Tomorrow is a big day---UPDATE disappointing
Still have to go by my HMO and pick up a copy of my last two PET Scans. They were copied but they couldn't find them on Friday. Grrrrr! Will be there at 8 am to hopefully get them or I will have to postpone the appointment which is at 12:30 and a two 1/2 hour drive from home.
*******************************
Update--got the scans and made it to the appointment on time. Dr. Lowy agrees with my surgeon--no surgery, just chemo. I am sooooooo disappointed. I understand why better now, but it still sucks. The rationale is that the cancer has gone to the lymph nodes (specifically illiac lymph nodes) and that means it is systemic and surgery will only remove visable disease. Also surgery suppresses immune system and increase growth factors to heal--both are conducive to cancer growth. So, I will try to be a good girl and take my meds.
I am changing my diet to no sugar, more veggies, less meat and am looking into supplements to help the chemo be more effective and to make my body less hospitable to cancer. I'm disappointed but not willing to give up yet!
Comments
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Good luck tomorrow.
You might try and stop in to visit Dr. Arno Mundt...radio-oncologist at Moore's. He's a genius and a very cool guy. Thinks way outside the box and might have another thought as a possible treatment option. Always worth some new input. He did miracles for me. Laurie0 -
thanksbiglaur said:Good luck tomorrow.
You might try and stop in to visit Dr. Arno Mundt...radio-oncologist at Moore's. He's a genius and a very cool guy. Thinks way outside the box and might have another thought as a possible treatment option. Always worth some new input. He did miracles for me. Laurie
I'll keep him in mind. My referral is only for Dr. Lowy but I'll ask him. my tumors are very low and radiation is a possibility.0 -
Traci, I'm very new on heretraci43 said:thanks
I'll keep him in mind. My referral is only for Dr. Lowy but I'll ask him. my tumors are very low and radiation is a possibility.
Traci, I'm very new on here and I'm also new with my cancer diagnosis. But I am in treatment for colorectal cancer. I don't know if your's is similar to mine, but it sounds like it may be. I did chemo and radiation to shrink my tumor first ( surgeons decision/suggestion) and this gave the surgeon more room to work with for my surgery to remove the tumor. I did have surgery on Oct 8th.
Gail0 -
hmmmplh4gail said:Traci, I'm very new on here
Traci, I'm very new on here and I'm also new with my cancer diagnosis. But I am in treatment for colorectal cancer. I don't know if your's is similar to mine, but it sounds like it may be. I did chemo and radiation to shrink my tumor first ( surgeons decision/suggestion) and this gave the surgeon more room to work with for my surgery to remove the tumor. I did have surgery on Oct 8th.
Gail
Gail - Mine is a recurrance and is not on the colon at all. It's a 2 cm tumor very near the rectum with as of last count 3 lymph nodes involved. It seems my two recurrences have both been in the peritonal cavity and not involving in organs, for which I'm thankful. Although, I understand that liver or lung tumors are easier to treat than this.
I hope your surgery went well and you are doing well. Traci0 -
Gailplh4gail said:Traci, I'm very new on here
Traci, I'm very new on here and I'm also new with my cancer diagnosis. But I am in treatment for colorectal cancer. I don't know if your's is similar to mine, but it sounds like it may be. I did chemo and radiation to shrink my tumor first ( surgeons decision/suggestion) and this gave the surgeon more room to work with for my surgery to remove the tumor. I did have surgery on Oct 8th.
Gail
I just wanted to welcome you to the board.0 -
Tracitraci43 said:hmmm
Gail - Mine is a recurrance and is not on the colon at all. It's a 2 cm tumor very near the rectum with as of last count 3 lymph nodes involved. It seems my two recurrences have both been in the peritonal cavity and not involving in organs, for which I'm thankful. Although, I understand that liver or lung tumors are easier to treat than this.
I hope your surgery went well and you are doing well. Traci
Oh I see...well I do wish you the best of luck. Even though I am new with all of this, I feel like I have been through so much. I have so many questions myself, but feel I may have some info for other's. Thought's, well wishes, and prayers are with you!
Yes, for my surgery, Dr says he got it all. I hate the iliostomy, and I'm very glad it will be reversed soon. I give so much credit to all the ostomates out there!
Gail0 -
Finger crossed
That you get those scans in time and make it to your appointment.
I wanted to wish you luck, and am thinking about you.
Winter Marie0 -
Hey Traci
It's good to hear that you made it to SD on time. I'm sorry that you can't just have your surgery as you wanted. I'm sure that with the lymph node involvement the doctors really want to treat that as effectively as possible. Be a good girl and take your medicine.
I always think that supplementing and eating right is a good thing. Don't worry so much about all sugar as it's the refined processed sugar that seems to be the worse. Our bodies do need sugar ... just not all the white refined sugar that seems to be everywhere. Let us know what you find out in regards to the supplements you take and remember to let the onc know which ones so they help treatment and not hinder it.0 -
Lynph nodesLori-S said:Hey Traci
It's good to hear that you made it to SD on time. I'm sorry that you can't just have your surgery as you wanted. I'm sure that with the lymph node involvement the doctors really want to treat that as effectively as possible. Be a good girl and take your medicine.
I always think that supplementing and eating right is a good thing. Don't worry so much about all sugar as it's the refined processed sugar that seems to be the worse. Our bodies do need sugar ... just not all the white refined sugar that seems to be everywhere. Let us know what you find out in regards to the supplements you take and remember to let the onc know which ones so they help treatment and not hinder it.
I got them affected too , in retroperitoneal area, we are radiating it and once radiated will remove it with surgery, so nobody told me about what you have been told! what about other opinion?
Have a big hug.0 -
Hi Traci,
I can't offer any
Hi Traci,
I can't offer any advice, but I just wanted to let you know that my thoughts and prayers are with you. Best wishes always, Cynthia0 -
fellow HIPECtiteCrow71 said:Fellow Hipectite
Hey Traci - I hope you have a successful day today.
Let us know how it went when you get a chance.
Roger
Cool name. As you can see it didn't go as well as I hoped. I do trust Dr. Lowy and wish I could have had surgery. I hope the chemo does the job this time.
When did you have HIPEC? How are you doing?0
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