Any hepatocellular liver cancer survivors out there?

2»

Comments

  • kohsin
    kohsin Member Posts: 29 Member
    #22
    stage4liver3 said:

    koshin
    Hi Koshin! Your profile is very similar to mine, and I wonder if you would share the name of your doctor and hospital with me. Mine has prescribed Sorafenib and I have undergone general radiation, but they are reluctant to offer any other treatment due to the size of the tumor. I'm not ready to give up!!

    stage4liver3
    AS long as the cancer does not spread to Lung, bone, or lymphs. Mine was a single mass no mets. Did the SIRT twice and Embolozation to shrink the tumor. The hospital is UIC medical center here in Chicago and the Radiologist is Dr. Bui and the Surgen is Dr. Jeung. He came from Korea and HCC is his specialty back in Korea. He has tons of experiences. Hope this helps and good luck..
  • tonyaskate
    tonyaskate Member Posts: 3
    #23
    stage4liver3 said:

    Liver resection
    Hi stage4liver. I chose my screen name having read your posts because our profile seems so similar, except that I am likely much older. My tumor is 11 cm now, and the doctors considered it to be unresectable or treatable because of the size. I am very surprised to hear that they operated on yours, and desperately want to consult with another doctor about this. Would you please share the name of your doctor and hospital with me?

    I can't give up now! I know this cancer can be beaten, and I need more time with my family!!

    liver resection
    Hi

    My tumor was 17cm when i had it removed, it was hanging on the right lobe of my liver. The surgery was much needed because the tumor was making me sick to my stomach. I live in Dallas and my surgeon had no problem removing the tumor.
  • cek-houston
    cek-houston Member Posts: 2
    #24
    stage4liver3 said:

    Liver resection
    Hi stage4liver. I chose my screen name having read your posts because our profile seems so similar, except that I am likely much older. My tumor is 11 cm now, and the doctors considered it to be unresectable or treatable because of the size. I am very surprised to hear that they operated on yours, and desperately want to consult with another doctor about this. Would you please share the name of your doctor and hospital with me?

    I can't give up now! I know this cancer can be beaten, and I need more time with my family!!

    Second Opinion
    I had a liver resection of over 11.6 cm in Houston at Methodist Hospital and teh man that performed the operation is Dr. John Goss. It's worth shooting your labs and CD's of tests run over to him. He resected 72% of my liver and I went through an RFA procedure about 3 months later and as of this past Thursday am cancer free. My resection took place in June of 2009 so it has been one year and four months since that time. If I can give anymore information or help in any way please let me know.

    Best to you!

    M
  • crossedfingers
    crossedfingers Member Posts: 5
    #25
    tonyaskate said:

    liver resection
    Hi

    My tumor was 17cm when i had it removed, it was hanging on the right lobe of my liver. The surgery was much needed because the tumor was making me sick to my stomach. I live in Dallas and my surgeon had no problem removing the tumor.

    hello there!
    my dad was also diagnosed with HCC. At first, his tumor was only 13 cm but they refused to operate it. It also located on his right lobe. Now, its 16 cm already, Im just wonderin, what hospital where you underwent your operation?

    Im hoping for your fast recovery.
  • crossedfingers
    crossedfingers Member Posts: 5
    #26
    tonyaskate said:

    liver resection
    Hi

    My tumor was 17cm when i had it removed, it was hanging on the right lobe of my liver. The surgery was much needed because the tumor was making me sick to my stomach. I live in Dallas and my surgeon had no problem removing the tumor.

    hello there!
    my dad was also diagnosed with HCC. At first, his tumor was only 13 cm but they refused to operate it. It was also located on his right lobe. Now, its 16 cm already, Im just wonderin, what hospital where you underwent your operation?

    Im hoping for your fast recovery.
  • crossedfingers
    crossedfingers Member Posts: 5
    #27
    tonyaskate said:

    liver resection
    Hi

    My tumor was 17cm when i had it removed, it was hanging on the right lobe of my liver. The surgery was much needed because the tumor was making me sick to my stomach. I live in Dallas and my surgeon had no problem removing the tumor.

    hello there!
    my dad was also diagnosed with HCC. At first, his tumor was only 13 cm but they refused to operate it. It was also located on his right lobe. Now, its 16 cm already, Im just wonderin, what hospital where you underwent your operation?

    Im hoping for your fast recovery.
  • SarahD
    SarahD Member Posts: 139
    #28
    crossedfingers said:

    hello there!
    my dad was also diagnosed with HCC. At first, his tumor was only 13 cm but they refused to operate it. It was also located on his right lobe. Now, its 16 cm already, Im just wonderin, what hospital where you underwent your operation?

    Im hoping for your fast recovery.

    crossed fingers
    How old is your father and what is his general health like? Any other problems? Surgeons take that into consideration regarding an operation.
  • crossedfingers
    crossedfingers Member Posts: 5
    #29
    SarahD said:

    crossed fingers
    How old is your father and what is his general health like? Any other problems? Surgeons take that into consideration regarding an operation.

    tnx for the reply
    he is 63 and is in good condition. not bedridden and as what the dr. said he is strong for having such a disease. The problem is, it has been said this past week that the meds are not working anymore. When we knew about his cancer, we had a second opinion and they said the same thing.
  • laureliete
    laureliete Member Posts: 1
    #30
    SarahD said:

    crossed fingers
    How old is your father and what is his general health like? Any other problems? Surgeons take that into consideration regarding an operation.

    My dad was given 3 mos to live 3 yrs ago and is doing great
    Dear Sarah Just wanted to tell you about Essiac, in case you don't know about it. It is a super immune builder that has been around for a long long time. It is mostly known for "getting rid" of cancer but has many other uses. My Dad after surgery then chemo was told chemo wasn't working. He was given three months and told to contact hospice - which my Mom refused to do - My Dad started taking E-Tea (that's the brand name he took - there are a few different kinds). He originally had kidney cancer and then it made its way to his liver. He no longer has cancer anywhere. Doctors cannot believe it. It has been almost 3 years. Needless to say we are thrilled. E-tea has worked for any type of cancer. I'm writing to you though because of the liver cancer. My dad started off taking 3 capsules twice a day. No food 3 hours before or 3 hours after. He set the alarm for 7 am took the pills went to sleep and then had breakfast at 10 am. He took the second set of three pills before he went to bed. He had MRI's every three months. The first MRI was WORSE it was so scary! The next one 3 mos later there was NO CHANGE (this is what we were waiting for) The next one cancer was smaller and then the next one smaller and then finally the cancer was gone. My Mom's friend did this same treatment 18 years ago. She had melonoma it went away and 5 years later got liver cancer and chemo wasn't helping her. She took E-Tea. My Dad took it exactly like she did. There are many many e-tea survivor stories. One man I know of had a liver damaged so bad from drinking the man was given no chance of survival. My Mom told his sister about my Dad and E-Tea. She started her brother on it and it is now 6 mos later and he is completely better. Doctors are baffled. We aren't!!! The main reason I am telling you this is because people who have had cancer seem to get it again. My Dad is on a maintenance does of E-Tea to prevent a recurrence. This is standard practice. He takes one pill twice a day. You can get it at some health food stores but it is around 30 dollars a bottle. You can order if from the manufacturer for under 20.00 a bottle and only 5 dollars for shipping no matter how many bottles are ordered. If someone has a hard time (nausea) taking 3 pills to begin with they should start with 1 in am and 1 in pm after a couple of days go to 2 then 3 twice a day. I haven't seen a recent post and was wondering how your dad is doing. I hope all is well.
  • 1962girl
    1962girl Member Posts: 2
    #31
    cek-houston said:

    Second Opinion
    I had a liver resection of over 11.6 cm in Houston at Methodist Hospital and teh man that performed the operation is Dr. John Goss. It's worth shooting your labs and CD's of tests run over to him. He resected 72% of my liver and I went through an RFA procedure about 3 months later and as of this past Thursday am cancer free. My resection took place in June of 2009 so it has been one year and four months since that time. If I can give anymore information or help in any way please let me know.

    Best to you!

    M

    liver cancer didn't come back
    Hi. Doctors found a golf ball sized tumor on my liver when I was 40. The statistics on liver cancer are pretty grim so I was terrified. But after the resection, the cancer never returned!! Don't listen to statistics. We are all different. And we are not just a statistic.
  • slg
    slg Member Posts: 200
    #32
    1962girl said:

    liver cancer didn't come back
    Hi. Doctors found a golf ball sized tumor on my liver when I was 40. The statistics on liver cancer are pretty grim so I was terrified. But after the resection, the cancer never returned!! Don't listen to statistics. We are all different. And we are not just a statistic.

    Congratulations 1962girl!!!
    I agree 100%. Oct. 2009 Doctors said my husband was not eligible for a liver transplant and now we are 4 days away from his follow up CT scan post Y-90 which will put him back in criteria for transpant.!!
    Many people have given us inspiration on this website and others and we hope to do the same for others.
  • Cjka
    Cjka Member Posts: 9
    #33
    laureliete said:

    My dad was given 3 mos to live 3 yrs ago and is doing great
    Dear Sarah Just wanted to tell you about Essiac, in case you don't know about it. It is a super immune builder that has been around for a long long time. It is mostly known for "getting rid" of cancer but has many other uses. My Dad after surgery then chemo was told chemo wasn't working. He was given three months and told to contact hospice - which my Mom refused to do - My Dad started taking E-Tea (that's the brand name he took - there are a few different kinds). He originally had kidney cancer and then it made its way to his liver. He no longer has cancer anywhere. Doctors cannot believe it. It has been almost 3 years. Needless to say we are thrilled. E-tea has worked for any type of cancer. I'm writing to you though because of the liver cancer. My dad started off taking 3 capsules twice a day. No food 3 hours before or 3 hours after. He set the alarm for 7 am took the pills went to sleep and then had breakfast at 10 am. He took the second set of three pills before he went to bed. He had MRI's every three months. The first MRI was WORSE it was so scary! The next one 3 mos later there was NO CHANGE (this is what we were waiting for) The next one cancer was smaller and then the next one smaller and then finally the cancer was gone. My Mom's friend did this same treatment 18 years ago. She had melonoma it went away and 5 years later got liver cancer and chemo wasn't helping her. She took E-Tea. My Dad took it exactly like she did. There are many many e-tea survivor stories. One man I know of had a liver damaged so bad from drinking the man was given no chance of survival. My Mom told his sister about my Dad and E-Tea. She started her brother on it and it is now 6 mos later and he is completely better. Doctors are baffled. We aren't!!! The main reason I am telling you this is because people who have had cancer seem to get it again. My Dad is on a maintenance does of E-Tea to prevent a recurrence. This is standard practice. He takes one pill twice a day. You can get it at some health food stores but it is around 30 dollars a bottle. You can order if from the manufacturer for under 20.00 a bottle and only 5 dollars for shipping no matter how many bottles are ordered. If someone has a hard time (nausea) taking 3 pills to begin with they should start with 1 in am and 1 in pm after a couple of days go to 2 then 3 twice a day. I haven't seen a recent post and was wondering how your dad is doing. I hope all is well.

    Thanks for the info.
    Thanks for the info. regardong e-tea. Is your dad using any other complementary treatments? Does he experience any side effects from it and is it ok to mix with prescription meds? It is so hard to think that treatment options are limited; this provides some hope! Does anyone know how or why it works? Thanks for your hope-inspiring post!
  • slg
    slg Member Posts: 200
    #34
    1962girl said:

    liver cancer didn't come back
    Hi. Doctors found a golf ball sized tumor on my liver when I was 40. The statistics on liver cancer are pretty grim so I was terrified. But after the resection, the cancer never returned!! Don't listen to statistics. We are all different. And we are not just a statistic.

    Congratulations 1962girl!!!
    I agree 100%. Oct. 2009 Doctors said my husband was not eligible for a liver transplant and now we are 4 days away from his follow up CT scan post Y-90 which will put him back in criteria for transpant.!!
    Many people have given us inspiration on this website and others and we hope to do the same for others.
  • Betta
    Betta Member Posts: 9
    #35
    laureliete said:

    My dad was given 3 mos to live 3 yrs ago and is doing great
    Dear Sarah Just wanted to tell you about Essiac, in case you don't know about it. It is a super immune builder that has been around for a long long time. It is mostly known for "getting rid" of cancer but has many other uses. My Dad after surgery then chemo was told chemo wasn't working. He was given three months and told to contact hospice - which my Mom refused to do - My Dad started taking E-Tea (that's the brand name he took - there are a few different kinds). He originally had kidney cancer and then it made its way to his liver. He no longer has cancer anywhere. Doctors cannot believe it. It has been almost 3 years. Needless to say we are thrilled. E-tea has worked for any type of cancer. I'm writing to you though because of the liver cancer. My dad started off taking 3 capsules twice a day. No food 3 hours before or 3 hours after. He set the alarm for 7 am took the pills went to sleep and then had breakfast at 10 am. He took the second set of three pills before he went to bed. He had MRI's every three months. The first MRI was WORSE it was so scary! The next one 3 mos later there was NO CHANGE (this is what we were waiting for) The next one cancer was smaller and then the next one smaller and then finally the cancer was gone. My Mom's friend did this same treatment 18 years ago. She had melonoma it went away and 5 years later got liver cancer and chemo wasn't helping her. She took E-Tea. My Dad took it exactly like she did. There are many many e-tea survivor stories. One man I know of had a liver damaged so bad from drinking the man was given no chance of survival. My Mom told his sister about my Dad and E-Tea. She started her brother on it and it is now 6 mos later and he is completely better. Doctors are baffled. We aren't!!! The main reason I am telling you this is because people who have had cancer seem to get it again. My Dad is on a maintenance does of E-Tea to prevent a recurrence. This is standard practice. He takes one pill twice a day. You can get it at some health food stores but it is around 30 dollars a bottle. You can order if from the manufacturer for under 20.00 a bottle and only 5 dollars for shipping no matter how many bottles are ordered. If someone has a hard time (nausea) taking 3 pills to begin with they should start with 1 in am and 1 in pm after a couple of days go to 2 then 3 twice a day. I haven't seen a recent post and was wondering how your dad is doing. I hope all is well.

    Where can I buy the E-tea ?

    jo

Discussion Boards