Chemo starting next week, have some questions
Hubby supposed to start chemo Wed. It keeps getting postponed for stupid reasons IMO, but looks like Wed is finally the day.
He was asked to do a Calcium/Magnesium study. He has gone back and forth on if he wants to or not...until I read the thread on here where Craig was telling about the possible benefits of taking Magnesium, he then decided, yes, he would do it.
I am all for helping out with studies, but now I want him to have it, maybe it will work for him. If he does the study there is no guarantee he will get the Cal/Mag and not placebo.
Can we not just ask Onc to give it to him? Is the cost large for it, or is it included in the chemo drugs charge? (which his new coverage pays for as major medical)
If it's not charged in with the chemo then I would need to know so I can make sure we can pay for it.....
In fact I guess I need to know how the chemo is charged in general?? Are the IV anti-nausea meds charged seperate? These may seem like stupid questions, but need to be prepared financially.
I have wanted to post so many times in the last week. Hubby really resisting the chemo, it's been so hard to be supportive yet firm that it is so important. This is so hard, so depressing, so scary, so....I don't even know the word. ))o:
I am sorry to whine, just been one of those weeks I guess. One of those weeks where sticking my head in the sand sounds good, but I did that last year when he refused surgery and now it's 100 x worse than it was. I feel like I am always arguing with him regarding his treatment....
You are all in my prayers and thoughts everyday, thank you for listening and any answers you can provide!
Chriss
Comments
-
Hi Kathy! I was surprisedunknown said:This comment has been removed by the Moderator
Hi Kathy! I was surprised when I read Craig talking about it...wondered why a study???
Remembered that the Onc nurse told my husband that the Cal/Mag was something they used to always give, that was in response to his question re if it could hurt him in any way to take it.
At the time I was fuming over the fact that his treatment had been postponed and didn't think to ask her why they stopped...0 -
call med ins company and ask
call med ins company and ask for case manager to assist you and spouse for up coming treatments, how they will be covered, what will be covered, what your responsible for. If your spouse is part of a study, find out what study covers, if ins will contribute, and what your part is. Their is a billing dept at the DR office/center that can answer how each procedure, medication, and treatment is coded and submitted to med ins co. From there you can find out from either case mg or a manager/supervisor in claims dept what is authorized and if and what your responsible for.
If you hear about magnesium studies and they tout
Magnesium and Cancer - How Magnesium Cures Cancer and
Magnesium, The Nutrient That Could Change Your Life:
then i would question their claims. If on the other hand, if you see articles like the one below, then it can be beneifical
In Colon Cancer Patients, Calcium and Magnesium Reduce Chemo Neurological Side Effects
http://www.endonurse.com/news/2008/06/in-colon-cancer-patients-calcium-and-magnesium-re.aspx
Researchers in the North Central Cancer Treatment Group (NCCTG) have shown that patients who receive intravenous calcium and magnesium before and after the chemotherapy drug oxaliplatin for the treatment of advanced colon cancer experience a significantly reduced incidence and severity of neurological side effects (neurotoxicity). This reduction increases the likelihood that patients are able to complete a full course of treatment. The findings were released May 15 as part of the 44th annual meeting of the American Society of Clinical Oncology.
"There have been limited studies and anecdotal stories about the effectiveness of calcium plus magnesium in reducing neurotoxicity caused by oxaliplatin," says Daniel Nikcevich, MD, PhD, an oncologist at St. Mary’s Duluth Clinic in Duluth, Minn., a member of NCCTG and study co-chair.
"We designed a double-blind, placebo-controlled study that confirmed the effectiveness of calcium plus magnesium in reducing debilitating neurological sensitivity associated with oxaliplatin, such as pain in the hands, fingers, feet and toes. In the past, these side effects have caused patients to stop treatment and, therefore, not receive critical therapy."
Each year in the United States, 150,000 patients are diagnosed with colon cancer, and approximately 50 percent of those develop advanced colon cancer. Oxaliplatin, in combination with other chemotherapy drugs such as 5-fluorouracil (5-FU), has emerged as a standard of care of first-line therapy for advanced colon cancer. However, oxaliplatin can cause both acute and chronic cumulative sensory neurological problems including pain, numbness and tingling that can prevent patients from completing treatment.
In the study, 50 of the 102 patients enrolled received intravenous calcium and magnesium along with oxaliplatin-based chemotherapy, while 52 patients received oxaliplatin-based adjuvant chemotherapy for colon cancer and an intravenous placebo. Study results showed that the use of calcium and magnesium infusions before and after oxaliplatin was associated with a significant decrease in the incidence and severity of neurotoxicity, and it also delayed the time to the onset of neurotoxicity on oxaliplatin therapy.
Calcium and magnesium are an easily administered, safe treatment option for oxaliplatin-induced neurotoxicity. "Some initial reports from other studies claimed that the use of calcium and magnesium reduced the activity of oxaliplatin-based chemotherapy," says Axel Grothey, MD, an oncologist at Mayo Clinic and study co-chair. "However, we have definitive results from an independent, blinded radiologic review that demonstrate no negative influence of calcium and magnesium on the outcome for oxaliplatin-based chemotherapy."
"Now that we have shown the effectiveness of calcium and magnesium in reducing oxaliplatin-induced neurotoxicity, a further step may be to evaluate the benefit of calcium and magnesium in reducing neurotoxicity caused by other medications," says Nikcevich. "Many other commonly used chemotherapy agents cause neurological sensitivity. By applying our study design, we can test the effectiveness of calcium and magnesium when used with other treatments."
This study was done as part of a program coordinated by Charles Loprinzi, MD, a medical oncologist at Mayo Clinic Rochester. The program he leads has conducted more than 50 clinical trials designed to find ways to prevent or treat untoward symptoms related to cancer and cancer therapy. This includes three trials to evaluate ways to treat established neuropathy caused by chemotherapy and three additional studies to try to prevent such toxicity. Additional trials are in development to find other ways to alleviate this toxicity.
Source: Mayo Clinic0 -
Chriss
You should be able to talk to your onc about adding this into your infusion...I'm sure there is an some type of associated charge for it, but it's really worth a cycle to see if it is going to help. It works for some patients and for others it does not - but you won't know until you try it.
When I started out, I was not given it or even offered. As I explained to my onc about the neuropathy and associated effects, I noticed one day during my infusion, that I had a different bag of medicine hanging from my tree and asked the nurse about it. She told it was "The Mag." I read the bag and saw it was Magnesium Sulfate.
Right after that infusion, things got better (in that regard) to tolerating cold drinks and lesser neuropathy in the fingers and such. I made sure it was on every infusion cycle afterwards.
It's one of the things I tout and like to talk about, because if it does work, it makes the delivery of Folfox more bearable and human.
-Craig0 -
Hi Craig!Sundanceh said:Chriss
You should be able to talk to your onc about adding this into your infusion...I'm sure there is an some type of associated charge for it, but it's really worth a cycle to see if it is going to help. It works for some patients and for others it does not - but you won't know until you try it.
When I started out, I was not given it or even offered. As I explained to my onc about the neuropathy and associated effects, I noticed one day during my infusion, that I had a different bag of medicine hanging from my tree and asked the nurse about it. She told it was "The Mag." I read the bag and saw it was Magnesium Sulfate.
Right after that infusion, things got better (in that regard) to tolerating cold drinks and lesser neuropathy in the fingers and such. I made sure it was on every infusion cycle afterwards.
It's one of the things I tout and like to talk about, because if it does work, it makes the delivery of Folfox more bearable and human.
-Craig
I talked with the
Hi Craig!
I talked with the Onc nurse today. She told me "No"...they do not give the mag anymore, they used to, but didn't see that it helped. I asked her if we could request it and she said "it just isn't part of our treatment, here...not sure if you could receive it at another facility". )o:
We meet DH's new Onc tomorrow ( Switching to be closer to home, same center, just a satellite office) I will ask him, I will BEG him to let us give it a try.
Hubby decided against the study...it was all I could do to get him to agree to get Chemo (looooong story) so I chose not to push the study...sometimes ya just gotta give. (o:0 -
the nurse said it didntokthen said:Hi Craig!
I talked with the
Hi Craig!
I talked with the Onc nurse today. She told me "No"...they do not give the mag anymore, they used to, but didn't see that it helped. I asked her if we could request it and she said "it just isn't part of our treatment, here...not sure if you could receive it at another facility". )o:
We meet DH's new Onc tomorrow ( Switching to be closer to home, same center, just a satellite office) I will ask him, I will BEG him to let us give it a try.
Hubby decided against the study...it was all I could do to get him to agree to get Chemo (looooong story) so I chose not to push the study...sometimes ya just gotta give. (o:
the nurse said it didnt help? studies show it does make a significant difference for many, see my post above. Were you able to find out the charges of the meds and treatments that you were concerned about?0 -
Hi Heartofsoul! I reallyHeartofSoul said:the nurse said it didnt
the nurse said it didnt help? studies show it does make a significant difference for many, see my post above. Were you able to find out the charges of the meds and treatments that you were concerned about?
Hi Heartofsoul! I really appreciated your article and plan on taking it with me tomorrow to appointment.
We are on COBRA which ends this month. Everything should be covered for his first treatment at 100%, then he starts with the high risk pool through our state.
Can't get that started until I get a Certificate of Creditable Coverage from my current insurance, so it's all a mess. Things will be covered retroactive, but it's kinda stressful to wait. As it is the person I talked to with the state would only keep repeating that Chemo is covered as major medical, he was unsure about specifics. Annoying.0
Discussion Boards
- All Discussion Boards
- 6 CSN Information
- 6 Welcome to CSN
- 121.8K Cancer specific
- 2.8K Anal Cancer
- 446 Bladder Cancer
- 309 Bone Cancers
- 1.6K Brain Cancer
- 28.5K Breast Cancer
- 396 Childhood Cancers
- 27.9K Colorectal Cancer
- 4.6K Esophageal Cancer
- 1.2K Gynecological Cancers (other than ovarian and uterine)
- 13K Head and Neck Cancer
- 6.3K Kidney Cancer
- 670 Leukemia
- 792 Liver Cancer
- 4.1K Lung Cancer
- 5.1K Lymphoma (Hodgkin and Non-Hodgkin)
- 237 Multiple Myeloma
- 7.1K Ovarian Cancer
- 61 Pancreatic Cancer
- 487 Peritoneal Cancer
- 5.5K Prostate Cancer
- 1.2K Rare and Other Cancers
- 537 Sarcoma
- 730 Skin Cancer
- 652 Stomach Cancer
- 191 Testicular Cancer
- 1.5K Thyroid Cancer
- 5.8K Uterine/Endometrial Cancer
- 6.3K Lifestyle Discussion Boards