Food Matters
Comments
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Hey Nana:
It is my understanding the clinic costs around $5,500 per week. You have been NED for a while so why do you want treatment from them? I read their treatment is pretty intense. Check their web site but I think they have some type of clinic or something around San Diego. There was a thread on them about 2 weeks ago.
Don't forget to keep us informed on anything you find out. I'm on the fence about them. Some people swear by Gerson and some think it is quackery so any first hand info you can pass along would be appreciated.
Take care - Tina0 -
Hi, well dogeotina said:Hey Nana:
It is my understanding the clinic costs around $5,500 per week. You have been NED for a while so why do you want treatment from them? I read their treatment is pretty intense. Check their web site but I think they have some type of clinic or something around San Diego. There was a thread on them about 2 weeks ago.
Don't forget to keep us informed on anything you find out. I'm on the fence about them. Some people swear by Gerson and some think it is quackery so any first hand info you can pass along would be appreciated.
Take care - Tina
Their office is in San Diego but they practice in Mexico.0 -
Vitamin C and ChemoNana b said:Hi, well do
Their office is in San Diego but they practice in Mexico.
For those on active chemo, please be cautious about taking high dose Vitamin C.
An integrative medicine specialist at MSKCC recommended me against it, per the following study.
"Supplementing With Vitamin C May Reduce Effectiveness of Chemotherapy Drugs, Study Shows"
http://www.webmd.com/cancer/news/20081001/vitamin-c-chemotherapy-bad-combo
-Chip0 -
Been on High dose IV vitamin C for one monthunknown said:This comment has been removed by the Moderator
to deal with the 2 metabolic <1cm nodules bilateral in my lungs. No side effects noted and able to continue working and exercise and weightlifting (modified because of port placement) I am following the University of Kansas protocol with my primary medical oncologist's support. I will be scanned the second week of December and hoping for stabilization. Still haven't had the lung biopsy yet though will see the thoracic surgeon soon for a consult. (was going to be tomorrow but there is a winter storm in the way of me in central Wyoming and Salt Lake city tonight and tomorrow.) I had a port placement a month ago too to get the 2-3x/week infusions and my oncology nurse has been amazed at how quickly that has healed. IV Vitamin C is also documented to be very helpful in healing from surgery (my internal med/anthroposophical doc wanted me on it before a lung biopsy. I also would stay on IV Vitamin C if I have to go on chemo.
all the best, Leslie0 -
This comment has been removed by the Moderatorlesvanb said:Been on High dose IV vitamin C for one month
to deal with the 2 metabolic <1cm nodules bilateral in my lungs. No side effects noted and able to continue working and exercise and weightlifting (modified because of port placement) I am following the University of Kansas protocol with my primary medical oncologist's support. I will be scanned the second week of December and hoping for stabilization. Still haven't had the lung biopsy yet though will see the thoracic surgeon soon for a consult. (was going to be tomorrow but there is a winter storm in the way of me in central Wyoming and Salt Lake city tonight and tomorrow.) I had a port placement a month ago too to get the 2-3x/week infusions and my oncology nurse has been amazed at how quickly that has healed. IV Vitamin C is also documented to be very helpful in healing from surgery (my internal med/anthroposophical doc wanted me on it before a lung biopsy. I also would stay on IV Vitamin C if I have to go on chemo.
all the best, Leslie</p>0 -
Kathyunknown said:This comment has been removed by the Moderator
Yes I'm doing it alone right now since both my oncologists have said that waiting and watching the nodules is one of the options (little change from June to the Sept scan). I chose that so that I could get on the Vitamin C first, especially before the lung biopsy. I also wanted to be on it if/when I have to start chemo. So glad to hear that it's making a difference in how you feel! I feel great, and continue to feel stronger though that was happening before I went on the Vitamin C. Also have been honing diet and doing Chi Gung which has also helped with energy levels. I am thrilled that we will be able to compare notes.
all the best, Leslie0 -
nice discussion...lesvanb said:Kathy
Yes I'm doing it alone right now since both my oncologists have said that waiting and watching the nodules is one of the options (little change from June to the Sept scan). I chose that so that I could get on the Vitamin C first, especially before the lung biopsy. I also wanted to be on it if/when I have to start chemo. So glad to hear that it's making a difference in how you feel! I feel great, and continue to feel stronger though that was happening before I went on the Vitamin C. Also have been honing diet and doing Chi Gung which has also helped with energy levels. I am thrilled that we will be able to compare notes.
all the best, Leslie
nice discussion...0 -
interseting
interesting0 -
diet, supplements, IV C with chemo
We have adapted some ideas of the Gerson diet into our diet plans, after combining others' point of view too. This includes potassium, magnesium, iodine content, natural, T3 content thyroid compound for fT3 thyroid normalization, and a vegetable laden ginger-onion-garlic soup at lunch and dinner, daily. But no coffee, either way.
We started IV vitamin C the day after surgery in April, wanted IV vitamin C same day as surgery but it didn't happen. When I talked with Brightspot Clinic in KS about IV C in April, they were very supportive about high dose supplements (D3, E succinate + natural E, K2, coQ, lipoic, fish oil, etc) and chemo. One of our doctors got the IV C protocol from U Kansas. Today was IV C #108, 75 grams C, at home. IV vitamin C, along with lots and lots of supplements, helps control wife's toxicity effects from 5FU to stay on daily oral chemo, plus cimetidine. Wife is likely in the 95-98th percentile of 5FU toxicity reactions.
Although my wife had some 5FU toxicity build up last month, after several months straight on oral chemo and then an adjustment, she's never had a chemo "sick day". WBC is reasonably good, 7+ most of the time, the CA 19-9 biomarker is marching down, and she's still on continuous chemo.0 -
IV Cunknown said:This comment has been removed by the Moderator
Kathy,
I go to Cancer Treatment Centers of America in IL. My first treatment is Nov 1st. I am also going to be on the folfori. I'm going to place a call tomorrow and tell them I would like to have an IV C also! Thanks for this interesting read. I've not heard of this before!!0 -
This comment has been removed by the Moderatorritaclough said:IV C
Kathy,
I go to Cancer Treatment Centers of America in IL. My first treatment is Nov 1st. I am also going to be on the folfori. I'm going to place a call tomorrow and tell them I would like to have an IV C also! Thanks for this interesting read. I've not heard of this before!!0 -
Carefulllllllll! Coretta
Carefulllllllll! Coretta Scott King went through a similar treatment with a Mexican clinic that quickly went out of business after she left. You can google this information as i don't know the particulars. All i'm saying is do your homework before you go south of the border.0 -
Hi Kathyunknown said:This comment has been removed by the Moderator
I'm going to check this out with my medical onc and with the UCLA doc that I'm going to in a few weeks for nutritional/supplement counciling. I don't know where I'd go or how much this costs, but I'd be willing to give it a shot! I live in the Los Angeles area, so someone has to do this somewhere close by. Thanks, Traci0 -
Rita keep us postedritaclough said:IV C
Kathy,
I go to Cancer Treatment Centers of America in IL. My first treatment is Nov 1st. I am also going to be on the folfori. I'm going to place a call tomorrow and tell them I would like to have an IV C also! Thanks for this interesting read. I've not heard of this before!!
I hope you do well. Let us know how treatment goes. My MIL is thiking of going there, she's got stage IV lung cancer. Best wishes, Traci0 -
This comment has been removed by the Moderatorketziah35 said:Carefulllllllll! Coretta
Carefulllllllll! Coretta Scott King went through a similar treatment with a Mexican clinic that quickly went out of business after she left. You can google this information as i don't know the particulars. All i'm saying is do your homework before you go south of the border.0
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