Good scan results - Yea!!!

JDuke
JDuke Member Posts: 438
edited March 2014 in Anal Cancer #1
Hey everyone - hopes this finds all of you in good spirits!

I was scheduled for a PET scan last week but insurance refused payment so I had a CT instead. CT scan results showed nothing in the liver and nothing in the pleura. Good news. I will be rescanned at the end of December. Not sure if that will be PET or CT. Mixed feelings about which is the most conclusive, but will just go with the flow. Still feeling a lot of fatigue post chemo, find this very frustrating. My Mom says it is because I refuse to slow down and I suppose she is right. I made two trips to north Florida ten days after my last chemo to be with my best friend (the one that accompanied me to MD Anderson) as her father was at a hospice facility following a bad fall. He suffered a subdural hematoma and never really regained full conciousness. I spent two days sitting with her. He passed away six days later and I returned for the services. It was really hard to see her suffering so. She was truly a Daddy's girl. Her Mom is at a ALF suffering with dementia, so sad. On a happier note, I attended a rockin' bachelorette lingerie party last weekend and had a great time. The wedding is this weekend and I am so looking forward to it. It will be lakeside at 5:00 pm. With the cooler temperatures we are experiencing, it should be lovely.

Focusing on the bright spots and feeling very grateful to be well enough to enjoy the pleasantries of my life. Thanking God for my blessings.

Take care and hugs to all,
Joanne

Comments

  • duckyann
    duckyann Member Posts: 159
    #2
    Yea so happy for your great
    Yea so happy for your great news. I am sorry about your friends father. I will keep you in my thoughts and prayers for exciting news again in December (that being good exciting news!)

    Take care
  • z
    z Member Posts: 1,414 Member
    #3
    duckyann said:

    Yea so happy for your great
    Yea so happy for your great news. I am sorry about your friends father. I will keep you in my thoughts and prayers for exciting news again in December (that being good exciting news!)

    Take care

    Joanne
    Hi Joanne, I'm so sorry about your friends father and mother. Your a good friend to have been there for her. When I went throught the VATS procedure my sister flew down to be with me. Although she didn't really have to do to much to help me, just the fact that she was here with me made all the difference in the world.

    I am so happy with your scan results, it is just the best news ever. I always have to be precertified for the pets and my oncologist has to justify the pet over the ct every time. I would imagine that your doctors are comfortable with the cts as they show clearly what is going on in there. As I had the 11mm lung nodule and the ct showed it at 11mms and when it came out it was 11mm so that gives me confidence in the ct scans.

    Have a great time at the wedding, as you know I live in the same area as you, and the weather has just been beautiful, no humidity.

    Lori
  • JDuke
    JDuke Member Posts: 438
    #4
    z said:

    Joanne
    Hi Joanne, I'm so sorry about your friends father and mother. Your a good friend to have been there for her. When I went throught the VATS procedure my sister flew down to be with me. Although she didn't really have to do to much to help me, just the fact that she was here with me made all the difference in the world.

    I am so happy with your scan results, it is just the best news ever. I always have to be precertified for the pets and my oncologist has to justify the pet over the ct every time. I would imagine that your doctors are comfortable with the cts as they show clearly what is going on in there. As I had the 11mm lung nodule and the ct showed it at 11mms and when it came out it was 11mm so that gives me confidence in the ct scans.

    Have a great time at the wedding, as you know I live in the same area as you, and the weather has just been beautiful, no humidity.

    Lori

    Lori
    Thank you so much for the information about the size of your nodule being consistent with how it appeared on the CT. That makes me feel much more confident of the CT accuracy. I suppose since I just had a PET six weeks prior to the request for this last one, the insurance company just would not go for it. The funny thing is that MD Anderson had sent me confirmation of a follow-up appointment with Dr. Eng and it was to follow a CT at their facility. I was actually going to call my Onc and ask why they were planning to PET instead of CT when I got the call from Moffitt that they were going to CT instead of PET. (Geez, that was confusing) So perhaps it was just suppose to turn out that way. I cancelled the appointment with MD Anderson. I feel confident that Moffitt is on the same page and do not feel the expense of another trip to Houston is necessary.

    You are right about the weather, no humidity!!! I have to laugh as that would really be important if I had my hair...with a wig all days are good hair days!!! I will be getting some two-sided tape though as I had a hysterical incident of it flying off in the parking lot the other day. You just gotta laugh!

    Smiles,
    Joanne
  • Sundanceh
    Sundanceh Member Posts: 4,392 Member
    #5
    Good for You!
    :)

    Continued success!

    -Craig
  • mp327
    mp327 Member Posts: 4,440 Member
    #6
    JDuke said:

    Lori
    Thank you so much for the information about the size of your nodule being consistent with how it appeared on the CT. That makes me feel much more confident of the CT accuracy. I suppose since I just had a PET six weeks prior to the request for this last one, the insurance company just would not go for it. The funny thing is that MD Anderson had sent me confirmation of a follow-up appointment with Dr. Eng and it was to follow a CT at their facility. I was actually going to call my Onc and ask why they were planning to PET instead of CT when I got the call from Moffitt that they were going to CT instead of PET. (Geez, that was confusing) So perhaps it was just suppose to turn out that way. I cancelled the appointment with MD Anderson. I feel confident that Moffitt is on the same page and do not feel the expense of another trip to Houston is necessary.

    You are right about the weather, no humidity!!! I have to laugh as that would really be important if I had my hair...with a wig all days are good hair days!!! I will be getting some two-sided tape though as I had a hysterical incident of it flying off in the parking lot the other day. You just gotta laugh!

    Smiles,
    Joanne

    I'm so happy for you!
    Hi Joanne!

    Congratulations on your great scan results! I have been thinking of you and wondering how things were going. It sounds like you are doing quite well and I'm so happy to hear that. Currently, I am the middle of a battle with my ins. co. over a PET scan that they gave me approval to have, but now are questioning the medical necessity of it. It's really stressing me out. Sometimes I wish my doctor would just start ordering CT scans for me so I wouldn't have to go through this! Apparently the CT's are very accurate.

    I wish you continued good news. May all the bad stuff be shrinking away to nothing so you can regain your health. As for "flipping your wig," yes, I think you just have to laugh about things like that. When the choice is either laugh or cry, I always prefer to laugh. I love your spirit! May God bless!

    Hugs--
    Martha
  • nonichol
    nonichol Member Posts: 170
    #7
    good spirits
    Wow, you are definitely in good spirits and you are a great friend. I am glad your news is good and that you are busy enjoying life despite your fatigue.
    Norma
  • sissy310
    sissy310 Member Posts: 300
    #8
    Awesome news to hear Joanne.
    Awesome news to hear Joanne. Sorry about your friend's situation but I am sure she was happy you were there for her.
  • lizdeli
    lizdeli Member Posts: 569 Member
    #9
    sissy310 said:

    Awesome news to hear Joanne.
    Awesome news to hear Joanne. Sorry about your friend's situation but I am sure she was happy you were there for her.

    Great news!
    Joanne
    What a relief! So glad to hear the wonderful news! I'm just got back into town froma business trip and signed on right away anxious to see your update. I'm so very happy for you.

    Liz
  • sephie
    sephie Member Posts: 650 Member
    #10
    JDuke said:

    Lori
    Thank you so much for the information about the size of your nodule being consistent with how it appeared on the CT. That makes me feel much more confident of the CT accuracy. I suppose since I just had a PET six weeks prior to the request for this last one, the insurance company just would not go for it. The funny thing is that MD Anderson had sent me confirmation of a follow-up appointment with Dr. Eng and it was to follow a CT at their facility. I was actually going to call my Onc and ask why they were planning to PET instead of CT when I got the call from Moffitt that they were going to CT instead of PET. (Geez, that was confusing) So perhaps it was just suppose to turn out that way. I cancelled the appointment with MD Anderson. I feel confident that Moffitt is on the same page and do not feel the expense of another trip to Houston is necessary.

    You are right about the weather, no humidity!!! I have to laugh as that would really be important if I had my hair...with a wig all days are good hair days!!! I will be getting some two-sided tape though as I had a hysterical incident of it flying off in the parking lot the other day. You just gotta laugh!

    Smiles,
    Joanne

    your hair
    If you do not mind telling me, what type of chemo did you have and how many radiation tx???? just curious because i only lost patches of my hair and did not need a wig. I had 5FU with mitomycin and 27 tx of radiation . I was at MDA. i do think that it is important to compare. I was stage II with no obvious node invovment. thanks sephie
  • z
    z Member Posts: 1,414 Member
    #11
    sephie said:

    your hair
    If you do not mind telling me, what type of chemo did you have and how many radiation tx???? just curious because i only lost patches of my hair and did not need a wig. I had 5FU with mitomycin and 27 tx of radiation . I was at MDA. i do think that it is important to compare. I was stage II with no obvious node invovment. thanks sephie

    Sephie
    Hi Sephie, If your referring to Joannes wig, she went through tx for the lung plurea, and had a totally different treatment, than what she had for the anal cancer. Lori
  • sephie
    sephie Member Posts: 650 Member
    #12
    z said:

    Sephie
    Hi Sephie, If your referring to Joannes wig, she went through tx for the lung plurea, and had a totally different treatment, than what she had for the anal cancer. Lori

    thanks for clarifying
    z, thankyou for the clarification. Joanne, I am sorry that you had to go thru that in addition to everything else. Yea, for good scan results.
  • SueRelays
    SueRelays Member Posts: 485
    #13
    lizdeli said:

    Great news!
    Joanne
    What a relief! So glad to hear the wonderful news! I'm just got back into town froma business trip and signed on right away anxious to see your update. I'm so very happy for you.

    Liz

    LOVE TO see this good news
    LOVE TO see this good news Joanne!!! I, like you, find it hard to slow down, and I think we are just so glad to be hear and anxious to keep livin life! Glad you were able to be there for your friend, and able to attend the great party :)!!

    Keep it going!

    CHEERS!
  • Kenny H.
    Kenny H. Member Posts: 502 Member
    #14
    SueRelays said:

    LOVE TO see this good news
    LOVE TO see this good news Joanne!!! I, like you, find it hard to slow down, and I think we are just so glad to be hear and anxious to keep livin life! Glad you were able to be there for your friend, and able to attend the great party :)!!

    Keep it going!

    CHEERS!

    Congrats, love reading about
    Congrats, love reading about the good news!

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