Getting us all on the same page....

Mawty said:

Thanks, Carlene - nice idea
Diagnosed November 2008
What Stage 3C
I am the Patient
Not sure where the cancer started but ovarian and secondary something.
Highest CA125 58
Lowest CA125 22
Now 22
Current status For the first time in 2 years (nearly) I am not on chemo. The doctor felt since I was at 22 we could take the chance for a break because Taxol seems to be the only drug that works on me and my body was overloaded. She said she doesn't have much more in the arsenal because we've tried a lot. I'm living every day to the fullest right now!

Next appointment: November 2

Wow you mind reader!!!!
I can't believe it!!! I was in the car today thinking of you guys or should I say girls! And thought I would start a thread asking for everyones stats!thanks Carlene you saved me a job! I was thinking of you all after the dj played Mariah Carey , A hero lies in you! Not really my kind of music, but I was blubbering listening to the words! God bless you all x (if you get a chance have a listen)

Mum2bellaandwilliam said:

Diagnosed march 2010 What
Diagnosed march 2010
What stage 3 (not sure about the letter bit! Onc has never said)
I am the daughter.
PPC
Highest ca125 gosh it was over 1000, I can't remember exactly would have to ask mum
Lowest so far. 26 after 3round of chemotherapy haven't been told since then , but I am assuming lower still,.
Mum has had 3 rounds of chemotherapy followed by debulking surgery ,1more chemotherapy so 2more lots of chemotherapy to go.surgeon has said he managed to remove all trace of the b*****d!!!!

bump
darndoris

When were you diagnosed?
When were you diagnosed? June 3 2009
What stage? 2C

Patient/OVC

What was your highest CA125? I don't remember..
What was your lowest? 5
What is it now? 5

I am NED

Kathryn

Mary Reporting
When were you diagnosed? (Jul, 2009)
What stage? (IIIc)

Are you the patient, or a caregiver: (patient)
OVCA, clear cell, or PPC? (OVCA)

What was your highest CA125? (366)
What was your lowest? (4)
What is it now? (4)

What's your current status? I am NED, following 18 weekly treatments Taxol and 6 treatments carboplatin via IP.

Good idea Carlene!
When were you diagnosed? (Jan, 2008)
What stage? (IV)

Are you the patient, or a caregiver: (patient)
OVCA, clear cell, or PPC? (presumed UPSC; c/b ovca or ppc, definitely papillary serous)

What was your highest CA125? (658, Apr '10)
What was your lowest? (8)
What is it now? (111)

What's your current status? (In treatment for recurrence, Sept '09, chemo since Jan '10, currently on Gemzar)

--Annie

Great thread
When were you diagnosed? (Oct. 14, 2010)
What stage? (Ic)

Are you the patient, or a caregiver: (patient)
OVCA, clear cell, or PPC? (clear cell )

What was your highest CA125? (50)
What was your lowest? (no update as yet)
What is it now? (no update)

What's your current status? (to start Chemo Nov. 19th; under treatment also for possible blood clot formation...Lovenox injection 1x a day)

Next follow up on Nov. 5th perhaps I will get updated CA 125 numbers.

kayandok said:

good idea
DX June 2007

Stage IIIC grade 3

I am the patient but not always patient
OvCa papillary serous carcinoma

HIghest CA125 was 489
Lowest was 5
Current status is 75

I am on 4th line chemo (carbo and dense dose taxol), that started in September 10 to treat recurrence from November 2008, (cis/gem and doxil help keep it bay, but not NED.

Kathleen

Thanks...great idea

When were you diagnosed? (Dec, 2009)
What stage? (IIIc)

Are you the patient, or a caregiver: (patient)
OVCA, clear cell, or PPC? (PPC)

What was your highest CA125? (64)
What was your lowest? (8)
What is it now? (11)

What's your current status? (I am NED, following 6 treatments of Carbo/Taxol) and 4 IP treatments of cisplatin and taxol.

Signing the Page too
When were you diagnosed? (January 28, 2009)
What stage? (IIIc)

Are you the patient, or a caregiver: (patient)
OVCA, clear cell, or PPC? (OVCA)

What was your highest CA125? (769)
What was your lowest? (2.3)
What is it now? 15 or 20 (two diff. ref. labs, but still within normal limits)

What's your current status? I am NED, following 6 treatments of Carbo/Taxol that ended July, 2009.
Oct. 26, 2010 found me on vacation with a partial small bowel obstruction- resolved in hospital. I feel well, but terrified of another bowel obstruction! I will have another CA-125 in Dec. if I'm not away celebrating the birth of our first grand-daughter

Counting my Blessings daily and sending up prayer 'bumps' for all

Adding my info
When were you diagnosed? September 2008
What stage? (IIIc)

Are you the patient, or a caregiver: (patient)
OVCA, clear cell, or PPC? (OVCA)

What was your highest CA125? (380) What was your lowest?(5) What is it now? (16)

What's your current status? (I started out with 8 rounds of carbo/taxotere, finished in Feb.09. was NED, at that point, started a year of taxol maintenance, interrupted in November of '09 with a complete bowel obstruction and surgery, continued maintenance after that until June of ,10.'Supposedly NED at that time, but I don't think the CT showed everything.
'Went in this month for 3 month, thought I had bowel obstruction, my CA125 was only 14, so he felt good about that(I didn't as baseline is 5) They did a CT to check for bowel issues and found enlarged lymph nodes, had PT/CT, which showed more cancer. SO, I am now starting a 6 treatment of carbo/doxil.. THe nodes are also in inoperable places, not good.
I also have a new Doctor, as my left the practice, so that is an adjustment....