan out of the way, regardless of the result, I will feel better.

    Thanks for your reply, this was a great way to start a monday!!

    BEST!!

    Mike
  • Greg53
    Greg53 Member Posts: 849

    ROUGH STRETCH
    Hey Greg, sounds like you are doing great.

    Yeah,I am having a rough go still. The worst thing is the mucous. it triggers coughing spells that sometimes trigger a quick vomit or two. I am so tired of feeling like crap, but know I am on the downhill side. I spend M-F mostly by myself as I have ordered my wife back to work and to spend some time with her friends. The time alone is when I dwell on what my Doc's said about it coming back. When my mind is busy, I rarely give it a thought.

    I am interested where you have gotten the information on diet and lifestyle as I know I need to make some changes. Like you, I have not yet decided on weather or not I will ever drink again. Right now, just the smell of booze will make me puke. I know at the very least, I do not need to drink like I used to. I read on this post about allot of people going vegan. Man I just do not know if I want to do that. I am all for lean high protien meats, and not to eat the 28 oz. porterhouse every week. Allot of decisions to make!!!

    My Doc's main concern is not drinking, but exposing myself to second hand smoke in a closed area. He says "absolutely no exposure." I am fine with that as I never smoked. I am doing the PEG and after 3 weeks I am actually gaining a little weight. I need to watch this carefully as I do not need to go back to my original weight of 240 as I do not compete in Powerlifting anymore. I am at about 182 and have not had to take my HBP Meds for almost 2 months now. That has to be a good thing. As soon as I can abandon my suction machine, I plan to return to work.

    BEST

    Mike

    Diet/Lifestyle
    Mike,

    There's a ton of books out there on lifestyle and diet. If you're asking, the first 2 I'd recommend are "Anticancer" by David Servan-Schreiber. The other is "The China Study" by T. Colin Campbell. I can completely understand not giving up meats, etc. It's just a choice that I made. If you're interested in either of the books and can't find them, let me know and I'll get them over to you.

    My doc said the same thing about no exposure to smoke in a closed area. (In fact I was supposed to go to Fast-Eddies this weekend but passed on it because of the smoke there.) He said an occasional drink would not hurt and my limited research has shown that red wine and dark beers have antioxidents in them (probably just a rationalization on my part). Like I said I may or may not partake, but I'm giving my throat a rest til I'm a year out before I decide. I was not an alcholic by any means but I did more than my share of drinking prior to dx too. Probably much more than just a social drinker.

    The mucus/vomiting thing was my worst nightmare. I had it for 3 weeks after my treatments ended and that's when I lost a majority of my weight. Went from 200# down to 150#. Back up to 165# now and wouldn't mind getting back to 175#, but whatever, I'm happy without that extra weight. The mucus sucked for me more than anything, but it will get better faster than you imagine.

    And to be honest, 6 1/2 months out and I am doing great. Back to working 50-60 hours a week, which I plan on cutting down on. Eating is still a chore, but hey I'm still eating. Not much saliva, but my taste has come back (like everyone else - can't taste sweets, but don't need them either). Overall my enrgy level is steadily climbing and my biggest problem is finding enough time to fish, hike, volunteer and still work. Definitely have a different outlook though as I was the sterotypical workaholic. Trying to cut back my hours even as I write this so I can spend more time with the wifey, family and friends!

    Positive thoughts coming at ya!

    Greg
  • luv2cut1
    luv2cut1 Member Posts: 288
    Hi,

    I posted earlier with regard to being the worrywart wife. When I said the doctors did not say much about recurrence I forgot to mention that would be recurrence the SECOND time. He was treated first in 2008 with chemoradiation and had a recurrence in 2009. He was treated with surgery, chemo and reirradiation. His tumor was also said to be very aggressive and he has CLL, which results in reduced immune function.

    He had supraglottic cancer with no nodal involvement (or so they thought) the first time. He had a recurrence in the neck and was stage 4 with 4 positive nodes and extracapsular spread the second time. He had radical neck dissection and then chemoreirradiation. He finished last September (2009) had NED PET scans in October, January and April. He is scheduled for next PET November 10. He is doing amazingly well and the doctors are hopeful. If you do have a recurrence, you will make it through, and there are many treatments available today that were not even available a few years ago. Although I am often in a state of panic, especially when I have time on my hands and thoughts can just go around and around in my head, I try to make myself focus on the tremendous breakthroughs that are being made daily. Each day that goes by that you are doing well is another day for the doctors to come up with better treatments. Many of the treatments they use now are so new they are not yet reported in the statistics. I am very hopeful that recurrence rates are much lower than what the research states that with a positive mental attitude, a love for life and a desire to take care of ourselves, we will maximize the chances for a good outcome. Sounds like you are doing very well overall and hopefully after your first NED (which you WILL get) you will feel better. The posts on this site are so great for helping me put things into perspective and keep trying to enjoy each and every day.

    Take care,

    Myka
  • Pam M
    Pam M Member Posts: 2,196

    Hey Mike,
    Every doc except the one who's treating me says it's coming back and will take me with it in 1-3 years because of the metastases to the bones. The guy who's treating me says we're gonna get it all. That's why he's the guy treating me. He's not the only one though. I'm treating myself. I constantly read everything I can get my hands on regarding cancer, nutrition, cancer and nutrition and alternative therapies. I work on my body and my mind and my spirit from the time I wake up until the time I go to sleep every single day like my life depended on it. Oh yea, it does. And fighting is fun. Especially with the stakes so high. I will die someday. I've known that for a long time. Until recently I haven't known what the most likely way I'll go is. I always figured to fall off a rock or drown in a river as I've been an outdoor guide most of my life. That sure sounds nice.So, I keep climbing and hiking and rafting and taking care of myself so hopefully I'll get to die doing something fun. Try to die doing something fun. That's not much advice and might not be helpful to you. You've been through alot recently. Go easy on yourself. It's ok to be a little freaked out by the future. You're a strong dude. You'll do just fine when you get there. Go Giants!!

    Bob

    Love It!
    "That's why he's the guy treating me." Wonderful, Bob
  • luv4lacrosse
    luv4lacrosse Member Posts: 1,410 Member
    luv2cut1 said:

    Hi,

    I posted earlier with regard to being the worrywart wife. When I said the doctors did not say much about recurrence I forgot to mention that would be recurrence the SECOND time. He was treated first in 2008 with chemoradiation and had a recurrence in 2009. He was treated with surgery, chemo and reirradiation. His tumor was also said to be very aggressive and he has CLL, which results in reduced immune function.

    He had supraglottic cancer with no nodal involvement (or so they thought) the first time. He had a recurrence in the neck and was stage 4 with 4 positive nodes and extracapsular spread the second time. He had radical neck dissection and then chemoreirradiation. He finished last September (2009) had NED PET scans in October, January and April. He is scheduled for next PET November 10. He is doing amazingly well and the doctors are hopeful. If you do have a recurrence, you will make it through, and there are many treatments available today that were not even available a few years ago. Although I am often in a state of panic, especially when I have time on my hands and thoughts can just go around and around in my head, I try to make myself focus on the tremendous breakthroughs that are being made daily. Each day that goes by that you are doing well is another day for the doctors to come up with better treatments. Many of the treatments they use now are so new they are not yet reported in the statistics. I am very hopeful that recurrence rates are much lower than what the research states that with a positive mental attitude, a love for life and a desire to take care of ourselves, we will maximize the chances for a good outcome. Sounds like you are doing very well overall and hopefully after your first NED (which you WILL get) you will feel better. The posts on this site are so great for helping me put things into perspective and keep trying to enjoy each and every day.

    Take care,

    Myka

    Myka, thanks so much for the reply. You are correct about the idle time. I actually had to drive myself to the hospital today to get a chest x ray. My Doc's wanted to make sure I did not have Pneumonia with the coughing trouble I have had. (No Pneumonia found)

    More importantly is I drove for the first time in 2 mos. and did some stuff myself which really made me happy.

    Once I get my first NED out of the way, I am sure I will feel better and motivated.

    Best to you and your family.

    Mike
  • luv4lacrosse
    luv4lacrosse Member Posts: 1,410 Member
    Greg53 said:

    Diet/Lifestyle
    Mike,

    There's a ton of books out there on lifestyle and diet. If you're asking, the first 2 I'd recommend are "Anticancer" by David Servan-Schreiber. The other is "The China Study" by T. Colin Campbell. I can completely understand not giving up meats, etc. It's just a choice that I made. If you're interested in either of the books and can't find them, let me know and I'll get them over to you.

    My doc said the same thing about no exposure to smoke in a closed area. (In fact I was supposed to go to Fast-Eddies this weekend but passed on it because of the smoke there.) He said an occasional drink would not hurt and my limited research has shown that red wine and dark beers have antioxidents in them (probably just a rationalization on my part). Like I said I may or may not partake, but I'm giving my throat a rest til I'm a year out before I decide. I was not an alcholic by any means but I did more than my share of drinking prior to dx too. Probably much more than just a social drinker.

    The mucus/vomiting thing was my worst nightmare. I had it for 3 weeks after my treatments ended and that's when I lost a majority of my weight. Went from 200# down to 150#. Back up to 165# now and wouldn't mind getting back to 175#, but whatever, I'm happy without that extra weight. The mucus sucked for me more than anything, but it will get better faster than you imagine.

    And to be honest, 6 1/2 months out and I am doing great. Back to working 50-60 hours a week, which I plan on cutting down on. Eating is still a chore, but hey I'm still eating. Not much saliva, but my taste has come back (like everyone else - can't taste sweets, but don't need them either). Overall my enrgy level is steadily climbing and my biggest problem is finding enough time to fish, hike, volunteer and still work. Definitely have a different outlook though as I was the sterotypical workaholic. Trying to cut back my hours even as I write this so I can spend more time with the wifey, family and friends!

    Positive thoughts coming at ya!

    Greg

    LIFE CHANGES
    Thanks for the info. I will start looking for the books this week. I can relate to the hours at work and the stress. I am going to have to keep that in check, but already am starting to "not sweat the small stuff." I feel the same way with the alchohol, not even in the mood to entertain it right now. Who knows, some of the more drastic changes might not seem so drastic or hard to do as the months roll on.

    Good to hear from you, any time i do not see a regular on the site for a few weeks I always wonder if that person is OK. Good to hear you hit the ground running.

    I still want to puta face with a name, and once I am back on my feet, I would really like to meet you since we are so close by.

    Best to you and your family, you are a lucky guy!!

    Mike
  • forme
    forme Member Posts: 1,161 Member
    nkimber said:

    I know you will kick butt!!!
    I am just in the beginning of treatment but also have been told I have an "aggressive" cancer, by an onco with probably the worst bedside manner EVER. I definitely go through periods of fear, anxiety, and depression, and I think it's because of two things. One, what I have is so rare that there isn't a ton of info, and what is there is pretty grim if you ask me! I need to make myself STOP LOOKING at the internet becuase it just freaks me out. Instead, I need to know that everybody is different, and I am going to prove everybody wrong. I think you should feel the same way! You WILL NOT have a recurrance!!

    The other thing that really helps me is to do things that help me feel in control. The best way I can do this is with my diet and exercise. I have found that so many doctors and nurses don't pay any attention to diet and nutrition (or exercise for that matter), but it is SO important!!! I was a college athlete without the best natural athleticism, so I needed to do all I could to get an edge, and nutrition was always my answer. Thank God, because now I am obsessed with reading about different cancer-fighting diets. If you need any advice on what I have found, please let me know and I would love to pass on the info! You should also read the book Anti-Cancer if you haven't already. Very inspiring, empowering, and I think helpful too.

    Hang in there and you will kick butt and prove that doctor wrong!!!!

    Lots of hugs and prayers to you,
    Nicole

    Wow
    Hi Nicole,
    I just wanted to say that I love your attitude. I am a 2 time survivor and now have 2 different cancers going on. Attitude really makes a difference. You go girl, kick some cancer butt!
    Peaceful healing
    Lisha
  • santa6
    santa6 Member Posts: 29
    Glenna M said:

    I know the feeling...
    I know exactly what you are feeling!!! I was diagnosed with NSCLC adenocarcinoma in May '09 and two weeks later after having a PET scan I was diagnosed with SCC laryngeal cancer T3N0M0. Went through 35 rads and 3 Cisplatin and then 4 Stereotactic Radiosurgery for the lung. Both my rad and medical oncologists have made it pretty clear that it will be back. On my last visit to my medical oncologist he said I wouldn't need to see him again "until" it came back, not "if" it comes back. After my last CT scan in August I asked my rad oncologist if I could feel safe that the lung tumor was gone and his reply was "you can think that, for now". Maybe they feel this way about my cancers as neither were operable.

    I'm not sure why they both feel that it will be back, I think part of me doesn't want to know the answer.

    Like you, I worry about the future but when I start dwelling on it I remind myself that I am still here and still feeling well enough to enjoy each day. I do not take anything for granted and spend as much time with my family and friends as I can. I also remind myself that it may not be the cancer that gets me...no one knows how much time they have left or when they will die. I could be in a fatal car accident or numerous other scenarios so I try to live each day to the fullest and enjoy what I have.

    I don't know if this advice will help you or not but I have found that trying to help others who are going through this helps me to feel stronger. I just wish I was as good at taking my advice as I am giving it :)

    Stay strong Mike and don't let this horrible disease take away your ability to enjoy your life and your family. Feel free to PM me if you need to talk or vent as I will gladly help you through this.

    My best to you and your family,
    Glenna

    WHAT???
    This is very surprising to me. I was diagnosed with HPV+ SCC in neck, although never found the primary - just one cancerous node and 15 surrounding were clean. At the start of treatment my ENT/Oncol/surgeon(one doctor) told me I had at least a good 70% chance and that it was actually higher because they have found that HPV + SCC actually responds better to treatment.

    I'm just over 1 year out now. During my first follow up visit after treatment, the radiation oncologist mentioned that he had not seen a recurrence in situations similar to mine in the 13 years he has been practicing. Maybe our stages differ or your situation is different.

    A friend of mine also went through this, with SCC tumor located in the floor of his mouth under the tongue. He was told by his doc that if it does recurr, odds are 80% it recurrs in the first year and then the probability of recurrence drops off significantly from there.(He's two years out now)

    One thing I've learned from this, and it's documented repeatedly throughout this site, everyone is different. Statistics mean NOTHING.

    You might consider finding a doc with a little more optimism.
  • Skiffin16
    Skiffin16 Member Posts: 8,305 Member
    santa6 said:

    WHAT???
    This is very surprising to me. I was diagnosed with HPV+ SCC in neck, although never found the primary - just one cancerous node and 15 surrounding were clean. At the start of treatment my ENT/Oncol/surgeon(one doctor) told me I had at least a good 70% chance and that it was actually higher because they have found that HPV + SCC actually responds better to treatment.

    I'm just over 1 year out now. During my first follow up visit after treatment, the radiation oncologist mentioned that he had not seen a recurrence in situations similar to mine in the 13 years he has been practicing. Maybe our stages differ or your situation is different.

    A friend of mine also went through this, with SCC tumor located in the floor of his mouth under the tongue. He was told by his doc that if it does recurr, odds are 80% it recurrs in the first year and then the probability of recurrence drops off significantly from there.(He's two years out now)

    One thing I've learned from this, and it's documented repeatedly throughout this site, everyone is different. Statistics mean NOTHING.

    You might consider finding a doc with a little more optimism.

    DITTO
    My ENT has given me information quite similar to yours as for the first year being a milestone, and odds of recurrence being a very very low percentage in the 5 - 10% range....no guarantees on anything, but I'm opting for 0% recurrence.

    Best,
    john
  • luv4lacrosse
    luv4lacrosse Member Posts: 1,410 Member
    Skiffin16 said:

    DITTO
    My ENT has given me information quite similar to yours as for the first year being a milestone, and odds of recurrence being a very very low percentage in the 5 - 10% range....no guarantees on anything, but I'm opting for 0% recurrence.

    Best,
    john

    I too am looking to get past the one year mark and go from there. I will have my first PET in February. I just hope all will be well with the first one and I am sure I will feel better then. I sit at home recovering mostly by myself. Too much idle time on my hands and I start putting the "cart befor the horse" When I am occupied, I do not think about re occurrance at all. I plan to try to return to work in about two weeks. That will help me allot.

    Nice to hear from you John.

    Take care!!

    Mike
  • luv4lacrosse
    luv4lacrosse Member Posts: 1,410 Member
    Skiffin16 said:

    DITTO
    My ENT has given me information quite similar to yours as for the first year being a milestone, and odds of recurrence being a very very low percentage in the 5 - 10% range....no guarantees on anything, but I'm opting for 0% recurrence.

    Best,
    john

    I too am looking to get past the one year mark and go from there. I will have my first PET in February. I just hope all will be well with the first one and I am sure I will feel better then. I sit at home recovering mostly by myself. Too much idle time on my hands and I start putting the "cart befor the horse" When I am occupied, I do not think about re occurrance at all. I plan to try to return to work in about two weeks. That will help me allot.

    Nice to hear from you John.

    Take care!!

    Mike
  • luv4lacrosse
    luv4lacrosse Member Posts: 1,410 Member
    Skiffin16 said:

    DITTO
    My ENT has given me information quite similar to yours as for the first year being a milestone, and odds of recurrence being a very very low percentage in the 5 - 10% range....no guarantees on anything, but I'm opting for 0% recurrence.

    Best,
    john

    I too am looking to get past the one year mark and go from there. I will have my first PET in February. I just hope all will be well with the first one and I am sure I will feel better then. I sit at home recovering mostly by myself. Too much idle time on my hands and I start putting the "cart befor the horse" When I am occupied, I do not think about re occurrance at all. I plan to try to return to work in about two weeks. That will help me allot.

    Nice to hear from you John.

    Take care!!

    Mike
  • Skiffin16
    Skiffin16 Member Posts: 8,305 Member

    I too am looking to get past the one year mark and go from there. I will have my first PET in February. I just hope all will be well with the first one and I am sure I will feel better then. I sit at home recovering mostly by myself. Too much idle time on my hands and I start putting the "cart befor the horse" When I am occupied, I do not think about re occurrance at all. I plan to try to return to work in about two weeks. That will help me allot.

    Nice to hear from you John.

    Take care!!

    Mike

    Attitude
    Mike, keep up the good attitude, it's easy to let yourself become pre-occupied with what ifs...guilty myself. Just try to remember, you are an individual, not represented by a number or statistical percentage...everyone is different, especially concerning this. Tons and tons of factors and variables.

    Having more involved normal routines and people in your life can be good and it keeps your mind busy, open and fresh...

    Best,
    John
  • Jimbo55
    Jimbo55 Member Posts: 590 Member

    Myka, thanks so much for the reply. You are correct about the idle time. I actually had to drive myself to the hospital today to get a chest x ray. My Doc's wanted to make sure I did not have Pneumonia with the coughing trouble I have had. (No Pneumonia found)

    More importantly is I drove for the first time in 2 mos. and did some stuff myself which really made me happy.

    Once I get my first NED out of the way, I am sure I will feel better and motivated.

    Best to you and your family.

    Mike

    Stay Strong Mike
    Mike, keep up that positive attitude dude. Why wait until the 1st NED to get some motivation and feel better? I do realize its an easy thing to say, but why worry about your 1st scan now? Its not until February. Until then motivate yourself to become more healthy in whatever way works for you, whether it be lifestyle changes, a new hobby, exercise, plan your next vacation etc. Worry about that Feb scan in February, until then stay positive, stay strong. Cheers

    Jimbo
  • kingcole42005
    kingcole42005 Member Posts: 178
    fisrpotpe said:

    Precious Present
    No soft words this morning, it is all about the "Precious Present".

    For years until he died my doctor kept saying "we can not find it just keep having fun." that started 14 plus years ago.

    Yesterday a friend of mine on face book who went thru head and neck cancer almost two years ago and found out she has breast cancer 2 1/2 months ago, had double mastectomy, chemo and then radiation posted this, I love it

    We cannot change yesterday, and we cannot predict tomorrow, but we can live today. So be alive. Never let one day pass by without a smile.

    After going thru hell and on your road to recovery anything that comes in your way will be much easier to deal with.

    Congrats on making it thru your treatments.

    John

    I'm gonna post that and try to live by it
    I'm gonna post that and try to live by it as I am going through my treatment now. Just had surgery with my floor of my mouth replaced with a neck disection. Radition starting on 11/29. That is beautiful, so thank you.
  • luv4lacrosse
    luv4lacrosse Member Posts: 1,410 Member
    Jimbo55 said:

    Stay Strong Mike
    Mike, keep up that positive attitude dude. Why wait until the 1st NED to get some motivation and feel better? I do realize its an easy thing to say, but why worry about your 1st scan now? Its not until February. Until then motivate yourself to become more healthy in whatever way works for you, whether it be lifestyle changes, a new hobby, exercise, plan your next vacation etc. Worry about that Feb scan in February, until then stay positive, stay strong. Cheers

    Jimbo

    YOU ARE CORRECT
    Jimbo, you are correct about living in the day. I cannot control February. Some days are allot harder to deal with VS others.

    Thanks

    Mike
  • luv2cut1
    luv2cut1 Member Posts: 288

    YOU ARE CORRECT
    Jimbo, you are correct about living in the day. I cannot control February. Some days are allot harder to deal with VS others.

    Thanks

    Mike

    Some days are harder
    Mike,

    Some days are definitely harder than others! Pat's scan is Wednesday and, although I know I can't control the outcome, I want to. This board is wonderful in helping to keep me focused on living the day and relishing all of the good times we do have. I did hear a quote once - it may have been on this board - "You are cancer free until someone tells you otherwise". I try my best to keep that in my mind. Hang in there and know that I think of you often.

    Myka
  • luv4lacrosse
    luv4lacrosse Member Posts: 1,410 Member
    luv2cut1 said:

    Some days are harder
    Mike,

    Some days are definitely harder than others! Pat's scan is Wednesday and, although I know I can't control the outcome, I want to. This board is wonderful in helping to keep me focused on living the day and relishing all of the good times we do have. I did hear a quote once - it may have been on this board - "You are cancer free until someone tells you otherwise". I try my best to keep that in my mind. Hang in there and know that I think of you often.

    Myka

    THINKING OF YOU ON WEDNESDAY
    Thanks Myka. I will be praying for you and Pat & family for good news on Wednesday. Living "in the day" is much harder than I thought. I have been used to me "steering the world" in the direction i wanted, not the world steering me with no control over it. This is the "real world" and we must accpt and deal with what comes our way.

    Here's to a great Wednesday!!

    BEST!!!

    Mike